Showing 541 - 550 of 892 annotations tagged with the keyword "Caregivers"

Summary:

Moller is a sociologist who takes us into the world of the urban poor; he focuses on half a dozen individuals, giving intimate and moving portraits of them. An opening character is called Cowboy (a pseudonym); he lives under a bridge with his dog Cowgirl and dies a slow death of lung cancer. In an Epilogue (pp. 163-184) Moller calls him "an urban Thoreau." This respect for the dying poor pervades the book.

Besides descriptions of the characters, there is much dialogue, including extended quotations, but also some 100 small photographs, usually close-ups, inserted into the text. One photo shows a man in his coffin. Clearly Moller gets close to his characters, and so does the reader.

Moller argues that the dominant society--to its shame--neither supplies adequate care for this sector of society nor even recognition that such people exist. He calls the dying poor "an invisible world." It's a disturbing world, with the pain and neglect, but also an inspiring one, because of the caregivers such as social workers and nurses and the heroism and dignity of the patients presented.

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Summary:

This book contains six medical case studies in which hope, or lack of it, played a role in the outcome. Five stories are of Groopman's cancer patients, the sixth the story of his own recovery from severe chronic lower back pain. The book concludes with an account of Groopman's search for scientific answers to the questions that inspired the book: How is the cognitive-emotional complex of hope formed in the mind? How might that complex affect the chemistry of the brain? And how might that, in turn, affect the physiology of the body in a way that would be relevant to healing?

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Annotated by:
Duffin, Jacalyn

Primary Category: Literature / Nonfiction

Genre: Biography

Summary:

In four lengthy chapters, the biographies of Haydn, Mozart, Beethoven, and Schubert are carefully presented. Special attention is given to health, both physical and psychological, throughout life and at its end. Autopsy information is included. In particular, the author emphasizes the impact of illness on the composers' relationships with family members and doctors, and on their musical composition.

Evidence is derived from a wealth of primary sources, often with long citations from letters, poetry, musical scores, prescriptions, diaries, the remarkable "chat books" of Beethoven. Neumayr also takes on the host of other medical biographers who have preceded him in trying to retrospectively 'diagnose' these immortal dead.

Late eighteenth- and early nineteenth-century Vienna emerges as a remarkable city of musical innovation and clinical medicine. The composers' encounters with each other link these biographies. Similarly, many patrons, be they aristocrats or physicians, appear in more than one chapter, such as the Esterhazy family and Dr Anton Mesmer.

The disease concepts of the era, prevalent infections, and preferred therapies are treated with respect. Rigid public health rules in Vienna concerning burial practices meant that ceremonies could not take place in cemeteries and may explain why some unusual information is available and why other seemingly simple facts are lost.

Biographical information about the treating physicians is also given, together with a bibliography of secondary sources, and an index of specific works of music cited.

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Annotated by:
McEntyre, Marilyn

Primary Category: Literature / Fiction

Genre: Novel for Young Adults

Summary:

Twelve-year-old Lily Star has lost her father and moved from a cabin in the woods on the river where she grew up fishing with her father, and where she knew the natural creatures as neighbors, to an apartment in the nearby city where she and her mother continue to run the family hardware store. While she still loves the river, she finds it hard to "forgive" it because it drowned her father in a boating accident. She also resents the fact that an important stretch of land along the river is being fenced off by the man to whom the cabin was sold--T.R.--a recluse in a wheelchair. Through a series of unpleasant encounters, Lily gets to know him and learns that he had been a pilot and was disabled in an accident.

The bond the two discover over time has to do with somewhat parallel paths of healing: he needs to "forgive" the sky as she does the river. She persuades him eventually to go boating with her. Even a fall in the water doesn't discourage him from taking on new life and hope by accepting Lily's invitations to get to know the river, the land, and the neighbors. Lily's hopes that he might remain and marry her mother are disappointed when he decides to return to work with planes, though he can no longer pilot them, but the friendship that strengthened them both in their struggles with grief and loss makes it a parting full of promise.

