Showing 311 - 320 of 539 annotations tagged with the keyword "Disability"

A Leg to Stand On

Sacks, Oliver

Last Updated: Aug-30-2006
Annotated by:
Willms, Janice

Primary Category: Literature / Nonfiction

Genre: Autobiography

Summary:

This is a story of injury in the midst of exuberant good health, followed by a progressively darkening journey. The writer experiences a period of isolation from normal life by his hospitalization, isolation from a part of his body by neurosensory damage to the injured leg, isolation from the security of medical colleagues by their insensitivity to his anguish. Sacks reaches a psychological nadir before beginning his return. He chronicles, retrospectively, the stages of this trip. As in the classical journey myths, the traveler returns with new insight and an altered vision of the meaning of disease.

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Losing Julia

Hull, Jonathan

Last Updated: Aug-30-2006
Annotated by:
Nixon, Lois LaCivita

Primary Category: Literature / Fiction

Genre: Novel

Summary:

Losing Julia is narrated by Patrick Delaney, age 81, a World War I veteran, who lives, somewhat independently, in Great Oaks, an assisted living facility. Still able to go into town to get new clothes, books, etc. and enchanted with the kindness and loveliness of Sarah and other female staff members, the well-educated and quick-witted protagonist offers a fresh perspective on "institutional" care.

Much of Patrick’s story, however, concerns Daniel, a war-time buddy, and other soldiers in his embattled unit prior to and during the hellacious Battle of Verdun. Several soldiers are carefully and memorably drawn by the stories they tell about life at home and their aspirations. Daniel stands out as Patrick’s closest friend in the trenches, a young man who is courageous, rational, fearful, and in love with Julia.

Like his peers, Patrick listens to Daniel’s lyrical recollection of the woman others can only imagine. Patrick realizes that he has fallen in love with Julia’s image. Most of the men, including Daniel, are killed brutally in one of the war’s most savage battles. When Patrick’s post-war efforts to find the elusive Julia fail, he marries, works as an accountant, and has two children. Like the war, Julia remains, however, a constant shadow throughout his life.

When a war monument is constructed ten years later on the site of the last atrocious battle, Patrick, his wife, his toddler son, and his sister-in-law journey to Paris. With his family happily detained in Paris, Patrick goes to Verdun alone for the monument’s unveiling ceremonies with many other veterans and grieving family members. It is here that Julia appears and the two become lovers during the time at Verdun and then for a short time in Paris.

The story, non-sequential in its presentation, weaves the various elements of aging, memory, war, love, and loss together for readers to untangle and follow.

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Annotated by:
Donley, Carol

Primary Category: Literature / Fiction

Genre: Short Story

Summary:

A one-armed tramp, appropriately named "Mr. Shiftlet," walks up to a run-down farm where an old woman and her retarded daughter, Lucynell, are sitting on the front porch. Lucynell cannot talk. Mr. Shiftlet persuades the old woman to hire him for work around the farm and for repairing a car. She says she can feed him but not pay him. Over a period of a few weeks he repairs the car (which is what he really wants) and offers to marry Lucynell if her mother will give him some money.

After the wedding Mr. Shiftlet takes Lucynell on a honeymoon, but abandons her in a country diner the first day, claiming she’s a hitchhiker. As he drives towards Mobile, he picks up a boy and begins to lecture him about being good to his mother. The angry boy jumps out of the car, and Mr. Shiftlet prays that God will "break forth and wash the slime from this earth."

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Idiots First

Malamud, Bernard

Last Updated: Aug-29-2006
Annotated by:
Kohn, Martin

Primary Category: Literature / Fiction

Genre: Short Story

Summary:

This is a story of parental love and sacrifice and of survival in a hostile world. Mendel, a poor widower who has raised a retarded son, has fought life for years. Now he is fighting death (personified as a burley bearded man named Ginzburg). Mendel’s last task is to assure safe train passage for his son, Isaac, to the boy’s eighty-three-year-old uncle in California. This Mendel accomplishes after scraping enough money together and after winning a final heroic battle with Ginzburg.

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Annotated by:
Ratzan, Richard M.

