Showing 251 - 260 of 264 annotations tagged with the keyword "Illness Narrative/Pathography"

Annotated by:
Coulehan, Jack

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

In 1984 Handler was a moderately successful 23 year old New York City actor, when he developed acute myelogenous leukemia. Strongly supported by his girlfriend and family, Handler underwent induction and, later, consolidation chemotherapy at Sloan-Kettering Memorial Hospital, where he also began his long experience (the "comedy of terrors" or, perhaps more appropriately, the "tragedy of errors") of a harsh, hostile medical environment populated by arrogant physicians, condescending nurses, and a host of unhelpful minor characters.

Handler carries us briskly through his first remission, the impact of his illness on his family and personal relationships, his experience with nonconventional healing (Simonton Cancer Center), his return to work on Broadway, his relapse, and the agony of a second round of induction chemotherapy at Sloan-Kettering.

Subsequently, he goes to Johns Hopkins Hospital to undergo the rigors of an autologous bone marrow transplant. At Hopkins he discovers to his surprise a medical setting far different from Sloan-Kettering: communicative, compassionate physicians and a patient-centered healing environment. Even the two hospitals' sperm banks reflect this radical difference in approach.

After surviving his transplant and a subsequent round of serious infections, Handler resumes his life. He realizes that most of the time nowadays he is not in touch with the sense of joy and gratitude for each moment that the illness taught him. Yet, these feelings exist below his consciousness; sometimes he steps through "a little doorway near the floor of my consciousness" and experiences his life in a simpler, more profound way.

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A Very Easy Death

Beauvoir, Simone de

Last Updated: Dec-18-1997
Annotated by:
Willms, Janice

Primary Category: Literature / Nonfiction

Genre: Autobiography

Summary:

A retrospective and reflective review of the last weeks in the life of the author's aging mother. Threaded throughout the chronicle of the progressive downhill course of the patient dying of cancer are flashbacks to the earlier relationships among the author, her sister, and their mother. The course of the illness enables the reader to view many of the common problems that inform the doctor-patient, nurse-patient, and parent-child relationship. The narrator, who is an accomplished writer, creates vivid and timely images of the hospital as experienced by the lay person.

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Annotated by:
McEntyre, Marilyn

Primary Category: Literature / Nonfiction

Genre: Autobiography

Summary:

In this memoir Sheed reflects on his experience of three major illnesses: polio; clinical depression, related to alcoholism and sleeping pill addiction; and cancer. He contrasts the incongruous and paradoxical "inner life" of illness, with the often oversimplified prototypical experience represented by AA [Alcoholics Anonymous] literature, various psychiatric orthodoxies, and popular media.

Issues that arise include the tension between medical authority and patient experience, caregivers' and clinicians' projections, friends' and family's misapprehensions, and the surprises, both welcome and horrifying, that occur in the course of treatment and recovery because no illness, mental or physical, follows a textbook format.

The narrative is a wry examination of games patients play as well as a confession, dry and witty but also extraordinarily perceptive, of the failed and false expectations, pretenses, fears, resistances, rage, and qualified pleasures that characterized his personal odysseys through illnesses that have often been simplified and obscured by popular mythmaking.

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Paula

Allende, Isabel

Last Updated: Sep-16-1997
Annotated by:
Poirier, Suzanne

Primary Category: Literature / Nonfiction

Genre: Autobiography

Summary:

Novelist Isabel Allende's daughter, Paula, died after entering into a coma following an acute attack of a porphyria disease. Allende was at her daughter's side in a hospital in Spain, where Paula was living with her husband, and later in Allende's home in California, where Paula spent the last months of her life.

When Paula first lost consciousness, Allende began writing for her an account of her illness, which soon grew into a memoir of Allende's own life: "Listen, Paula, I am going tell you a story, so that when you wake up you will not feel so lost" (p. 3), Allende begins. As Allende tells of her childhood, political and feminist awakenings, and her growth as a writer, she also watches Paula sink deeper and deeper into coma. She remains insistent, however, that Paula will recover, works in secret with a sympathetic physician to wean Paula from the respirator that breathes for her, then flies her back to California for rehabilitation.

In the end, though, she faces the reality that Paula will not recover, and, as she finishes telling Paula the story of her own life, she discovers that she has found the strength to let Paula go. Paula dies in a sunny room in Allende's house, surrounded by family and friends.

