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Annotated by:
- Aull, Felice
- Date of entry: Apr-27-2007
- Last revised: Jan-09-2010
Summary
In 1977 Marion Cohen's physicist husband, Jeffrey, was diagnosed with multiple sclerosis. He was 36 years old. Cohen, a mathematician and poet and mother of four, became his chief caregiver. As her husband's illness progressed, the caregiving role became increasingly absorbing, demanding, all-encompassing. Eventually daytime attendants were hired but sometimes they didn't show up. This collection of 77 poems is a kind of journal, primarily from late 1989 through January, 1991, that chronicles Marion's ambivalent caregiving, despair, resignation, "temper tantrums," love, and compassion.
Miscellaneous
The Center for Thanatology Research and Education: 391 Atlantic Ave., Brooklyn, NY 11217; http://www.thanatology.org/home.html
Publisher
The Center for Thanatology Research and Education
Place Published
Brooklyn, New York
Edition
1995
Page Count
75
Commentary
This book expresses a caregiver's life at the limits of endurance, the "epsilon country" of the book's title: "I am a boundary, I am an edge" ("The Citizen," p. 13). [http://mathworld.wolfram.com/Epsilon.html: "In mathematics, a small positive infinitesimal quantity, usually denoted epsilon whose limit is usually taken as epsilon->0." But the following use of epsilon mentioned at this and other Web sites may also be relevant: "The late mathematician P. Erdos also used the term "epsilons" to refer to children".]
These poems do not make comforting or comfortable reading -- they are brutally honest. But they are powerful, skillful, intelligent and make an important contribution to our understanding of the family caregiver experience, as well as to our understanding of the fallout of degenerative illness. Marion Cohen has also written a memoir of her caregiving experience, Dirty Details: The Days and Nights of a Well Spouse (see annotation).