Showing 241 - 250 of 273 annotations tagged with the keyword "Illness Narrative/Pathography"
The author of this memoir is a poet and writer who developed systemic lupus erythematosis (SLE) during her first year at the University of Pennsylvania. Initially, her condition was difficult to diagnose, which led to her first negative encounters with physicians and the health care system. Later, Ms. Goldstein developed unusual neurological manifestations of SLE. Once again, she had trouble convincing her doctors that her symptoms were not only real, but also disabling. She was fortunate enough to come across a few good physicians who respected her as a person and earned her trust.
Despite her chronic illness, Ms. Goldstein thrived throughout college and graduate school. She approached each new challenge with such a positive attitude that some of her doctors considered her emotionally unstable. (I guess they thought it would be more "normal" for her to lose hope and turn herself into an invalid.) Her graduate work in literature focused on the new field of literature and medicine.
In this lyrical, funny, sad, heartwarming work, Joyce Dyer takes us inside an Alzheimer's unit where she visits her mother daily and watches as she experiences the many absurdities and contradictions of this disease over several years. Dyer records not only the behavior of her mother and other patients in the unit but also her own feelings of worry, anger, frustration and then acceptance. The prose-poem style of this writing makes the work especially wonderful to read, because it is a work of art as well as a very helpful document.
The poem's title refers to John Hunter Hospital, where Les Murray lay near death for three weeks as a result of a liver condition. He "turned yellow as the moon / and slid inside a CAT-scan wheel," then found himself emerging from a "time warp" of unconsciousness 20 days later. Murray reports that he is "the only poet whose liver / damage hadn't been self-inflicted."
He goes on to explain what had happened to make his liver rehearse "the private office of the grave." When he was over the crisis, he signed a "Dutch contract," presumably an advance directive of some sort. Surprisingly, surviving his bout of acute liver failure seemed to cure his other problem, "the Black Dog, depression." The poem ends with a paean of gratitude for "the project of seeing conscious life / rescued from death." [80 lines]
The writer describes her experience as a cancer patient, thrust into "the Land of the Sick" by the diagnosis and treatment of lung cancer four years earlier. Although she is not ill, the fear of mortality embedded in a diagnosis of cancer is a dragon that haunts her existence.
To cope with the dragon she relies on talismen: her doctors, personal will, and her garden peas, an emblem of everyday life and its constant renewal. The talismen create the semblance of control over her situation. She observes that "doctors and patients are accomplices in staging a kind of drama" and that the patient and her continued well-being become talismen for the doctor too.
This collection about the experience of suffering and recovery from physical and emotional illness is unique in that each essay is composed by an established writer who uses his or her literary skills in the rendering of the narrative. The nature of the illnesses lived varies from chronic depression to a broken leg, from progressive and potentially fatal disease to the intermittent disability of connective tissue disorder.
Some of the stories are poetic in their use of metaphor and symbol, others are circumspect about the reality of the effect of illness, as well as healing, on the creative process. Together, they make an interesting cross-section of narrative responses to disruption of life plans.
The story covers the months from early diagnosis of a retinal disorder through stages of treatment and loss of vision to a six-month stay at a residential facility to train the newly blind in life skills, including Braille. Sally Hobart was a 24-year-old elementary school teacher when she began suddenly and rapidly to lose her vision.
In the months that followed, she went through several surgeries and other treatments that are sometimes successful in restoring vision, but all efforts failed. She was left with very cloudy partial vision--only enough to distinguish colors, light and dark in the lower half of the vision field.
She tells about the fear, the frustrations of partial information and false hope, the tension between herself and her fiancé (they finally called off the engagement), the support (and also confusion and pain) of friends and family, and the emotional adaptation to a whole new life while learning to become independent as a blind person.
This is a personal narrative by one of America's most accomplished authors. For the past thirty years Reynolds Price has written novels, stories, poems, essays. In this memoir Price describes his battle with a spinal tumor detected in 1984 which left him with some neurological impairment. He struggled with his own rehabilitation and eventually recovered with the aid of biofeedback and hypnosis.
The most compelling part of the book is near the end. The author muses about the meaning of his illness, "advice I'd risk conveying to a friend confronted with grave illness or other physical or psychic trauma" (p.182). He puts the travails of life into a philosophical perspective that is almost Zen-like.
In July of 1986, author Andre Dubus was assisting some stranded highway motorists when he was struck by a car. After two painful months of hospitalization, one leg had to be amputated at the knee; the other leg, damaged and immobilized in a cast for many months, became virtually useless, but still painful. Dubus was forced to "accept life in a wheelchair." (106)
In meditating on events and people in his life before and after the accident, Dubus leads us to the interior space of his suffering, fear, moodiness, stoicism, and religious faith. Like the Hemingway character he describes in "A Hemingway Story," he has both gotten over and not gotten over the consequences of his accident.
"Sacraments" interweaves the receiving of religious sacraments with the concentration, care, and love associated with making sandwiches for his two young daughters, the emotional pain of carrying on a love relationship by telephone because of his limited mobility, the received sacraments of learning how to drive his specially equipped car, and of getting a bargain from a swimming pool contractor--"the money itself was sacramental: my being alive to receive it and give it for good work." (95) Concluding with the recollection of his father's death; Dubus notes that "I had not lived enough and lost enough" to recognize the grace that accompanied past pain.
Pain and grace continue to compete for his attention: "The memory of having legs that held me upright at this counter and the image of simply turning from the counter and stepping to the drawer are the demons I must keep at bay . . . So I must try to know the spiritual essence of what I am doing." (89) Similarly, mourning--for what he can no longer do-- and gratitude--for what he once was able to do-- go hand in hand as Dubus remembers the joy of running for miles in the countryside (" A Country Road Song").
The body's memory and the losses suffered figure importantly also in "Liv UIlman in Spring." In this powerful piece, Dubus describes his meeting with the actress, how he was moved to tell her "everything," how, bent low, "her eyes looking at mine" she said, 'You cannot compensate.' " (130) For her honesty and understanding Dubus was enormously grateful.
"Witness" relates the uncanny experience of meeting a woman who had witnessed his accident. Wonderment, fear, depression, inspiration, and writing about this incident were the result. As always, Dubus wrote in order to be led to some further understanding. The essay ends, "Today the light came: I'm here."
An engaging anthology of writings about illness, from over 330 sources, literary and medical, men and women, ranging from Deuteronomy and Hippocrates to Virginia Woolf and Oliver Sacks. Readable explication introduces the chapters devoted to various themes, a list of which will serve best to illustrate the scope.
1. Generalities; 2. Illnesses (greater and lesser); 3. Eyes, Ears and Teeth; 4. Doctors and Cures; 5. Hospitals and Patients; 6. Philosophers and Kings; 7. Intellectual and Spiritual Frets; 8. Strange Complaints, Mishaps, Embarrassments; 9. Imaginary, Feigned, Psychological; 10. Melancholy and Love Sickness; 11. Manias, Phobias, Fantasies, Fears; 12. Breakdown and Madness; 13. Young and Old; 14. Animals; 15. Invalids and Convalescents; 16. Short and Sharp (a collection of pithy aphorisms about illness).
The poet Donald Hall reflects in this journal-memoir on the meaning of work and "a life's work." He describes his daily life and work over a period of three months, interspersed with stories about his family, particularly his New Hampshire grandparents on whose farm Hall now lives.
Halfway through the book, Hall discovers that his colon cancer has metastasized to the liver. He undergoes surgery to remove part of his liver and subsequently recovers from the immediate effects of surgery. At the end of the book, he is ready to begin chemotherapy.