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The Night-Side

Skloot, Floyd

Last Updated: Sep-16-1997
Annotated by:
Coulehan, Jack

Primary Category: Literature / Nonfiction

Genre: Collection (Essays)

Summary:

This book is a series of essays about the illness experience. The author developed chronic fatigue syndrome (CFS) after a viral illness in 1988. Suddenly, this 41-year-old public policy analyst, who was also a successful writer and a competitive runner, was thrust into the world of severe disability. He developed subtle but extensive neurological deficits that affected his concentration and memory. For months he could hardly get out of bed. He discovered that not only was the cause of CFS unknown, many physicians did not even believe it was a "real" illness.

"Double Blind" tells the story of Skloot's participation in an ill-fated clinical trial of Ampligen, an experimental treatment for CFS. Other essays describe the author's experience with alternative medicine, including an intensive course of Ayurvedic "detoxification" ("Healing Powers") and a visit to Germany to encounter Mother Meera, an avatar of the Divine Mother ("Honeymooning With the Feminine Divine").

"Home Remedies" presents his comic experience with helpful calls and letters telling him how to get rid of the illness. Other essays deal with Skloot's learning to cope with chronic disability. A final section includes poems about the illness experience of several composers and artists (e.g. Carl Maria von Weber, George Gershwin, and Vincent van Gogh).

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Kitchen Table Wisdom

Remen, Rachel Naomi

Last Updated: Sep-15-1997
Annotated by:
Willms, Janice

Primary Category: Literature / Nonfiction

Genre: Collection (Essays)

Summary:

The author, a pediatrician by training who has gradually moved into psycho-oncology and training others in relationship centered care, writes about life in this collection of short vignettes and analyses. She blends stories of her own experiences as patient and as woman with those she has gathered from a long history of patient encounters. There is no temporal sequence, but the work is grouped into thematic segments. The author shares selected, carefully garnered and assessed narratives of life events intended to be spiritually healing to those who are ill or who care for the sick.

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Balsamroot

Blew, Mary Clearman

Last Updated: Sep-15-1997
Annotated by:
Dittrich, Lisa

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

In Balsamroot, Mary Clearman Blew explores the life story of her beloved aunt, who has recently developed dementia. The memoir artfully interweaves the stories of the author's struggle to cope with her aunt's condition and find the best care for her; her aunt's past as revealed in newly discovered diaries; the author's reconciliation with her estranged daughter; her coming to terms with a broken love relationship from the past (spurred on by her discovery of a thwarted love in her aunt's past).

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Summary:

This is a collection of twenty-six first-hand accounts by women institutionalized in mental hospitals or "asylums" in America between the mid-nineteenth century and the end of World War II. The book is divided into four historical periods, each introduced by the editors with an essay contextualizing the narratives in relation to the history of the psychiatric establishment, and to the roles, perceptions, and experiences of women in American culture.

The accounts are all extracts from works published by the writers, usually as attempts to expose the injustices of the mental health system. Most of the writers are not well known, with the exceptions of the author Charlotte Perkins Gilman and the actress Frances Farmer, whose account concludes the book [see film annotation in this data base: Frances].

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Hospital Time

Hoffman, Amy

Last Updated: Apr-03-1997
Annotated by:
Willms, Janice

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

The memoir is divided into roughly two halves: before Mike's death and after Mike's death. The narrator is one of the dying man's circle of gay and lesbian friends, and becomes, for unclear reason's, his most involved caregiver. She goes to his apartment on summons at any hour, flies to Memphis when Michael is hospitalized after collapsing, loans him money, and endures relentless psychological abuse as his cognitive powers fade.

In the second half of the book, the writer reflects. Her anger toward Mike's disease, AIDS, and Mike himself does not seem tempered by the passage of time. She is still struggling at the end of the tale, more than two years after Mike's death.

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Welcome to My Country

Slater, Lauren

Last Updated: Feb-03-1997
Annotated by:
Willms, Janice

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

Slater subtitles her book, A Therapist's Memoir of Madness. Embedded in this definition are two elements: a psychotherapist's composite experiences with a small cadre of patients and the therapist's personal experience with a mental disorder. The author draws the reader into a fascinating series of anecdotes based on therapeutic encounters.

These stories are as much, if not more, about the therapist's deepest responses to her patients than about the patient him or herself. This particular approach adds an element of confession to the work that one does not often find in clinical studies. And, finally, Slater takes the reader backward in time to her own past as a woman with profound emotional pain.

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