Summary:

The story is told by Katy Thatcher, an old woman in 1987, about a critical period in her life from 1908 to 1911. Katy, whose father is a doctor, takes an interest in Jacob, a boy from a neighboring farm, who can't speak, who sings quietly to himself, but who seems able to communicate with animals. Jacob occasionally comes to the Thatcher home to be in the barn with the animals. Katy comes to feel she can communicate with him in a rudimentary but sympathetic way.

When the live-in housekeeper next door, sister to the Thatcher's housekeeper, has a baby out of wedlock, Jacob, aware of the trouble, abducts and brings the baby to the Thatcher's house on a stormy night, hoping, Katy believes, to save it the way he has saved orphaned lambs by bringing them to a substitute mother. But the baby dies of exposure and Jacob is taken to a mental institution. Katy becomes a doctor.

View full annotation

Summary:

Henry Moss is a medical geneticist specializing in Hickman syndrome, a fictitious disease resembling progeria. Children with Hickman syndrome experience premature aging and invariably die before the age of twenty. The physician meets Thomas Benhamouda, a teenager who genetically has Hickman syndrome but astonishingly has no physical manifestations of the disease. Dr. Moss identifies a protein that "corrects" Hickman syndrome in the blood of Thomas and proceeds to synthesize it.

Dr. Moss violates medical ethics by administering the experimental enzyme to his favorite Hickman patient, William Durbin, a dying 14-year-old boy. It is a last-ditch effort to save William's life even though the substance has not been tested for safety or efficacy in human beings. Dr. Moss also injects himself with the enzyme. He realizes the tremendous potential the drug has not only in curing Hickman syndrome but also in extending longevity in normal individuals. He is well aware of the great financial rewards he might reap from his discovery.

After a series of injections, William's deteriorating health stabilizes and even improves but he dies in his home. Dr. Moss has failed to save the doomed boy but in the process of breaking the rules and risking his career has learned how to understand and appreciate his own life as well as reconnect with his family.

View full annotation

Summary:

When Dan Shapiro was 20 years old and a junior in college, he was diagnosed with "nodular sclerosing Hodgkin's disease." Thus began a five-year ordeal of chemotherapy, radiation treatments, and a bone marrow transplant that failed. But this memoir, which recounts diagnosis, treatment, and two relapses, is more than a narrative of illness. Woven in and out of the subjective experience of physical and emotional trauma is the author's life as an adolescent, a family member, a young man who falls in love with the woman who eventually becomes his wife, a graduate student learning to be a clinical psychologist.

Sequences of ordinary life are carefully juxtaposed with sections on illness and treatment, emphasizing the author's determination to incorporate his illness into his life, all part of one continuous fabric. Even though disease was enormously disruptive, "[l]ife doesn't stop when something horrible happens" (158). Part of that life was a mother who decided to grow marijuana plants in her backyard ("Mom's Marijuana") so that her son would have an antidote for the terrible nausea that accompanied his chemotherapy. It is Mom who learns in a waiting room conversation that it might be advisable for Dan to bank his sperm for the future-- and who then proceeds to make the arrangements. As the memoir ends, Dan's mother finally disposes of the dry marijuana leaves that have been hanging in her attic for several years.

View full annotation

Summary:

Surrounded by Family and Friends is a collection of six life-sized fabric and thread wall hangings that explore the relationships between dying persons and those human or animal companions they are about to leave behind. Scherer’s drawing tools are her scissors and sewing machine; she sculpts in fabric--a warm, tactile and inviting medium.

In "At Night," a dying man, though weak, is alert, conscious, and comfortable. His direct eye contact with the viewer draws us into the family grouping of standing daughter or wife with eyes downcast on one side of the bed, and a seated elderly woman and middle aged man on the other side looking at her. The artist met and did a pencil sketch study of her protagonist 21 days after he had rejected further dialysis and other treatments. Scherer documents in her notes, "He wanted his doctor to see the drawing--proof that he was still here, doing it right, dying his way. He told his wife, ’The doctor should see this! I did it MY way!’ We agreed to write those words on the drawing." (Project on Death in America newsletter, 2002: (10) p. 7)

"Open Window" shows an elderly woman in bed with a window open to a breeze that gently stirs her long gray hair splayed out around her head like a crown. Although the woman is fragile and bedridden, the hair is striking, gray with age, but thick and vital. Her cat stands sentry beside her, greeting the viewer with a steady gaze.

