Summary:

This video is the film of the staged one-woman play written and acted by white South African Pamela Gien. The play begins in 1963, in a white suburb of Johannesburg, in the fenced yard of the Grace family and their black servants. Gien starts as six-year-old Lizzie Grace. Gien then fluidly shifts roles to enact twenty-eight different characters from newborn to age eighty-two, black and white, male and female--who talk, gesture, sing and dance in this tour-de-force performance.

The set contains only a large, plain swing; even the berry-bearing syringa tree to which the swing is attached is left to the imagination. Gien’s costume is similarly muted--she is barefoot and wears a beige jumper over a simple tee shirt. A sound system provides music of ethnically diverse origins at appropriate moments.

The play opens with Gien swinging and talking in a girlish voice and using exaggerated childlike gestures. Lizzie exclaims that she is "a very lucky fish": she proceeds to explain to the audience the meaning of her favorable white nailbed spots. Lizzie is, by self-definition, a "hyperactive," outspoken child with great imagination and energy. She is cared for by Salamina, a loving nanny and servant.

Lizzie’s father is Dr. Isaac Grace, who delivers Salamina’s baby in the home. The child, Moliseng, "has no papers" and is harbored illegally by the Grace family--a constant source of worry for all, including Lizzie. Isaac is a Jewish atheist, and Lizzie’s mother, Eugenie, is Catholic and of English descent. Their neighbors, however, are bigoted Afrikaners and create great tension for the Grace household. "Don’t ever make this place your home," advises Dr. Gien to his daughter after dealing with racist clients who do not want to be in the same examining room after a black patient.

Lizzie’s liberal, generous grandfather is brutally murdered by a Rhodesian freedom fighter shortly after the resolution of another crisis: Moliseng, suffering from malnutrition, is missing from the overcrowded hospital. The play then fast forwards through Lizzie’s college years, when Moliseng, at age fourteen, is murdered in youth riots. Lizzie leaves for America, land of the (she pounds her chest) "free and brave." She returns years later, with her infant son named for her grandfather, to visit her father, her demented mother, and, above all, her beloved Salamina.

View full annotation

Summary:

Author Diedrich investigates ("treats") mid-late 20th century memoirs about illness (illness narratives) from an interdisciplinary perspective drawing on the disciplines of literature, social sciences, and philosophy. Her analysis uses the theoretical frameworks of poststructuralism, phenomenology, and psychoanalysis to consider "what sort of subject is formed in the practice of writing . . . illness narratives," the kind of knowledges articulated by such writing, whether and how such writing can transform "expert medical knowledges," how language operates in these memoirs, and "what sort of ethics emerges out of such scenes of loss and the attempts to capture them in writing" (viii).

The book is divided into Introduction, five chapters on specific memoirs, and Conclusion. Chapter 1, "Patients and Biopower: Disciplined Bodies, Regularized Populations, and Subjugated Knowledges," draws on Foucault's theory of power to discuss two mid-20th-century memoirs of institutionalization for tuberculosis. Betty McDonald's the Plague and I is compared with Madonna Swan: A Lakota Woman's Story. Dividing practices and regularization are shown to serve different functions in these two incarcerations, figurative in the case of Betty McDonald, and literal in the case of Madonna Swan.

Chapter 2, "Politicizing Patienthood: Ideas, Experience and Affect," draws on Foucault's approach to the subject and on his discussion of "practices of the self" in contrasting Audre Lorde's The Cancer Journals with Susan Sontag's Illness as Metaphor and AIDS and Its Metaphors (see annotations). Diedrich also brings into her analysis Eve Sedgwick's theory of queer performativity and Sedgwick's own illness narrative, White Glasses. Diedrich views all of these as counter narratives to the clinical medical narrative of illness but she shows how they differ in stance.

