Showing 101 - 110 of 182 annotations tagged with the keyword "Dementia"
Summary:This sensitive, but profoundly realistic narrative, of a journey from the lively, healthy marriage of two individuals deeply in love with life and with one another into the abyss of Alzheimer's dementia is told from the viewpoint of one partner. The author allows the reader to enter into her struggle with the month-to-month diminution of her beloved husband's world. The progression over the entitled "25 months" contains just the right amount of flashback to give the reader a sense of who Jack had once been and what life had held for both members of this partnership--the better to accentuate the sense of loss that this disease underscores.
Miracle McCloy received her name because, as she's been told many times, she was pulled from the body of her mother shortly after her mother was run over and killed by a bus. Raised largely by her grandmother with her depressed and dysfunctional father nearby, she has learned a great deal about séances, contacting the dead, reading auras, and paying attention to energy fields. But she doesn't know much about how to locate her own confused feelings about her parents, her identity, and her relationships with "normal" kids at school who see her has some kind of freak.
She perpetuates this image by casting "spells" to help fellow students connect with boyfriends. But after her father disappears, and her grandfather's house is destroyed in a tornado, she lapses into mental illness and burns herself badly trying to "melt" as she believes her father did by dancing among flaming candles. She is taken to an institution where an astute therapist and an aunt who realizes how much Miracle needed her combine their efforts to help her recover a sense of who she is--a dancer, a strongly intuitive, intelligent girl with an interesting history and a promising life to live, liberated from the obsessions of a superstitious grandmother and mentally ill father.
This is a collection of humane and humorous stories by psychiatrist Ronald Pies. Many of them portray snippets of Jewish-American family life; others feature Pies's alter egos, young psychiatrists named Applebaum; or Ackerman, or Alterman; still others introduce a number of wonderful geriatric characters the reader is unlikely to forget.
In the title story, an elderly man lies in the hospital and remembers how he inserted snippets of pornography into his business partner's tefillin nearly 40 years earlier, just to spite his holier-than-thou partner, who had evicted his Playboy magazines from the premises. "Mandelbaum's Passion" is the story of an elderly professor whose daughter wants to put him into a nursing home. He, on the other hand, focuses his energy on anticipating the twice-weekly visits of Luz, his 26-year-old Hispanic visiting nurse.
Dr. Otto Hertzmann in "Show Us Where God Is" is a retired analytic psychiatrist who lives with his sister. When a young admirer comes to visit, the sister introduces him to Davie, Hertzmann's severely retarded son who, when asked to "show us where God is," grins widely and points to the ceiling. Max Dershman, found dead in his room "stinking of cheap cigars and surrounded by Playboy centerfolds," is another such character. He falls head over heels in love with Riva Greenberg, the nursing home social worker, and leaves her a love letter when he dies ("A Medical Diptych"). In "Sophie Fein Goldberg Stein" the title character insists on always being addressed by her full name--at least, that is, until the nursing home psychiatrist is willing to sit down and listen to the full story of her life.
The story begins soon after the narrator has moved his elderly mother into Cherry Orchard, an "independent living" facility near his home in Providence, Rhode Island. Because of progressive dementia, she was no longer able to maintain her own home in New Jersey, or her relationship with Warren, her boyfriend of 20 years, with whom she spent part of each year in Florida. Thus, the narrator and his sister arranged for her move to an apartment in the exclusive Cherry Orchard, where her symptoms of Alzheimer's disease had to be hidden in order to ensure her eligibility.
The mother and son have never been close, especially after the boy's father died during his early adolescence. She was a pleasant, but distant parent, more interested in her own social and cultural affairs than in taking care of her children. The narrator is 34 years old now, married, with his own son. He has little emotional attachment to this woman who is slowing losing her mind, yet now he feels duty-bound to visit her at least weekly at Cherry Orchard.
The mother has almost entirely lost her short-term memory, yet at first blush seems surprisingly intact because of her ability to cover-up with social skills. She writes notes to herself. The texture of her life unravels. She begins to wander. Other residents complain. Occasionally a glimmer of insight appears, but quickly dies. Fighting his inclinations every step of the way, the narrator provides ever increasing physical and emotional support, while at the same time gaining a deeper understanding of how his mother was (and is). In the end nothing is changed--the mother spirals slowly downward. But in another sense everything has changed. The narrator concludes, "I had taken her in so that I could understand why I had agreed to take her. I would do it again."
"Spell Check for a Malformed Fetus" (p. 1) sets the stage for some of the important themes in this collection by poet-psychiatrist, Ronald Pies. First, the lack of honest language to express life’s "mistakes" and disappointments. Our attempt to disguise the pain by using easy, but inaccurate, words. And finally, an expression of hope, even if only in the world of imagination: "if only / in your first fission / some godly processor / had blessed / your blighted genes."
Some of these poems emerge from relationships with patients, notably "Consultation Request" (p. 35), "Three Patients" (pp. 37-39), "Prolapse of the Uterus" (p.76), and "Congestive Heart Failure" (p. 85). "Smoke, Lilac, Lemon" (p. 45) evokes a fascinating test apparently used by some clinicians to distinguish depression from Alzheimer’s disease on the basis of olfactory function. The four "Alzheimer Sonnets" (pp. 87-88) tackle the difficult task of expressing the experience of dementia from the patient’s point of view.
