Showing 271 - 280 of 280 annotations tagged with the keyword "Illness Narrative/Pathography"
This book is a series of essays about the illness experience. The author developed chronic fatigue syndrome (CFS) after a viral illness in 1988. Suddenly, this 41-year-old public policy analyst, who was also a successful writer and a competitive runner, was thrust into the world of severe disability. He developed subtle but extensive neurological deficits that affected his concentration and memory. For months he could hardly get out of bed. He discovered that not only was the cause of CFS unknown, many physicians did not even believe it was a "real" illness.
"Double Blind" tells the story of Skloot's participation in an ill-fated clinical trial of Ampligen, an experimental treatment for CFS. Other essays describe the author's experience with alternative medicine, including an intensive course of Ayurvedic "detoxification" ("Healing Powers") and a visit to Germany to encounter Mother Meera, an avatar of the Divine Mother ("Honeymooning With the Feminine Divine").
"Home Remedies" presents his comic experience with helpful calls and letters telling him how to get rid of the illness. Other essays deal with Skloot's learning to cope with chronic disability. A final section includes poems about the illness experience of several composers and artists (e.g. Carl Maria von Weber, George Gershwin, and Vincent van Gogh).
Summary:The author, a pediatrician by training who has gradually moved into psycho-oncology and training others in relationship centered care, writes about life in this collection of short vignettes and analyses. She blends stories of her own experiences as patient and as woman with those she has gathered from a long history of patient encounters. There is no temporal sequence, but the work is grouped into thematic segments. The author shares selected, carefully garnered and assessed narratives of life events intended to be spiritually healing to those who are ill or who care for the sick.
Summary:In Balsamroot, Mary Clearman Blew explores the life story of her beloved aunt, who has recently developed dementia. The memoir artfully interweaves the stories of the author's struggle to cope with her aunt's condition and find the best care for her; her aunt's past as revealed in newly discovered diaries; the author's reconciliation with her estranged daughter; her coming to terms with a broken love relationship from the past (spurred on by her discovery of a thwarted love in her aunt's past).
This is a collection of twenty-six first-hand accounts by women institutionalized in mental hospitals or "asylums" in America between the mid-nineteenth century and the end of World War II. The book is divided into four historical periods, each introduced by the editors with an essay contextualizing the narratives in relation to the history of the psychiatric establishment, and to the roles, perceptions, and experiences of women in American culture.
The accounts are all extracts from works published by the writers, usually as attempts to expose the injustices of the mental health system. Most of the writers are not well known, with the exceptions of the author Charlotte Perkins Gilman and the actress Frances Farmer, whose account concludes the book [see film annotation in this data base: Frances].
The memoir is divided into roughly two halves: before Mike's death and after Mike's death. The narrator is one of the dying man's circle of gay and lesbian friends, and becomes, for unclear reason's, his most involved caregiver. She goes to his apartment on summons at any hour, flies to Memphis when Michael is hospitalized after collapsing, loans him money, and endures relentless psychological abuse as his cognitive powers fade.
In the second half of the book, the writer reflects. Her anger toward Mike's disease, AIDS, and Mike himself does not seem tempered by the passage of time. She is still struggling at the end of the tale, more than two years after Mike's death.
Slater subtitles her book, A Therapist's Memoir of Madness. Embedded in this definition are two elements: a psychotherapist's composite experiences with a small cadre of patients and the therapist's personal experience with a mental disorder. The author draws the reader into a fascinating series of anecdotes based on therapeutic encounters.
These stories are as much, if not more, about the therapist's deepest responses to her patients than about the patient him or herself. This particular approach adds an element of confession to the work that one does not often find in clinical studies. And, finally, Slater takes the reader backward in time to her own past as a woman with profound emotional pain.
In this collection of poems, the author details her descent into the hell of bipolar disorder and the re-integration of her life, thanks to lithium therapy. In "Other Lives" she describes herself as "mother of none, good friend to all, / who for no apparent reason, / tries to kill herself, twice." She writes angrily to the psychiatrist who misdiagnosed her and prescribed the wrong medication: "Your first mistake was to see me at all. / Your second, prescribing the Elavil." (in "Shocking Treatment") While she misses the productivity and "rush" of her hypomanic episodes, she realizes this is the price she has to pay to avoid another "two years of pain or nothing, numbness."
As the author's health improves, she cares for friends who are dying of AIDS and for the dying father of a friend: "I'm learning, as I nurse / my father that the worst / would be protection from / death's reality." (in "For Jean") The collection is interlaced with a series of poems called "Black Stones" in which the author encounters very directly the reality of death. In the last of these, she cries out the words of her friend Matthew who has just died: "Rika, dear friend, live and live and live!"
This book offers an insightful, well-reasoned interpretation of the nature of medicine. Hunter, an English professor who teaches and coordinates humanities programs at a medical school, observed first-hand how an academic medical center functions--she joined various teams during their multiple rounds and conferences for two years. In sum, she "behaved rather like an ethnographer among a white-coated tribe." The resultant book details the profound importance of narrative in medicine.
Narrative is integral to the medical encounter, to communications by and about the patient, and to the structure and transmission of medical knowledge. For example, the patient's story is told to and interpreted by the physician, who then tells another story of the patient, in case format to other physicians, and records that story in a formulaic chart entry. Hunter observes that most of the rituals and traditions of medicine and medical training are narrative in structure, and explains why narratives such as cautionary tales, anecdotes, case reports and clinical-pathological conferences are central, not peripheral, to medicine. The thesis is further developed to maintain that, if the narrative structure of medicine is fully recognized by physicians, they will attend to their patients better and acknowledge the details and importance of their patients' individual life stories.
Terry Tempest Williams, a thirty-four year old Mormon woman and naturalist based in Salt Lake City, Utah, considers herself part of "The Clan of One-Breasted Women." Ten women of her family, including Williams, have been treated or have died from breast cancer. Is this just an example of the randomness of nature, or is it related to the fact that Williams and her family were residing in the "virtually uninhabited" plains downwind of the atomic bomb testing grounds from 1951 to 1962?
When her book begins, Williams' mother has just been diagnosed with ovarian cancer, and the book follows the next five years of her life and death. At the same time, the Great Salt Lake is rising to record heights, flooding the Bear River Migratory Bird Refuge and scattering the birds and animals with whom Williams has lived her life. The interplay of the uncontrollable elements of nature and the inevitability of life and death make this book an elegant study of "renewal and spiritual grace," and an excellent and unusual telling of a daughter learning how to grieve for her mother.
De Quincey was a well-known 19th century English journalist and essayist. He was orphaned at a young age and sent away to school, where he was successful but bored and soon ran away. He then spent several years living as a vagrant in Wales, then London. In London, he was reunited with an old family friend who supported him financially and sent him to study at Oxford.
At age 28, De Quincey began to use opium (mixed with alcohol in the form of laudanum) regularly to treat his severe stomach pains. Though his intake was moderate at first, he soon became addicted. At first he rationalized the use of the drug. Later, he experienced opium-induced stupors in which he could not distinguish dream from reality nor note the passage of time.
He also developed memory loss and long periods of depression. He resolved to wean himself from the drug and did so, although in the final version (1856) of this memoir he admits to having slipped back into addiction a number of times.