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Summary:

This film by Danish filmmakers focuses on two Scots, Wilbur (Jamie Sives) and his older, considerate brother Harbour (Adrian Rawlins), who own a family buy-and-sell bookshop, North Books, in Glasgow. The opening movie credits intersperse with Wilbur's suicide attempt by pills and gassing himself. Wilbur's attempt is thwarted first by the fact that he has to put more coins into the apartment gas meter, and then by his brother, whom Wilbur had telephoned just before losing consciousness. Wilbur continues suicide attempts throughout much of the movie, with methods that range from the absurd to the disturbingly tragic.

The brothers' father had recently died and several scenes occur at a hillside cemetery. Surrounded by imposing stone monuments, the brothers' parents are buried without markers, but with a view, if you cock your head and imagine, of the bookshop. The tragedy of the mother's death when Wilbur was only 5 years old, is invoked to explain much of Wilbur's disturbance.

Early in the movie, Alice (Shirley Henderson), a waif-like single mother who cleans the operating and trauma theatres and sells books she finds at the hospital to the bookshop, is introduced, along with her soon to be 9 year old daughter, Mary (Lisa McKinlay). Alice and Harbour wed, and Mary presciently plunks a penguin eraser she has just received atop the wedding cake next to the bride and groom: "That's Wilbur," she says.

Two hospital workers feature prominently in the film. Horst (Mads Mikkelsen) is a Danish ex-pat physician and "senior psychologist." He chain smokes, distances himself from the group therapy he supposedly supervises, and yet deftly discusses bad news with Harbour in several scenes. The psychiatric nurse, Moira (Julia Davis), however, who, with ever-changing hairstyles and inappropriate nurse-patient interactions, acts primarily as comic relief, delivers the same bad news with unthinking, devastating directness.

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Annotated by:
Donley, Carol

Primary Category: Literature / Literature

Genre: Anthology (Mixed Genres)

Summary:

As Bertman says in her introduction, this book "is meant to refuel therapists, counselors, social workers, physicians, nurses, clergy and all others who are committed to providing support to those in grief." While the caregivers' focus is on those in grief, they also have to give some attention to their own bodies, minds and spirits. This collection of essays, poems and stories, illustrated with drawings and photographs, examines grief from several perspectives.

The opening section looks at professional roles in experiencing and understanding suffering and empathy. Section two provides several descriptions of how caregivers use the arts for themselves and for those they companion. Section three is devoted to lessons from old and new cultures. The final section explores basic needs of grieving people.

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Children Underground

Belzberg, Edet

Last Updated: Jan-31-2005
Annotated by:
Henderson, Schuyler

Primary Category: Performing Arts / Film, TV, Video

Genre: Film

Summary:

After the overthrow of the tyrannical Nicolae Ceaucescu in December, 1989, the world became aware of the horrendous conditions in which so many Romanian children were living. Thousands of handicapped and able-bodied children were living in squalid "orphanages" and thousands more, numbering at least 20,000, were living on the streets. A combination of crushing poverty and disastrous state policies regarding contraception and child care contributed to one of the worst tragedies of modern Europe.

This documentary film focuses on the lives of a group of children living in a Bucharest underground station, the oldest in her late teens, the youngest barely past toddlerhood. The camera captures how these children live, and the ways in which they care for each other and for themselves as they endure violence and abuse, huff paint fumes from paper bags, and try to survive.

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Stevie

James, Steve

Last Updated: Jan-31-2005
Annotated by:
Henderson, Schuyler

Primary Category: Performing Arts / Film, TV, Video

Genre: Film

Summary:

Steve James, director of the film, Hoop Dreams, spent four years filming the life of Stevie Fielding, a young man with a long and disturbing history of physical abuse, sexual abuse, learning difficulties and abandonment. The film is a reunion of sorts, chronicling how the director and Stevie get to know one another and each other's families after years have passed. Since they first met, Stevie seems to have turned from a troubled kid into a violent, cynical, debilitated young man and during the course of the film, Stevie is brought to trial for perpetrating child abuse. When the director Steve James was at Southern Illinois University, he was in the Big Brother-Little Brother programme: Stevie Fielding was his Little Brother.

