Showing 761 - 770 of 844 annotations tagged with the keyword "Patient Experience"

Annotated by:
Squier, Harriet

Primary Category: Literature / Fiction

Genre: Short Story

Summary:

Ruthie is a thirty five year old overweight mother of two married to Ruben. Ever since her marriage, she has experienced pain with intercourse. She feels like an odd contradiction, with too much flesh and too narrow a vaginal opening, able to experience childbirth but not intercourse. She has read books about pain with intercourse, has tried lubrication, like her doctor recommended, but still the pain continues. She cannot imagine painless intercourse without completely leaving her body and wonders if she would ever get it back afterward.

She imagines what her life would be like if intercourse didn't hurt, how she would be fearless, attractive, sexual; how her husband would no longer turn away from her with indifference. As long as sex is painful, her life is concrete, full of duty and care. She imagines that without pain she would transcend this drudgery, even transcend her husband, and enter an ethereal world which centers around her.

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Last Things

Spark, Debra

Last Updated: Nov-23-1997
Annotated by:
Squier, Harriet

Primary Category: Literature / Nonfiction

Genre: Essay

Summary:

The author recounts the last months of her sister's life as she slowly died of breast cancer in her mid-20's. The narrator and her sister, Cyndy, renegotiate their relationship and family roles throughout the illness. The narrator addresses the issue of living despite the prospect of dying, and of trying not to die while in the midst of attempting to live one's life. The narrator also recognizes the centrality of desire (in its broadest sense) in our lives, and describes our guilt about satiating our desires, the sense of loss from not ever really satiating them, and the inability to satisfy the desires of another.

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Premenstrual Syndrome

Nelson, Sharon

Last Updated: Oct-07-1997
Annotated by:
Squier, Harriet

Primary Category: Literature / Poetry

Genre: Poem

Summary:

The narrator of this poem describes all the kinds of things that disrupt your life when you experience PMS (premenstrual syndrome): impatience, dissatisfaction, irritability, temper, feeling overwhelmed. You notice that others avoid you, your doctor tries to treat your symptoms, and everyone sympathizes with those around you for how difficult you are making their lives. In the end, though, how does a woman know that her PMS-related perceptions aren’t really the accurate ones, that her temporary unhappiness isn’t really justified, or that her everyday comforts aren’t illusions?

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Operation Wandering Soul

Powers, Richard

Last Updated: Sep-18-1997
Annotated by:
Poirier, Suzanne

Primary Category: Literature / Fiction

Genre: Novel

Summary:

Richard Kraft is about as burnt-out as a fifth-year resident in pediatric surgery can be. Overwhelmed by his stint in an inner-city, public hospital in Los Angeles, he seeks to hide from the misery of his patients by avoiding any personal connection with them. Then he meets twelve-year-old Joy, an Asian immigrant trying desperately to learn the puzzling ways of her new culture. She speaks words that trigger memories from Kraft's own childhood as the son of a U.S. agent in Joy's country, and he loses his distance.

He performs surgery on a life-threatening cancer in her leg, pulling back at the last minute in an unreasonable fear that he will hurt her if he cuts too deep. The implied result: incomplete excision of the cancer and a death sentence for the child he now tries, unsuccessfully to avoid. His avoidance is repeatedly foiled by Linda Espera, the physical therapist with whom he is falling in love and who will not let him abandon the emotional needs of any of the children in Joy's ward.

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Memento Mori

Spark, Muriel

Last Updated: Sep-16-1997
Annotated by:
Coulehan, Jack

Primary Category: Literature / Fiction

Genre: Novel

Summary:

Seventy-nine year old Dame Lettie Colson begins to receive anonymous phone calls from a man whose message is, "Remember, you must die." Soon, her octogenarian brother, her senile sister-in-law, and many of their tottery friends begin to receive similar phone messages.

The novel takes us through a year or so in the lives of this group of eccentric elderly upper-class Brits and a few of their not-so-privileged servants and caretakers. As they pursue the source of the "memento mori" message, we discover a complex matrix of infidelity and deception, ranging from youthful love affairs and harmless perversions to manipulation and blackmail. In the end, though, Death will not be denied.

