Showing 181 - 190 of 264 annotations tagged with the keyword "Illness Narrative/Pathography"
This is the last published entry in the journal kept by author Harold Brodkey, before he died of AIDS on January 26, 1996. Brodkey, ever the flamboyant writer, began a record of his diagnosis with AIDS and "my passage into nonexistence" in the pages of The New Yorker (see also earlier journal entry, Dying: An Update, annotated in this database).
In this last entry he focuses intensely on the end of consciousness that looms ahead. In spare poetic phrases he describes what he is attempting to grasp-- " . . . this wild darkness, which is not only unknown but which one cannot enter as oneself." He reflects also on memory, medication, creature comforts, family history, the legacy he leaves, and describes with amazement that he feels happy.
In four lengthy chapters, the biographies of Haydn, Mozart, Beethoven, and Schubert are carefully presented. Special attention is given to health, both physical and psychological, throughout life and at its end. Autopsy information is included. In particular, the author emphasizes the impact of illness on the composers' relationships with family members and doctors, and on their musical composition.
Evidence is derived from a wealth of primary sources, often with long citations from letters, poetry, musical scores, prescriptions, diaries, the remarkable "chat books" of Beethoven. Neumayr also takes on the host of other medical biographers who have preceded him in trying to retrospectively 'diagnose' these immortal dead.
Late eighteenth- and early nineteenth-century Vienna emerges as a remarkable city of musical innovation and clinical medicine. The composers' encounters with each other link these biographies. Similarly, many patrons, be they aristocrats or physicians, appear in more than one chapter, such as the Esterhazy family and Dr Anton Mesmer.
The disease concepts of the era, prevalent infections, and preferred therapies are treated with respect. Rigid public health rules in Vienna concerning burial practices meant that ceremonies could not take place in cemeteries and may explain why some unusual information is available and why other seemingly simple facts are lost.
Biographical information about the treating physicians is also given, together with a bibliography of secondary sources, and an index of specific works of music cited.
An automobile accident left Mary Swander nearly paralyzed and coping with chronic pain. After several incorrect diagnoses, she saw a neurosurgeon who told her that a disk in her neck ruptured "at C6 and punched a hole in the spinal cord. The flu virus went into the cord and infected it." She had central cord syndrome (which can paralyze arms) and myelitis (which can paralyze legs).
Other than traction, the doctors said they could not do anything more for her. She went to New Mexico where herbal medicines of a curandera and spiritual healing by a Russian Orthodox monk helped her. She now walks without a cane.
During a sabbatical year in Florence, English professor and writer James McConkey immersed himself in reading Anton Chekhov’s works, as well as biographies of the Russian writer. He began to feel a particular affinity for Chekhov’s crisis of 1889-1890 and his resolution of that crisis by traveling alone to Sakhalin Island off the eastern coast of Siberia to investigate conditions in the penal colonies that the Russian government had established in that distant region. Perhaps because McConkey himself was recovering from a series of traumatic experiences in his own life, he felt a kinship to this depressed young Russian author and his search for a new direction in life.
McConkey responded to this feeling of kinship by writing To a Distant Island, which is partly biographical, in that it retells the story of Chekhov’s six month long journey to Sakhalin Island in 1890; and partly a memoir, in that McConkey relates Chekhov’s life events to the feelings and events of his own life at the time. McConkey establishes this perspective from the beginning, when he explains why he refers to Chekhov throughout the book as "T": "I honor the man too much to call him by name throughout an account, which. . . is bound to be a fiction of my own" (8).
To a Distant Island dwells especially on the motivation for Chekhov’s journey to Sakhalin, a question scholars have debated for a hundred years now. Of the many contributing reasons for the trip, McConkey chooses to highlight and fictionalize "the suicidal tendency that surfaced again a decade later in the marriage his health simply couldn’t afford" (26). McConkey refines this to "T. wants to escape--he wants out, at whatever the personal cost" (27). It is in this state of mind (or soul) that the brilliant and sensitive T. begins his journey to the end of the earth.
Perhaps as a metaphor that characterizes any human quest, McConkey devotes most of the writing and energy to T’s justification, preparation, and outward-bound journey. Only 37 pages remain for the story of what happens to his hero once the goal is achieved; and less than 6 pages for the homeward trek (or homeward "sail" in this case). [This is a technique, come to think of it, quite the opposite of Homer’s in "The Odyssey"!]
The conclusion? "Sakhalin, then, gave to T. nothing he hadn’t known all along. . . Perhaps despair--that absence of hope--is a requisite for any deepened understanding of a universal hope for something never to be found in the present time or place" (82).
