Showing 751 - 760 of 867 annotations tagged with the keyword "Patient Experience"

Healing Lessons

Winawer, Sidney

Last Updated: Sep-30-1998
Annotated by:
Belling, Catherine

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

Sidney Winawer is a New York physician specializing in gastrointestinal cancers. When his wife, Andrea, is diagnosed with stomach cancer, he is made to see his own work from a new perspective, that of the patient and her family. The experience gives him new insights into aspects of health care he had not considered before, such as the alienating effects of some hospital routines on patient and family, the patient's need to find hope from any source, regardless of its intellectual provenance, and, encouragingly, the life-enhancing effects on his family as they join Andrea in her determined struggle to prolong and enrich whatever time remains for her.

For the first time, Winawer explores alternative and complementary approaches to cancer treatment, including meditation, antioxidant therapies, hyperthermia, and other attempts to stimulate the immune system. At first resistant, he comes to recognize the need for the terminally ill and their families to have access to as many resources as possible, and eventually it becomes his "mission" to emphasize the need for practitioners of conventional medicine to learn as much as possible about integrative medicine.

An interesting subplot is the story of Dr. Casper Schmidt, Andrea's psychiatrist, whose remarkable knowledge of new treatments for terminal illness is explained when he dies of AIDS. As another physician led by personal experience of disease to explore beyond the boundaries of conventional therapies, Schmidt forms an illuminating counterpoint to Winawer himself.

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Annotated by:
Woodcock, John

Primary Category: Performing Arts / Film, TV, Video

Genre: Film

Summary:

This is the story of a family struggling to deal with the accidental death of a teenage son. Calvin Jarrett (Donald Sutherland) and his wife Beth (Mary Tyler Moore) and their surviving teenage son Conrad (Timothy Hutton) live in a wealthy Chicago suburb. Some months before the time of the film, Conrad's older brother Buck drowned when the small boat he and Conrad were sailing capsized in a windstorm.

In the present we see Beth as cold, withdrawn from Conrad (Buck had been her favorite) and at times actively hostile to him and to her husband, too. Conrad, recently back home from three months in the hospital (including electro-convulsive shock therapy) after slitting his wrists, is between uneasy and agonized in his high-school and family world. Calvin remains emotionally open but is befuddled and often caught between his wife and his son, talking about things that don't matter.

Within that setting, the film tells the story of Conrad's attempts to deal with the guilt he feels after his brother's death. A series of psychotherapy sessions with Dr. Berger (Judd Hirsch) plays a crucial role. Seeing Dr. Berger also helps Cal understand some things, and when in a midnight confrontation he tells Beth of his sorrow that she has substantially changed for the worse, she proudly packs her bags and leaves. The film ends early the next morning, with Conrad and his father in an emotional embrace on the front steps of their home.

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Annotated by:
Belling, Catherine

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

In 1996, George Delury was sentenced to four months in jail for assisting in the suicide of his wife, Myrna Lebov. In this book, Delury tells the story of his marriage, his wife's struggle with multiple sclerosis, her decision to end her life, his own role in helping her achieve this, and the subsequent legal and media ramifications that culminated in his indictment.

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Annotated by:
Coulehan, Jack

Primary Category: Literature / Nonfiction

Genre: Case Study

Summary:

During the Battle of Smolensk in the Second Word War, a soldier named Zazetsky sustained a severe head wound, causing "massive damage to the left occipito-parietal region of his brain." This injury shattered his whole perceptual world. His memory, his visual fields, his bodily perception, even his knowledge of bodily functioning--all break into fragments, causing him to experience the world (and himself) as constantly shifting and unstable.

Zazetsky coped with this fragmentation by writing a journal of his thoughts and memories as they occurred, day after day, for 20 years. He then arranged and ordered these entries, in an attempt to reconstruct his lost "self." From over 3000 pages of this journal material, the neurologist A. R. Luria has constructed this extended case history from which emerges a remarkable portrait of Zazetsky as a determined and courageous human being. Zazetsky's first-person account is interspersed with comments and descriptions by Luria himself, explaining the relevant structure and function of the brain.

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Stone Butch Blues

Feinberg, Leslie

Last Updated: Jul-03-1998
Annotated by:
Moore, Pamela

Primary Category: Literature / Fiction

Genre: Novel

Summary:

This novel tells the story of Jess Goldberg, a transgendered "butch" growing up in Buffalo, New York. Jess first learns to admit and negotiate her attraction to women and her butch identity. Immediately, she is faced with violence. The police raid the lesbian bars, arrest any woman wearing fewer than three articles of women’s clothing and routinely beat, strip, or rape them. Jess and her friends also face the violence of bashers who attack without cause on dark or well-lighted streets.

