Showing 411 - 420 of 912 annotations tagged with the keyword "Patient Experience"

Annotated by:
Kennedy, Meegan

Primary Category: Literature / Nonfiction

Genre: History

Summary:

Winter surveys the rise and fall of mesmerism in Victorian Britain, from animal magnetism to hypnotism, including electrobiology (a form of group hysteria), table-turning, and other fads. The book offers rich detail about the different stages of the use of mesmerism in medicine: its initial appearance in staged experiments; its uncertain status and the struggle to locate the boundary demarcating alternative medicines; its performance by professional medical men as well as travelers and quacks; its importance in the development of anesthesia; and its role in prompting skeptical scientists to consider the possibility of mental reflexes as one way to explain away mesmeric phenomena.

Winter argues that mesmerism was not "illegitimate" so much as it brought "legitimacy" itself - of medical authority, of evidence, of knowledge -- into question. Thus, she argues, mesmerism crucially inspired many of the considerable changes in nineteenth-century medicine as well as the reorganization of science and the educational reforms of the later nineteenth century. The book also discusses mesmerism as a form of religion, as a conduit for spiritualism and communication with the dead, as a catalyst in orchestral conducting, and as a model for liberal political consensus.

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Tortuga

Anaya, Rudolfo

Last Updated: Dec-14-2006
Annotated by:
McEntyre, Marilyn

Primary Category: Literature / Fiction

Genre: Novel

Summary:

An adolescent boy enters a hospital for crippled children. His initiation into institutional life is painful. At first he wants nothing more than isolation and protection from patients he regards as "freaks." But as alliances form and the subtleties of ward life become clearer, he learns new methods of self-identification that have more to do with the peculiar structures of this confined world than with the world outside. Home becomes an increasingly remote reference point and the camaraderie of suffering in exile the dominant source of affirmation.

The story is a coming of age tale intensified by burdens beyond what adolescence is normally required to bear. A boy becomes not only a man, but in some sense an old man before his time, and returns to youth "outside" both scarred and gifted with what suffering has taught him, and with a new sense of who are his "brothers and sisters."

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The Gifts of the Body

Brown, Rebecca

Last Updated: Dec-14-2006
Annotated by:
McEntyre, Marilyn

Primary Category: Literature / Fiction

Genre: Collection (Short Stories)

Summary:

The narrator in each of the stories in this unusual collection is a home-care worker who helps people with AIDS. Each story focuses on a "gift," i.e. "The Gift of Sweat"; "The Gift of Tears"; "The Gift of Mobility" and so on. In each, we see scenes in the weeks or months shared by caregiver and patient. The patients vary widely in age, life situation, stage of illness, and attitude toward both the illness and the caregiver.

The caregiver/narrator also changes somewhat from one story to another, giving the reader some sense of the different stresses and rewards that come in the course of such work. The details of caregiving are elaborated in ways that are sometimes mundane, sometimes surprising, sometimes funny, sometimes harsh, often touching, and always straightforward.

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Saying the World

Pereira, Peter

Last Updated: Dec-14-2006
Annotated by:
McEntyre, Marilyn

Primary Category: Literature / Poetry

Genre: Collection (Poems)

Summary:

This three-part collection of poems offers powerful images and vignettes from the life of a family practitioner living and working among the urban poor. The first section is the most explicitly medical in theme, including poems that pay painful tribute to a mother after stillbirth, a hydrocephalic child, an addict covered with boils, a young man murdered at eighteen, an old man with a failing heart.

The second section weaves images from the writer's personal story together with those from his life as physician, and the third focuses primarily on life lived as a gay man among the sick and dying, patients to be treated and friends to be mourned while life remains to be claimed and savored.

Despite the pain and grief attested to in many of the poems, a lively voice of clarity, compassion, and consent to the goodness of life even on hard terms gives the collection a defining note of celebration. Pereira's lines about a bereaved Cambodian seamstress suggest something true about his own work: ". . . she joins the circle / of other Khmer women to sew. / Punctuating the fabric / with yellow thread, finding her remnants / into a piece that will hold." ("What is Lost")

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Hanging On

Liveson, Jay

Last Updated: Dec-14-2006
Annotated by:
McEntyre, Marilyn

Primary Category: Literature / Poetry

Genre: Collection (Poems)

Summary:

This collection by a physician-poet covers a wide spectrum in topic and tone. The poems in the first of the four sections speak in voices of those waiting surgical outcomes, those whose loved ones are about to undergo invasive and dangerous procedures, those who are coming to terms (partly clinical terms) with death. The poems in the second section focus more explicitly on Jewish experience, and on experiences of suffering that take place in the wider context of biblical tradition and recent history.

