Showing 551 - 560 of 892 annotations tagged with the keyword "Caregivers"

Wintering Well

Wait, Lea

Last Updated: Jan-31-2005
Annotated by:
McEntyre, Marilyn

Primary Category: Literature / Fiction

Genre: Novel for Young Adults

Summary:

It is 1820 and Cassie lives on a farm in Maine with her parents and three brothers. One of them, Will, damages his leg with an axe as he hears Cassie scream while he is chopping wood. The gangrene and days of near-death suffering that ensue eventuate in amputation of the leg. During this crisis Cassie is Will's primary caretaker, partly because she feels the accident was her fault.

Their father wants to let Will die, as he feels there will be no life for him as an amputee. But Will survives and he and Cassie go to live with an older married sister in town where Will finds he has talents and options that might never have occurred to him had he simply grown into the farming life he loved. The year following the accident in this way opens both Cassie's and Will's imaginations to other kinds of lives to be lived. For Cassie it awakens a longing to do medical work, as caring for Will has made her aware of the deep satisfactions of caregiving.

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Kirk

Groopman, Jerome

Last Updated: Jan-28-2005
Annotated by:
Woodcock, John

Primary Category: Literature / Nonfiction

Genre: Case Study

Summary:

Kirk, a man in his 50s with highly metastasized kidney cancer, presents himself to Dr. Groopman after having been turned away as a helpless case by several respected cancer clinics. He tells Groopman that he is a risk-taking venture capitalist and is willing to take any medical risk on the chance that it will save him. After pondering the ethics of the situation and the nature of informed consent under such conditions, Groopman agrees to treat Kirk. He proceeds to devise a highly risky (and untried) combination of chemotherapeutic agents. The course of treatment is excruciatingly difficult, but the experiment succeeds, and Kirk's cancer goes into complete remission.

Kirk calls it magic, a miracle, and the hospital interns call it a "fascinoma," a case defying normal expectations. Groopman releases Kirk to home and weekly checkups with a local internist, but in doing so he notices that Kirk's mood has mysteriously changed. He has lost the "piss and vinegar" of their earlier contact. Kirk continues to improve physically, traveling and playing golf and even tennis, but Kirk's wife soon reports that Kirk has stopped reading the newspapers he used to devour, which now collect in their driveway.

Several months later some physical symptoms return, and Kirk's cancer is back. A month later he is dead. In talks with Kirk near the end, Groopman discovers that Kirk's brush with death had brought with it a new and sharply negative view of himself as selfish and disconnected from the world and other people. Suddenly all his financial success seemed to him "pointless," and, since his life contained nothing else, it seemed to him a waste, and he felt it was too late to live it over. What Kirk ironically calls "my great epiphany" seems to have undone his doctor's "magic."

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Annotated by:
Coulehan, Jack

Primary Category: Literature / Poetry

Genre: Poetry and Art

Summary:

In the Foreword to this collection, poet John Graham-Pole writes, "Children have uncovered for me the last and greatest lesson: souls thriving on failing at bigger and bigger things" (xvii). The heroes of these poems are just such children, transformed by serious illness. For example, Dominic in "Waiting" who "rests on his airbubble cot / awaiting life’s flight from its earthly beat" (10); Ruby in "Ruby Red": "And so poor Ruby meets her final test, in gentle hemolysis rolled to res" (35); the lovely young woman in "Elegy": "You’re newly dead, sans wig, / seventeen year old virgin whom / I’d loved." (57).

"I try through writing poems to lay a finger on the purpose of illness, on its pulse .  . Poems turn denial and withdrawal into compassion--feeling with. They turn fear into mercy--thank you" (xvii). The poet’s eye remains dispassionate, even though his heart may be breaking, as in "Last Rites" (32), in which a dead toddler’s father and his companion "sluice down the flooring with their hoses. After the vomit and blood the water runs clear." He understands the limits of communication about loss, but recognizes, too, that we must make the attempt; and the attempt has meaning in itself: "Afterward the circles of our talk / snap . . . - Within, we write our / separate texts of it. Between, the tension / stands: this no talk could break." ("Circles," p. 87)

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25 Months: A Memoir

Stewart, Linda McK.