Chapter 3, "Stories For and against the Self: Breast Cancer Narratives from the United States and Britain" looks at "the arts of being ill" as they are represented in two cultures, two "conceptions of the self in these countries at a particular historical moment" (61). The narratives discussed are Sandra Butler and Barbara Rosenblum's narrative, Cancer in Two Voices and Ruth Picardie's Before I Say Goodbye (see annotations). Diedrich associates Cancer in Two Voices with an American notion of self-improvement and Before I Say Goodbye with a British "emphasis on the cultivation of an ironic self" (55). The author works in this chapter with Freud's idea of the uncanny, Benedict Anderson's concept of "imagined political communities" and Elaine Scarry's discussion of pain, language, and the unmaking of the self.

Chapter 4, "Becoming-Patient: Negotiating Healing, Desire, and Belonging in Doctors' Narratives," treats Oliver Sacks's illness narrative, A Leg to Stand On, Abraham Verghese's autobiographical My Own Country: A Doctor's Story of a Town and Its People in the Age of AIDS, and Rafael Campo's book of essays, The Poetry of Healing (see annotations). Here Diedrich considers "the possibility that doctors, especially AIDS doctors, might become patients through desiring-and writing-productions" (83) and she utilizes the rhizome model of Deleuze and Guattari to make her case. She discusses how Verghese and Campo are each both cultural insiders and outsiders and how they each "bring the body into language through their writing" (88).

Chapter 5, "Between Two Deaths: Practices of Witnessing," focuses primarily on Paul Monette's writing about the loss of his partner to AIDS, and on John Oliver Bayley's books about the loss of his wife, Iris Murdoch, to Alzheimer's, and her ultimate death (see annotations in this database). In this chapter Diedrich invokes Lacan's concept of the real and his formulation of "the ethical possibility of being between two deaths" (117). She draws also on trauma theory and the work of Kelly Oliver, a contemporary feminist philosopher who has written on witnessing.

Finally, in her "Conclusion: Toward an Ethics of Failure," Diedrich returns to Elaine Scarry's "phenomenological discussion of the experience of pain" and brings in Jean-François Lyotard's concept of incommensurability and his suggestion between the two poles of what is seemingly incommensurable one might search, in Diedrich's words, for "new rules for forming and linking phrases between . . . subject positions" (150). In that context she analyzes physician Atul Gawande's discussion of medical uncertainty and error in his book, Complications (see annotation) and philosopher Gillian Rose's book, Love' s Work. Diedrich concludes that the basic incommensurability between doctor and patient can be a starting point for a new ethics, an ethics of failure and risk "because by taking such risks [of failure, of relations], we open up the possibility of new routes, new treatments: in and between art, medicine, philosophy, and politics" (166).

View full annotation

Summary:

This Japanese horror story is set in a hospital in financial crisis, short of supplies and staff. We see various nurses and doctors struggling with their working conditions. A patient is injured falling out of bed, a nurse practices her IV technique on an unconscious burn patient, a demented woman wanders the hallways talking to apparitions she sees in mirrors. Two events set the central plot in motion: the burn patient dies because of a medication error and those present—Dr Akiba (Koichi Sato) who was responsible and Dr Uozumi (Masanobu Takashima) who was supervising, as well as the nurse who gave the lethal dose and her supervisor—decide to cover up the mistake, and a patient is brought to the ER suffering from a mysterious infection that is liquefying his internal organs.

Dr Akai (Shirô Sano), a senior physician, demands that Drs Akiba and Uozumi begin a study of the infected patient, despite their terror. The patient is never shown directly, but we see green ooze running from his bed. Akai argues that that discovering the pathogen causing this illness will raise money for the hospital, but the real incentive he offers is blackmail: he knows about the mistake and the cover-up.

As the night proceeds, all those involved in the error are infected, taking on zombie-like characteristics, behaving abnormally (a nurse attempts to transfuse her own blood into a corpse; a doctor tries to strangle a patient who has asked to have his pain relieved) and oozing green fluid before dying. With Dr Akiba, however, we begin to realize that the pathogen is not purely somatic. Dr Akai may in fact be the dead burn patient, the “green” ooze is red blood seen through the distorted perception of those haunted by guilt, and the title’s infection is the contagious fear felt by health care professionals who, for various reasons, are incapable of the infallible work of healing that is expected of them.