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

This posthumously published short (132 pp) collection is by a former New York Times book reviewer and essayist who was diagnosed with metastatic prostate cancer in 1989 and who died the following year. Broyard responded to his illness by writing about the experience. The book is comprised of six parts:

Part 1: Intoxicated by My Illness

Part 2: Toward a Literature of Illness

Part 3: The Patient Examines the Doctor

Part 4: A Style for Death: Journal Notes, May-September,1990

Part 5: The Literature of Death

Part 6: What the Cystoscope Said

Parts 1, 2 and 5 appeared in slightly different form in the New York Times between 1981 and 1990.

Parts 2 and 3 are in part from a talk Mr. Broyard gave at the Univ. of Chicago Medical School in April 1990. Part 6 is a short story written by Broyard in 1954 about his father’s death.

Mr. Broyard had long been fascinated with death and dying, before his prostatic cancer, publishing "What the Cystoscope Said" in 1954, some 35 years before his own diagnosis. It is as though he had been preparing for what he knew would be his finest work. Always an engaging essayist and reviewer, Mr. Broyard here offers what he did best--a discursive (in the best sense) soliloquy on disease, suffering, the majesty of the educated, reflective person with illness--all amplified with widely ranging withdrawals from the broad literary bank account one would expect of a professional reader and reviewer: one reads about personal fate vis-à-vis D. H. Lawrence’s Women in Love; one reads, as one can read nowhere else, about illness, dying and sexuality and its relevance to Hemingway’s The Sun Also Rises.

Part 1, Intoxicated By My Illness, is a personal statement about the effect of this illness on Broyard’s attitude and is rich with his own and others’ literary sense of how he should and did react to it. Part 2, written later than Part 5, deals with literature and illness as opposed to the emphasis on death in Part 5. Within Part 2 are references to Susan Sontag, Norman Cousins and Siegel, among other students of this subject. It is interesting to compare the more powerful and personal and moving appeal of the later writings on illness (Part 2) to the more abstract, critical ruminations on death (Part 5) at a time when, in fact, Part 5 was a literary exercise. Part 2 is written with the pen of the heart.

Part 3 is a wonderful account of Broyard’s first meeting with his personal physician. While Broyard analyzes this man, he reflects on what he would like in his ideal doctor. Part 4 is a brief (7 pages) collection of short diary entries reminiscent of Dag Hammarskjöld’s Markings. Part 5 includes essays on death and dying in literature and what these books, e.g., Robert Kastenbaum’s Between Life and Death and David Hendin’s Death as a Fact of Life and Ernest Becker’s Denial of Death, have to offer us.

Part 6 is a short story about his father’s death, the son’s sexual escapades and the relationship between the two. Clearly sex, death and their nexus have long been on Broyard’s mind. This is a welcome reflection and is of interest more as it compares to Broyard’s later writings on the subject, especially in Part 2, than for its intrinsic worth as a short story.

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Holiday

Porter, Katherine Anne

Last Updated: Aug-29-2006
Annotated by:
Shafer, Audrey

Primary Category: Literature / Fiction

Genre: Short Story

Summary:

The narrator needs a break from her unnamed troubles, so, on the recommendation of a friend, travels to a Texas farm to live with a German-American family for the month of March. The Muller extended family members are hard-working folk, at times gruff and laconic, but who clearly care for and love one another. The narrator is intrigued by the servant girl, Ottilie, who although disabled, disfigured and mute, cooks and serves meals for the twenty members of the household.

Ottilie later shows the narrator a photograph from her childhood, and the narrator (and reader) is startled to find out that not only was Ottilie a normal child, but she is also the eldest daughter of the matriarch and patriarch. Many of life’s milestones are encapsulated in the month, including a wedding, a birth, a natural disaster, and finally the death of Mother Muller. The family continues to ignore Ottilie and her suffering; in the end, only the narrator reaches out to aid Ottilie in her grief.

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Horizontal Woman

Berger, Suzanne

Last Updated: Aug-29-2006
Annotated by:
Shafer, Audrey

Primary Category: Literature / Nonfiction

Genre: Autobiography

Summary:

This book is an autobiographical account of an abrupt and painful injury that completely transforms the author’s life. Berger in 1985 was a healthy woman who enjoyed ice skating and canoeing, a published poet, wife, and mother of a toddler. She bent over one day to pick up her daughter and felt a tearing "within the thickness of flesh, moving in seconds across the base of the spine." No longer able to run, walk, or even sit, she is forced into a life spent lying down.

