Showing 491 - 500 of 872 annotations tagged with the keyword "Patient Experience"
This documentary video follows the making of an opera, based on the illness experiences of four Australians who have been diagnosed and treated for cancer. Their feelings about these experiences are translated into music (with lyrics) as they work closely with music therapist/composer, Emma O'Brien. As the three women and one man tell their stories of physical debility and emotional pain, the music therapist asks them to think in terms of color (they choose purple, black) and tones and rhythms that she plays for them on the piano.
When the narratives and their musical representations have evolved sufficiently, trained singers take on the roles "written" for them by the four former patients; the latter continue to be intimately involved in the opera's production, directed by David Kram. At the end of the project, which is also the conclusion of the film, the opera is performed in front of an audience (with musicians playing instruments, singing, and dramatic enactment) and the four people whose illness experience is performed take their bows together with the singers.
The documentary film opens with the filmmaker, Susan Smiley, in search of her mother, Millie, who suffers from paranoid schizophrenia and who, once again, has disappeared into the woefully inadequate public health care system of middle America. Through old photographs and home movies, interviews with family members and health care professionals, and voice-over and direct narration by Smiley herself, the film chronicles the descent of a young, beautiful woman in her twenties into severe and chronic mental illness.
When Millie’s marriage to their father fails, Susan and her younger sister, Tina, are essentially abandoned to endure severe physical and emotional abuse by their mother. As the years unfold, Millie eventually loses her home and embarks on a journey of evictions, arrests, hospitalizations, and homelessness. At what seems to be Millie’s lowest point, warehoused in a nursing home where she is angrily refusing to take any medication, her daughters intervene, petition for guardianship, and navigate the system on behalf of their mother.
James and Elizabeth Morison and their two sons, 13-year-old Robert and 8-year-old Peter, called by his nickname, Bunny, live in a town in Illinois. It is 1918, the end of World War I.
The first third of the novel is narrated from Bunny's point of view. His mother, to whom he is deeply attached, lets him know that she is expecting a new baby. Her vivacious sister, Irene, separated from her husband, arrives for dinner. There is talk about the influenza epidemic, and Bunny remembers that on Friday a boy at his school fell ill. Later that evening, Bunny develops a high fever and is put to bed with the flu.
The second part of the book is from Robert's point of view. Bunny is seriously ill. The schools have been closed because of the epidemic and Robert is not allowed to go and play with his friends. His boredom is alleviated when a sparrow gets into Bunny's room and he is allowed to use a broom to drive it out. To his horror he realizes that, while he was fetching the broom, his mother had gone into Bunny's room and sat on the bed, even though the doctor had said she must stay away for fear of infection.
Bunny recovers, and the boys are sent to stay with their Aunt Clara while their parents travel by train to Decatur where Elizabeth will have the baby. At Aunt Clara's they learn that both parents have contracted the flu, and then that, after giving birth to a boy who will live, Elizabeth has died.
The last part of the book is from James's point of view. Returning home without his wife, he is certain that he will be unable to live in the house or take care of his sons. He decides that Clara and her husband should raise his children. Irene arrives and disagrees, telling him that the dying Elizabeth had told her she did not want this. Irene has meantime almost reconciled with her husband (as a small child, Robert had a leg amputated after being run over by the husband's buggy). Irene now tells James that she has decided instead to stay with him and help raise her nephews.
The novel ends with Elizabeth's funeral. The doctor has reassured Robert that he was not responsible for his mother's illness, though James continues to be haunted by the possibility that if he had chosen a different train, they would have avoided infection. At the same time, he recognizes Elizabeth's ordering and determining power, and how it will continue to shape his and his sons' lives.
Vincent Van Gogh stares at the viewer from behind steely eyes, his face turned at a three-quarter view. His skin, pallid and yellowed, gives him a slightly jaundiced look. He wears a short red beard that rises to meet the red hair on his head. Intense brush strokes and slathered paint carve out his facial features; the strokes' fury subsides only within Van Gogh's eyes.
He wears a blue cape tied around his neck, the right side of which is painted as distinctly separate from a background of similar color. The other side of his cape more easily fades into the patterned blue background that swirls like a whirlpool around Van Gogh's head. A painter's palette dabbed with various paints occupies the foreground.
Thirty-one-year-old waitress and aspiring (but inexperienced) boxer Maggie Fitzgerald (Hilary Swank) tries to get aging trainer-coach Frankie Dunn (Clint Eastwood) to take her on, but where Maggie is unstoppably optimistic, Frankie is worn out, even burned out, and he repeatedly refuses. The two are brought together by Frankie's assistant, ex-fighter Eddie "Scrap-Iron" Dupris (Morgan Freeman). Freeman, whom the other characters call Scrap, narrates the film.
Maggie and Frankie have their ups and down, but Maggie rapidly becomes a formidable boxer, a great favorite with fans. Eventually she finds herself in the ring as challenger for the world welterweight title. The unscrupulous defender delivers an illegal punch to Maggie, resulting in a fall that leaves her paralyzed below the neck.
At this point the story turns from boxing to Maggie's injury, which is incurable and worsening because she is bedridden. After Maggie loses a leg to bed sores, she tells Frankie that she doesn't want to go on, and she asks him to put her out of her misery. Short as her career has been, she has known success and happiness beyond the dreams of her dirt-poor upbringing, and she wants to leave life while she can still remember those good things.