Summary:When faced with breast cancer and chemotherapy, Catherine Lord chronicles her illness in a literary performance piece by adopting the online persona of Her Baldness--a testy, witty, passionate presence who speaks forthrightly about her fears to a highly selective listserv audience of friends, family, and colleagues. The fragmented, multifaceted format of this autobiographical text includes photos, lists, e-mail narrations of her illness, responses from friends, plus the quick-tempered, no-holds-barred ruminations of Her Baldness on what cancer, chemotherapy, and baldness have meant in her life.
Summary:This sensitive, but profoundly realistic narrative, of a journey from the lively, healthy marriage of two individuals deeply in love with life and with one another into the abyss of Alzheimer's dementia is told from the viewpoint of one partner. The author allows the reader to enter into her struggle with the month-to-month diminution of her beloved husband's world. The progression over the entitled "25 months" contains just the right amount of flashback to give the reader a sense of who Jack had once been and what life had held for both members of this partnership--the better to accentuate the sense of loss that this disease underscores.
This series of 28 poems plus an envoy describe, from the patient's point of view, a 20-month stay in an Edinburgh hospital in the 1870s. The narrator delineates--from the cold and dread of Enter Patient through the giddiness of "Discharged"--his reactions to hospital personnel (from doctors and nurses to scrub lady); to his fellow patients (from children to the elderly, during bad days and holidays), to visitors, and to death.
Because he stays for 20 months, we also witness his seesawing emotions about his own state of health. The epigraph from Balzac suggests that a person in bed and ill might become self-centered, so the narrator purposefully maintains a dispassionate tone. It is a tone so distinct yet distanced that Jerome H. Buckley (William Ernest Henley: A Study in the "Counter-Decadence" of the 'Nineties, New York: Octagon Books, 1971, c. 1945) compares the poems to steel engravings.
This is a collection of 14 contemporary patients' accounts of dealing with their illness or injury. (The patients, four men and ten women, including the editors, are all writers.) Among them the stories cover numerous medical conditions: erythroblastosis, environmental illness, obsessive-compulsive disorder, hip dysplasia, osteoarthritis, hip replacement, H.I.V., Crohn's disease, broken leg, ruptured cervical disc, myelitis, rheumatoid arthritis, paroxysmal nocturnal hemoglobinuria, lupus, alcoholism, multiple sclerosis, diabetic retinopathy, breast cancer, severe facial scarring, and depression. The collection is unified by a focus on selfhood--the recovery, discovery, or reconstruction of the psyche that the editors propose is the deepest form of healing.
This is a collection of 22 contemporary first-person accounts by survivors of a wide range of life’s woes--some medical, some social, and most of them at least partly emotional. The challenges the writers have faced are too numerous to represent individually in keywords, but they include incest, colonialism, disfigurement, adultery and divorce, obsessive-compulsive disorder, bone marrow transplant, and the death of family members.
All of the authors are writers, a handful of them well-known, and virtually all the works collected here have been published before. They are unified, to use the editor’s words, by the idea that "lifewriting is a passage through grief to knowledge" (she might have added "and to healing").
Physician and poet Rafael Campo sometimes gives poems to his patients, tucking them in with educational materials and prescriptions. He knows that poetry can be therapeutic for both patient and caregiver, and in this beautifully organized and executed book he tells readers why and how poetry can enhance healing.
The chapters (in which Campo ponders questions such as: Is poetry necessary for survival? How does poetry locate us inside the experience of illness? Why is poetry therapeutic?) follow the arc of illness itself. In Chapter 4, "Inklings," Campo discusses how not-yet-diagnosed symptoms of sickness may be revealed in poetry, the patient "divining" signs of illness "from the clues discernible in a sentient relationship to the world around us" (p. 52).
In following chapters ("Diagnosis," "Treatment," "Side Effects," and "End of Life"), he expertly unfolds, through brilliant poem analysis, how "At every station of the disease experience, poetry has suggested an ulterior discourse that, as it accumulates, forms a composite picture of a humane idea of wellness" (p. 127). In other chapters ("Daniel," "Clara," "Sunny," "Eduardo," and "Mrs. Twomey") he discusses how poetry has changed and informed his clinical and personal interactions with patients.
Fully aware that poetry is not a "cure" for illness and that relationships between patients and caregivers are not always ideally sympathetic, Campo demonstrates how, nonetheless, poetry can be a valid healing modality. In the "Afterword," he urges readers to imagine poetry "as a metaphor itself for the process of healing" and "to experience it through the stories and voices of real people who have themselves called upon it as they faced illness" (p. 188), and he states his wish to see "non-poet physicians use this book with their own patients and medical trainees" (p. 190). An excellent "Further Reading" appendix provides wide-ranging selections for further study.