Showing 811 - 820 of 887 annotations tagged with the keyword "Patient Experience"
This book is a series of essays about the illness experience. The author developed chronic fatigue syndrome (CFS) after a viral illness in 1988. Suddenly, this 41-year-old public policy analyst, who was also a successful writer and a competitive runner, was thrust into the world of severe disability. He developed subtle but extensive neurological deficits that affected his concentration and memory. For months he could hardly get out of bed. He discovered that not only was the cause of CFS unknown, many physicians did not even believe it was a "real" illness.
"Double Blind" tells the story of Skloot's participation in an ill-fated clinical trial of Ampligen, an experimental treatment for CFS. Other essays describe the author's experience with alternative medicine, including an intensive course of Ayurvedic "detoxification" ("Healing Powers") and a visit to Germany to encounter Mother Meera, an avatar of the Divine Mother ("Honeymooning With the Feminine Divine").
"Home Remedies" presents his comic experience with helpful calls and letters telling him how to get rid of the illness. Other essays deal with Skloot's learning to cope with chronic disability. A final section includes poems about the illness experience of several composers and artists (e.g. Carl Maria von Weber, George Gershwin, and Vincent van Gogh).
Summary:This eight-part poem presents the wisdom of home remedies. The first voice tells the sick person to drink the juice of half a lime each day. "No virus can stand up / to a lime." The second voice explains the toxic effects of electromagnetic waves. Another tells him to submerge himself in garlic. Still another says to "visualize little men / in white overalls / scrubbing the lesions / from your brain." With regard to diet, one home remedy advises abstinence from bread, vinegar, dairy products, bread, corn, caffeine, alcohol, chocolate, vitamins, fruit, meat, fish, and fowl. In the end the only solution is to "embrace your illness . . . . "[133 lines]
Summary:The author, a pediatrician by training who has gradually moved into psycho-oncology and training others in relationship centered care, writes about life in this collection of short vignettes and analyses. She blends stories of her own experiences as patient and as woman with those she has gathered from a long history of patient encounters. There is no temporal sequence, but the work is grouped into thematic segments. The author shares selected, carefully garnered and assessed narratives of life events intended to be spiritually healing to those who are ill or who care for the sick.
This is a collection of twenty-six first-hand accounts by women institutionalized in mental hospitals or "asylums" in America between the mid-nineteenth century and the end of World War II. The book is divided into four historical periods, each introduced by the editors with an essay contextualizing the narratives in relation to the history of the psychiatric establishment, and to the roles, perceptions, and experiences of women in American culture.
The accounts are all extracts from works published by the writers, usually as attempts to expose the injustices of the mental health system. Most of the writers are not well known, with the exceptions of the author Charlotte Perkins Gilman and the actress Frances Farmer, whose account concludes the book [see film annotation in this data base: Frances].
In Book I Oliver Sacks describes his visit to Pingelap and Pohnpei in the Caroline Islands (now a part of the Federated States of Micronesia). On Pingelap (population 700) 5-10% of the people are completely colorblind; i.e. they have a rare hereditary condition called achromatopsia in which the retina has no functional cone cells. Rod cells, which normally provide peripheral and night vision, are their only source of vision. While partial colorblindness is common, achromatopsia is normally very rare. Sacks and Knut Nordby, a Norwegian scientist who is himself achromatopic, examined dozens of achromatopes on Pingelap and in a village of Pingelapese people on the larger Pohnpei.
In Book II Sacks takes the reader to Guam where he investigates (with his friend John Steele, a neurologist who lives on the island) the neurological disease called "lytico-bodig." The "lytico" form of this disease is a progressive paralysis similar to amyotropic lateral sclerosis, while the "bodig" form resembles parkinsonism. Both appeared in Guam after the Second World Way and now seem to be dying out. However, no one has ever determined their cause.
Sacks tells the story of his visit, while also discussing various hypotheses that have been considered and discarded over forty years of study. The last section of the book describes a trip to Rota, a small island north of Guam, where Sacks visits a forest of cycad trees and discusses his life-long fascination with these primitive plants.
Summary:Determined not to like Ruth Thomas, Ann Stanley is immediately smitten by her charm and force of personality, and especially by her vitality--a vitality that too soon succumbs to breast cancer. As one of a cadre of women almost obsessively devoted to the care of a dying Ruth, Ann nurses Ruth through her final illness, until--in a move curiously like the decision of Charity (also dying of cancer) to keep Sid, her husband, sequestered from her final trip to the hospital, in Wallace Stegner's far superior novel, Crossing to Safety--Ruth flies to Florida to die at her brother's house.
Showalter identifies clusters of syndromes, or mini-epidemics, which she suggests represent late-twentieth century manifestations of the entity which was called hysteria in nineteenth century western culture. Opening with the history of psychiatry's involvement in hysteria in the time of Charcot and Freud, she traces the replacement of hysteria or conversion reaction by modern hysterical analogues such as: chronic fatigue syndrome, recovered memory, Gulf War syndrome, multiple personality syndrome, satanic ritual abuse, and alien abduction.
In separate chapters she examines each of these entities--how it presents, how it fits into her theory of mass hysteria as a cultural response to the millennium, and how it is being handled by health care professionals. Showalter contends that "Redefining hysteria as a universal human response to emotional conflict is a better course than evading, denying, or projecting its realities." (p. 17)
This is a truly beautiful novel; its many stories remain with the reader for a long time. It is the semi-autobiographical story of the myriad of issues which are manifest as one family deals with the terminal illness of the mother from cancer.
A daughter, who has never considered herself close to her mother, is forced by her father to leave her job as a journalist in New York, to come home and become the primary caregiver. Over a period of several months the mother has chemotherapy and eventually gives up to the slow deterioration of the disease. During this time the mother and daughter rebuild a relationship and come to have mutual respect for each other. One poignant aspect of the relationship is their establishment of "The Gulden Girls Book and Cook Club" as they read old classics together and the mother teaches the daughter the cooking secrets which she has cherished.
The father, a college professor and former mentor of the daughter, absents himself from the home as much as possible, unable to deal with the issues. The female oncologist is very helpful and understanding with both the patient and the daughter. A wonderful hospice nurse gives welcome support. The question of assisted suicide becomes an issue after the mother's death; the daughter is arrested. There is a surprise ending which should not be revealed here, but offers a good forum for discussion.
Summary:In 1981 the author, a well-known 75 year old Swedish poet, suffered a heart attack and lay comatose for two months. He then began a prolonged period during which he gradually recovered all of his faculties. In the early stage of his recovery, Lundkvist experienced a series of strange and intense "waking dreams," which he describes in this memoir. Many were dreams of journeys to real or fantastic places: for example, a trip to a railroad station in Chicago where physicians surgically transformed white people into black people, or a visit to a strange planet where cows produced blue milk. Lundkvist's memories of these dreams are embedded in a series of imaginative meditations on aging, human nature, the meaning of life, and the inexorable passage of time.
As she turns 39, Alden begins a four-year quest to have a child. Despite her need and desire, she wonders whether having one will keep her from her work, writing. She and her husband Jeff go from not-really-trying, through temperature charts, to a series of painful and expensive procedures, all to no avail.
The memoir describes not only Alden's search for a child but for herself as well. Her relationship with her mother, her immersion in the counterculture ("in a middle-class way"), the importance of writing, her attempts to keep her own life under control, and her satisfying marriage are important elements in the memoir.