Summary:
The opening of the documentary Fixed: The Science/Fiction of Human Enhancement
is meant to startle. A young woman (disabled performance artist Sue Austin) in
a motorized wheelchair fitted with transparent plastic fins gracefully glides underwater
around seascapes of coral and populations of tropical fish. The scene dislodges
expectations about what wheelchairs can do and where they belong. It creates
what for many are unlikely associations among disability, wonder, joy, freedom,
and beauty. Watching Austin incites questions about what this languid and
dreamy scene might have to do with human enhancement, which more predictably brings
to mind dazzling mechanical, chemical, or genetic interventions that surpass
the ordinariness of a wheelchair and extend human capacities. But this gentle scene
opens the way for the film’s conversations about the ethics and meanings of human
enhancement that emphasize perspectives by people with disabilities.
Regan Brashear’s film features interviews with
and footage of people living with disabilities as they move in varied ways through
their environments—home, workplace, airport, therapy lab, city street. Photographs,
news footage, and performances by mixed-ability dance companies complement
their stories. We also hear from a transhumanist, academicians, and activists.
Together they express a wider range of views about human enhancement than seems
possible in an hour-long film.
Often contrastive views are paired or
clustered. For instance, double amputee Hugh Herr, Director of MIT’s Biomechtronics
Group, brags that his carbon-fiber and other prosthetic legs will outperform the
biological legs of aging peers. His lab develops robotic limbs controlled by
biofeedback, and he intends to end disability through mechanical technologies. Gregor
Wolbring, a biochemist and bioethics scholar who was born without legs, regards
himself as a version of normal and rejects being fixed. “I’m happy the way I
am!” he exuberantly proclaims. Rather than strive for normalcy through restorative
technology, Wolbring urges acceptance of imperfection.
Altogether, the interviewees raise questions about
how to respond to differences among human bodies: focus on corrections toward achieving
a concept of “normal”? accept diversity? extend human potential? The interviews
call out underlying assumptions about disability that influence our answers. Do
we assume that disability is an aberration that should be erased? A condition
located in individual bodies? A condition brought about by unaccommodating
social and built environments? Or, as disabled journalist John Hockenberry
proposes, “a part of the human story”?
Fixed
also asks what the social and ethical consequences of pursuing enhancements
might be. Do they equalize opportunity? Do they misplace priorities by
channeling attention and resources away from basic health care and ordinary, essential
technologies, such as reliable, affordable wheelchairs? Are biological,
chemical, and mechanical enhancements indispensible opportunities to extend human
experience, as transhumanist James Hughes claims? Do we have an ethical
responsibility to enhance, whether to correct or extend?
Hockenberry mentions that we already enhance.
Think of eyeglasses, telescopes, hearing aids. People with disabilities, he
points out, are typically the first adopters of technologies, such as
computer-brain interfaces, that are destined for wider use. Archival film
footage of warfare during this discussion reminds us what many of those uses
have been. Should we worry, he asks, about using people with disabilities as research
subjects? Or should we say with recently paralyzed Fernanda Castelo, who tests
an exoskeleton that braces her body as it moves her forward: “Why not”?
Considering whether we should trust technology
to create equality or treat each other equally in the presence of our
differences, disability rights attorney Silvia Yee poses the film’s most vital question:
“Which is the world you want to live in?” While Fixed gives a fair hearing to disparate answers, the closing image is
suggestive. A woman in a motorized wheelchair offers a lift to someone struggling
to push a manual chair uphill. She invites him to grasp the back of hers and
they roll forward together.
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