Nevertheless, Jess refuses to compromise. From a doctor, she gets a prescription for testosterone, goes to a gym and transforms herself into a bearded, muscular man. Having saved two thousand dollars, she has a mastectomy done. The doctor falsifies a biopsy, performs the surgery and makes her leave. By the end of the novel, Jess is secure in her identity and determines to fight to make the world safe for others like her.

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Summary:

This book is a collection of photographs of patients and their family members, caregivers, administrators, and others in an Oregon nursing home. Photographs are accompanied by commentaries by the subjects, who talk about their lives, their suffering, their work, their survival.

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The Poetry of Healing

Campo, Rafael

Last Updated: Jul-03-1998
Annotated by:
Coulehan, Jack

Primary Category: Literature / Nonfiction

Genre: Collection (Essays)

Summary:

In this remarkable book of essays, Rafael Campo explores his coming-of-age as a gay Cuban-American physician. He presents us with a series of stories illuminating his childhood and college experience, skillfully interweaving them with narratives from his life as a young physician, especially his interactions with patients dying of AIDS. We follow the author from Amherst College, through Harvard Medical School, to his medical residency in San Francisco. At each step Campo is a close observer of human character and motivation--his own and others. At each step he asks, "Who am I? Who am I becoming?"

He discovers his identity as a gay man, an Hispanic man, a poet, and, finally, as a healer--not four identities, but one. He discovers, too, the healing power of connecting with patients, the "poetry of healing," something far different from the orthodox image of the physician-as-detached-or-distanced from his patients. Though Campo rejects the concept that physicians are agents for social change ("naive," he calls it), he brings sensitivity and poetry to bear on his continued search for "some way to give."

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Annotated by:
Woodcock, John

Primary Category: Performing Arts / Film, TV, Video

Genre: Film

Summary:

The second film in Oliver Stone’s Vietnam trilogy, "Born on the Fourth of July" is based on the autobiography of Ron Kovic (played in the film by Tom Cruise), a good kid whose patriotism takes him to Vietnam in the late 1960s and brings him back home paralyzed from the chest down and burdened with the guilt of having accidentally killed a fellow soldier in combat. Living at home with his parents, Ron struggles fiercely with these challenges against the exacerbating background of his culture’s anti-war and anti-vet sentiments.

Things get bad for him, he gets very angry and leaves home for Mexico to forget it all with booze, drugs, and prostitutes. That false paradise eventually fails him, however, and he returns to the States and makes some positive moves, including visiting the parents of the soldier he had killed. He winds up being a spokesman for vets, anti-war ones in particular, and at the end he is wheeling himself out onto the stage of the Democratic Convention of 1976 to huge applause, feeling, as he has just said to a reporter offstage, "I’m home."

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Summary:

Eleanor Lightbody (Bridget Fonda) and her husband Will (Matthew Broderick) travel to the Battle Creek Sanitarium for the cure. On the train, they meet Charlie Ossining (John Cusak) who hopes to make his fortune in the booming breakfast food industry. The san is run on strict rules of vegetarianism and sexual abstinence by John Harvey Kellogg (Anthony Hopkins), inventor of the corn flake. Regular enemas, exercises, outings and baths are prescribed, but Will repeatedly breaks the rules and is lured into liaisons with a chlorotic fellow patient and his nurse.

Eventually, he and Eleanor turn to other unconventional treatments, which are not sanctioned by Kellogg, including nudism and sexual stimulation. Meanwhile Charlie joins up with George Kellogg (Dana Carvey), the Doctor's adopted but estranged son, who taunts his father when he is not extorting money from him. George sets the san on fire, but is reconciled with Kellogg during the conflagration when he sobs "Daddy give us a cuddle." The Lightbodys go home to a moderate pursuit of health.

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Annotated by:
Duffin, Jacalyn

Primary Category: Performing Arts / Film, TV, Video

Genre: Film

Summary:

In 1877, Richard Maurice Bucke (1837-1902) (Colm Feore) becomes the superintendent of the asylum in London Ontario, where physical restraints are used. His lovely but tense wife (Wendel Meldrum) is grudgingly deferential to his professional needs. They are parents of a happy little girl. Bucke travels to a Philadelphia conference to read a paper on his liberal ideas about care of the mentally ill, but he senses the intolerance of the audience and storms out.

An odd "free thinker" in the audience--who turns out to be the great American poet Walt Whitman (Rip Torn)--admired the paper. Whitman invites the doctor to meet his mentally disturbed brother kept at home rather than in an asylum. Smitten with Whitman and his philosophy, Bucke brings him to Canada.

At first, his wife and the town are suspicious of the famous stranger, but they gradually change their minds. The asylum replaces its coercive methods of care with exercise, music, and talk. The film closes with a lively summer cricket match between the asylum (patients and workers) and the town.

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