Showing 831 - 840 of 912 annotations tagged with the keyword "Patient Experience"

Premenstrual Syndrome

Nelson, Sharon

Last Updated: Oct-07-1997
Annotated by:
Squier, Harriet

Primary Category: Literature / Poetry

Genre: Poem

Summary:

The narrator of this poem describes all the kinds of things that disrupt your life when you experience PMS (premenstrual syndrome): impatience, dissatisfaction, irritability, temper, feeling overwhelmed. You notice that others avoid you, your doctor tries to treat your symptoms, and everyone sympathizes with those around you for how difficult you are making their lives. In the end, though, how does a woman know that her PMS-related perceptions aren’t really the accurate ones, that her temporary unhappiness isn’t really justified, or that her everyday comforts aren’t illusions?

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Operation Wandering Soul

Powers, Richard

Last Updated: Sep-18-1997
Annotated by:
Poirier, Suzanne

Primary Category: Literature / Fiction

Genre: Novel

Summary:

Richard Kraft is about as burnt-out as a fifth-year resident in pediatric surgery can be. Overwhelmed by his stint in an inner-city, public hospital in Los Angeles, he seeks to hide from the misery of his patients by avoiding any personal connection with them. Then he meets twelve-year-old Joy, an Asian immigrant trying desperately to learn the puzzling ways of her new culture. She speaks words that trigger memories from Kraft's own childhood as the son of a U.S. agent in Joy's country, and he loses his distance.

He performs surgery on a life-threatening cancer in her leg, pulling back at the last minute in an unreasonable fear that he will hurt her if he cuts too deep. The implied result: incomplete excision of the cancer and a death sentence for the child he now tries, unsuccessfully to avoid. His avoidance is repeatedly foiled by Linda Espera, the physical therapist with whom he is falling in love and who will not let him abandon the emotional needs of any of the children in Joy's ward.

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Memento Mori

Spark, Muriel

Last Updated: Sep-16-1997
Annotated by:
Coulehan, Jack

Primary Category: Literature / Fiction

Genre: Novel

Summary:

Seventy-nine year old Dame Lettie Colson begins to receive anonymous phone calls from a man whose message is, "Remember, you must die." Soon, her octogenarian brother, her senile sister-in-law, and many of their tottery friends begin to receive similar phone messages.

The novel takes us through a year or so in the lives of this group of eccentric elderly upper-class Brits and a few of their not-so-privileged servants and caretakers. As they pursue the source of the "memento mori" message, we discover a complex matrix of infidelity and deception, ranging from youthful love affairs and harmless perversions to manipulation and blackmail. In the end, though, Death will not be denied.

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Brain Scan

Skloot, Floyd

Last Updated: Sep-16-1997
Annotated by:
Coulehan, Jack

Primary Category: Literature / Poetry

Genre: Poem

Summary:

The urgent voice in this poem tells the patient to "Be still." The patient is about to undergo a brain scan (CT or MRI?) and the poem consists of a series of instructions. Don't worry about the discomfort or the side effects of the dye, the poem demands, "forget that your cradled head / may reveal a hard secret soon," the only thing that matters is "the subtle / shading of mass, some new darkness afloat / in the brindled brain sea." [16 lines]

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The Virus

Skloot, Floyd

Last Updated: Sep-16-1997
Annotated by:
Coulehan, Jack

Primary Category: Literature / Poetry

Genre: Poem

Summary:

The author knows that the virus's attack "is not personal." His individuality means nothing to the virus. Yet, for three years he has been ill, he has been "occupied by an unseen / enemy," he has lost control. Thus, being human, he must take it personally.

In fact, as a result of the infection, he is no longer the self he once was, but has seen "the banks / of self erode." Though the virus has changed the story of the writer's life, the virus does not really need him "to live any more than faith / needs a body of truth / to thrive." [50 lines]

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The Night-Side

Skloot, Floyd

Last Updated: Sep-16-1997
Annotated by:
Coulehan, Jack

Primary Category: Literature / Nonfiction

Genre: Collection (Essays)

Summary:

This book is a series of essays about the illness experience. The author developed chronic fatigue syndrome (CFS) after a viral illness in 1988. Suddenly, this 41-year-old public policy analyst, who was also a successful writer and a competitive runner, was thrust into the world of severe disability. He developed subtle but extensive neurological deficits that affected his concentration and memory. For months he could hardly get out of bed. He discovered that not only was the cause of CFS unknown, many physicians did not even believe it was a "real" illness.