Hers is now a world of boundaries and barriers--physical, psychological, and societal. The book chronicles her struggle to parent her child (they make gingerbread creatures lying down on the kitchen floor), to relate to her husband (she has to deal with the constant feeling of being the recipient of his care), to live with pain, and to regain her mobility.

Because hers is not a visible injury and because she must frequently lie down in public places or use her carry-along lawn chair, she suffers the stares and scrutiny of people who cannot pigeon-hole her into a tidy handicapped-wheelchair category. After seven years of physical therapy (she calls her therapists "angels of attempted repair ") she is able to walk and drive, though she is still limited in activity and lives in fear of re-injury.

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In the Shadow of Memory

Skloot, Floyd

Last Updated: Aug-29-2006
Annotated by:
Coulehan, Jack

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

I used to be able to think. My brain’s circuits were all connected . . . I had a memory and an intuition that I could trust. So begins Floyd Skloot’s memoir of living his life with "a scatter of white spots like bubbles" in his brain, as a result of a viral illness in 1988 that led to chronic fatigue syndrome and persistent brain damage. The first section ("Gray Area") consists of essays that re-create a texture of mistaken words and memory lapses, as well as the author’s creativity in discovering ways to minimize or bypass disability in his daily life. The temporal vector of this section begins with the onset of illness; continues through his marriage to Beverly and their settling on a hilltop in Oregon; and ends with an idyllic stay on Achill Island off the western coast of Ireland.

The second section draws us back in time to "The Family Story," a series of stories about childhood. In "Kismet," which begins section 3, the author returns to a description of his post-illness experience, in this case to his fateful final visit with an older brother, who is dying of diabetes and kidney failure. Later, in "A Measure of Acceptance," he tells of his encounter with a Social Security psychiatrist, whose task is to determine whether Floyd Skloot is "really" sick. The Social Security Administration provides one measure of acceptance; but the author creates a more important measure of acceptance for himself: "I can say that I’ve become adept at being brain damaged. It’s not that my symptoms have gone away: I still try to dice a stalk of celery with a carrot instead of a knife . . . Along the way, though, I’ve learned to manage my encounters with the world." (p. 196)

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Hide and Seek

Collins, Wilkie

Last Updated: Aug-24-2006
Annotated by:
Holmes, Martha Stoddard

Primary Category: Literature / Fiction

Genre: Novel

Summary:

This mystery novel interweaves the stories of two Victorian households: the cheerless Sabbatarian residence of Zachary Thorpe and the lively, off-beat home of artist Valentine Blyth. Thorpe’s rebellious son Zack’s friendship with Blyth begins an interfamilial connection that Blyth unknowingly deepens when he adopts a deaf girl he finds in a country circus.

Blyth and his disabled wife Lavinia fear the living birth father of the girl they name Madonna will discover her existence and take her away. Their desire to hide Madonna is thwarted by a rough stranger, Mat Marksman, who seeks the man who impregnated and abandoned his sister--Madonna’s mother, who died soon after giving birth. Zachary Thorpe, Sr. is revealed as Madonna’s father, just in time to prevent a problematic romance between the half-siblings.


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The Hemophiliac's Motorcycle

Andrews, Tom

Last Updated: Aug-24-2006
Annotated by:
Coulehan, Jack

Primary Category: Literature / Poetry

Genre: Poem

Summary:

May the Lord Jesus Christ bless the hemophiliac’s motorcycle, the smell of knobby tires . . . This long-lined incantation of a poem takes the reader from the motorcycle raceway to the Kanawha River to the "oak tops on the high hills beyond the lawns" and, finally, to the hospital wards and the writer’s elderly roommate, who reads his grandson’s Bar Mitzvah speech. Isn’t it dangerous for the hemophiliac to ride in motorcycle races when even "a mundane backward plunge on an iced sidewalk" can bring him to the hospital bed and the "splendor of fibrinogen and cryoprecipitate"? Of course, but why not do so anyway!

This poem is a psalm, a paean of praise and gratitude to God--gratitude for oaks, and hills, and catbirds, and star clusters. "I want to hymn and abide by, splendor of tissue, splendor of cartilage and bone." The poet is also listening--listening for the presence of God in the silence: "may He bless our listening and our homely tongues."

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