Summary:

Professor of performance studies at New York University, Peggy Phelan narrates the story of a vision disorder that began when she was 23 years old, caused by "open-angle glaucoma," a difficult-to-treat condition in which the vessels draining ocular fluid periodically constrict. The episodes are excruciatingly painful and disorienting: "I feel a staggering push behind my right eye. The right upper half of my face is on fire: I am certain that my eye has fallen out of its socket . . . " (508).

Phelan resists patienthood, beginning with her first visit to the doctor, in which she underplays what has happened to her. Rejecting surgery, coping with side effects of the drugs she must take, and concerned about her ability to continue as a visual arts scholar, she muddles through for several years. Then she experiences a frightening, vividly described episode of temporary blindness, which is followed by a migraine headache. Six months later she agrees to have surgery.

During the surgery, under local anesthesia, "my eye, which is frozen, can still see things as they pass over it . . . colors I have never seen before . . . I am seeing the roof of my own eye from the interior side. It is utterly breath stopping. I cannot speak" (521-522). Enabled to see her eye from a perspective that was not available to the physician, and grateful for this "visionary experience," Phelan finally accepts her situation. She is not cured, although her condition improves. "My story is finally the same as those of all the other patients . . . The only difference between me and them comes from the words I’ve suffered to find and the words I’ve suffered to flee" (525).

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Vicki Forman's twins, Evan and Ellie, were born in 2000 at twenty-three weeks' gestation.  Fetuses could legally be aborted up to twenty-four weeks, but rules regulating treatment of extremely premature babies differed from one hospital to another.  Daughter of a doctor, Forman knew how slim were the chances of survival and how great the chances of serious disability if either of the twins did survive.  Grieving, but realistic, she and her husband asked for a DNR order, but learned that such orders did not strictly apply to the situation of children like their twins.  Instead, the line between  the parents' authority and the doctors' remained blurry and decision-making vexed not only by technical and emotional complications, but by conflicting legal guidelines as they made their way through many months of hospitalization and home treatment of their surviving son.

Ellie, the daughter, died at four days.  Evan lived for eight years with disabilities that completely reorganized family life, and required constant monitoring, management of equipment, and careful orchestration of parental relationship to their older child, Josie, and their special-needs child.  Much of the narrative covers the period of hospitalization during Evan's early months and the negotiations between parents, physicians, and other caregivers.  It also touches on Forman's own emotional responses to the strenuous learning curve required of a parent who suddenly finds herself with a special-needs child.

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Ryan Knighton writes in his irreverent memoir that his sometimes comical, sometimes dangerous clumsiness—he smashed his father’s car into a boulder and nearly backed a forklift over a co-worker—registered on others as an unfortunate character trait, the carelessness of a distracted teenager. On Knighton’s eighteenth birthday, a doctor offered another explanation: retinitis pigmentosa. The diagnosis of a degenerative eye disease that causes night blindness and tunnel vision before progressing to complete blindness rescued his moral standing. This rescue and the diagnosis seemed to increase rather than moderate his youthful drive for independence along with his search for strategies to make his disability less conspicuous. He tested his independence by attending Simon Fraser University and sharing an apartment with a deaf student, and he discovered that the chaos and flowing alcohol of the local punk rock clubs made him indistinguishable from other stumbling revelers. The clubs became a place where “blindness worked” (50).

Knighton's title Cockeyed: A Memoir captures and prepares readers for his humorous, never self-protective narrative stance and approach to making blindness work. Although he sustains his irreverence as the narrative unfolds, Knighton also makes tamer concessions to his diminishing vision, such as leaning to use the distinguishing white cane that offers "artificial sight" and a "rickety kind of freedom" (68, 154). He later reconsiders his headlong pursuit of independence when he meets his sighted partner Tracy. With her he discovers an "alarming and rewarding" dependent relationship, in which his disability enables an "intimacy few are given" (183). He also quietly reflects on the meaning of blindness after a family tragedy places his disability in a larger context. Here Knighton coaxes his readers to understand blindness as both an individual and a shared incapacity. The death of a loved one, he writes, blinds us from ever seeing him again. "Seeing," moreover, "is itself touched with elegy. . . The world we see is always gone" (181).

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Louis Drax is a nine-year-old boy living in France with his stay at home mother and Air France pilot father. Such an apparently normal family description is the merest tissue of appearances. The father is probably an alcoholic and unfaithful; the son is "accident-prone" (a nearly fatal episode of SIDS at two weeks of age, a near fatal electrocution at age 6 after falling on the tracks of the métro in Lyon; salmonella, tetanus, botulism, meningitis, etc. [or, as Louis is fond of saying, "blah, blah, blah."]) and the mother has issues that only emerge as one becomes more deeply involved in what is a mystery story.

Like Gabriel Garcia Marquez’s A Chronicle of a Death Foretold, or Janet Lewis’s superb The Trial of Søren Qvist, one knows the ending early on (page 16 in Louis Drax), but not the details. The why and the how are the stuff of the novelist’s art in all three books.