View full annotation

Summary:

This remarkable collection of short writings, introduced by renowned poet Naomi Shihab Nye, who visited the Sutterwriters (of Sutter Hospital in Sacramento, California) to offer a workshop, provides a broad, compassionate, imaginative window into the life inside and around an urban hospital. Patients, staff, and all interested in healing through writing are invited to come and participate-with an accent on the latter: no one is invited who isn't willing to write.

Chip Spann, the editor, came to Sutter Hospital with a Ph.D. in English, and has the privilege of coordinating this fluid community of writers as part of his work as a staffmember. His conviction, voiced in an engaging introduction, is that literature is a powerful instrument of healing--both the literature we read and the literature we create--and that the experience of literature belongs in community. The individual pieces are accompanied by photographs and short bios of contributors.

View full annotation

Summary:

Ninety year old Hagar Shipley is as proud, independent, and clever as when she was a young girl growing up through the Depression and afterwards in a prairie town in Manitoba. Now in Vancouver, she suffers from arthritis, memory loss, incontinence and abdominal pain that make it impossible for her to be cared at home by her eldest son Marvin, aged 64 and his wife Doris.

She is ill and fearful but shares none of this with anyone. Unwilling to leave her house and move to a nursing home, Hagar slips away to a cottage she remembers from summers ago, and secretly find her way back to it.

On this journey, her present life continually blurs with remembrances from her past, as a self-assured "peacock" daughter of Jason Currie, a tough, disapproving Scottish Protestant store owner who values propriety, refinement and friends of social standing. Hagar defies her father by marrying Bram Shipley, an unsuccessful farmer with coarse manners. Their stormy marriage produces two sons, Marvin and John, whom she dominates. The harsh frontier life in the 1930s and the couple's incompatibilities cause her to leave her husband and go to Vancouver. Consistently Hagar's fierce independence and pride prevent her from expressing emotion or accepting weaknesses in her family, and in herself.

Eventually she is found by her son Marvin. By then she has become ill and disoriented, and is hospitalized. She is dying and must come to terms with her past and her present life and accept the death that is her future.

View full annotation

Summary:

For months, Junior Brown, an obese adolescent, has been meeting secretly with his friend Buddy, a street-wise homeless boy who lives in an abandoned building, and a former teacher, now janitor, Mr. Pool. In the basement of the school building, Mr. Pool has rigged up a model of the solar system that rotates, illuminated in the dark. He and the boys discuss astronomy, math, and a vision of worlds to come while the boys skip classes and take refuge in their basement hideaway.

Junior is mentally disturbed; both Buddy and Mr. Pool know this and take care of him as they can. Junior's fiercely controlling mother exacerbates his obesity by serving him excessive helpings of food and feeding his fantasy that his father will return. She herself has asthma, which ties Junior to her as intermittent caretaker.

Junior has a musical gift, but his mother has removed the strings from the piano, so he practices on keys that produce no sound. Fridays he finds his way to the home of a demented old piano teacher who won't allow him to play her piano because of her delusion that a dangerous relative is hiding in her apartment. Ultimately the boys and Mr. Pool are caught in their marginal existence below the school.

They retreat to Buddy's urban hideaway where he cares for two other boys, teaching them how to survive. Buddy is convinced he can help Junior survive as well, with Mr. Pool's help. He knows that if he allows Junior to be retrieved by his mother or school officials, he'll be locked up in an institution where no one will recognize his gifts or his worth.

View full annotation

Summary:

Park's full name is Parkington Waddell Broughton V. He knows he has ancestors who have distinguished themselves and the name he shares with four generations of them. But his father died in Vietnam and he has never met his father's family. Though he is nearly twelve, his mother still avoids answering any questions about his father. Finally, to satisfy his curiosity, Park gets on a bus for the short ride from his home to the Vietnam Memorial in Washington DC. There he finds his father's name. There he also resolves to get some of his questions answered.

