Showing 481 - 490 of 912 annotations tagged with the keyword "Patient Experience"

Annotated by:
Bertman, Sandra

Primary Category: Literature / Literature

Genre: Anthology (Mixed Genres)

Summary:

This unique "miscellany" of prose from journals and essays, poems, stories, music, paintings (reproduced in black and white), drawings, and cartoons illustrates countless ways that medicine and the arts, in tandem, "stretch the imagination, deepen the sympathy . . . enrich the perceptions" and give sheer, unadulterated pleasure. Organized by Robin Downie, renowned Professor Emeritus of Moral Philosophy at Glasgow University, the anthology is grouped in eight categories: "The Way We Are," "Disease and Mental Illness," "Doctors and Psychiatrists," "Nurses and Patients," "Healing," "Last Things," "Research," and "Ethics and Purpose."

Excerpts include the classic lore [Charles Lamb’s essay, "The Convalescent"; Florence Nightingale’s diary, "Notes on Nursing"; W. H. Auden’s poem, Musee des Beaux Arts (see this database); Theodore Roethke’s poem, In a Dark Time (see this database); C. S. Lewis’s journal, A Grief Observed (see this database); Sir Luke Fildes’s painting, The Doctor (see this database)] and refreshingly new nuggets from John Wisdom’s radio talk, "What is There in Horse-Racing" ("For a game of croquet is not merely a matter of getting balls through hoops, anymore than a conversation is a matter of getting noises out of a larynx,"); Robert Pirsig’s treatise, "Zen and the Art of Motorcycle Maintenance"; physician Roy Calne’s tender sketches of his own patients; composer Richard Wagner’s letter, "Biscuits as Therapy"; Janice Galloway’s novel, "The Trick is to Keep Breathing"; and expressions by patients and artists who happen to be patients of their particular illness experiences.

Lest "commentary be intrusive," except as brief introduction to each section, Downie deliberately omitted them, placing illustrations and extracts so as to provide commentary on one another. (Readers cannot help but be stimulated, however, to rearrange and create their own juxtapositions.)

The section on "Healing" considers not only the expected operations, spiritual healing, traditional cures, music and art as therapy, but also "spells, hope, and mothers." Richard Asher’s essay on why medical journals are so dull (British Medical Journal 23 Aug. 1958), or on whether or not baldness is psychological, and the comic strips of Posy Simmonds (the double entendres of "Medical Precautions," the "Minor Operation" burlesque on Shakespeare’s "All the Ward’s a Stage,") remind us yet again that birthing, aging, illness and dying are not pathological events or mere medical processes, and that the arts and humanities are bountiful reservoirs of moral discourse, inspiration, and renewal.

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Her Hair

Grace, Maggi Ann

Last Updated: Aug-24-2006
Annotated by:
Squier, Harriet

Primary Category: Literature / Fiction

Genre: Short Story

Summary:

Julia’s sister, Kara, has a recurrence of leukemia, and, because of the horrors of chemotherapy along with a dismal prognosis, decides to forgo treatment. Kara asks Julia, along with two of her closest friends, to participate in a "sweat," an Indian purification ceremony intended to "recenter" one’s spirit prior to death. The idea of her sister dying has caught Julia off guard, despite Kara’s dismal prognosis, her baldness, her gray color in the mirror.

Kara lives life to the fullest, without fear; in sharing her life, Julia had forgotten about the reality of death. Julia is surprised when in only five days the ceremony takes place, and thinks of all the practical reasons this ceremony makes no sense. Against her will, Julia takes her sister to the sweat tent and participates in the ceremony. Even though it might have hastened her sister’s death, Julia comes to realize the importance of the ritual, for as her sister dies, she, herself, feels closer to her than ever before, and is finally able to see how Kara’s life had fit into a larger design.

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The Hemophiliac's Motorcycle

Andrews, Tom

Last Updated: Aug-24-2006
Annotated by:
Coulehan, Jack

Primary Category: Literature / Poetry

Genre: Poem

Summary:

May the Lord Jesus Christ bless the hemophiliac’s motorcycle, the smell of knobby tires . . . This long-lined incantation of a poem takes the reader from the motorcycle raceway to the Kanawha River to the "oak tops on the high hills beyond the lawns" and, finally, to the hospital wards and the writer’s elderly roommate, who reads his grandson’s Bar Mitzvah speech. Isn’t it dangerous for the hemophiliac to ride in motorcycle races when even "a mundane backward plunge on an iced sidewalk" can bring him to the hospital bed and the "splendor of fibrinogen and cryoprecipitate"? Of course, but why not do so anyway!

This poem is a psalm, a paean of praise and gratitude to God--gratitude for oaks, and hills, and catbirds, and star clusters. "I want to hymn and abide by, splendor of tissue, splendor of cartilage and bone." The poet is also listening--listening for the presence of God in the silence: "may He bless our listening and our homely tongues."

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Mom's Cancer

Fies, Brian

Last Updated: Aug-24-2006
Annotated by:
Davis, Cortney

Primary Category: Literature / Nonfiction

Genre: Graphic Memoir

Summary:

This extraordinary graphic work began its life as a Web comic, posted anonymously, tracing in image and word the story of a son, his sisters and their mother who was diagnosed with a brain tumor, metastatic from her lung.  This comic caught on, and news of it was passed by email and link from reader to reader. About a year later, the author, Brian Fies, was presented the Eisner Award for Best Digital Comic. The entire sequence has now been published in a small, wonderful hardback book that will fit into a lab coat pocket.
 
