Showing 281 - 290 of 737 annotations tagged with the keyword "Illness and the Family"

The Ninth Life of Louis Drax

Jensen, Liz

Last Updated: Nov-19-2009
Annotated by:
Ratzan, Richard M.

Primary Category: Literature / Fiction

Genre: Novel

Summary:

Louis Drax is a nine-year-old boy living in France with his stay at home mother and Air France pilot father. Such an apparently normal family description is the merest tissue of appearances. The father is probably an alcoholic and unfaithful; the son is "accident-prone" (a nearly fatal episode of SIDS at two weeks of age, a near fatal electrocution at age 6 after falling on the tracks of the métro in Lyon; salmonella, tetanus, botulism, meningitis, etc. [or, as Louis is fond of saying, "blah, blah, blah."]) and the mother has issues that only emerge as one becomes more deeply involved in what is a mystery story.

Like Gabriel Garcia Marquez’s A Chronicle of a Death Foretold, or Janet Lewis’s superb The Trial of Søren Qvist, one knows the ending early on (page 16 in Louis Drax), but not the details. The why and the how are the stuff of the novelist’s art in all three books.

With premonition of more danger, Louis goes on a family picnic (see below for the author’s biographical basis for this tale) and winds up at the bottom of a ravine, dead. Drowned and dead. A few hours later, in the morgue, he is found to be alive. Comatose and in a persistent vegetative state but alive. He is therefore transferred to the care of a neurologist specializing in comatose patients at the Clinique de l’Horizon (formerly l’Hôpital des Incurables).

It is here that the mystery unfolds. The questions are: How did Louis end up at the bottom of the ravine? Did his father, now missing, push him as his distraught mother alleges? What role does the clearly neurotic mother play in this tragedy? And who exactly is Louis Drax? Lastly, how do the mysterious letters allegedly from him, written while still in a coma, come to be?

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Annotated by:
Davis, Cortney

Primary Category: Literature / Poetry

Genre: Collection (Poems)

Summary:

This chapbook of 26 poems traces the author's interactions with her mother, a woman lost in the morass of Alzheimer's disease. In the first poem, "The Loss" (1), the author takes us into her mother's home--a disorganized mess of stained thrift shop clothes folded and refolded into piles. The daughter tricks her mother into moving in with her "for a trial" which becomes permanent.

In the last poem, "At Least This" (26), the poet stoops "to pull the diaper / up around my mother's / waist, my temple / near her breasts." As the daughter leans into this task, the mother caresses her hair, embraces her. This hug, beautifully and simply portrayed, is the poet's fragile reward for all the struggles, mercies and difficult moments examined in the poems between.

These poems are both beautiful and unfailingly honest, addressing with humor and charity the difficulties of caring for a parent with this disease. In one poem, "The Battle" (5), the mother slathers herself with Vaseline. In another poem, "The Bath" (7), the mother lies in the bathtub, her flaccid skin smoothed by water's illusion, her body suddenly as lovely as Bonnard's painting of a woman bathing. "This is the mother I battled / when young: the mother / who beat my defiance; / the one I hit back," the poet writes in "A Late Blessing" (6), and in another poem, "Intellectual Opiate" (10), she speaks of her mother's love for words she no longer understands.

But these poems are more than poignant narratives about a daughter's relationship with a once-difficult, now dependent mother. They address the "seeds of her disease" (11), exposing the flaws of this relationship without dishonor or blame. In these poems, Slatkin's mother appears vibrant and whole, not ravaged by disease. Rarely have the difficulties and possibilities of Alzheimer's disease been presented in poetry with such insight and respect.

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Annotated by:
Davis, Cortney

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

In 1997, the author’s 14-year-old son, Ike, began a puzzling, progressive degenerative illness. Slowly, this undiagnosed disease claimed Ike’s ability to walk, to study, to participate in normal adolescent activities and, finally, to reason. Going from physician to physician, seeking if not a cure than at least a working diagnosis, the author became a self-taught expert in all things neurological.

As her son’s condition worsened, she also became an expert in grief and despair. In Blue Peninsula, her first book, McKeithen relates how she became, as well, a poetry addict--reading, devouring, tearing poems out of journals, buying volumes that she could carry to office or hospital, hiding poems in her purse or pocket. Using poems or pieces of poems--sometimes she could not bear to read a final stanza, one that perhaps ended in death or unrelenting despair--she cobbled together a survival plan.