After a painful conversation, his mother puts him on a bus for south-western Virginia where his grandfather and uncle maintain the farm on which his father grew up. His grandfather has had a stroke and is now inarticulate, able to communicate in only the most rudimentary ways. His uncle has a Vietnamese wife, and shares his home with a Vietnamese girl about Park's age whose origin and status is not clear to Park until he discovers, after a number of uncomfortable encounters, that she is his half-sister, and that because of his father's infidelity, his mother divorced him before his second, and fatal, term in Vietnam. Park, whose fantasies about his father's past and his own future have been highly romanticized, does some important growing up in the short visit that puts him in touch with a more complex idea of family, grief, forgiveness, and acceptance than he has ever before had to develop.

View full annotation

Summary:

The editor solicited this collection of thirteen stories on the theme of entrapment from experienced young adult fiction writers. They represent a variety of kinds of entrapment: in a relationship too serious too early; in an abusive relationship; in a body distorted through the psychological lens of anorexia; in a dream world; in a canyon fire; in a web of secrets woven in an abused childhood; in a maze with a minotaur; in a habit of perfectionism; in the sites of urban violence; in dementia induced by post-traumatic stress (long remembered by a Viet Nam vet); in an unsought relationship with a lost and disturbed brother; in poverty. In each of the stories an adolescent protagonist encounters some challenge either to find his or her way out of a trap, or to understand others’ entrapments. The stories vary widely in setting and style, but held together by this theme, they serve to enlarge understanding of the ways in which any of us may find ourselves entrapped, and how “liberation” may require both imagination and compassion.

View full annotation

Summary:

A stray dog bites the left ankle of 12-year-old Sierva Maria de Todos los Angeles. She and her peculiar parents live in a country near the Caribbean Sea during colonial times. Her father belongs to the class of decaying nobility. He is a weak man with poor judgment. Her scheming mother is a nymphomaniac who abuses cacao tablets and fermented honey. Sierva Maria is more or less raised by the family's slaves whose culture she assimilates. The youngster has luxuriant copper-colored hair and a penchant for lying--"she wouldn't tell the truth even by mistake" according to her mother. (p. 16)

Before long, the dog dies of rabies. When Sierva Maria begins exhibiting bizarre behavior, no one is quite sure of the cause even though everyone seems to have his or her own theory. Is the girl displaying signs of rabies? Is she possessed by a demon? The physician Abrenuncio doubts either diagnosis. The powerful Bishop believes the girl may require an exorcism. Perhaps Sierva Maria is simply eccentric or maybe even crazy. Ninety-three days after being bitten by the dog, she is locked in a cell in the Convent of Santa Clara.

The Bishop appoints his protégé, 36-year-old Father Cayetano Delaura, to investigate the matter. The priest is immediately infatuated with the girl. When the Bishop learns of Cayetano Delaura's love for Sierva Maria and his unacceptable actions, the priest is disciplined and then relegated to caring for lepers at the hospital. The Bishop next takes matters into his own hands by performing the rite of exorcism on Sierva Maria. After five sessions, she is found in bed "dead of love." (p. 147)

View full annotation

Summary:

Subtitled "A Daughter's Search for Her Father," this memoir chronicles author Mary Gordon's quest to recapture the essence that was her father, a man she idolized and adored while he was alive--and long after his death when she was only seven years old. This death she saw as the single most defining event of her life. Identification with her father was essential to the conception of self, both as a creative writer, and as a worthwhile person. So she "entered the cave of memory" but found that memory was discordant with the facts.

Gordon's father was a writer, and a convert from Judaism to Catholicism. His persona was that of an intellectual, a graduate of Harvard, a frequenter of literary circles in Oxford and Paris. He claimed to be an only child, born in Ohio. As Gordon explores her memory and the historical record, forcing herself to confront her father's political opinions--opinions which are repugnant to her, and which she had earlier chosen to ignore--she uncovers a charade.

Her father, it turns out, was an immigrant from Vilna (in Eastern Europe) and had never finished high school. He had two sisters whom he never acknowledged to his family--one spent years in a mental institution where she ultimately died. Among his published writings are pornography and political diatribe (he was an anti-Semite and a facist); his writing was stylistically flawed.

This memoir is Mary Gordon's attempt to come to terms with what she learned about her father. It is the narrative deconstruction and reconstruction of the author's self; it is both biography and autobiography; a reflection on loss and recovery.

View full annotation