Summary:

In the fall of 1979, Keith Burton, a free-lance journalist, saw the videotape 0105 in a bioethics seminar at Southern Methodist University (see annotation in this database). The structural centerpiece of this 1974 documentary is the interview of a burn patient, Donald "Dax" Cowart, by psychiatrist Dr. Robert B. White at the University of Texas Medical Branch in Galveston. Dr. White had been called in to determine the patient’s competency because of his persistent requests to end the painful treatments, to go home, and to die.

Similar to most viewers of Please Let Me Die, Burton was intrigued by the unanswered questions and the uncertain outcome of the case and ultimately contacted Dax Cowart and his mother, Ada Cowart. Burton invited their collaboration on a follow-up videotape to Please Let Me Die, with the intention of providing "a living record of this man’s struggle for release from pain and despair." [see Keith Burton, "A Chronicle: Dax’s Case As It Happened." In Dax’s Case: Essays In Medical Ethics And Human Meaning, ed. Lonnie D. Kliever. (Dallas: Southern Methodist University Press) 1989: 1].

View full annotation

Summary:

David Lynch’s The Elephant Man is based on the life of Joseph Merrick (1862-1890), a man who we first encounter in the film as “The Elephant Man” of a freak show, whose physical differences are so frightening to the authorities that the exhibit is closed. An ambitious young surgeon, Frederick Treves (Anthony Hopkins), seeks out Merrick (John Hurt) as a subject for a presentation to the Pathological Society and, taken by Merrick’s intelligence and amiability, arranges for Merrick to have a permanent home on the premises of London Hospital. The film portrays Treves as rescuing Merrick from a wretched existence in the squalid wharf district, where he is beaten savagely and otherwise abused by his sideshow manager, Bytes.

Treves provides Merrick with modest bourgeois comfort in the form of private rooms on the hospital premises. When the London Times publishes a letter from the hospital director describing Merrick’s disfigurement as terrifying and requiring isolation, first a famous actress, then most of London high society seek out Merrick, some to befriend him, others to indulge in spectatorship or the fashion of the day. A hospital porter who has access to Merrick’s room brings drunken revelers to view Merrick for a fee, giving the villainous Bytes the opportunity to kidnap Merrick and spirit him off to Belgium and a desperate existence as an abused and degraded sideshow freak.

Eventually, the other members of the freak show free Merrick and send him back to London, where, in a dramatic chase scene, he is pursued by an angry mob until the police arrive. Treves is summoned and reinstalls Merrick in his rooms at the hospital. Merrick is then celebrated by society when he attends his first theater performance. That night, he arranges himself to be able to sleep lying down, like a “normal person,” a position he knows will lead to his asphyxiation due to the size of his head, and he dies.

View full annotation

Summary:

The narrator is a woman who lives alone in a rural area of Puget Sound. She is a writer, an observer, a spiritual thinker. "Each day is a god, each day is a god, and holiness holds forth in time" begins her musings about the first of three days. But on day two, a catastrophe occurs: a small plane crashes and a seven-year-old girl’s face is "burned off" as she is carried away from the explosion in her father’s arms.

The narrator had met the girl once before, at a neighbor’s farm, and had formed a connection--they looked alike and the girl playfully tormented the narrator’s cat with a dress-up game. The narrator imagines the girl in the hospital, imagines her future life as a nun with no face, and ultimately imagines a gentler future in which the girl’s face is restored, she is married and the narrator has assumed the function of the nun for her.

Throughout, the narrator wrestles with the hard questions of life: why are we here; why do horrible things happen; what is the relationship of God and the world; where is God and what is he doing? She is angry: "Do we need blind men stumbling about, and little flamefaced children, to remind us what God can--and will--do?"

A Christian, she seeks answers in her wide-ranging theology, and seems to find an inroad in the idea of "Holy the Firm"--a substance lower than salts and minerals, below the earth’s crust, in touch with "the Absolute." The narrator hence posits that "Holy the Firm" allows for an unbroken circle between God, Christ, and the created world.

View full annotation

Summary:

After living with various foster families, nine-year-old Gabe is taken to live with his aging Uncle Vernon in West Virginia. The relationship with his mother's gruff and distant older brother, a Vietnam vet, is distant at first, but warms up over time. But after his first day in 6th grade, Gabe comes home to find his uncle dead on the floor.

View full annotation

Summary:

This is the first of several autobiographies written by Donna Williams. In this she describes her earliest memories and experiences of being autistic through to her late twenties and the writing of the autobiography itself. Her account begins with descriptions of personality characteristics understood to be typical of people with autism. Contrasting her highly visual nature--a fascination with patterns and color and seen or imagined spots of light--with her difficulty understanding language and formulating it, Williams’s narrative is an account of neurological difference within a family that responded to it with impatience, anger, and violence.

She describes her fear of other people and how she learned to communicate primarily through objects, attaching to things and their symbolic meanings more easily than to people and language. As a means of managing her fear of people and her encounters with sometimes abusive family members and partners, Williams developed alternative personalities. She would perform those different personalities when she wanted to socialize or if she needed to protect herself. Williams develops relationships, some exploitative and some comforting to her, and finds ways to do well in aspects of school and work. The autobiography ends with a discussion of her first draft of the narrative itself providing a means for diagnosis. Initially thinking she has schizophrenia, Williams experiences a revelation when she realizes she is autistic.