Last Updated: Jan-25-2005
Annotated by:
Willms, Janice

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

This sensitive, but profoundly realistic narrative, of a journey from the lively, healthy marriage of two individuals deeply in love with life and with one another into the abyss of Alzheimer's dementia is told from the viewpoint of one partner. The author allows the reader to enter into her struggle with the month-to-month diminution of her beloved husband's world. The progression over the entitled "25 months" contains just the right amount of flashback to give the reader a sense of who Jack had once been and what life had held for both members of this partnership--the better to accentuate the sense of loss that this disease underscores.

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In Hospital

Henley, William Ernest

Last Updated: Jan-24-2005
Annotated by:
Taylor, Nancy

Primary Category: Literature / Poetry

Genre: Poems (Sequence)

Summary:

This series of 28 poems plus an envoy describe, from the patient's point of view, a 20-month stay in an Edinburgh hospital in the 1870s. The narrator delineates--from the cold and dread of Enter Patient through the giddiness of "Discharged"--his reactions to hospital personnel (from doctors and nurses to scrub lady); to his fellow patients (from children to the elderly, during bad days and holidays), to visitors, and to death.

Because he stays for 20 months, we also witness his seesawing emotions about his own state of health. The epigraph from Balzac suggests that a person in bed and ill might become self-centered, so the narrator purposefully maintains a dispassionate tone. It is a tone so distinct yet distanced that Jerome H. Buckley (William Ernest Henley: A Study in the "Counter-Decadence" of the 'Nineties, New York: Octagon Books, 1971, c. 1945) compares the poems to steel engravings.

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Summary:

This is a collection of 14 contemporary patients' accounts of dealing with their illness or injury. (The patients, four men and ten women, including the editors, are all writers.) Among them the stories cover numerous medical conditions: erythroblastosis, environmental illness, obsessive-compulsive disorder, hip dysplasia, osteoarthritis, hip replacement, H.I.V., Crohn's disease, broken leg, ruptured cervical disc, myelitis, rheumatoid arthritis, paroxysmal nocturnal hemoglobinuria, lupus, alcoholism, multiple sclerosis, diabetic retinopathy, breast cancer, severe facial scarring, and depression. The collection is unified by a focus on selfhood--the recovery, discovery, or reconstruction of the psyche that the editors propose is the deepest form of healing.

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Annotated by:
Woodcock, John

Primary Category: Literature / Nonfiction

Genre: Collection (Memoirs)

Summary:

This is a collection of 22 contemporary first-person accounts by survivors of a wide range of life’s woes--some medical, some social, and most of them at least partly emotional. The challenges the writers have faced are too numerous to represent individually in keywords, but they include incest, colonialism, disfigurement, adultery and divorce, obsessive-compulsive disorder, bone marrow transplant, and the death of family members.

All of the authors are writers, a handful of them well-known, and virtually all the works collected here have been published before. They are unified, to use the editor’s words, by the idea that "lifewriting is a passage through grief to knowledge" (she might have added "and to healing").

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Science and Charity

Picasso, Pablo

Last Updated: Nov-12-2004
Annotated by:
Bertman, Sandra

Primary Category: Visual Arts / Painting/Drawing

Genre: Oil on canvas

Summary:

A sick woman (dying mother) in a comfortably made-up bed serenely occupies the center of the canvas's diagonal composition. She lies between a seated doctor focused on his hand-held watch while he takes her pulse, and a nun who holds the woman's child and extends her a drink (tea, medicine). The simple, calm, orderliness of the sparse setting is echoed in the postures and countenances of the four figures.

In his biographical study, Robert Maillard documents that Picasso's father--art teacher and model who posed as the doctor--worked out both the composition and the title of the painting for his 16-year-old son (Picasso. New York: Tudor, 1972, p. 180).

