Summary:

This documentary film is narrated by Dustin Hoffman; all other characters play themselves. Five stories (pathographies) introduced as panels from the 14-acre AIDS quilt are interwoven with each other, together with personal photos, newsreels and radio reports to recount the history of the first decade of AIDS in the United States.

Tom was a highly educated and athletic, gay man whose story is told by his lesbian friend and co-parent of his adored little daughter. Rob was a married Afro-American, I.V.-drug-user whose loving wife recounts his battle with drugs as well as his disease and who views her own HIV seropositivity as "God’s will." Jeff’s story is told by his grieving male lover over images of his once golden health.

The parents of twelve-year-old hemophiliac, David, tell the story of his entire life as a rush to consume, from his babyhood forward until the sadness of his last Christmas. The shy, handsome architect, David, is mourned by his bisexual lover, a naval officer at the Pentagon, who now lies dying with the lesions of Kaposi’s sarcoma quite visible on his face.

The narrators describe solace they derived from quilting memorial panels for their loved ones. In the final scene, the AIDS quilt lies on the Mall in Washington as names of hundreds of loved ones are read by grieving families and friends.

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Harry (Daniel Auteuil) is a successful sales consultant for a large bank, but his marriage is over. After he forgets to pick up his little daughters at the railway station, his wife (Miou-Miou) quite understandably bars him from further contact. Angry, depressed, and driving alone on a wet night, he literally "runs into" Georges (Pascal Duquenne), an adult with trisomy-21.

Georges has escaped the institution where he was placed by his sister at the death of his beloved mother four years ago. Reduced to ineffectiveness and irrational behavior, Harry is simply unable to rid himself of Georges, allows him to take over his life, and accepts him as a friend on equal terms.

Georges draws Harry into an escapade with his fellow inmates that ends in a late-night frolic at a beach carnival and a spectacular display of fireworks for Harry's children that lures the family back. Georges is in love with Nathalie, a fellow inmate also with trisomy-21, and they share wonderful, neatly ironic daydreams of leading roles in a Mongol horde.

But Georges knows that they can never find happiness together. He eats a box of chocolates, to which he is greatly allergic, and calmly steps off the roof of Harry's skyscraper bank. Thanks to Georges, Harry's life is not only restored, it is vastly improved.

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Living in Bombay, India, Sera (Souad Faress) and Sam (Khodas Wadia), a beautiful Parsee couple who adore dancing, have a son (Firdaus Kanga) who will never grow and never walk because he has osteogenesis imperfecta (brittle bone disease). They name him Brit, for his bones. As narrator, Brit says that Sera suffers from the "Parsee disease of anglophilia." But she accepts Brit’s disability.

His father, however, does not; and he continuously appeals to magic, folklore, and religious healers, hoping to find a cure. He professes love for his son, but is never able to forge a confident bond. Brit does not fail to criticize. Sam’s quest leads to a woman scholar who nurtures the boy’s intelligence and encourages him to write a diary and short stories.

Brit’s older sister is his staunchest ally and best friend, but she eventually must leave for a marriage in America. Sam escorts his daughter to America, where he commits suicide on Fifth Avenue. Brit and his mother come to rely heavily on a widow friend and her deaf daughter, "promised" to Brit in childhood.

But the girl is soon spirited away on a wave of romanticism into a life of prostitution. They take a boarder, Cyrus, a gifted and handsome law student who offers Brit a new world of night life, action, dancing, and physical affection; his love leads Brit to like and accept his own body. When his mother dies, Brit becomes a writer and finds a new life and a new lover.

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As the two physician-authors suggest, this book is kind of a primer for medical educators who plan to integrate medial humanities materials and approaches into curricula for healthcare providers and trainees. It is a "how-to" manual for teaching medical humanities content to clinicians.

The book's Introduction asks "why use the arts In medical education?" and identifies their utility in understanding the patient's unique and personal experience of illness, and the effects of  patients' social locations and psychological responses to their disease and to the healthcare professionals who care for them. And further, the arts offer a way for healthcare professionals to explore and reflect emotionally on their personal interactions with patients, to think creatively and practice empathetically.

The next chapter provides a model of "how to teach the arts" using a non-didactic, interactive approach as a series of questions around the work of art. Illustrative examples are included at each step. In the subsequent chapters, each focuses on an individual art forms-- literature, visual art, sculpture, photographs, music and drama-- with specific examples, exercises and activities for learners that have been piloted by the authors. For the music chapter, a CD with examples is included.

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In a fascinating and wide-ranging series of chapters organized by categories of disease or disability that have afflicted known artists, writers, and musicians, Sandblom examines the multifaceted relationship between creative work and illness. He begins his discussions of particular artists usually with basic information about the nature of the affliction and its manifestations; where available, introduces the artist’s own comments upon his or her condition; and then analyzes how particular works represent or implicitly allude to the illness. In some cases the disease is a context; in others a theme; in others a vehicle or tenor of metaphor.