In "Child" a seated mother is kissing the head of the dying child on her lap. The supportive medical technology is barely visible. A teddy bear, colorful patterned quilt, and a clean gauze-like curtain communicate the essence of palliative care.

Two standing figures tenderly touch and comfort themselves and a third who is dying in bed. "Three Men" is exceptional for its unselfconscious display of the loving relationship between the subjects. They might be brothers or friends, lovers, or professional caregivers. Intergenerational and non-traditional families from culturally diverse groups apply to all six of these works.

"In Her Room" appears to be a husband and wife, though the actual relationship doesn’t really matter. Directly gazing at the viewer, the calm subjects invite us into the comfort and intimacy of this moment. The "husband" might well be the caregiver. He sits close to the woman’s bed, his hand wrapped firmly around her outstretched arm.

"Bigger than Each Other" is a composition of a couple seated on a couch holding hands, fingers entwined. The woman--with tubing supplying nasal air/oxygen--is enveloped in the body of her husband (partner? Physician?). Although physically present to each other in an embrace, they appear to be lost in their separate thoughts.

View full annotation

Summary:

In a bleak setting, at an ocean's edge, a family grouping of three poor people, barefoot, huddled and shivering, are lost in contemplation. The figures' proportions are elongated. Imposing in their size, they take up the entire canvas. Rendered entirely in shades of blue, all other details are eliminated from the composition adding to the mood of blue empty coldness of sand, sky, and sea.

View full annotation

Summary:

This tightly researched documentary opens with the tragic auto accident in which Ms. Kowalski is rendered comatose. During the early period of her prolonged hospitalization, tensions arise between Kowalski's domestic partner and the patient's parents, leading to a highly contentious battle for the rights not only to visit, but also to assume long term care responsibilities. As the patient regains consciousness and limited physical and cognitive skills, the drama moves from the hospital and nursing care facility to the courtroom.

For ten years, the battle for custody and the ultimate care of Ms. Kowalski rages. Drawing on trial transcripts, medical records, newspaper archives, and personal interviews, Casey Charles's work brings to life emotions and personalities that dominated the courtroom dramas and illuminates the highly contested judgments emerging from supposedly objective authorities in journalism, medicine, and the law.

View full annotation

Summary:

Poet and writer Jeanne Bryner has assembled 24 short stories to give us Eclipse, a wise and tender collection that reflects her blue-collar roots in Appalachia and industrial Ohio, and also her work as a registered nurse. These stories are about real human beings, flawed and graced, who, for the most part, care for one another, whether family or stranger, with compassion and the kind of acceptance that comes from living a hard life. Bryner's writing skills move these characters beyond easy stereotype and turn their actions--their anger over the death of a loved one or the cooking of a Sunday supper--into transformative metaphors that illuminate the sorrows and joys of everyday life.

The following stories might be of particular interest to those teaching or studying literature and medicine: "Sara's Daughters," in which a woman undergoes artificial insemination and, through her thoughts and her conversations with the nurse, perfectly reveals an infertile woman's humiliation, longing, and hope; "The Jaws of Life," in which a young woman takes her Aunt Mavis to visit Uncle Webster in a nursing home and there observes the poignant interactions of the well and the dying, the young and the old, moments infused with both charity and dread.

In addition: "Turn the Radio to a Gospel Station," in which two cleaning ladies in a hospital ER observe and philosophize about what goes on around them, the deaths and near-deaths, the kindness or mutinies of nurses, the doctors' mechanical repetition of questions, the lovers hiding in the linen closet; "The Gemini Sisters," in which a group of weight-watching women meet to shed pounds and talk about life; "Foxglove Canyon," in which a registered nurse with forty year's experience relates memories of her work, her family, and how things change when a writer comes to teach the staff and the patients about poetry, "the flower you stumble across growing near the barn, a purple bloom that nobody planted."