With premonition of more danger, Louis goes on a family picnic (see below for the author’s biographical basis for this tale) and winds up at the bottom of a ravine, dead. Drowned and dead. A few hours later, in the morgue, he is found to be alive. Comatose and in a persistent vegetative state but alive. He is therefore transferred to the care of a neurologist specializing in comatose patients at the Clinique de l’Horizon (formerly l’Hôpital des Incurables).

It is here that the mystery unfolds. The questions are: How did Louis end up at the bottom of the ravine? Did his father, now missing, push him as his distraught mother alleges? What role does the clearly neurotic mother play in this tragedy? And who exactly is Louis Drax? Lastly, how do the mysterious letters allegedly from him, written while still in a coma, come to be?

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The film opens with the discovery of Dr. Victor Frankenstein's will in his Transylvanian village. A skeleton, presumably Dr. Frankenstein's, and a man wrestle for the box holding the will. The man wins, takes it to a town meeting where the will is read and calls for the transfer of the property to the dead scientist's grandson, Frederick. Following this scene we meet the grandson, Dr. Frederick Frankenstein (Gene Wilder), a surgeon who is busy instructing medical students in clinical neuroanatomy (comparing the brain to a cauliflower). When asked about his grandfather by a medical student, Freddy, who pronounces the family name "Fron kon steen", declares that Victor was "a cuckoo". The student is relentless in pursuing the family ties, exasperating Freddy, who finally plunges a scalpel into his thigh, a sight gag paying homage to Peter Sellers' stabbing himself with a letter opener in A Shot in the Dark (1964). When the courier from Transylvania arrives, he persuades Freddy to return to his ancestral castle for the execution of the will. A hilarious railroad platform scene in which Freddy bids goodbye to his "beautiful, flat-chested" (as described in the online original etext of the script by Gene Wilder) fiancée, Elizabeth (Madeline Kahn), only highlights the incredibly neurotic natures of the two lovers -- Wilder as a possessed but wacky scientist and Kahn as a narcissistic and apparently remote and shallow woman.

In Transylvania, Freddy and the viewers meet the remainder of the major characters. Inga (Teri Garr), a bosomy and mindless but beautiful and dedicated blonde, escorts him to the castle, where he meets the hunchback Igor, played by the incomparable Marty Feldman, who instructs Freddy, with one of the lines all Young Frankenstein addicts love to quote, to "walk this way", by which he means with a limp and a cane, not directions to anywhere at all. After remarking that the huge castle doors have huge knockers (which they do) -- which Teri Garr winsomely mistakes for a compliment on her equally huge knockers -- Freddy and his entourage enter the castle and meet Frau Blücher (played magnificently by Cloris Leachman), the spinster who keeps the castle, nourishing an undying flame for Freddy's dead grandfather. Soon Freddy and Inga discover, by means of a secret passageway behind a  -- surprise! surprise! -- revolving bookcase wall in Freddy's room, his grandfather's hidden subterranean laboratory (Brooks used the same electrical apparatus as the 1931 Frankenstein film) and scientific journals. With the materials and methods now at hand, Freddy undergoes a spiritual transformation, embracing his forebear's obsession with creating life from dead bodies, rejecting his earlier rejection of Victor's work as "Doo-Doo!".

At this juncture we move into the scientific creation mode and of course meet the Monster, exuberantly portrayed by the talented Peter Boyle. When Igor tries to steal a brain from a neighboring morgue there occurs the infamous mix-up of an "Abnormal" brain (labelled "DO NOT USE THIS BRAIN!") for the intended brain of H. Delbrück ("the finest natural philosopher, internal medicine diagnostician and chemical therapist of this century" and also the author of 17 cookbooks) making at least this viewer wonder if Mel Brooks had in mind a real scientific genius, Max Delbrück, who had received, only 5 years before, a Nobel Prize in Physiology or Medicine in 1969 for his work on bacteriophages.

The predicted spoofs ensue: the actual process of transforming the very large corpse of Peter Boyle into the very large body of the living Monster (with Inga remarking, after Freddy states that for the experiment to be a success, the monster must have enlarged body parts, that he "vould have an enormous schwanzstucker" -- a pseudo-German/Yiddish word that everyone in the audience immediately comprehends); the inclusion of Gene Wilder's rendition of the legendary exclamation, "It's alive!" by Colin Clive in the 1931 Frankenstein; the monster's mercurial disposition; the wildly comic scene with the Monster meeting the Blind Man (Gene Hackman); the Monster's fascination with music and antipathy to fire -- they all give rise to set pieces of Brooks's unique mix of lowbrow comedy with intellectual puns, Yiddish asides and the ubiquitous combination of visual and physical jokes.