An earlier watercolor draft of this work sketches the child with arms outstretched reaching forward to the sick mother. In the draft, the physician and nun, too, are more concerned with the mother's condition. Though strengthening the allegorical significance of this academic composition, the dramatic intensity is lessened if not lost in the final version (1897), which was awarded an honorable mention in Madrid and a gold medal at the Exposición de Bellas Artes in Málaga.

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Annotated by:
Davis, Cortney

Primary Category: Literature / Nonfiction

Genre: Criticism

Summary:

Physician and poet Rafael Campo sometimes gives poems to his patients, tucking them in with educational materials and prescriptions. He knows that poetry can be therapeutic for both patient and caregiver, and in this beautifully organized and executed book he tells readers why and how poetry can enhance healing.

The chapters (in which Campo ponders questions such as: Is poetry necessary for survival? How does poetry locate us inside the experience of illness? Why is poetry therapeutic?) follow the arc of illness itself. In Chapter 4, "Inklings," Campo discusses how not-yet-diagnosed symptoms of sickness may be revealed in poetry, the patient "divining" signs of illness "from the clues discernible in a sentient relationship to the world around us" (p. 52).

In following chapters ("Diagnosis," "Treatment," "Side Effects," and "End of Life"), he expertly unfolds, through brilliant poem analysis, how "At every station of the disease experience, poetry has suggested an ulterior discourse that, as it accumulates, forms a composite picture of a humane idea of wellness" (p. 127). In other chapters ("Daniel," "Clara," "Sunny," "Eduardo," and "Mrs. Twomey") he discusses how poetry has changed and informed his clinical and personal interactions with patients.

Fully aware that poetry is not a "cure" for illness and that relationships between patients and caregivers are not always ideally sympathetic, Campo demonstrates how, nonetheless, poetry can be a valid healing modality. In the "Afterword," he urges readers to imagine poetry "as a metaphor itself for the process of healing" and "to experience it through the stories and voices of real people who have themselves called upon it as they faced illness" (p. 188), and he states his wish to see "non-poet physicians use this book with their own patients and medical trainees" (p. 190). An excellent "Further Reading" appendix provides wide-ranging selections for further study.

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Pity My Simplicity

Darby, Ann

Last Updated: Nov-12-2004
Annotated by:
Davis, Cortney

Primary Category: Literature / Fiction

Genre: Short Story

Summary:

In the beginning of Ann Darby's lovely and enigmatic short story, "Pity My Simplicity," Dr. Peary, whose medical degree came from "The Franklin School of Eclectic Medicine and Surgery" (3), is trying to deliver Orla Hay's sixth baby, a breech presentation. The doctor is weary and perhaps under-trained, but he is vigilant. Orla's sister asks if she might take over trying to tug out the baby. When the doctor glances at the sister's hands--"Fever-breeders, he's sure, and he won't be blamed for fever"--he says no, he'll manage (4). He does manage, and when the child is "wailing a syncopated, newborn wail" the doctor is undone (5). He weeps, hoping his tears will be mistaken for sweat.

In prose that is atmospheric and evocative, Darby brings us into scene after scene as Dr. Peary's evening unfolds: the delivery, then home to his child and his wife, who tells him, only after he eats his dinner, that Alma Pine down the road "isn't 'faring' well" (8). Just as Orla and her sister expected the doctor to save the baby, both Alma Pine's husband John and Dr. Peary's wife expect him to figure out what's wrong with Alma. "And you waited to tell me?" Peary asks his wife (9).

In the final and longest scene in the story, Peary hurries to attend to Alma, a woman dying of tetanus. About to enter her room, Peary laments that he's never grown "callous to this moment," the second when he enters the lives of his patients (12). He walks in to find Alma writhing in her bed and her husband glowering nearby. "Quiet! Look what you've done," the husband accuses (12). The doctor nods, accepting guilt.

Later, he thinks, he will write in her chart words that describe her state but cannot cure. At the story's end, he gives Alma "the morphia, the one centigramme dose he always carries with him" (14). As he gives Alma this dose, he never looks at her husband, "which is fine because John Pine cannot bear to look at him" (14).

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