Showing 781 - 790 of 870 annotations tagged with the keyword "Patient Experience"
Summary:Canadian artist, Robert Pope (d.1992), devoted the last years of his short life to documenting his decade-long experience as a patient with Hodgkin's Disease. Shortly after his diagnosis he was influenced by the 1945 autobiographical novel of Elizabeth Smart, By Grand Central Station I Sat Down and Wept. Pope's early work explored the interconnectedness and pain of individuals bound by an imperfect love, in Smart's case for a married man. After his disease went into remission, he began to paint the patient's perspective on illness, hospitals, visitors, family, and health-care providers in a series of images that suggest the lighting of de la Tour, the photographic immediacy of Doisneau, and the menacing surrealism of de Chirico. His book, Illness and Healing: Images of Cancer (1991), became a bestseller.
Goya has painted his own portrait as he was during an illness in his old age. The ailing artist sits upright in an olive-green dressing gown; his face is pale and is hands clutch at the sheet against which the carmine blanket glows as the most vivid color element in the painting. He is surrounded and supported by his physician who offers him medicine in a clear glass. The background is both dark and dense, revealing two shadowy figures behind Dr. Arrieta's elbow.
An inscription runs along the bottom border of the canvas, forming a kind of ledge or barrier. It reads in translation: "Goya thankful, to his friend Arrieta: for the skill and care with which he saved his life during his short and dangerous illness, endured at the end of 1819, at seventy-three years of age. He painted it in 1820."
The author is a fourth year medical student dealing simultaneously with the rigors of medical training and the difficulties of living with diabetes. She has discovered that when she tries to interact with patients she over-identifies with them. When she reads about diabetes in medical textbooks, which present a rigid equation for balancing diet, exercise, and insulin need, she tries to adopt this approach to her personal diabetes management, convincing herself that emotions, fatigue, stress and other factors have no effect on her diabetes control. When this biomedical approach fails, she feels deep shame and frustration.
Only over time does she develop the confidence to realize that it is not shameful to admit one's personal needs even in medical training, that disease is a part of all humans and is not an enemy, that she need not be defined solely by her disease (or her profession), and that blurred boundaries between doctors and patients are not as dangerous as she was first led to believe.
A surgical intern has participated in 86 year old Mrs. Byrnes's abdominal surgery, where extensive metastases from ovarian cancer are found. The surgeons take biopsies, confirm the diagnosis, and close her abdomen, knowing that her case is not treatable. Later that day, it falls to the intern to inform Mrs. Byrne of what they found.
The author describes how he avoided the task, finding other chores to do, appealing to the attending physician to not make him talk to the patient. The attending insists, and the author finally finds the nerve to talk with his patient. Much to his surprise, she has already suspected that she has cancer, tells him not to be upset, and assures him he did his best. The author discovered that learning to be a doctor meant being open to learning from his patients.
In this memoir Sheed reflects on his experience of three major illnesses: polio; clinical depression, related to alcoholism and sleeping pill addiction; and cancer. He contrasts the incongruous and paradoxical "inner life" of illness, with the often oversimplified prototypical experience represented by AA [Alcoholics Anonymous] literature, various psychiatric orthodoxies, and popular media.
Issues that arise include the tension between medical authority and patient experience, caregivers' and clinicians' projections, friends' and family's misapprehensions, and the surprises, both welcome and horrifying, that occur in the course of treatment and recovery because no illness, mental or physical, follows a textbook format.
The narrative is a wry examination of games patients play as well as a confession, dry and witty but also extraordinarily perceptive, of the failed and false expectations, pretenses, fears, resistances, rage, and qualified pleasures that characterized his personal odysseys through illnesses that have often been simplified and obscured by popular mythmaking.
A middle aged woman goes backpacking for the first time in 14 years after losing her leg in an automobile accident. As she recounts the excursion, with its difficulties and exhilaration, she reflects on the ways her life was changed by losing her leg, and the emotional journey she has taken since the accident. She concludes by thinking about how to find power despite her vulnerability, how to adjust and accommodate, but never compromise.
Ruthie is a thirty five year old overweight mother of two married to Ruben. Ever since her marriage, she has experienced pain with intercourse. She feels like an odd contradiction, with too much flesh and too narrow a vaginal opening, able to experience childbirth but not intercourse. She has read books about pain with intercourse, has tried lubrication, like her doctor recommended, but still the pain continues. She cannot imagine painless intercourse without completely leaving her body and wonders if she would ever get it back afterward.
She imagines what her life would be like if intercourse didn't hurt, how she would be fearless, attractive, sexual; how her husband would no longer turn away from her with indifference. As long as sex is painful, her life is concrete, full of duty and care. She imagines that without pain she would transcend this drudgery, even transcend her husband, and enter an ethereal world which centers around her.
Summary:The author recounts the last months of her sister's life as she slowly died of breast cancer in her mid-20's. The narrator and her sister, Cyndy, renegotiate their relationship and family roles throughout the illness. The narrator addresses the issue of living despite the prospect of dying, and of trying not to die while in the midst of attempting to live one's life. The narrator also recognizes the centrality of desire (in its broadest sense) in our lives, and describes our guilt about satiating our desires, the sense of loss from not ever really satiating them, and the inability to satisfy the desires of another.
Summary:The narrator of this poem describes all the kinds of things that disrupt your life when you experience PMS (premenstrual syndrome): impatience, dissatisfaction, irritability, temper, feeling overwhelmed. You notice that others avoid you, your doctor tries to treat your symptoms, and everyone sympathizes with those around you for how difficult you are making their lives. In the end, though, how does a woman know that her PMS-related perceptions aren’t really the accurate ones, that her temporary unhappiness isn’t really justified, or that her everyday comforts aren’t illusions?
Richard Kraft is about as burnt-out as a fifth-year resident in pediatric surgery can be. Overwhelmed by his stint in an inner-city, public hospital in Los Angeles, he seeks to hide from the misery of his patients by avoiding any personal connection with them. Then he meets twelve-year-old Joy, an Asian immigrant trying desperately to learn the puzzling ways of her new culture. She speaks words that trigger memories from Kraft's own childhood as the son of a U.S. agent in Joy's country, and he loses his distance.
He performs surgery on a life-threatening cancer in her leg, pulling back at the last minute in an unreasonable fear that he will hurt her if he cuts too deep. The implied result: incomplete excision of the cancer and a death sentence for the child he now tries, unsuccessfully to avoid. His avoidance is repeatedly foiled by Linda Espera, the physical therapist with whom he is falling in love and who will not let him abandon the emotional needs of any of the children in Joy's ward.