Showing 751 - 760 of 854 annotations tagged with the keyword "Patient Experience"

Annotated by:
Coulehan, Jack

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

In 1984 Handler was a moderately successful 23 year old New York City actor, when he developed acute myelogenous leukemia. Strongly supported by his girlfriend and family, Handler underwent induction and, later, consolidation chemotherapy at Sloan-Kettering Memorial Hospital, where he also began his long experience (the "comedy of terrors" or, perhaps more appropriately, the "tragedy of errors") of a harsh, hostile medical environment populated by arrogant physicians, condescending nurses, and a host of unhelpful minor characters.

Handler carries us briskly through his first remission, the impact of his illness on his family and personal relationships, his experience with nonconventional healing (Simonton Cancer Center), his return to work on Broadway, his relapse, and the agony of a second round of induction chemotherapy at Sloan-Kettering.

Subsequently, he goes to Johns Hopkins Hospital to undergo the rigors of an autologous bone marrow transplant. At Hopkins he discovers to his surprise a medical setting far different from Sloan-Kettering: communicative, compassionate physicians and a patient-centered healing environment. Even the two hospitals' sperm banks reflect this radical difference in approach.

After surviving his transplant and a subsequent round of serious infections, Handler resumes his life. He realizes that most of the time nowadays he is not in touch with the sense of joy and gratitude for each moment that the illness taught him. Yet, these feelings exist below his consciousness; sometimes he steps through "a little doorway near the floor of my consciousness" and experiences his life in a simpler, more profound way.

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Winning

Brancato, Robin

Last Updated: Mar-26-1998
Annotated by:
McEntyre, Marilyn

Primary Category: Literature / Fiction

Genre: Novel for Young Adults

Summary:

When we first meet Gary Madden he's face down on a hospital bed rigged to be turned every two hours to prevent bedsores. His head is in a brace and he can move neither arms nor legs. He was carried off the football field the previous week with a spinal cord injury and doesn't yet know what his prospects are for recovery. Eventually he learns that he has some hope of recovering at least partial use of arms and upper body, but virtually no hope of walking again.

His parents, a faithful teacher, a bewildered girlfriend, and a few awkward but good-hearted teammates find their various ways to see him through months of adjustment, some of them more helpful than others. They all have something to learn in the course of caregiving: his mother has to struggle not to be overprotective; his girlfriend has to find new ways to interpret his moods and her own as they try to imagine what future their relationship could possibly have; his closest friends know little about the nuances of sickroom diplomacy, which makes sometimes for comedy, sometimes for unintended pain.

His English teacher who has recently lost her husband in a car accident, turns out to be a significant mentor in transition as she forces herself to reach beyond her own loss to help him in his. One form her help takes is to open his imagination to other ways of living, through literature and poetry, and to a metaphor for how to live that might work better than "winning."

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The Road to Wellville

Boyle, T. Coraghessan

Last Updated: Mar-08-1998
Annotated by:
Duffin, Jacalyn

Primary Category: Literature / Fiction

Genre: Novel

Summary:

In the fall of 1907, Will and Eleanor Lightbody, a wealthy, neurotic couple from Peterskill, New York travel to Battle Creek, Michigan to immerse themselves in the routine of the famous sanitarium run by corn-flake inventor, Dr. John Harvey Kellogg. They meet Charlie Ossining who is seeking his fortune in the fickle market of Battle Creek's breakfast food industry. The Lightbodys have just lost their infant daughter and Eleanor is taking Will to the "san" for the cure. An inveterate meat-eater with a sexual appetite, Will was addicted, first to alcohol, and then, to opium, after his wife spiked his coffee with an off-the-shelf-remedy for drink.

At the sanitarium, they must occupy separate rooms, refrain from sex, and piously eat inflexible non-meat diets. Therapies include five daily enemas, exercises, "radiated" water, and an electrical "sinusoidal bath," which accidentally fries one of the residents. Kellogg is gravely disappointed in Will's inability to toe the "physiologic" line, but he is more deeply disturbed by his adopted son, George, whose chosen life on the street is a perpetual embarrassment.

Worried about his sexual prowess and deprived of his wife, Will becomes obsessed with his beautiful nurse and opts for the stimulation of an electrical belt; equally frustrated and bent on self-starvation, his wife turns to the quack "Dr Spitzvogel" who specializes in nudism and "manipulation of the womb." Brought to their senses by humiliation, Will and Eleanor go home.

