Showing 481 - 490 of 892 annotations tagged with the keyword "Caregivers"

Annotated by:
Bertman, Sandra

Primary Category: Literature / Literature

Genre: Anthology (Mixed Genres)

Summary:

This unique "miscellany" of prose from journals and essays, poems, stories, music, paintings (reproduced in black and white), drawings, and cartoons illustrates countless ways that medicine and the arts, in tandem, "stretch the imagination, deepen the sympathy . . . enrich the perceptions" and give sheer, unadulterated pleasure. Organized by Robin Downie, renowned Professor Emeritus of Moral Philosophy at Glasgow University, the anthology is grouped in eight categories: "The Way We Are," "Disease and Mental Illness," "Doctors and Psychiatrists," "Nurses and Patients," "Healing," "Last Things," "Research," and "Ethics and Purpose."

Excerpts include the classic lore [Charles Lamb’s essay, "The Convalescent"; Florence Nightingale’s diary, "Notes on Nursing"; W. H. Auden’s poem, Musee des Beaux Arts (see this database); Theodore Roethke’s poem, In a Dark Time (see this database); C. S. Lewis’s journal, A Grief Observed (see this database); Sir Luke Fildes’s painting, The Doctor (see this database)] and refreshingly new nuggets from John Wisdom’s radio talk, "What is There in Horse-Racing" ("For a game of croquet is not merely a matter of getting balls through hoops, anymore than a conversation is a matter of getting noises out of a larynx,"); Robert Pirsig’s treatise, "Zen and the Art of Motorcycle Maintenance"; physician Roy Calne’s tender sketches of his own patients; composer Richard Wagner’s letter, "Biscuits as Therapy"; Janice Galloway’s novel, "The Trick is to Keep Breathing"; and expressions by patients and artists who happen to be patients of their particular illness experiences.

Lest "commentary be intrusive," except as brief introduction to each section, Downie deliberately omitted them, placing illustrations and extracts so as to provide commentary on one another. (Readers cannot help but be stimulated, however, to rearrange and create their own juxtapositions.)

The section on "Healing" considers not only the expected operations, spiritual healing, traditional cures, music and art as therapy, but also "spells, hope, and mothers." Richard Asher’s essay on why medical journals are so dull (British Medical Journal 23 Aug. 1958), or on whether or not baldness is psychological, and the comic strips of Posy Simmonds (the double entendres of "Medical Precautions," the "Minor Operation" burlesque on Shakespeare’s "All the Ward’s a Stage,") remind us yet again that birthing, aging, illness and dying are not pathological events or mere medical processes, and that the arts and humanities are bountiful reservoirs of moral discourse, inspiration, and renewal.

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Her Hair

Grace, Maggi Ann

Last Updated: Aug-24-2006
Annotated by:
Squier, Harriet

Primary Category: Literature / Fiction

Genre: Short Story

Summary:

Julia’s sister, Kara, has a recurrence of leukemia, and, because of the horrors of chemotherapy along with a dismal prognosis, decides to forgo treatment. Kara asks Julia, along with two of her closest friends, to participate in a "sweat," an Indian purification ceremony intended to "recenter" one’s spirit prior to death. The idea of her sister dying has caught Julia off guard, despite Kara’s dismal prognosis, her baldness, her gray color in the mirror.

Kara lives life to the fullest, without fear; in sharing her life, Julia had forgotten about the reality of death. Julia is surprised when in only five days the ceremony takes place, and thinks of all the practical reasons this ceremony makes no sense. Against her will, Julia takes her sister to the sweat tent and participates in the ceremony. Even though it might have hastened her sister’s death, Julia comes to realize the importance of the ritual, for as her sister dies, she, herself, feels closer to her than ever before, and is finally able to see how Kara’s life had fit into a larger design.

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Annotated by:
Aull, Felice

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

An imaginative recreation of profound personal loss, the resulting changes wrought by unexpected responsibility as well as opportunity, all occurring during the progression from late adolescence into young adulthood, this work is centered on the death and its aftermath of the author’s parents 32 days apart, when the author was 21 years old (in 1991). With two siblings embarked on their own careers, it was Dave who took on "parenthood" of their eight-year old brother, "Toph."

The book details first, the mother’s death, then, the life that Eggers and Toph negotiate for themselves and with each other after they move from suburban Chicago to Berkeley, California, and, finally, Dave’s return visit to his hometown, wherein he seeks to exorcise some ghosts. In between these landmarks are reflections on family relationships, including that with a shadowy, alcoholic father; the launch of a satiric magazine, "Might" (a title meant to signify both power and possibility); concern for wounded friends; attempts to lead a "normal" life.

