Showing 771 - 780 of 843 annotations tagged with the keyword "Patient Experience"
In Book I Oliver Sacks describes his visit to Pingelap and Pohnpei in the Caroline Islands (now a part of the Federated States of Micronesia). On Pingelap (population 700) 5-10% of the people are completely colorblind; i.e. they have a rare hereditary condition called achromatopsia in which the retina has no functional cone cells. Rod cells, which normally provide peripheral and night vision, are their only source of vision. While partial colorblindness is common, achromatopsia is normally very rare. Sacks and Knut Nordby, a Norwegian scientist who is himself achromatopic, examined dozens of achromatopes on Pingelap and in a village of Pingelapese people on the larger Pohnpei.
In Book II Sacks takes the reader to Guam where he investigates (with his friend John Steele, a neurologist who lives on the island) the neurological disease called "lytico-bodig." The "lytico" form of this disease is a progressive paralysis similar to amyotropic lateral sclerosis, while the "bodig" form resembles parkinsonism. Both appeared in Guam after the Second World Way and now seem to be dying out. However, no one has ever determined their cause.
Sacks tells the story of his visit, while also discussing various hypotheses that have been considered and discarded over forty years of study. The last section of the book describes a trip to Rota, a small island north of Guam, where Sacks visits a forest of cycad trees and discusses his life-long fascination with these primitive plants.
Summary:Determined not to like Ruth Thomas, Ann Stanley is immediately smitten by her charm and force of personality, and especially by her vitality--a vitality that too soon succumbs to breast cancer. As one of a cadre of women almost obsessively devoted to the care of a dying Ruth, Ann nurses Ruth through her final illness, until--in a move curiously like the decision of Charity (also dying of cancer) to keep Sid, her husband, sequestered from her final trip to the hospital, in Wallace Stegner's far superior novel, Crossing to Safety--Ruth flies to Florida to die at her brother's house.
Showalter identifies clusters of syndromes, or mini-epidemics, which she suggests represent late-twentieth century manifestations of the entity which was called hysteria in nineteenth century western culture. Opening with the history of psychiatry's involvement in hysteria in the time of Charcot and Freud, she traces the replacement of hysteria or conversion reaction by modern hysterical analogues such as: chronic fatigue syndrome, recovered memory, Gulf War syndrome, multiple personality syndrome, satanic ritual abuse, and alien abduction.
In separate chapters she examines each of these entities--how it presents, how it fits into her theory of mass hysteria as a cultural response to the millennium, and how it is being handled by health care professionals. Showalter contends that "Redefining hysteria as a universal human response to emotional conflict is a better course than evading, denying, or projecting its realities." (p. 17)
This is a truly beautiful novel; its many stories remain with the reader for a long time. It is the semi-autobiographical story of the myriad of issues which are manifest as one family deals with the terminal illness of the mother from cancer.
A daughter, who has never considered herself close to her mother, is forced by her father to leave her job as a journalist in New York, to come home and become the primary caregiver. Over a period of several months the mother has chemotherapy and eventually gives up to the slow deterioration of the disease. During this time the mother and daughter rebuild a relationship and come to have mutual respect for each other. One poignant aspect of the relationship is their establishment of "The Gulden Girls Book and Cook Club" as they read old classics together and the mother teaches the daughter the cooking secrets which she has cherished.
The father, a college professor and former mentor of the daughter, absents himself from the home as much as possible, unable to deal with the issues. The female oncologist is very helpful and understanding with both the patient and the daughter. A wonderful hospice nurse gives welcome support. The question of assisted suicide becomes an issue after the mother's death; the daughter is arrested. There is a surprise ending which should not be revealed here, but offers a good forum for discussion.
Summary:In 1981 the author, a well-known 75 year old Swedish poet, suffered a heart attack and lay comatose for two months. He then began a prolonged period during which he gradually recovered all of his faculties. In the early stage of his recovery, Lundkvist experienced a series of strange and intense "waking dreams," which he describes in this memoir. Many were dreams of journeys to real or fantastic places: for example, a trip to a railroad station in Chicago where physicians surgically transformed white people into black people, or a visit to a strange planet where cows produced blue milk. Lundkvist's memories of these dreams are embedded in a series of imaginative meditations on aging, human nature, the meaning of life, and the inexorable passage of time.
As she turns 39, Alden begins a four-year quest to have a child. Despite her need and desire, she wonders whether having one will keep her from her work, writing. She and her husband Jeff go from not-really-trying, through temperature charts, to a series of painful and expensive procedures, all to no avail.
The memoir describes not only Alden's search for a child but for herself as well. Her relationship with her mother, her immersion in the counterculture ("in a middle-class way"), the importance of writing, her attempts to keep her own life under control, and her satisfying marriage are important elements in the memoir.
Nilov and Kuprianov are returning from a hunting trip and stop for a meal at the mill. An old man tells them about the mad wolf that has been terrorizing the village. They make light of the tale that there is a man in the village who can cure hydrophobia (rabies). Later, Nilov goes out for an evening walk. Suddenly, he sees a suspicious shadow--the wolf!
Nilov doesn't have a weapon with him. When the wolf gets close, the hunter grabs him by the neck. Ultimately, Nilov's cries for help are answered and the wolf killed, but not before he inflicts a deep bite on Nilov's shoulder. Nilov is terrified of contracting hydrophobia and goes first to the folk healer and then to a local physician, Dr. Ovchinnikov. Ovchinnikov reassures him that he almost certainly won't get rabies; after all, the wolf bit him through his clothing and he bled a lot, so the poison "probably flowed out with the blood."
In the first version of this story (1886), Nilov was so delighted that he paid Ovchinnikov 500 rubles, went merrily along his way, and a year later had not contracted the disease. In the later version (1899-1901), Chekhov changed the ending: Nilov embraces Ovchinnikov and leaves in his carriage, thinking about what a great tale his encounter with the wolf will be.
The memoir is divided into roughly two halves: before Mike's death and after Mike's death. The narrator is one of the dying man's circle of gay and lesbian friends, and becomes, for unclear reason's, his most involved caregiver. She goes to his apartment on summons at any hour, flies to Memphis when Michael is hospitalized after collapsing, loans him money, and endures relentless psychological abuse as his cognitive powers fade.
In the second half of the book, the writer reflects. Her anger toward Mike's disease, AIDS, and Mike himself does not seem tempered by the passage of time. She is still struggling at the end of the tale, more than two years after Mike's death.
Larry is dying of multiple sclerosis. He walks only with assistance, suffers severe depression, is beginning to be incontinent, and has attempted suicide. His best friend, Chris, decides to take him duck hunting, a sport that has been central to their close relationship. This, however, will be their last trip: Chris has decided to drown Larry in the marsh, as a last act of his love.
As this novel retraces the growth of their friendship, it also traces the growth of Chris's love for Larry's wife, Rachel. Rachel has been an almost saintly caregiver for her husband, weathering his increasing disability and despair, while struggling to maintain her own identity and peace of mind.
Miranda's narrative opens with a fretful dream foreshadowing death as the first hint that she is becoming ill during the course of the deadly influenza epidemic of 1917-18. The tightly woven story takes the reader through a month of Miranda's life as a newspaper theatre columnist, a young single woman struggling with a relationship with a soldier about to be "shipped over," and an observer of the World War I frenzy that engulfed America.
The final pages are made up of Miranda's intermittent delirious dreams and perceptions from the depth of her illness. She slowly recovers, only to learn that her Adam has succumbed to the same illness and that the war has ended.