Summary:
Bodies of Truth gathers
twenty-five essays about experiencing illnesses and disabilities from the perspectives
of patients, healthcare professionals, and families. These personal stories join
the growing company of narratives that reflect on the inner experience of
illness or caring for the ill and on the social circumstances that influence those
experiences. In addition to the diversity of perspectives, the editors have
selected pieces about an exceptionally wide range of health conditions:
multiple sclerosis, brain damage, deafness, drug addiction, Down syndrome, pain,
cancer, infertility, depression, trauma, HIV, diabetes, food allergies, asthma.
They also include essays on the death of a child and an attempted suicide.
The essays resist easy categorization. In
their Preface, the editors explain that they took “a more nuanced approach” to
organizing the contributions loosely by themes so that they would “speak to
each other as much as they speak to readers.” For example, Teresa Blankmeyer
Burke’s spirited “Rendered Mute” calls out the OB-GYN who refused to remove his
mask during delivery to allow this deaf mother-in-the-making to read his lips
to exchange vital communications. Her essay is followed by Michael Bérubé’s “Jamie’s
Place.” In it the father recounts the emotionally and logistically complicated
path he and his son with Down syndrome navigate as they seek a place for him to
live as independently as possible as an adult. This sequence invites readers to
listen to two stories about disability from differing parental perspectives and
circumstances. But perhaps readers can also to find commonalities in ways
social attitudes toward disability fold themselves into the most intimate
moments of the families’ lives.
Several of the essays take readers into a
professional caregiver’s medical and moral struggles. In “Confession” nurse Diane
Kraynak writes sensitively about a newborn in intensive care who distressed her
conscience. She was troubled by both the extensive medical interventions he was
given “because we can” and their failure to save him. When Matthew S. Smith was
an exhausted neurology resident, he ignored a stroke patient who inexplicably handed
him a crumpled paper. Scribbled on it was a ragged, ungrammatical, and urgently expressive poem, which he read only years
later, admonishing himself “to cherish the moments of practice” that could
“change your life forever (“One Little Mind, Our Lie, Dr. Lie”). Madaline
Harrison’s “Days of the Giants” recounts “the sometimes brutal initiation” of
her early medical training decades ago. Narrating those struggles has led her
to “compassion: for my patients, for myself as a young doctor, and for the
students and residents coming behind me.”
Overall, the essays range widely across medical
encounters. After attending her husband’s death, Meredith Davies Hadaway
(“Overtones”) became a Certified Music Practitioner who plays the harp to calm
hospice patients. Dr. Taison Bell graciously thanks a pharmacist that he
regards as a full partner in his treatment of patients (“A Tribute to the
Pharmacist”). Tenley Lozano (“Submerged”),
a Coast Guard veteran, was traumatized first by the various abuses of male
supervisors, once nearly drowning, and then by her struggle to receive psychiatric
care.
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