While the bare facts of Eggers’s story are unusual enough, the writing is arrestingly original--performative, conversational, brash, yet self-deprecating, funny, and often moving. It is not inaccurate, and will give a flavor of the writing style, to describe the book’s "themes" in the author’s own words (from the 21-page Acknowledgments), for example: "The Unspoken Magic Of Parental Disappearance"--the admission that this traumatic experience of loss "is accompanied by an undeniable but then of course guilt-inducing sense of mobility, of infinite possibility, having suddenly found oneself in a world with neither floor nor ceiling" (xxv); "The Brotherly Love/Weird Symbiosis Factor"; "The Knowingness About The Book’s Self-Conscious Aspect"--an acknowledgment that self-reference is "simply a device, a defense, to obscure the black, blinding, murderous rage and sorrow at the core of this whole story" (xxvii); "The Telling The World Of Suffering As Means Of Flushing Or At Least Diluting Of Pain Aspect"; "The Putting This All Down As Tool For Stopping Time Given The Overlap With Fear Of Death Aspect."

Dave Eggers is on his way to New York with Toph as the book ends. They currently live in Brooklyn, where Eggers produces a quarterly literary journal (Timothy Mcsweeney’s Quarterly Concern, A Journal Created By Nervous People In Relative Obscurity) and a related Web site.

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Mom's Cancer

Fies, Brian

Last Updated: Aug-24-2006
Annotated by:
Davis, Cortney

Primary Category: Literature / Nonfiction

Genre: Graphic Memoir

Summary:

This extraordinary graphic work began its life as a Web comic, posted anonymously, tracing in image and word the story of a son, his sisters and their mother who was diagnosed with a brain tumor, metastatic from her lung.  This comic caught on, and news of it was passed by email and link from reader to reader. About a year later, the author, Brian Fies, was presented the Eisner Award for Best Digital Comic. The entire sequence has now been published in a small, wonderful hardback book that will fit into a lab coat pocket.
 
Fies has managed to capture, in word and graphic panels, the thousand emotions and moments that swirl about a family when cancer changes their lives. He shows us the small, personal gestures and thoughts that we look back upon--how he "didn't lose any sleep" (3) when his mom first fell ill; how his mother both denied the severity of her illness and, at the same time, fell into the abyss of medical examination, radiation, chemotherapy; how he and his sisters assumed various roles in their mother's care and, soon, morphed into "superpowers," each defending his or her own territory (41-44).

Most amazing is how Fies exposes, in honest and poignant visuals, the many points of view of illness--his mother's, his siblings', his own, even the physicians'. His portrayal of how the medical system both confuses, abandons and supports his mother is alone worth the price of the book (39-40). We watch his mother, through his "cartoons," as she moves deeper and deeper into the world of illness, and we see the author's own anger in response to this loss.

He lashes out at smokers (pp 55-56), perfectly portrays the ever-smiling doctor (48-49), captures the odd suspension of a transient ischemic attack (TIA) (68-70), and lets us walk the tightrope of treatment alongside his mother (59-61). He also cleverly interweaves the back-story of his mother's youth, marriage and divorce, his childhood, and a vignette of the sickness and death of a favorite uncle, one whose dying prophesy impacted Fies's life (73-77). The moment when his mother truly understands the severity of her prognosis (94) is stunning.

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Butterfly Effect

Humes, Harry

Last Updated: Aug-24-2006
Annotated by:
McEntyre, Marilyn

Primary Category: Literature / Poetry

Genre: Collection (Poems)

Summary:

These poems offer a rich series of impressions of the speaker's present life, surrounded by family, a garden, and pockets of natural life that evoke memory after memory of a childhood lived in relative poverty with a father whose years as a coal miner damaged his lungs and finally killed him. Allusions to his chronic and worsening illness and his death thread through the poems like a long shadow.

Recurrent images of his blood-stained handkerchief, his coal-smeared face and hands, are echoed in images of the death of an uncle, the deaths of animals, and of a mother strained by poverty and taking frugal measures to preserve small things. The final poem in the collection recalls her in old age, barely able to see, but still "stitching it all together."

The title poem, one of the best, pauses over the famous idea that the flutter of a butterfly's wings might be the source of large effects continents away. Together the collection invites us, without sentimentality, to consider how things are connected over time and come together in memory in compositions one couldn't have anticipated.

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Summary:

This collection of contemporary poems published by the National Association for Poetry Therapy Foundation is accompanied by an introduction and materials for use in support groups and poetry therapy groups dealing with loss and grief. Organized under the rubric, “Seasons of the Heart,” in sections entitled “Autumn,” “Winter,” and “Spring,” they reflect a range of responses to loss, both sudden and gradual.