Indeed, in this small book of short, to-the-point chapters (with titles such as "Crying in the Car," Open to It," Acquiring Losses," Sifting Questions," "Naming," "Shipwreck," and "Shelving Selves"), she reveals how she used poems to grieve, to question, to celebrate, to maintain, to curse, and to endure. The story of Ike’s illness, treatment and slow decline are interwoven with these poems and the author’s often surprising commentary on how she mined the poet’s metaphors. If a poem could put suffering into words, the author suggests, she needed that poem to survive.

The author’s choice of poems and poets is far-reaching, and her interpretations of what they mean and how they helped her along the path of her son’s illness are intimate, gritty and insightful. A brief listing of poets includes Emily Dickinson (whose poem "Blue Peninsula" supplied the book’s title), Billy Collins, Elizabeth Bishop, Diane Ackerman, Zbiginew Herbert, The Rolling Stones, Paul Celan, Molly Peacock, David Whyte and many others, known and lesser known.

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The Echo Maker

Powers, Richard

Last Updated: Nov-19-2009
Annotated by:
Ratzan, Richard M.

Primary Category: Literature / Fiction

Genre: Novel

Summary:

Mark Schluter, a 27 year old beef-processing plant worker, becomes involved in a car crash outside Kearney, Nebraska, the locus of this novel. The car crash---on February 2, 2002, a date that the author wishes to impress the reader as one that seems too numerically mystical (02/02/02) to be co-incidental--clearly has mysterious elements about it since it occurred far outside town on desolate flat country roads and amidst the tire tracks of another car. Too, just after Mark is hospitalized, there appears an undecipherable note of anonymous provenance:

I am No One
but Tonight on North Line Road
GOD led me to you
so You could Live
and bring back someone else.

Mark has an initially troublesome route to recovery, including a temporary ventriculostomy to relieve the pressure in his head. Meanwhile his only sibling, Karin, 31, rushes to his side from Sioux City, a move that becomes permanent and costs her her job. Mark eventually awakens but with an unusual mis-identification syndrome, called the Capgras syndrome (more commonly encountered in patients with psychiatric condition), in which the patient fails to recognize those closest to him as such. For a Capgras patient, there is a disconnect between the visual ability to recognize their faces and emotional response to them as close relatives or friends. He recognizes the visual similarity but considers the significant other an impostor.

This rupture in the usual see-sister's-face-acknowledge-as-sister apparently occurs, in the Capgras syndrome, in connections between one's "primitive" or "reptilian" brain, including the amygdala, and the cortex. Much is made of this failure of neuronal circuits to connect, and reminds one of the parable in His Brother's Keeper (see database) about the Chinese Emperor and the failure of the transmission of a message to explain the pathophysiology of amyotrophic lateral sclerosis. As Karin remembers the neurologic explanation, " 'His amygdala, she remembered. His amygdala can't talk with his cortex" [original italics] (80). This amygdala-cortex dichotomy becomes, in behavioral terms, feeling versus reason. As discussed by the two neurologists involved in Mark's case, "But no emotional ratification. Getting all the associations for a face without that gut feeling of familiarity. Pushed to a choice, cortex has to defer to amygdala"; "So it's not what you think you feel that wins out, it's what you feel you think" (131).

Out of desperation, Karin emails a request to Gerald Weber, a famous cognitive neurologist-author modeled primarily after Oliver Sacks but with a little A. R. Luria, whose "To find the soul it is necessary to lose it" is the epigraph of the novel. From the time Weber meets Mark and Karin, the book becomes an intricately entangled design of various metaphysical threads all of which, directly or indirectly, revolve around Mark's syndrome and identity--in fact the identity of all the characters. Karin becomes involved-- re-involved-- with two men from her earlier days in Kearney, Robert Karsh, a developer, and Daniel Riegel, a conservationist. Later the two men become ideologically more opposed than ever when Karsh tries to develop the annual nesting grounds of the cranes, Grus canadensis, who return to Kearney, thousands of them, every February. Barbara Gillespie, a guardian angel to Mark at the extended care rehab center, and Gerald Weber, until then a man happily married to a prototypically liberal intellectual woman, Sylvie Bolan, become romantically drawn to each other. Weber's own doubts about his work and his public image after unprecedentedly critical reviews of his latest book torment him and lead to concerns about his own identity as a physician who may be using, rather than trying to understand, his patients.