"Double Blind" tells the story of Skloot's participation in an ill-fated clinical trial of Ampligen, an experimental treatment for CFS. Other essays describe the author's experience with alternative medicine, including an intensive course of Ayurvedic "detoxification" ("Healing Powers") and a visit to Germany to encounter Mother Meera, an avatar of the Divine Mother ("Honeymooning With the Feminine Divine").

"Home Remedies" presents his comic experience with helpful calls and letters telling him how to get rid of the illness. Other essays deal with Skloot's learning to cope with chronic disability. A final section includes poems about the illness experience of several composers and artists (e.g. Carl Maria von Weber, George Gershwin, and Vincent van Gogh).

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Home Remedies

Skloot, Floyd

Last Updated: Sep-16-1997
Annotated by:
Coulehan, Jack

Primary Category: Literature / Poetry

Genre: Poem

Summary:

This eight-part poem presents the wisdom of home remedies. The first voice tells the sick person to drink the juice of half a lime each day. "No virus can stand up / to a lime." The second voice explains the toxic effects of electromagnetic waves. Another tells him to submerge himself in garlic. Still another says to "visualize little men / in white overalls / scrubbing the lesions / from your brain." With regard to diet, one home remedy advises abstinence from bread, vinegar, dairy products, bread, corn, caffeine, alcohol, chocolate, vitamins, fruit, meat, fish, and fowl. In the end the only solution is to "embrace your illness . . . . "[133 lines]

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Kitchen Table Wisdom

Remen, Rachel Naomi

Last Updated: Sep-15-1997
Annotated by:
Willms, Janice

Primary Category: Literature / Nonfiction

Genre: Collection (Essays)

Summary:

The author, a pediatrician by training who has gradually moved into psycho-oncology and training others in relationship centered care, writes about life in this collection of short vignettes and analyses. She blends stories of her own experiences as patient and as woman with those she has gathered from a long history of patient encounters. There is no temporal sequence, but the work is grouped into thematic segments. The author shares selected, carefully garnered and assessed narratives of life events intended to be spiritually healing to those who are ill or who care for the sick.

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Summary:

This is a collection of twenty-six first-hand accounts by women institutionalized in mental hospitals or "asylums" in America between the mid-nineteenth century and the end of World War II. The book is divided into four historical periods, each introduced by the editors with an essay contextualizing the narratives in relation to the history of the psychiatric establishment, and to the roles, perceptions, and experiences of women in American culture.

The accounts are all extracts from works published by the writers, usually as attempts to expose the injustices of the mental health system. Most of the writers are not well known, with the exceptions of the author Charlotte Perkins Gilman and the actress Frances Farmer, whose account concludes the book [see film annotation in this data base: Frances].

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The Island of the Colorblind

Sacks, Oliver

Last Updated: Jul-30-1997
Annotated by:
Coulehan, Jack

Primary Category: Literature / Nonfiction

Genre: Collection (Case Studies)

Summary:

In Book I Oliver Sacks describes his visit to Pingelap and Pohnpei in the Caroline Islands (now a part of the Federated States of Micronesia). On Pingelap (population 700) 5-10% of the people are completely colorblind; i.e. they have a rare hereditary condition called achromatopsia in which the retina has no functional cone cells. Rod cells, which normally provide peripheral and night vision, are their only source of vision. While partial colorblindness is common, achromatopsia is normally very rare. Sacks and Knut Nordby, a Norwegian scientist who is himself achromatopic, examined dozens of achromatopes on Pingelap and in a village of Pingelapese people on the larger Pohnpei.

In Book II Sacks takes the reader to Guam where he investigates (with his friend John Steele, a neurologist who lives on the island) the neurological disease called "lytico-bodig." The "lytico" form of this disease is a progressive paralysis similar to amyotropic lateral sclerosis, while the "bodig" form resembles parkinsonism. Both appeared in Guam after the Second World Way and now seem to be dying out. However, no one has ever determined their cause.

Sacks tells the story of his visit, while also discussing various hypotheses that have been considered and discarded over forty years of study. The last section of the book describes a trip to Rota, a small island north of Guam, where Sacks visits a forest of cycad trees and discusses his life-long fascination with these primitive plants.

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