Showing 121 - 130 of 183 annotations tagged with the keyword "Dementia"
Born in Newnan, Georgia, and raised in Jackson, Florida, Cary Henderson was the first member of his family to go to college. He eventually earned a Ph.D. from Duke University and with his family, settled into an academic career as a history professor at James Madison University. In 1985, at the age of fifty-five, he was diagnosed with Alzheimer's disease.
As his ability to read and write deteriorated, Henderson began using a pocket recorder to tape what he called "the anecdotal career of an Alzheimer's patient" in order to help others "understand the world that they are now forced to live in" (4). His recorded journal spans the fall of 1991 to the summer of 1992. His wife and daughter began the long process of editing his tapes and were ultimately joined in the project by Nancy Andrews, award-winning photographer from The Washington Post, who provided images of Henderson to accompany his words.
Summary:This is a handsome and unusual volume of self-published poetry by a chaplain who is part of a multidisciplinary team in a geriatric outpatient clinic in Iowa City, Iowa. The poems articulate the struggles of older individuals, their families, and their caregivers to make sense of changes in later life. The 30 "poem portraits" are told from varying points of view. Three of the more compelling works are "Constance," "Remembering the Trees," and "House Dreaming."
When Gerald is three, his mother, a drug addict, leaves him alone one time too often and he accidentally sets the apartment on fire. His mother is imprisoned for negligence, he goes to the hospital, and thereafter lives with "Aunt Queen," a great-aunt who exercises considerable authority from her wheelchair, and gives him all the love his mother hasn't.
When he is 9, however, his mother returns with a new sister and a man who claims to be the sister's father. They want to take him "home"; Gerald wants to stay with Aunt Queen. The matter is settled unhappily when Aunt Queen dies of a heart attack.
Gerald soon learns to despise his stepfather for his violence and, eventually, for the abuse of his half sister, which she hides out of fear until she's driven to confess it to Gerald in hope of his protection. Their mother remains in denial about that problem as well as her own and her husband's addictions to alcohol and drugs.
Caring for his sister, however, keeps love in Gerald's life. In defending her one last time, the apartment catches fire and his stepfather is killed. As he, his sister, and his mother ride away in the ambulance, a flicker of hope survives in the darkness for another new chapter in family life, this time without violence.
One 1970s summer, Madeleine L'Engle brings her mother to Crosswicks, the rambling country house where the extended family has spent extended vacations for many years. At ninety, the elder Madeleine is suffering from the ravages of the now vanished diagnosis, 'hardening of the arteries.' By times she is frightened, angry, or difficult; at night she cries out or tries to wander. Round-the-clock caregivers help with the strain, while the writer's own children and grandchildren figure in her journal with concern, affection, and wonder.
The presence of the dwindling old lady provokes detailed recollections--direct and indirect memories--of the lives of her mother, grandmother, and great-grandmother, all named Madeleine--bringing the span of this narrative to six generations. Despite the grandmother's slow mental decline, death comes suddenly, while L'Engle is away and her son is left to help.
Summary:This multimedia online documentary is an essay on the ecstasies and agonies of longevity, researched and composed by photojournalist, Ed Kashi and reporter, Julie Winokur. The site consists of written and audio commentaries and a number of short slide shows. The documentary is divided into six segments, each of which is a complete "essay" in itself: Introduction: Julie Winokur on aging; Part 1, Youth in age: The spirited side of longevity; Part 2, Sentenced to life: Growing old behind bars; Part 3, Helping hands: New solutions for elder care; Part 4, Vanishing heritage: Tribal elders face modern times; and Part 5, Surviving death: Losing a mate with dignity.
This memoir is DeBaggio's first-person account of his early experience of Alzheimer's disease and its effect on his life and the life of his family. The book is a collection, in loosely narrative form, of the author's diagnosis of early-onset Alzheimer's; brief excerpts from his journal; excerpts from the medical literature on the disease; and memories from his past that he wants to commit to paper before he can no longer recall them. He documents his struggle simply to write the book, as it becomes more and more difficult to sustain thoughts or find the words to express what he wants to say.