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Prayer to a Purple God

Studer, Constance

Last Updated: Jan-31-2005
Annotated by:
Davis, Cortney

Primary Category: Literature / Poetry

Genre: Collection (Poems)

Summary:

The author of this bold collection is a registered nurse who relates, through her poems, patient and caregiver experiences culled from her own years of working in Intensive Care-Coronary Care. There are 24 poems here, most running two to three pages and most written in short lines, a point of craft that adds to their power. There is not one moment of easy sentimentality in these poems. Instead, the author plunges into the grittier side of nursing and illness--and yet, in aggregate, these poems celebrate the embodied and holy work of healing.

In the opening poem, "The-Trickle-Down-Theory-Of-Health," Adam, in the Garden of Eden, is surprised by "The knife" that "separates his ribs." By poem's end, we see health slip "like a ring / from earth's finger" (2), and with this simile we are introduced to the book's underlying metaphor and also to the poet's technique: dense and sometimes near-extreme imagery that ranges, in this poem alone, from encyclopedias to acid rain to barefoot children to librarians to a patient in the dark, "her arteries and shelves / of bone in a ruby gloom" (2). This accumulation of unrelenting, unusual images recreates the world of a patient's pain and suffering and the fierce determination and occasional despair of a caregiver.

"Coma" is written from a comatose woman's point of view, and yet we also see her from the nurse's vantage. In a lovely and surprising twist, the coma becomes, for the patient, a sort of liberation as "Slowly she sloughs, / cell by cell, / the old thorn" (15). This patient is not Sleeping Beauty, who in some fairy tale might be wakened by a kiss. "On the Fireline" becomes a wonderful metaphor for the daily confrontation of illness, for the way the nurse, returning daily to tend her patients, also "coalesces into fire" (16).

The 5-page poem "Intensive Care" perfectly renders the physical sense of being alternately caregiver, patient, and family member within the rarified atmosphere of the ICU (24-28). A patient's blood "pulls against/ the moon, his breath / this tide going out" (26) and, as she comforts a waiting family member, a nurse's eyes "beyond clarity, / unfold a silken language / all their own" (28).

Other not-to-be-missed poems are "The Holy O" (36), "Prayer to a Purple God" (38), "Pieta" (44), "A Riot of Flowers" (52), "What the Body Remembers" (57), and one of my very favorites, "Anesthesia" (59). In "Anesthesia" the caregiver lets an anesthetized patient float like "an embryo / tethered on the end of IV tubing, / floated like an astronaut / in cold stratosphere, / a naked thing / alone / in the universe" (60). But since these poems are finally loving, involved, experienced and hopeful, the patient is told to hush; he is watched over; he is protected. When danger is past, he is reclaimed: "She will hold you / within white-curved wings. / She will reel you back in / when you are healed" (60).

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The Pleasure of My Company

Martin, Steve

Last Updated: Jan-31-2005
Annotated by:
Henderson, Schuyler

Primary Category: Literature / Fiction

Genre: Novella

Summary:

This novella is narrated by Daniel Pecan Cambridge, a man who previously worked in numerical codes at a large computer company before essentially becoming a recluse in his own apartment due to his increasingly debilitating rituals, routines, and anxieties. His more incapacitating obsessions and compulsions include the maintenance of 1125 wattage of lights shining in his apartment at any one time and the inability to cross over curbs. This latter obsession requires of him that he crosses the street at "dugout" car driveways and that even regular trips to the Rite-Aid drugstore for medications and groceries result in "figure-8" routes.

He is clearly socially inept, with helpless fantasies about his pharmacist, Zandy, and the real-estate agent, Elizabeth, who is trying to lease the apartments across the street. Nevertheless, his upstairs neighbors, Phillipa and Brian, become his friends almost against his will, and his weekly visits with a training "shrink," Clarrisa, turn into a less professional and more personal relationship. It is this latter relationship with Clarissa and her son Teddy that develops into a moving portrait of friendship and longing.

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