Meanwhile, Charlie has joined with George Kellogg and borrowed from Will to keep his business afloat, but he realizes that he has been swindled. He only narrowly escapes jail, during a fiery commotion created by George who is then murdered by his adoptive father.

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The Elephant Man

Pomerance, Bernard

Last Updated: Mar-05-1998
Annotated by:
Coulehan, Jack

Primary Category: Literature / Plays

Genre: Play

Summary:

This play is based on the life of John Merrick, a horribly deformed man who lived in London in the late 19th century. After being abandoned by the traveling freak show in which he had been exhibited, he was admitted to Whitechapel Hospital under the care of Dr. Frederick Treves. Merrick is given a permanent home in the hospital.

Treves educates him and introduces him to London society, including the famous actress, Mrs. Kendal. Merrick becomes quite the favorite of the "in" group. However, as he learns more about society and human nature, he realizes that he will never be accepted simply as an ordinary person. Eventually, he dies in his sleep, presumably because he tries to sleep lying down (like ordinary people do) and the size and position of his enormous head compresses his windpipe and he suffocates.

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The Idiot

Dostoevski, Fyodor Mikhailovich

Last Updated: Mar-05-1998
Annotated by:
Moore, Pamela

Primary Category: Literature / Fiction

Genre: Novel

Summary:

Prince Myshkin is an epileptic returning from a sanitarium. On the train, he meets Rogozhin and they become friends. Myshkin visits his distant relatives, the Epanchins, a fashionable family. General Epanchin gives him a job and he fascinates Madame Epanchin and her daughter, Aglaya, with his innocence and awkwardness.

The Prince boards with Ganya, a schemer who wants to marry Aglaya for her money. Ganya is also involved with Natasya; though innocent, she is a kept woman. Myshkin pities Natasya; in their innocence they are two of a kind. He offers to marry her, but as she is worried about ruining his name, she runs off with Rogozhin. Shortly afterward, she runs away from Rogozhin and disappears. Rogozhin assumes she has run to Myshkin and with Ganya plots the Prince's death.

Meanwhile, Aglaya has fallen in love with Myshkin, but his bizarre talk disturbs the family and when he falls into a fit at a party they ban him from the house. Aglaya also grows increasingly jealous of Natasya. The two women meet and Aglaya resolves to give up the Prince. At last, Natasya agrees to marry Myshkin but on their wedding day, she elopes with Rogozhin, who murders her. Myshkin returns to the sanitarium.

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Summary:

William Morton first introduced ether anesthesia in 1846. This was followed shortly by nitrous oxide and chloroform. Within a few years, surgical anesthesia was being used throughout the United States. However, widespread acceptance did not mean universal usage. Physicians and surgeons debated the risks and benefits of anesthesia. Anesthesia was thought to be dangerous. Some argued that pain was a necessary part of life, that it made people stronger, and/or that it was a punishment from God. Others argued that anesthesia constituted an abuse of medical power.

Surgeons took care to select appropriate patients for anesthesia, while performing surgery without anesthetics on others. Women, people of higher social and economic classes, and people of the white race were thought to be more sensitive to pain than men, the poor, and Negroes and American Indians. Likewise, the young experienced pain more than the elderly. Certain procedures (e.g. major limb amputations and prolonged tissue dissection) were also thought to require more anesthetic than others (e.g. natural childbirth or ENT surgery). These beliefs carried over into practice, as evidenced by records from the Massachusetts General Hospital and other hospitals in the mid-19th century.

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Woman on the Edge of Time

Piercy, Marge

Last Updated: Mar-05-1998

Primary Category: Literature / Fiction

Genre: Novel

Summary:

Consuelo Camacho Ramos (Connie) was placed in Bellevue Hospital because she abused drugs and alcohol after the police killed her blind, African-American lover. She was accused of child abuse and her daughter was put up for adoption. When the novel opens, Connie has been released and is living in New York with little money and no hope of a job.

She begins to be visited by an individual from the year 2137 who calls "himself" Luciente. He communicates with Connie mentally and she visits his world in the same way, experiencing everything without moving her body. Luciente’s community is not divided along gender lines. Indeed, "he" turns out to be what Connie calls "female," though the name means nothing in this future world.