View full annotation

Summary:

Harry (Daniel Auteuil) is a successful sales consultant for a large bank, but his marriage is over. After he forgets to pick up his little daughters at the railway station, his wife (Miou-Miou) quite understandably bars him from further contact. Angry, depressed, and driving alone on a wet night, he literally "runs into" Georges (Pascal Duquenne), an adult with trisomy-21.

Georges has escaped the institution where he was placed by his sister at the death of his beloved mother four years ago. Reduced to ineffectiveness and irrational behavior, Harry is simply unable to rid himself of Georges, allows him to take over his life, and accepts him as a friend on equal terms.

Georges draws Harry into an escapade with his fellow inmates that ends in a late-night frolic at a beach carnival and a spectacular display of fireworks for Harry's children that lures the family back. Georges is in love with Nathalie, a fellow inmate also with trisomy-21, and they share wonderful, neatly ironic daydreams of leading roles in a Mongol horde.

But Georges knows that they can never find happiness together. He eats a box of chocolates, to which he is greatly allergic, and calmly steps off the roof of Harry's skyscraper bank. Thanks to Georges, Harry's life is not only restored, it is vastly improved.

View full annotation

Summary:

Living in Bombay, India, Sera (Souad Faress) and Sam (Khodas Wadia), a beautiful Parsee couple who adore dancing, have a son (Firdaus Kanga) who will never grow and never walk because he has osteogenesis imperfecta (brittle bone disease). They name him Brit, for his bones. As narrator, Brit says that Sera suffers from the "Parsee disease of anglophilia." But she accepts Brit’s disability.

His father, however, does not; and he continuously appeals to magic, folklore, and religious healers, hoping to find a cure. He professes love for his son, but is never able to forge a confident bond. Brit does not fail to criticize. Sam’s quest leads to a woman scholar who nurtures the boy’s intelligence and encourages him to write a diary and short stories.

Brit’s older sister is his staunchest ally and best friend, but she eventually must leave for a marriage in America. Sam escorts his daughter to America, where he commits suicide on Fifth Avenue. Brit and his mother come to rely heavily on a widow friend and her deaf daughter, "promised" to Brit in childhood.

But the girl is soon spirited away on a wave of romanticism into a life of prostitution. They take a boarder, Cyrus, a gifted and handsome law student who offers Brit a new world of night life, action, dancing, and physical affection; his love leads Brit to like and accept his own body. When his mother dies, Brit becomes a writer and finds a new life and a new lover.

View full annotation

Summary:

When Rupert Darley, a twice married writer and teacher, shows up unannounced at his elderly parents’ home in rural Southeast England for a weekend, having just left his second wife, he has little reason to suspect that it will be the eventful weekend that it is. In only 170 pages, he is joined by his medical student daughter, Miranda (also called Milly), whose visit to her grandparents is expected by them but not by Rupert; he must come to grips with the harsh realities of aging, most especially that of his suddenly quite old and frail parents, whom he calls by their given names, Oliver and May; he and his daughter discuss for the first and most honest time their lives and those of their family; and they all must deal with the crisis of sudden unannounced illness.

Oliver is a well known architect who is stodgy and well aware of his eccentricities, tolerated but not allowed free range by May, his arthritic wife who is probably stronger in spirit than Oliver. The four of them discuss - jointly and in various permutations of groupings - a costly stair lift for May, Rupert's marriages and current (extended) mid-life crisis, Oliver's quixotic project to build a huge pyramid city complex, the vicissitudes of aging and approaching death (which is the elephant in the parlor in this book), health, illness and societal change.

Of interest to literature and medicine readers, Milly has frank conversations regarding end of life choices, to Rupert's initial dismay, with both grandparents individually and accompanies Oliver to the hospital in an ambulance when he has a heart attack at the end of the book.

View full annotation

Summary:

In the poem, persimmons are a symbol of several elements that have figured importantly in this Chinese narrator's life: they stand for painful memories of cultural barriers imposed by language and custom, and for a present-day loving connection to an elderly, blind father. The poet begins with a schoolboy incident in which he was punished for not knowing the difference between "persimmon" and "precision" and makes a play on other words which sound similar and "that got [him] into trouble." He takes revenge later, when the teacher brings to class a persimmon that only the narrator knows is unripe, as he "watched the . . . faces" without participating. Persimmons remind him of an adult sensual relationship with Donna, a Caucasian woman, and of his attempts to teach her Chinese words which he himself can no longer remember.

The second part of the poem describes the role persimmons have played in his father's life and in their relationship. To comfort his father, gone blind, the narrator gives him a sweet, ripe persimmon, so full and redolent with flavor that it will surely stimulate the senses remaining. Later yet again, the father and he "feel" a silk painting of persimmons, "painted blind / Some things never leave a person."

View full annotation

Summary:

This is a sequence of six poems that form the centerpiece of Doty's book of the same name. The scene is the coast (Provincetown) where the author's companion, Wally, is dying of AIDS: "sometimes / when I put my head to his chest / I can hear the virus humming . . . . " The poet dreams of a dog they don't have. He dreams of saving Wally. Wally tells him of a dream of light and beckoning.

Michael dreams of "helping Randy out of bed" and, suddenly, Randy steps out of his body. Among these coastal dreams of caring and dying, Atlantis emerges "from the waters again: our continent, where it always was / . . . unforgettable, / drenched, unchanged." In the end (and before Wally's end), they do get a new dog who "licks Wally's face" and "bathes every / irreplaceable inch / of his head."

View full annotation