The book is richly illustrated with reproductions of paintings, parts of musical scores, and poems or prose excerpts. Artists and writers under discussion include Bacon, Beethoven, Jorge Luis Borges, the Brontes, George Gordon Byron, Cezanne, Anton P.Chekhov, Chopin, Emily Dickinson, F. (Francis) Scott Fitzgerald, Johann Wolfgang von Goethe, Nathaniel Hawthorne, Franz Kafka, John Keats, Mahler, Thomas Mann, Herman Melville, John Milton, Flannery O’Connor, Proust, Rainer Maria Rilke, William Shakespeare, Robert Louis Stevenson, Titian, John Updike, William Wordsworth, and Yeats, to name a few.

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For all the insomniacs in the world, the narrator says, "I want to build a new kind of machine / For flying out of the body at night." He recounts the images, anxieties, and responsibilities that accrue to those who lie in their beds at night, unable to sleep. He feels the weight of "this enormous night" on his shoulders, but he is unable to lift it alone. He needs help "to fly out of myself."

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In this nine-stanza, sixty-three line poem, the speaker articulates her process of recovery from surgery in terms of the image of "excitable" tulips that interrupt her "winter" sojourn in the hospital where she has "given [her] name and [her] day-clothes up to the nurses / And [her] history to the anesthetist and [her] body to the surgeons." The images in the poem link one stanza to the other (the nurses like "gulls," her body "a pebble," her family "little smiling hooks," herself "a thirty-year-old cargo boat").

The image of the eye appears throughout the poem as well. The speaker is herself the pupil of a huge eye whose lids are the pillow and the sheet; in another stanza she finds herself existing between the "eye of the sun" and the "eyes of the tulips," herself without a face, but beginning to see beyond her own pain.

The speaker has wanted only quiet and emptiness and is agitated by the presence of the tulips, whose "redness talks to [her] wound" and "weigh [her] down" as she is being "watched" and nearly suffocated ("The vivid tulips eat my oxygen") by them. The tulips, dangerous as "some great African cat," remind the speaker of her heart, a "bowl" that blooms red "out of sheer love of me," and realizes that the tulips call her, ultimately, back to "a country far away as health."

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Similar in theme to Hoagland's poem, Emigration (see this database), "Arrows" presents us with a series of images that convey what it is to be "a sick person." The poem is divided into three short sections, moving from the generic sick person waking up to face another day, to a first-person parody of Whitman's song of "the body electric" in which the speaker sings "the body like a burnt-out fuse box." Hoagland piles metaphor upon metaphor in a tour de force that evokes sickness. The concluding section, from which the poem takes its name, compares the sick person to a stoic martyred saint--"bristling with arrows"--who has "that ability to say, 'None of this is real' . . . ."

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Subtitled Women Novelists of Color and the Politics of Medicine, this book draws on novels by eleven women to illustrate how physical and emotional states of health and illness are linked directly to social justice. The book is divided into two parts. The first five chapters deal with individual characters, their illnesses, and sometimes their healing: Toni Cade Bambara's The Salt Eaters, Paule Marshall's Praisesong for the Widow, Gloria Naylor's The Women of Brewster Place: A Novel in Seven Stories, Leslie Marmon Silko's Ceremony, Toni Morrison's Beloved and The Bluest Eye, Louise Erdrich's Tracks, and Sapphire's Push are among the works Stanford uses to examine women who have become ill because of broken ties to their histories and communities, because of racial hatred, or because of domestic and sexual violence (see this database for annotations).

The second part of the book finds novels examining medicine itself. Stanford uses Ana Castillo's So Far from God, Gloria Naylor's Mama Day (annotated in this database), Leslie Marmon Silko's Almanac of the Dead: A Novel (annotated in this database), and Octavia Butler's Parable of the Sower and Parable of the Talents again to raise connections between patients and social conditions but also to ask questions about bioethics and uncertainty, medicine and epistemology, and how medicine might resist dehumanizing trends through the "myriad possibilities of communitas" (218).

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This short novel is the story of one man’s death, starting with his interment at the cemetery, where his daughter and older brother offer reminiscences over the coffin; and then dwelling on aspects of his life within which the seeds of death germinated and grew. The man himself is unnamed—Everyman—and his death is no different than any other. At the same time, this death is different because the dead person’s narrative voice remains behind to tell the story.

As a young boy in his father’s jewelry store, he fiddles around in a drawer of old broken watches that his father has accepted as trade-ins. The boy is a dreamer, an artist. But he goes into the advertising business to earn a living, rather than pursuing his first love, painting. He marries and divorces three times, becomes alienated from his sons by the first marriage, and winds up spending his relatively affluent, but bleak, retirement years in a New Jersey condo, maintaining at least some contact with his daughter Nancy. Meanwhile, his brother Howie becomes a fantastically successful international businessman still married to his wife of 45 years and close to his loving family.

Everyman’s brushes with death begin when he is still a child admitted to the hospital for a hernia repair and his roommate dies during the night. As a relatively young man, he experiences a close call when he collapses and is found to have a burst appendix and peritonitis. Later, he attends his father’s Orthodox Jewish funeral, where the mourners actively bury the coffin. In 1989 he experiences a massive heart attack, followed by coronary bypass surgery. In 1998 he is admitted for renal artery angioplasty. The next year he requires left carotid artery surgery. The next, placement of coronary artery stents. The next, insertion of a permanent defibrillator. Finally, he learns that the right carotid artery has now become obstructed. During the subsequent surgery, he dies: “He was no more, freed from being, entering into nowhere without even knowing it. Just as he’d feared from the start.” (p. 182)

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