Please note that in order to provide a useful analysis of this novel, it is necessary to reveal the novel's ending in the discussion below. It is England, 1935. Briony Tallis, 12 years old, decides to become a writer. Her first experiment in novelistic technique involves narrating from three different points of view an odd incident she witnesses from her bedroom window: her sister Cecilia undresses and steps into a fountain in the presence of Robbie Turner, the son of a family servant. Robbie has been educated at Cambridge under Mr. Tallis's patronage, and intends to become a physician. He and Cecilia are in love.
Briony's reconstruction of the incident is inaccurate, but she fails to recognize the lesson of her exercise in multiple perspectives: her version is sufficiently coherent for her to mistake it for reality. She jumps to further conclusions and causes Robbie's wrongful conviction and imprisonment for rape and Cecilia's permanent estrangement from her family.
The rest of the novel both elucidates and unravels the opening sequence. It is 1940 and Briony is becoming both a nurse and a novelist. Both roles represent her efforts to atone for her disastrous narrative misconstrual. As a nurse, she learns a new humility and cares for the appalling injuries of soldiers who, like Robbie, are suffering the war in France.
A more metaphysical atonement lies in her work as a novelist: we realize that we have been reading Briony's own rewriting of the initial events and her careful imaginative reconstruction of Robbie's experiences in the Dunkirk evacuation. She tells of her discovery of the actual rapist (if a rape it was), her decision to retract her accusations and her efforts to make amends with Robbie and Cecilia.
In a final section, set in 1999, the aging Briony, now a successful novelist, learns that she is developing progressive vascular dementia. Soon, her ability to remember and grasp reality will desert her. But she has finished writing her latest version of Robbie and Cecilia's story, the novel we have just read, and can rest.
Her atonement seems complete until we learn that Robbie died in France and Cecilia in the Blitz, and that the (relatively) happy ending we read was simply made up by Briony. Devastatingly, we learn that atonement for an error of fiction has been limited to fictional reparation. The lethal damage it has caused in the actual world is beyond mending . . . unless, of course, we accept the vertiginous truth that the damage described in this novel is itself also no more (or less) than a fiction.
The poem begins, "In the beginning it visits / your mother like a polite / but somewhat unobtrusive stranger / whose silence . . . is vaguely disturbing." Later, Alzheimer’s is there all the time. Eventually, it takes over the mind and starts spreading disinformation. In the end communication breaks down. "There is no present . . . " There are only fragments of memories and "her dreamy knuckle clicking / on tables as if in answer to someone’s knocking." [32 lines]
Ruth Picardie was a journalist working in London. Shortly after her marriage in 1994 to Matt Seaton, also a journalist, she found a breast lump. After testing, she was told it was benign. Two years later, and a year after giving birth to twins, the lump enlarged and this time she was diagnosed with advanced, inoperable breast cancer. She rapidly developed bone, liver, and brain metastases and died in September 1997, aged 33.
This book consists of a selection of Picardie's e-mail correspondence during the last year of her life, the columns she wrote for the Observer newspaper (a series about dying she called "Before I say goodbye"), readers' letters responding to her column, and an introduction and epilogue by her husband. While not, then, strictly a memoir, this collection of texts constitutes an intimate view of a witty, angry young woman undergoing an intolerable illness.
The expected elements are there: diagnosis, chemotherapy, radiation, hope, the loss of hope. What is unexpected is the way these are presented, and the vividness with which we share the prospect of saying good bye to her children, her gradual detachment from her husband, and, as the brain metastases spread, the loss of coherence and the appalling silencing of her powerful voice.
This book contains 17 short stories, all set in an in-patient hospice, all exploring the reactions of patients and their caregivers--both family members and professionals--to the last stages of terminal illness. A woman struggles to find the strength to write last letters to her loved ones, nurses are surprised when a seemingly unconscious patient suddenly joins in their conversation; the hospice chaplain becomes a patient; and so on. In the title story, a dying woman's daughter finally manages to answer honestly when her mother asks when death will come: "Soon."