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Annotated by:
Mathiasen, Helle

Primary Category: Literature / Nonfiction

Genre: Collection (Essays)

Summary:

Subitled, Invisible Wounds of War. Psychological and Cognitive Injuries, Their Consequences, and Services to Assist Recovery, this monograph features 27 contributing researchers. Published by the RAND Corporation, it is funded by a grant from the Iraq Afghanistan Deployment Impact Fund. The study was conducted under the joint auspices of the Center for Military Health Policy Research, a RAND Health Center, and the Forces and Resources Policy Center of the National Security Research Division of the RAND Corporation.
 
The work deserves our full attention as it delineates and explains the economic, human, medical, political, public health, and social consequences of injuries suffered by returning veterans of US involvement in 8 years of continuous conflict in Afghanistan and Iraq. The introduction defines the three kinds of invisible wounds affecting thousands of the 1.64 million American troops deployed in Operation Enduring Freedom (Afghanistan) and Operation Iraqi Freedom (Iraq) since 2001. These combat related injuries are post traumatic stress disorder (PTSD), major depression, and traumatic brain injury (TBI). Upwards of 26% of returning troops may have mental health concerns, including drug and alcohol dependency, homelessness, and suicide.

The monograph analyses numerous studies of these issues, both governmental and non-governmental, and RAND has conducted its own study. The data collection is recent: from April 2007 to January 2008. RAND estimates that approximately 300.000 persons currently suffer from PTSD or major depression; in addition, 320,000 veterans may have experienced TBI during deployment.

The recommendations include evidence based care at the VA level, the state and community level, and on site in Afghanistan and Iraq. Adequate care would pay for itself and save money in the long run by improving productivity and reducing medical and mortality costs for members of the US armed forces.

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Annotated by:
Jones, Therese

Primary Category: Performing Arts / Film, TV, Video

Genre: Film

Summary:

The 2005 documentary film, The Devil and Daniel Johnston, tells the story of Daniel Johnston, a mentally ill artist whose drawings have been exhibited and sold worldwide; whose music has been recorded by Beck, Wilco, Nirvana, Sonic Youth, and Pearl Jam; and whose fans include the actor, Johnny Depp and Simpsons creator, Matt Groening.  Diagnosed with manic depression complicated by delusions of grandeur, Daniel has spent the last three decades of his life in and out of mental hospitals.  His wild fluctuations, downward spirals, and periodic respites are chronicled in the film through compelling interviews, home movies, recorded tapes, and performance footage.  The title is an allusion to Johnston's intense Christian beliefs and his spiritual war with Satan.   

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Rembrandt's Whore

Matton, Sylvie

Last Updated: Nov-16-2009
Annotated by:
Mathiasen, Helle

Primary Category: Literature / Fiction

Genre: Novel

Summary:

During  the Dutch Golden Age, religion and medical science were combined in people's minds to the extent that illness, especially plague, was seen as a punishment from God. In the minds of  many Dutch seventeenth-century Calvinists, God was vengeful and often angry with the sinner. As Matton shows in this fictional monologue of an illiterate peasant woman, Hendrickje Stoffels (1626-1663), when plague swept through the city of Amsterdam, the afflicted person had three ways of fighting the disease: prayer, folk remedies, and the ministrations of the plague doctors. But for Hendrickje, prayer held first place.Hendrickje Stoffels modeled for several Rembrandt works. She was one of the three most important women in the life of Rembrandt Harmenszoon van Rijn (1606-1669).

He was first married to Saskia van Uylenburgh, who bore him 4 children. Only Titus,their son, survived. As Saskia lay dying of tuberculosis, Rembrandt hired Geertje Dircx  (c.1610-1656) as Titus's wetnurse. She became Rembrandt's lover. Hendrickje entered his household and began a relationship with the painter in the late 1640s. As Geertje was being forced out of the home, Rembrandt started paying her an annuity; later, she sued Rembrandt for breach of marriage contract. He had her removed to a prison/insane asylum. Hendrickje bore him a daughter, Cornelia (1654),the only one of his five children to survive their father.

The book begins when Hendrickje is 23 years old and Rembrandt 42. Matton's book cover shows Rembrandt's painting, Hendrickje Bathing (1655). This and several other paintings of his lover illustrates Rembrandt's passion for Henrickje who  devoted her life to the artist, to Titus, and Cornelia. We read the experiences articulated by the deeply religious Hendrickje as she moves around Rembrandt's home and studio, and the streets of Amsterdam. She thinks that  cats and dogs, not rats, carry the plague.  She notices wounded war veterans with open sores in the streets, lepers, and public whippings and executions. She is obsessed with the worms that live in the body and cause plague and death. Cherries also cause the plague.