The third section features lighter-hearted poems, many rhymed, that make playful reference to moments in domestic life and relationship which, while not free of suffering and anxiety, are also the stuff of laughter. The fourth focuses on love--erotic, romantic, familial--and death, which includes the ordinary losses that living through time entails. Elegiac, wistful, musing, and poignant, they end the collection in a complex, sustained key that holds an elegant tension between sorrow and hope.

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Coachella

Taylor, Sheila Ortiz

Last Updated: Dec-12-2006
Annotated by:
Stanford, Ann Folwell

Primary Category: Literature / Fiction

Genre: Novel

Summary:

Yolanda Ramírez, a phlebotomist in Coachella Valley, California, begins worrying, in 1983, about the deaths of gay men, hemophiliacs, and women who have had cosmetic surgery. The novel unfolds with her explorations into the connections among these deaths, but it also explores Yolanda’s relationship with a gay couple, one of whose members has AIDS, the growing romantic relationship between her and Marina Lomas (who has run away from an abusive husband with her small daughter), her relationship with her father, Crescienco.

Crescienco, employed as a gardener for Eliana Townsend (whom he loves and who still has the scars from her cosmetic surgery), watches her slowly die from some mysterious and debilitating disease. Finally Yolanda convinces the hospital that her hunches about the mysterious AIDS virus having infected the blood supply are correct.

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Annotated by:
Stanford, Ann Folwell

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

South African lawyer and leading member of the ANC (African National Congress) during the tumultuous 70s and 80s, lost an arm, sight in one eye, and suffered hearing loss and diminished use of his legs when the bomb planted in his car exploded on April 7, 1988. This book chronicles the accident, his long recovery in a hospital and rehabilitation unit, and the process of re-entering life and politics after such a harrowing experience.

Sachs connects his personal recovery with the emergence of an apartheid-free South Africa and tells his individual story within the context of political struggle. The 2000 edition includes a forward by Desmond Tutu, an introduction by Nancy Scheper-Hughes, and a new epilogue by Sachs.

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Annotated by:
Secundy, Marian Gray

Primary Category: Literature / Nonfiction

Genre: Essay

Summary:

A brief, but to the point description of Zora Neale Hurston's visit to the office of a white physician in the mid 1900's. In a very few words, she provides a description of blatant racism. Although referred by a white friend, Hurston is badly received by a white nurse and physician. Separated from the other patients, she is placed in a closet-like waiting area with soiled towels and uniforms. The physician shows significant lack of interest in this patient, examining her in a rushed and desultory manner.

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Not All of Us Are Saints

Hilfiker, David

Last Updated: Dec-06-2006
Annotated by:
Kohn, Martin

Primary Category: Literature / Nonfiction

Genre: Autobiography

Summary:

Having previously described his seven years as a family practitioner in rural Minnesota (Healing the Wounds, Pantheon Books, New York, 1985) Hilfiker now has turned his attention to a decade in inner-city Washington, D.C., where he practiced what he calls "poverty medicine." These introspective essays are written in a style similar to that of his first book and detail the profound struggles of the overwhelmingly African-American community he serves and lives with.

Also examined are his and his family's battle to live with their white middle-class privileges in the midst of this impoverished community. This book very effectively alternates between the numerous stories of his personal encounters with patients and deeply reflective commentary about those encounters. Prescriptions are not offered other than that a new art of caring for the poor is needed.

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Borrowed Time: An AIDS Memoir

Monette, Paul

Last Updated: Dec-06-2006
Annotated by:
Woodcock, John

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

Writer Paul Monette's first-person account of living through his lover Roger's last nineteen months with AIDS, from diagnosis to death (1986), told in language that is poetic and highly articulate. The couple faces not only progressive physical degeneration (Monette calls time with AIDS a "minefield") but also the agonizing issues of truthtelling with their families, friends gay and straight, and the world, in "the double closet of the war."

Fact-finding is a constant obsession in this story, not only about who is positive and who knows, but also in the rapidly-changing medical arena, where through Monette's extraordinary efforts Roger becomes the first person west of the Mississippi to be put on the drug, AZT. Monette is so devoted a caregiver that he often loses himself--a problem he solves in part by turning to the subject of AIDS as a writer.

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