"Red Corvette" examines the intimacy that develops between family members, particularly when one is caregiver to the other. In this story a woman comes to visit her post-op sister and remembers, while watching her sister suffer in pain, their childhood, those moments of freedom and health she yearns for her sister to regain.

"The Feel of Flannel" is about a woman who, like her mother and grandmother, has breast cancer. She refuses to participate in a research project but instead barrels ahead into her uncertain future, planning to wear her nightgown to the grocery store and tattoo her husband's name "right here when this port comes out."

View full annotation

Summary:

The first part of this novel presents a detailed picture of the Jewish Californian Cooper family, centering on the sixty-year-old Louise, who is dying of breast cancer. Her husband, Nat, is unfaithful, and, she suspects, only loves her when she is at her weakest and most sick. Her daughter, April, is a lesbian folk singer who becomes pregnant with the help of a gay male friend and a turkey baster. Danny, the son, is also gay, living in New York with Walter, his lover, who is becoming increasingly detached and obsessed with internet sex groups.

Louise considers herself lucky, though, compared with her younger sister Eleanor, partially disabled by childhood polio, disorganized and ill-groomed and married to Sid, whom Louise finds deeply unattractive. Eleanor's son is a sociopathic drug addict, and her daughter has ovarian cancer caused by Eleanor's taking DES (diethylstilbesterol) in pregnancy. She sends Louise newspaper cuttings about the causes of homosexuality and the dangers of AIDS.

The first part having established the complex dynamics and histories of the family's relationships, the second brings the entire family together in the crisis of Louise's final illness and death (a reaction to chemotherapy drugs causes severe chemical burns and she dies in a burn unit in a San Francisco hospital). After her death, the new dynamics of the family are established, and Louise's son and daughter conclude that their mother had "a terrible life" (p. 261).

The short third part shows that no such conclusion is possible, that even those closest to us remain terribly but fascinatingly unknowable. A flashback to a point just before Louise's final illness describes her attempt to convert to Catholicism and a brief moment in which she experiences a marvelous sense of complete harmony.

View full annotation

Summary:

The sensible Anne Elliot encounters the now-successful Captain Frederick Wentworth, eight years after she was reluctantly persuaded by family and friends to reject his suit as imprudent. He now courts the headstrong Louisa Musgrove instead of Anne. Louisa severely injures her head while frolicking with him, jumping down steps to the sea at Lyme, and requires a lengthy recovery nearby with his friends the Harvilles and Captain Benwick. While Captain Wentworth seems devoted to the injured girl, Anne’s friends are convinced that Anne has interested Captain Benwick and Anne’s cousin Mr. Elliot. But when Louisa and Captain Benwick fall in love, Captain Wentworth is free, and he and Anne are reconciled.

View full annotation

Summary:

The narrator of this fictional autobiography is Cal Stephanides, an American of Greek descent with a hereditary 5-alpha-reductase deficiency that gives her the prepubertal anatomy (and thus the social upbringing) of a girl, but at puberty begins her transformation into ambiguity, then maleness, and then, gradually, masculinity.

The novel is a kind of biography, not just of Cal, but also of the mutant gene that causes her/his condition. It is transmitted from a small village in Smyrna, through his grandparents, who were also brother and sister and who married on the ship to America, apparently leaving behind family as well as national identity. Their Greekness and the gene come with them, and the consequences of their incest haunts Cal's grandmother, Desdemona, until the very end of the novel.

The family settles in Detroit, and a third biographical strand is the story of the Greek immigrant community in 20th century America, from Ford's assembly lines to bootlegging during the prohibition, through Detroit race riots and then to affluent suburbia.

Cal's family settles in the suburb of Middlesex, and the focus narrows to the individual. Calliope is raised as a girl, but in adolescence, Callie learns about hermaphroditism, narrowly escapes sex-assignment surgery, becomes a performer in a seventies sex show in San Francisco, and finally returns home to Middlesex, Grosse Point, Michigan, as a male. The story is framed by Cal's much later adult life as a man in Berlin, and his successful romance with a woman he meets there.

View full annotation