After Elizabeth unexpectedly arrives in Transylvania we witness an apparently unlikely, and therefore uproariously believable, liaison with the Monster outside the castle, with Madeline Kahn eventually taking on the classic Marge Simpson type hairdo of Elsa Lanchester in the 1935 Bride of Frankenstein. The last important scene before the ending involves Freddy nostalgically summoning the Monster back to his natal castle for a transference of Freddy's calm brain to the Monster's. The ending, with the Monster a fully acculturated and now sophisticated man about town, and with Freddy and Inga still in love in Transylvania, is a brilliant win-win result for Freddy, Inga, Elizabeth and the Monster, although hardly predictable. Without giving away too much of the denouement, suffice it to say that the movie ends on a high note transforming, as it were, a linguistic pun into a musical one.

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Annie, eleven, has been sent to spend the summer with her grandmother after she and her mother get the news that her father is missing in action at the end of World War II. Annie herself has just recovered from a month-long stay in the hospital, following surgery for a burst appendix. While there, she developed a habit of entering dream encounters with President Truman, who appears in dreams and fantasies to reassure her about her father, and about the other uncertainties she faces.

While at her grandmother's home in Walla Walla, Washington, a small farm town, a young African-American woman, a war widow, comes looking for work and is taken into the grandmother's house as an accountant. She and Annie become fast friends, much to the disapproval of her uncle, her father's younger brother, who has returned from the war wounded and bitter, having alone survived a battle in which all the other members of his platoon died. He and a few other troublemakers make escalating attempts to get the African-American woman to leave, including threats and a burning cross in the yard. But the grandmother, Annie, and Miss Gloria, who has seen worse racism in Georgia, hold out.

Eventually the brother comes to his senses and reports his fellow culprits to the police. Annie's father is found in a hospital in France, recovering from serious wounds as well as temporary amnesia. He and her mother arrive in Walla Walla after Annie has made a prize-winning speech in her new school about the losses and costs of war to individuals who return, going beyond the count of those dead. The father is nearly blind, but otherwise fairly well recovered, and he is accompanied by a young African-American aide who brings a ray of hope for companionship to Miss Gloria.

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This painting comes from a panel in the predella of Duccio's Maestà, his famous altarpiece; it would originally have been one part of an enormous collage of images from the Bible. Today, the Maestà has been largely dismantled. Most of the pieces remain in Siena, but some have been distributed far afield. This piece is housed in the National Gallery in London, England.

At the centre of the painting, Jesus stoops slightly to touch the eyes of a blind man. A cluster of twelve men look on from behind Jesus. To the right, the blind man appears a second time, with a fountain at his feet. He is dropping his stick and looking up to the heavens in appreciation. According to the story, Jesus had placed mud in his eyes and told him to wash it off at the fountain of Siloam for his sight to be restored.

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Draped in blue rags, an emaciated old guitarist sits cross-legged, strumming his guitar in a desolate setting. He is WRAPPED in his music and grief. Like the blind prophet, Tiresias in the Greek tragedies, he has seen all and knows the tragic destination of our strivings--all result in loneliness and death. Painted in Barcelona, the distorted style is reminiscent of the drama found in Spanish religious painting, particularly that of El Greco. The melancholy and pathos of Picasso's works from his Blue period reflect his sadness at the suicide of his young friend, Casagemas.

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In the fall of 1979, Keith Burton, a free-lance journalist, saw the videotape 0105 in a bioethics seminar at Southern Methodist University (see annotation in this database). The structural centerpiece of this 1974 documentary is the interview of a burn patient, Donald "Dax" Cowart, by psychiatrist Dr. Robert B. White at the University of Texas Medical Branch in Galveston. Dr. White had been called in to determine the patient’s competency because of his persistent requests to end the painful treatments, to go home, and to die.

Similar to most viewers of Please Let Me Die, Burton was intrigued by the unanswered questions and the uncertain outcome of the case and ultimately contacted Dax Cowart and his mother, Ada Cowart. Burton invited their collaboration on a follow-up videotape to Please Let Me Die, with the intention of providing "a living record of this man’s struggle for release from pain and despair." [see Keith Burton, "A Chronicle: Dax’s Case As It Happened." In Dax’s Case: Essays In Medical Ethics And Human Meaning, ed. Lonnie D. Kliever. (Dallas: Southern Methodist University Press) 1989: 1].

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In the poem, persimmons are a symbol of several elements that have figured importantly in this Chinese narrator's life: they stand for painful memories of cultural barriers imposed by language and custom, and for a present-day loving connection to an elderly, blind father. The poet begins with a schoolboy incident in which he was punished for not knowing the difference between "persimmon" and "precision" and makes a play on other words which sound similar and "that got [him] into trouble." He takes revenge later, when the teacher brings to class a persimmon that only the narrator knows is unripe, as he "watched the . . . faces" without participating. Persimmons remind him of an adult sensual relationship with Donna, a Caucasian woman, and of his attempts to teach her Chinese words which he himself can no longer remember.

The second part of the poem describes the role persimmons have played in his father's life and in their relationship. To comfort his father, gone blind, the narrator gives him a sweet, ripe persimmon, so full and redolent with flavor that it will surely stimulate the senses remaining. Later yet again, the father and he "feel" a silk painting of persimmons, "painted blind / Some things never leave a person."

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