Poets include Rainer Maria Rilke, Naomi Shihab Nye, Billy Collins, William Stafford, Denise Levertov, and other well-known and widely anthologized poets as well as some less known, but well worth reading. The poetry is skillfully selected, of consistent literary quality, and the accompanying materials helpful in suggesting ways and reasons to enter into the work of reading and writing poetry in time of loss.

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The Scarlet Flower

Garshin, Vsevolod

Last Updated: Aug-23-2006
Annotated by:
Coulehan, Jack

Primary Category: Literature / Fiction

Genre: Short Story

Summary:

The story opens with the protagonist, identified only as the "Patient," being forcibly carried into the insane asylum. Once there, he no longer protests, but seems to accept his incarceration in the huge, overcrowded hospital. The doctor and other staff members seem particularly kind. Because the Patient rapidly loses weight, despite his good appetite, he receives a special diet.

The Patient notices a single scarlet flower among the many beautiful flowers in the hospital garden. He suddenly realizes that all the evil in the world is condensed into the scarlet flower. His mission is to destroy it. But when he attempts to pick the flower, hospital personnel prevent him from doing so, since picking flowers is prohibited. Eventually, he manages to destroy the flower, but notices a second scarlet blossom in the garden. He destroys that one as well, but a third scarlet flower appears. Finally, the Patient sneaks out at night to deal with the third flower, and then is found dead in the garden the next morning, clutching the remains of the scarlet blossom.

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Gorgeous Mourning

Jones, Alice

Last Updated: Aug-22-2006
Annotated by:
Coulehan, Jack

Primary Category: Literature / Poetry

Genre: Collection (Poems)

Summary:

Gorgeous Mourning is a sequence of 72 short prose poems; each one a reflection--or investigation or explosion--on the single word that constitutes its title. Cycles within cycles--the cycle of individual leaves of poems from the beginning of the book to the end; the cycle of creative energy that springs from the word that identifies each poem; the cycle of relationships amongst the poems. Every aspect of this book "fits," but at the same time its "fit" is surprising and often "off."

Take, for example, the title, "Gorgeous Mourning." The front cover is a lustrous image of autumn leaves, close-up. Beautiful? Yes. But is it "morning"? It may be, nut autumn suggests the day’s ending, the year’s ending . . . more "mourning" than "morning."

"Mourn" (p. 22) reflects, "Ordinary, because everyone is full of loss . . . Lovelorn. Unformed, words for what’s gone down the drain. I thought we would have years." In "Wonder" (p. 27) the poet confesses, "I don’t have a clue. I thought I knew more than that . . . Maybe something will unfold like hose embryos morphing into form that can breathe." In the face of cancer she considers the word "Expunge" (p. 58), "Never having suckled a child she thought breasts were a waste of time to begin with. After the mastectomy, she refused to remember what his love letters said . . . "

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A Fortunate Man

Berger, John; Mohr, Jean

Last Updated: Aug-21-2006
Annotated by:
Coulehan, Jack

Primary Category: Literature / Nonfiction

Genre: Essay

Summary:

The subtitle of this photographic essay is "The Story of a Country Doctor." Berger and Mohr give the reader an imaginative portrait of Dr. John Sassall, an English general practitioner who lives and practices in a remote rural community. The book begins with several stories of Sassall’s work with patients, gradually introducing the man himself and revealing his thoughts about his profession, his life, and the nature of healing.

Berger explores what people in the community think about this unusual doctor who has given up his chance to "get ahead" in the world in order to remain with them. They are sure he is a "good doctor," but what does that mean? How does one judge "goodness" in a physician? Berger comments in an impressionistic way on the nature of Sassall’s relationships with patients--a complex mixture of authority, fraternity, and intimacy.

The latter part of the essay expands its focus to the community as a whole and the nature of contemporary medicine. Throughout the book, Jean Mohr’s photographs serve as indispensable features of the story.

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My Left Foot, excerpt from

Brown, Christy

Last Updated: Aug-21-2006
Annotated by:
Squier, Harriet

Primary Category: Literature / Nonfiction

Genre: Autobiography

Summary:

In this short excerpt [from the early section of the book, describing his birth, family, and early childhood], Brown eloquently describes his difficult birth, the hopelessness of his doctors, and the persistent love of his family, especially of his mother. He relates in detail that profound moment when, at age five, he inexplicably grabbed a piece of chalk from his sister’s hand with his left foot and, with great difficulty and incredulity, traced the letter A on a piece of slate. For the first time, his family knew for sure that his intellect was intact. And for the first time, he could start to communicate with them.

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