Reproduction takes place in an artificial environment in which fetuses are delivered at ten months to improve their strength. Every child has three "mothers," but is raised by the entire community. Luciente’s community is fighting a war against forces that want people to live in a hierarchical system in which women all become prostitutes, victims of a larger, manipulating force, a battle Connie also fights in her world.

When Connie breaks the nose of her niece’s pimp, he takes her back to Bellevue. No one believes that she did not provoke the attack. They assume she is mad. In an exemplary moment, the nurses who attend to Connie talk over her head about how dirty these mad people are. Left tied to a bed for many hours, Connie has urinated on herself and has been unable to wipe her nose. The nurses ignore every word she says.

Connie learns to manipulate the system, not swallowing her pills and telling her counselor that indeed she was sick but now feels much better. She draws the line, however, when she is chosen to be a subject in an experiment. The doctors plan to implant electrodes into the patients’ brains to control the patients’ emotions. Connie kills the doctors by slipping poison into their coffee.

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The Cancer Ward

Solzhenitsyn, Aleksandr

Last Updated: Mar-05-1998
Annotated by:
Coulehan, Jack

Primary Category: Literature / Fiction

Genre: Novel

Summary:

The story takes place in the men's cancer ward of a hospital in a city in Soviet Central Asia. The patients in Ward 13 all suffer from cancer, but differ in age, personality, nationality, and social class (as if such a thing could be possible in the Soviet "classless" society!). We are first introduced to Pavel Rusanov, a Communist Party functionary, who enters the hospital because of a rapidly-growing neck tumor.

We soon learn, however, that the book's central character is Oleg Kostoglotov, a young man who has recently been discharged from a penal camp and is now "eternally" exiled to this particular province. Only two weeks earlier, he was admitted to the ward in grave condition from an unspecified tumor, but he has responded rapidly to radiation therapy. Among the doctors are Zoya, a medical student; Vera Gangart, a young radiologist; and Lyudmila Dontsova, the chief of radiation therapy.

Rusanov and Kostoglotov respond to therapy and are eventually discharged; other patients remain in the ward, get worse, or are sent home to die. In the end Kostoglotov boards a train to the site of his "eternal" exile: "The long awaited happy life had come, it had come! But Oleg somehow did not recognize it."

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An Anthropologist on Mars

Sacks, Oliver

Last Updated: Mar-05-1998
Annotated by:
Coulehan, Jack

Primary Category: Literature / Nonfiction

Genre: Collection (Case Studies)

Summary:

This book, which is subtitled "Seven Paradoxical Tales," contains seven of Oliver Sacks' clinical stories of persons whose unusual neurological deficits teach us something about the way the brain (and, therefore, the mind) works. In "The Case of the Colorblind Painter" an artist learns to adapt to a completely black-and-white world after sustaining trauma to his occipital lobe.

"The Last Hippie" portrays a man whose ability to form new memories was destroyed by a massive midline brain tumor; he still "lives" in the 1960's. "A Surgeon's Life" depicts a Canadian surgeon with Gilles de la Tourette Syndrome, showing how he is able to live as a respected member of the community and practice surgery despite this disabling condition. "To See and Not See" tells the tale of a man in his 50's who is suddenly able to see after being blind since early childhood.

In "The Landscape of His Dreams" Sacks introduces a painter who, after a serious illness in the 1960's, apparently developed extraordinary and persistent "waking visions" of Pontito, his hometown in Italy. For many years he has obsessively painted remarkably accurate scenes of Pontito. "Prodogies" and "An Anthropologist on Mars" both deal with autism. The first tells of an autistic boy from England who has remarkable skill in visual memory and drawing; the second is about an autistic woman with a Ph.D. in animal science, who teaches at Colorado State University.

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Bedside Manners

Shorter, Edward

Last Updated: Mar-05-1998
Annotated by:
Coulehan, Jack

Primary Category: Literature / Nonfiction

Genre: Treatise

Summary:

This study explores the history of physician-patient relationships, especially as it relates to the ascendancy of science in medicine. The book begins by describing traditional physician-patient relationships in the 18th century. The focus, however, is on the "modern" doctor (beginning in the 1880's) and the "postmodern" doctor (beginning in the 1950's).

The author describes the transition from modern to postmodern doctor and a corresponding transition from modern to postmodern patient. A "sympathetic alliance" between physician and patient was essentially a development of the modern period (1880's - 1950's).

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