Frankie, a serious Catholic, has religious qualms. His priest tells him not to get involved. From his own point of view, Frankie has come to feel attached to Maggie, and at first he steadfastly refuses Maggie's request. Maggie, unable to act in any other way, bites her tongue violently in an attempt to bleed herself to death. After witnessing her agony, Frankie tells the priest that keeping Maggie close to him--in other words, not killing her--has come to feel like a sin. He then acts to rid himself of that sin. He covertly removes her air supply and then injects her with adrenalin. Frankie does not return to his gym, vanishing without a word.
Summary:Leopold's Maneuvers is Cortney Davis's award-winning collection featuring 40 poems in two sections, in addition to the title poem. Thirty of the poems have been previously published in journals and anthologies such as Crazyhorse, Witness, Poetry, and Intensive Care. The content of the poems can roughly be divided into four categories: Nursing (e.g. "Leopold's Maneuvers," Examining the Abused Woman," "Water Story"); Domestic Remembrance (e.g. "Treatment," "The Brightest Star is Home," "When My Father's Breathing Stopped," "Everything in Life is Divided"); Flights of Imagination (e.g. "Shipwreck," "The Jar Beside the Bed"); and not unexpectedly, a Blend of the Realms in which she lives, works and dreams (e.g. "Mother's Gloves," "Confessions").
This is a comprehensive social history of European (or "Western") attitudes toward death and dying over the last thousand years. Ariès organizes his history into five sequential cultural constructs, each of which conveys the meaning of death to the individual and community, as well as the social institutions around death and dying, during a different period of Western history, beginning in the Middle Ages.
Cultural responses to death must begin by acknowledging that death is mysterious and overwhelming; a wild beast; a meaningless monster. Death lurks at the edge of our consciousness, ready to destroy us and demolish whatever meaning we attribute to our lives. In medieval Europe Christianity had domesticated this monster by establishing a comprehensive set of beliefs and practices that Ariès calls the "tame death." Death was merely a transition to eternal life. The individual was understood as an integral part of the community and not as autonomous and isolated. Therefore, death and dying were communal events, supported by specific prayers and practices (i.e. ars moriendi) that "tamed" the unknown.
In the centuries that followed, Ariès's "tame death" evolved through five stages into the radically different cultural conception of death that characterizes Western society--especially in its American form--today. These changes result largely from the gradual replacement of community-oriented personal identity with today's radical individualism; and the gradual sequestration of death to a position behind the scenes, so that dying and death become remote from ordinary experience.
In today's world we encounter "invisible death," a somewhat paradoxical name because its invisibility allows the savage beast free rein. Death is no longer "tame" because we deny its existence so effectively we no longer develop personal and communal resources to give it meaning. Death's invisibility enhances its terror; our culture's loss of spirituality enhances death's meaninglessness.
Thirteen-year-old Charles has been sick with a fever for days. The family doctor makes house calls and diagnoses the problem as scarlet fever and a cold. The boy is unconvinced and questions the physician's certainty since no diagnostic tests have been done. Charles is terrified when first his hands and then his legs change. He senses that his extremities become swollen, warm, throbbing, and twitching. Although the limbs appear normal, Charles is sure that he no longer has control of them. Recalling how the wood of petrified trees transforms into stone, he now fears that his entire body has been irrevocably replaced by a propagating mass of microbes.
The doctor dismisses the boy's fright as the result of fever and imagination. He placates Charles by giving him pills. When Charles begins choking himself, his parents restrain him in bed. Fortunately, the teenager improves dramatically. His fever disappears, and he is suddenly robust. Yet there is something odd (and a bit creepy) about Charles following his recovery.
While riding his bicycle, Paul Rayment, a 60-year-old Australian photographer, is struck by a car. He winds up in the hospital, has a leg amputated, and returns to his quarters to contemplate his future and deal with a series of nurses sent by the hospital social worker. Paul is divorced and has no living family.
His future looks bleak, and none of the nurses is satisfactory until the appearance of Marijana, a middle-aged Croatian woman with a young daughter, a teenage son, and a husband. The narrator gradually falls in love with Marijana, but by degrees his lust sublimates into an intense devotion to helping her son Drago survive his motorcycle phase and achieve his educational and professional objectives.
A chronicle of the author's perceptions, thoughts, memories, and personal relationships during the months after he was diagnosed as having AIDS. Brodkey's mind and prose are as sharp as a knife's edge. Beginning with the desperate struggle for breath that signaled pneumonia and, retrospectively, "how my life ended. And my dying began," continuing with the reactions and decisions of himself and his wife, the first half of the essay spins out an observant, introspective, cerebral, even amusing account of his particular experience.
But AIDS is often a disease associated with more emotional baggage than other fatal illnesses, and in Brodkey's case we learn that he traces both his dying and his homosexual experiences to "the major drama of [his] adolescence", daily sexual abuse by his adoptive father, with the implied knowledge and acquiescence of his mother. Writes Brodkey, "I experimented with homosexuality to break my pride, to open myself to the story." "Now I will die disfigured and in pain."