Fies has managed to capture, in word and graphic panels, the thousand emotions and moments that swirl about a family when cancer changes their lives. He shows us the small, personal gestures and thoughts that we look back upon--how he "didn't lose any sleep" (3) when his mom first fell ill; how his mother both denied the severity of her illness and, at the same time, fell into the abyss of medical examination, radiation, chemotherapy; how he and his sisters assumed various roles in their mother's care and, soon, morphed into "superpowers," each defending his or her own territory (41-44).

Most amazing is how Fies exposes, in honest and poignant visuals, the many points of view of illness--his mother's, his siblings', his own, even the physicians'. His portrayal of how the medical system both confuses, abandons and supports his mother is alone worth the price of the book (39-40). We watch his mother, through his "cartoons," as she moves deeper and deeper into the world of illness, and we see the author's own anger in response to this loss.

He lashes out at smokers (pp 55-56), perfectly portrays the ever-smiling doctor (48-49), captures the odd suspension of a transient ischemic attack (TIA) (68-70), and lets us walk the tightrope of treatment alongside his mother (59-61). He also cleverly interweaves the back-story of his mother's youth, marriage and divorce, his childhood, and a vignette of the sickness and death of a favorite uncle, one whose dying prophesy impacted Fies's life (73-77). The moment when his mother truly understands the severity of her prognosis (94) is stunning.

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Summary:

This collection of sixteen Chekhov stories brings together in one volume many of Chekhov’s finest tales about doctors. The chronologically-arranged collection includes the famous novella, Ward 6, as well as such shorter classics as An Awkward Business and A Doctor’s Visit. In all sixteen stories, the doctor is a major figure, often at the center of a moral conflict.

Robert Coles , in his thoughtful forward, notes that Chekhov raises the "big questions" about "the meaning and purpose of life and the manner it ought to be conducted (and why)." Himself the editor of William Carlos Williams’s doctor stories, Coles recognizes and honors the comparison between Chekhov’s and Williams’s works and their dual careers as physician-writers. Jack Coulehan, in his introduction and comments, provides interesting biographical information on the great Russian writer as well as insightful interpretations of each story.

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The Scarlet Flower

Garshin, Vsevolod

Last Updated: Aug-23-2006
Annotated by:
Coulehan, Jack

Primary Category: Literature / Fiction

Genre: Short Story

Summary:

The story opens with the protagonist, identified only as the "Patient," being forcibly carried into the insane asylum. Once there, he no longer protests, but seems to accept his incarceration in the huge, overcrowded hospital. The doctor and other staff members seem particularly kind. Because the Patient rapidly loses weight, despite his good appetite, he receives a special diet.

The Patient notices a single scarlet flower among the many beautiful flowers in the hospital garden. He suddenly realizes that all the evil in the world is condensed into the scarlet flower. His mission is to destroy it. But when he attempts to pick the flower, hospital personnel prevent him from doing so, since picking flowers is prohibited. Eventually, he manages to destroy the flower, but notices a second scarlet blossom in the garden. He destroys that one as well, but a third scarlet flower appears. Finally, the Patient sneaks out at night to deal with the third flower, and then is found dead in the garden the next morning, clutching the remains of the scarlet blossom.

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Summary:

A long hallway stretches almost all the way to the end of the viewer's perspective. One solitary figure about halfway down the hall makes a quick exit from our view as it ducks into an abutting room. The hallway is colored in somber tones--browns, greens, and muddy yellows make up most of the coloration. These colors make the hallway appear as though it is composed of awkward rivers flowing across the plane of the floor, suggesting a sort of moat or barricade across which travel might be difficult. Additionally, the archways are not stylistically consistent--the arch closest to the viewer is more plain, more bleak, and seems to cordon off the viewer's end of the hall from the remainder of the corridor.

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Summary:

This is a compilation of personal interviews framed by a review of the history of post World War II attitudes toward pregnancy out of wedlock. The project began as an oral history involving over 100 interviewees. The majority of the women were adolescents dependent upon their parents when they gave birth and relinquished their infants for adoption. The book is structured loosely around specific issues--such as parental responses to their daughters' pregnancies, hiding the pregnancies from family members and friends, methods of handling the birth itself and the subsequent signing of adoption papers--each chapter illustrated by excerpts from the interviews.

There are striking similarities among the interviewees' experiences, particularly in terms of the long-term grief and guilt that plagued most of these women. Fessler addresses the increasing movement toward enabling the mothers and the adopted children to seek one another if they so choose, and points the interested reader toward resources for additional information on the contemporary status.

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Gravy

Carver, Raymond

Last Updated: Aug-22-2006
Annotated by:
Coulehan, Jack

Primary Category: Literature / Poetry

Genre: Poem

Summary:

Gravy is an unvarnished statement of gratitude. The poet is grateful to be alive "these last ten years . . . / sober, working, loving and / being loved by a good woman." Eleven years earlier, he had been told that he would die soon, if he didn’t quit drinking. He quit, met a woman, fell in love. "After that it was all gravy." When he was told that cancer was "building up inside his head," he told his friends not to weep for him. "I’m a lucky man."

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First, You Cry, excerpt from

Rollin, Betty

Last Updated: Aug-21-2006
Annotated by:
Squier, Harriet

Primary Category: Literature / Nonfiction

Genre: Autobiography

Summary:

In First, You Cry, an autobiography by Betty Rollin, a well-to-do television broadcaster adjusts to the loss of a breast from cancer. The author uses humor to deal with and recount her loss as well as her anger, as she slowly begins to adjust. This excerpt deals with the author’s fixation on finding the right breast prosthesis.

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