Showing 501 - 510 of 872 annotations tagged with the keyword "Patient Experience"
Summary:Poet Jane Kenyon, very ill with leukemia (from which she died after a 15 month illness), describes what it is like to be so weakened by illness that she prefers to wait in the car while her husband buys the groceries. She is aware of how weak, helpless, and out of place she is--a middle aged woman, sitting in the car in a parking lot in the middle of the day--"she had learned what it's like / not to be able to button a button." She watches enviously as those around her--"even the old and relatively infirm"--scurry about "with such freedom" and drive off in their cars "so briskly . . . ."
A chance meeting with her former and most compassionate fertility doctor brought Wendy Wasserstein (at age 48, and after 8 years of effort) back to his fertility clinic. Two weeks later she got the news that she was pregnant, and six months after that, just as she was getting ready to tell her friends "that the twenty pounds I had gained were not the result of bad habits and anxiety," she developed preeclampsia and was hospitalized.
What follows in this ’Annals of Motherhood’ memoir is an account of her hospitalization; her subsequent delivery 16 days later of 1lb., 12oz. daughter, Lucy Jane (Lucy’s waving hand sonogram picture reminded Wasserstein of "Lucy in the Sky With Diamonds"); and her separation from Lucy, who spent two months in the neonatal intensive care unit.
The italicized sentence under the title of this New Yorker essay summarizes it well: "Wanted: Highly accomplished young women willing to undergo risky, painful medical procedure for very large sums." Mead traces the phenomenon of women selling their eggs through the experience of Cindy Schiller, a 26-year-old law student who was "donating" her eggs for the third time.
In addition to Schiller's observations, the article is full of information about the clinical dimensions of egg donation--the donor shuts down her ovaries so that none of her eggs ripen and none of her follicles develop, followed by injections of follicle-stimulating hormones, followed by eggs that are "sucked out, one by one," and whisked away to be fertilized in a petri dish. Most of the article addresses the legal and ethical dimensions of egg donation, the hopes and expectations of those seeking donors, and the new-found marketing strategies of the American fertility industry.
Subtitled "What happens when patients find out how good their doctors really are," this article starts with an important statement: "Every illness is a story, and Annie Page's began with the kinds of small unexceptional details that mean nothing until seen in hindsight."
This is the introduction to a look at a child with cystic fibrosis and how her family sought the best care for her.
The author, Dr. Atul Gawande, goes on not only to tell their story but also the story of the way in which the understanding of this disorder has increased and the unusual rigor with which centers that specialize in the disease are evaluated.
He also includes stories of other sufferers to emphasize the importance of surveillance of their care.
These stories allow him to generalize about the way physicians' care is evaluated in general by the public and our medical organizations and how difficult it is to be at the high end of the Bell Curve. The author concludes, "When the stakes are our lives and the lives of our children, we expect averageness to be resisted."
This slim volume dips into "quotable quotes" drawn from literature and historical writings dating back several centuries. The quotes are put forth by physicians, patients, observers of medical issues, and writers of fiction as well as essayists. Each quote is but a few lines. The author, the source, and the date (when known) are provided for each quotation.
Many of these quotations will be familiar to persons who are widely read or who study the literature by and about medicine. Some of the quotes are scatological in the sense that they address issues of bodily parts and functions; others are simply amusing, while many are profound observations. The range is wide and the selections eclectic.
The story begins as a young woman enters the hospital for cancer treatment. She struggles to maintain her identity despite the institutionalized depersonalization typical of the hospital environment. Later, loss of hair from her cancer treatment also threatens her identity, for her appearance is a large part of who she is. Although she is rather proud of the fact that she refuses to buy a wig, preferring scarves instead, she covers all the mirrors in her home. Finally, she learns that even her naked skull can be beautiful, and dares to walk outside bareheaded for the first time after her treatment.
Summary:A woman who has had extensive bowel surgery and a colostomy now must deal with her changed appearance. She feels unattractive, and the strong odors and liquid stool that come from her colostomy are repulsive to her and to her husband. She is angry about her loss of identity, and takes the anger out on her husband. He feels guilty about her illness and surgery, and tries to overcompensate by trying extra hard to please his wife. He finally begins reading "Moby Dick" to his wife as a way to say that he will stay with her through the long haul.
An artist, suffering from psoriasis, believes he is "loathsome to love" because of his scaly skin. "The name of the disease, spiritually speaking, is Humiliation." The narrator creates gorgeous pottery--flawless, smooth--the opposite of his rough, splotchy skin. His retailer, Himmelfahrer (he who travels through Heaven), calls him a genius. His girlfriend, Carlotta, loves him the way he is.
However, as the narrator goes through drug and light treatments under the care of a dermatologist, his skin begins to clear, but his pottery gets ugly and rough, Himmelfahrer expresses distress at the loss of quality, and the love relation with Carlotta cools. The artist declares himself beautiful, his girlfriend leaves, and Himmelfahrer won't buy any of his "gargoylish" pottery.
This anthology of "healing poems" is designed, according to the editors, "to find readers who might not usually read poetry." They say it should also be read "by those sitting in waiting rooms in surgeries and outpatients' clinics." These are definitely large tasks to expect this small collection of poems to accomplish, but in a different world (for example, a world in which people believed in the power of poetry to heal), this particular anthology would have a good shot at becoming a standard waiting room fixture.
The therapeutic intervention is well thought out. The editors have arranged the book into eight sections, each containing poems that exemplify a different theme, or situation, or style of treatment. The sections include: Admissions, Poems to Make You Feel Better, What It Feels Like, For Those We Love, The Language of Pain, Healing Rhythms, Body Parts, and Talking to the Dead. There is considerable overlap among these categories, because good poems speak several languages and can't be pinned down to a single feature. However, the classification does serve a heuristic purpose. It is another way to hook the reader, by choosing a topic he or she likes; once inside the covers, the reader may explore at will without regard to categories.
Journalist Jonathan Eig traces the life of Lou Gehrig, one of the finest first basemen that major league baseball has ever known. Gehrig played as a tremendously reliable and powerful hitter for 17 seasons with the New York Yankees, the only team for which he played, many of them with Babe Ruth; he starred in 7 World Series games, playing on 6 championship teams. Gehrig's consecutive game streak of 2130 games, part of the reason for his nickname Iron Horse, was only broken recently, in 1995, by Cal Ripken, Jr. of the Baltimore Orioles.
Born June 19, 1903, Gehrig was only 35 years old when he developed the symptoms of amyotrophic lateral sclerosis, a neurodegenerative disease of vicious and progressive muscle wasting. He died June 2, 1941, quietly, at home. A relatively unknown disease at the time, amyotrophic lateral sclerosis, or ALS, soon became known as "Lou Gehrig's disease."