Many of the other poems deal with love, memory, loss, and pain in the context of family and intimate relationships. Among the best of these are: the title poem (p.3), "Sitting Shivah" (pp. 14-15), "Riding Down Dark" (p. 16), "Visitant" (pp. 41-43), and "Migrations" (pp. 64-69).
The House of God is a chronicle of Roy Basch's internship year at a prestigious Boston teaching hospital, also known as The House of God but clearly modeled after the Harvard-affiliated Beth Israel Hospital. Cycling through various medical disciplines, Roy and his peers learn medicine from the eccentric, irreverent, yet oddly compassionate Fat Man, whose 13 Laws of the House of God cynically summarize the harrowing and often demeaning hospital practices and rituals reflected in both the doctor-patient relationship and in the residency experience itself.
In this collection of poems, Alan Shapiro looks unflinchingly at his brother David’s illness and death from brain cancer in 1998. David was an actor and a "song and dance" man on Broadway, hence the title and the frequent allusion to songs and show business. The poems trace an arc from the two boys’ childhood, when they dance together lip-syncing to Ethel Merman’s "There’s No Business Like Show Business" ("Everything the Traffic Will Allow," p. 1) through the diagnosis of brain tumor ("Sleet," p. 8) to the poet’s "Last Impressions" after his brother’s death (p. 57).
The everyday, ordinary world bursts its seams as the poet sits in a radiology waiting room waiting for his brother to return from his "Scan" (p. 10) The poet tries to watch a basketball game on TV, but "soon as my brother’s name / was called" a woman sitting next to him begins to tell the story of her husband, who has turned into "a well trained zombie." Soon his brother David moves toward zombie-hood as well. In "The Phone Call" (p. 23), he listens to "the mangled speech, aphasic / pratfalls halfway through the / sentences . . . " that tells him "you can’t imagine it at all."
But brain damage doesn’t mean the loss of wisdom. In "The Last Scene" (p. 33) the poet sits beside his dying brother, who bestirs himself from somnolence to ask, "Do you think / you have a / problem?" "Look at yourself," he says, "how you sit here / drinking all alone."
David dies without missing a beat, according to the script, but his brother loses his place in the text; he simply doesn’t know his lines. In the beautiful "Broadway Revival" (p. 43), he concludes, "I play / the brother / who doesn’t know his lines, / and you the actor / who waits there in the wings, / who holds the script, / who knows it all / by heart and / will not say."
A medical school graduate, E. A. Talbot, fails twice his qualifying examination for a position as British Army surgeon. He leaves England and vows never to return to Europe. He lands a job working for the Dutch government as the administrator of Halak-Proot, a psychiatric hospital that houses about 100 mentally ill officers and some colonists. It is located in the jungle of Java. The institution is a magnet for madness. Patients never improve and sometimes get worse there. The soldiers are more inclined to feign psychosis than return to battle.
When his father dies, Talbot inherits property. He sells it and uses the money to transform the psychiatric hospital into a luxurious estate. Cases of dementia soon plummet. The facility no longer accepts any patients except those who are indisputably insane. Soldiers somehow discover their sanity and are refused entry. Talbot grows old in his exclusive paradise that now has room for only him, a guard, and a custodian.
Rafael Belvedere (Ricardo Darin) is a 42 year-old, divorced, father who runs the restaurant that his parents established nearly fifty years ago. His father, Nino (Héctor Alterio), is mostly retired and makes daily visits to the hospital where his wife, Norma (Norma Aleandro), has been placed for her Alzheimer's disease. Avoiding the horror, Rafael has not seen her in a year.
Guilt for having dropped out of law school drives him to prove himself by making the business a success; he defiantly resists offers to sell. But his finances are a mess, his temper thin, and his relationships strained; he works too hard, sleeps too little, and drinks and smokes too much. Inevitably, Rafael has a massive heart attack and spends 15 days in ICU (Intensive Care Unit).
This intimation of mortality convinces him to change his life, sell his restaurant, and open his heart to the needs and worth of the people around him. He agrees to help his atheist father fulfill a romantic wish to finally marry the still beautiful but grievously departed Norma in a church, something she had long desired and he had always refused for his "principles." The priest declines the request because of Norma's disease, but an engaging solution is found.
Summary:This story of one exceptionally accomplished family's discovery of their past and future relationships with Huntington's Disease (HD) is also the story of how the Wexler family changed the cultural narrative of HD for other families at risk for this genetically-transmitted and currently incurable disease. The HD diagnosis of Leonore Wexler (the author's mother) inspires Milton Wexler, a psychologist, to create a major foundation for HD research, which develops critical mass and influence as Leonore Wexler's condition deteriorates, and after her death. The book interweaves the story of the Wexlers' emotional and other negotiations with HD and the story of their efforts to create an HD community comprised of those with active symptoms of HD, family members, advocates, and researchers.