In 1654, the City Fathers summon her, pregnant, accusing her of whoredom--hence the title of the book. She endures an admonition and is banished from the Lord's Supper. She becomes Rembrandt's common law wife. We witness the home birth of Cornelia and observe Hendrickje breastfeeding her. She watches Rembrandt and his pupils at work in the evil smelling studio where his assistants boil rabbit skins to make glue for the paints. Hendrickje composes medications she has learnt about  from a midwife in her home town of Bradevoort, but she cannot cure the plague. A comet streaks across the sky to announce an outbreak in Amsterdam. Rembrandt goes bankrupt, and Hendrickje feels Rembrandt's tears on her face as she suffers a horrific death from plague, clinically rendered by the author.

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Annotated by:
Spiegel, Maura

Primary Category: Performing Arts / Film, TV, Video

Genre: TV Program

Summary:

This three-part BBC television miniseries centers on the large weekend reunion of a prosperous Anglo-Jewish family at a luxurious West End hotel.  Various family members discover one another and uncover family stories and secrets that reorient them in their lives.  Writer-Director Stephen Poliakoff does not adhere to a conventional story structure, and this wandering tale is full of unexpected and rewarding narrative dips and turns.
 
Two family clusters are followed most closely in the story, although we are given glimpses, through flashback, of other compelling characters’ intricate wartime histories.   One branch of the family is made up of Daniel (Matthew Macfadyen) and his parents, Raymond and Esther Symon (Michael Gambon and Jill Baker) who have grown distant from the larger family circle following a well-intentioned but failed business venture that cost Raymond his share of the family wealth.  Daniel, intrigued by his glamorous relatives, is drawn more and more deeply into a relationship with his seductive and mysterious cousin Rebecca (Claire Skinner) and her dashing brother Charles (Toby Stephens).  In the course of the weekend, crusty but endearing Raymond suffers a minor stroke, and we learn of the recent death of Rebecca and Charles’ eldest brother following his descent into mental illness.

The most meaningful connections, however, belong to the past, and are brought to light in stages, effectively engaging our curiosity.  The stories behind two captivating photographs, one of Raymond’s father dancing fancifully and uncharacteristically on a lawn, and one of Daniel at age three, unaccountably dressed as an Italian Prince, are eventually uncovered to reveal a secret history that holds quite different meanings for Daniel and his father. 
 

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Annotated by:
Nixon, Lois LaCivita

Primary Category: Performing Arts / Film, TV, Video

Genre: Film

Summary:

Not quite the familiar home-for-the-holidays genre of a dysfunctional family, this one has a twist.   April is a late-teen "problem" daughter who has run away to New York City where she lives with her boyfriend, Bobby (Derek Luke).  April, played by a grungy, pigtailed, and probably tattooed Katie Holmes, has invited her parents, siblings, and grandmother to Thanksgiving dinner.  This reunion, we gather, is the first since April left home.  The family is coming to her lower East Side tenement, a situation that bristles with possibilities.  

Moving back and forth from April's low rent apartment to tension in the crowded car as it moves from a scenic suburb to cityscape, viewers are able to watch both April's unskilled efforts as she struggles with the slippery turkey, a can of cranberry sauce, crepe paper decorations, a broken oven, etc. and an inexplicable drama slowly unfolding in the crowded car.  In spite of crisis situations in both settings, the separate family members do get together for a dinner that neither could have planned. 

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Send In The Idiots

Nazeer, Kamran

Last Updated: Sep-21-2009
Annotated by:
Henderson, Schuyler

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

Send in the Idiots is a witty and moving tale of reunion, part memoir and part journalistic character study. Nazeer, hailing from a Pakistani family that has lived in the United States, Great Britain, Saudi Arabia and Pakistan, returns to the United States, where he had attended a school for autistic children during his early youth. He tracks down some of those who were also at that school with him, in order to find out how they are doing, what they are doing, and how their autism has affected their lives. He locates three people who were in the same class as he was and goes to visit them; he finds the family of a fourth; and finally sits down and has a slice of cheesecake with their former teacher and principal. Now a civil servant in the English government, Nazeer visits Andre, a computer scientist who makes uses of puppets to facilitate communication; Randall, a bike courier in Chicago and poet; and Chris, a speechwriter in Washington, DC. He then stays with the parents of Elizabeth, who had committed suicide a few years before, and through them finds out about her life, and about how parents may cope in the aftermath of such an awful catastrophe. Finally, he meets with Rebecca, who had been one of their teachers, and Ira, the prinicipal of the school, which has since shut down.

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