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Brain Scan

Skloot, Floyd

Last Updated: Sep-16-1997
Annotated by:
Coulehan, Jack

Primary Category: Literature / Poetry

Genre: Poem

Summary:

The urgent voice in this poem tells the patient to "Be still." The patient is about to undergo a brain scan (CT or MRI?) and the poem consists of a series of instructions. Don't worry about the discomfort or the side effects of the dye, the poem demands, "forget that your cradled head / may reveal a hard secret soon," the only thing that matters is "the subtle / shading of mass, some new darkness afloat / in the brindled brain sea." [16 lines]

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The Virus

Skloot, Floyd

Last Updated: Sep-16-1997
Annotated by:
Coulehan, Jack

Primary Category: Literature / Poetry

Genre: Poem

Summary:

The author knows that the virus's attack "is not personal." His individuality means nothing to the virus. Yet, for three years he has been ill, he has been "occupied by an unseen / enemy," he has lost control. Thus, being human, he must take it personally.

In fact, as a result of the infection, he is no longer the self he once was, but has seen "the banks / of self erode." Though the virus has changed the story of the writer's life, the virus does not really need him "to live any more than faith / needs a body of truth / to thrive." [50 lines]

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The Night-Side

Skloot, Floyd

Last Updated: Sep-16-1997
Annotated by:
Coulehan, Jack

Primary Category: Literature / Nonfiction

Genre: Collection (Essays)

Summary:

This book is a series of essays about the illness experience. The author developed chronic fatigue syndrome (CFS) after a viral illness in 1988. Suddenly, this 41-year-old public policy analyst, who was also a successful writer and a competitive runner, was thrust into the world of severe disability. He developed subtle but extensive neurological deficits that affected his concentration and memory. For months he could hardly get out of bed. He discovered that not only was the cause of CFS unknown, many physicians did not even believe it was a "real" illness.

"Double Blind" tells the story of Skloot's participation in an ill-fated clinical trial of Ampligen, an experimental treatment for CFS. Other essays describe the author's experience with alternative medicine, including an intensive course of Ayurvedic "detoxification" ("Healing Powers") and a visit to Germany to encounter Mother Meera, an avatar of the Divine Mother ("Honeymooning With the Feminine Divine").

"Home Remedies" presents his comic experience with helpful calls and letters telling him how to get rid of the illness. Other essays deal with Skloot's learning to cope with chronic disability. A final section includes poems about the illness experience of several composers and artists (e.g. Carl Maria von Weber, George Gershwin, and Vincent van Gogh).

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Home Remedies

Skloot, Floyd

Last Updated: Sep-16-1997
Annotated by:
Coulehan, Jack

Primary Category: Literature / Poetry

Genre: Poem

Summary:

This eight-part poem presents the wisdom of home remedies. The first voice tells the sick person to drink the juice of half a lime each day. "No virus can stand up / to a lime." The second voice explains the toxic effects of electromagnetic waves. Another tells him to submerge himself in garlic. Still another says to "visualize little men / in white overalls / scrubbing the lesions / from your brain." With regard to diet, one home remedy advises abstinence from bread, vinegar, dairy products, bread, corn, caffeine, alcohol, chocolate, vitamins, fruit, meat, fish, and fowl. In the end the only solution is to "embrace your illness . . . . "[133 lines]

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Kitchen Table Wisdom

Remen, Rachel Naomi

Last Updated: Sep-15-1997
Annotated by:
Willms, Janice

Primary Category: Literature / Nonfiction

Genre: Collection (Essays)

Summary:

The author, a pediatrician by training who has gradually moved into psycho-oncology and training others in relationship centered care, writes about life in this collection of short vignettes and analyses. She blends stories of her own experiences as patient and as woman with those she has gathered from a long history of patient encounters. There is no temporal sequence, but the work is grouped into thematic segments. The author shares selected, carefully garnered and assessed narratives of life events intended to be spiritually healing to those who are ill or who care for the sick.

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