Summary:
Kurt Eichenwald shares his experiences living with epilepsy
in an electrifying narrative. Beginning with staring spells as a child and then
later on generalized convulsions with loss of consciousness, he experiences as
many as 4 seizures a week between the ages of 18 to 30. After that, the
seizures become milder and less frequent. Coincidentally, his wife, father, and
older brother are physicians and his mother a nurse.
Eichenwald describes his encounters with multiple
neurologists, the best of them being Dr. Naarden. Unfortunately, other health
professionals are portrayed as incompetent, careless, lacking empathy, or even
unscrupulous. Multiple mishaps with prescribed anticonvulsant medications are
chronicled – drug side effects, toxic levels of medicines, and a bout of bone
marrow suppression. He suffers broken ribs, cuts and wounds, burns, and is even
blanketed by deep snow due to seizures.
Eichenwald acknowledges the toll that epilepsy exacts on
roommates, friends, and family. He admits to lots of fear and guilt. At one
point, he seriously considers suicide by overdosing. Everyday life is hardly
ever ordinary: “Now I was scared every day, checking where I stood for dangers,
wondering when consciousness would disappear” (p157). A large section of his
account details the discrimination he encounters at Swarthmore College in
Pennsylvania in the early 1980’s. The school dismisses him because of his
uncontrolled epilepsy. He successfully fights their decision and returns to
graduate. Obtaining and holding a job is complicated by his illness, but
Eichenwald becomes a journalist who works for the New York Times.
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