Showing 771 - 780 of 890 annotations tagged with the keyword "Patient Experience"
Summary:The author describes her experience of growing up with hearing loss. In this excerpt, she describes herself as a six year old orphan who is being raised by two aunts. Young Frances tries to hide her hearing loss from her aunts because she is afraid they will recognize that she is inferior or useless and get rid of her. She invents an invisible friend who chooses to hear what he wants to and who doesn't feel ashamed of this disability.
Mrs. Seaver writes about what it is like living in a nursing home. She writes cogently about the attitudes and behavior of staff, loneliness, lack of privacy, and her day to day experiences as a disabled 84 year old nursing home resident. The contrast between her former life and still-evident wit and intellect, and the way she is treated and diminished in her current environment is profound.
The poem is divided into six stanzas, each titled by a successive day. The subject of the poem is a woman's reaction to mammography and the unexpected "spot" that is discovered. The woman is shown the spot on the mammogram, and the agony begins: does she have breast cancer? The exam occurs on Thursday; she must wait until the following Tuesday to find out.
Meanwhile, life and relationships take on new meanings and tenderness. For instance, at a large family reunion, she is determined to laugh with the family about childhood reminiscences, even though her laughter is now bittersweet (she keeps her torment private from all but her lover).
Other days are filled with worry and nightmare. At long last, during a perfunctory call from her physician, she finds out that the spot is merely a protein deposit. Relieved, she thanks the physician, who remains uninformed of the depth of her patient's recent torment.
Sidney Winawer is a New York physician specializing in gastrointestinal cancers. When his wife, Andrea, is diagnosed with stomach cancer, he is made to see his own work from a new perspective, that of the patient and her family. The experience gives him new insights into aspects of health care he had not considered before, such as the alienating effects of some hospital routines on patient and family, the patient's need to find hope from any source, regardless of its intellectual provenance, and, encouragingly, the life-enhancing effects on his family as they join Andrea in her determined struggle to prolong and enrich whatever time remains for her.
For the first time, Winawer explores alternative and complementary approaches to cancer treatment, including meditation, antioxidant therapies, hyperthermia, and other attempts to stimulate the immune system. At first resistant, he comes to recognize the need for the terminally ill and their families to have access to as many resources as possible, and eventually it becomes his "mission" to emphasize the need for practitioners of conventional medicine to learn as much as possible about integrative medicine.
An interesting subplot is the story of Dr. Casper Schmidt, Andrea's psychiatrist, whose remarkable knowledge of new treatments for terminal illness is explained when he dies of AIDS. As another physician led by personal experience of disease to explore beyond the boundaries of conventional therapies, Schmidt forms an illuminating counterpoint to Winawer himself.
This is the story of a family struggling to deal with the accidental death of a teenage son. Calvin Jarrett (Donald Sutherland) and his wife Beth (Mary Tyler Moore) and their surviving teenage son Conrad (Timothy Hutton) live in a wealthy Chicago suburb. Some months before the time of the film, Conrad's older brother Buck drowned when the small boat he and Conrad were sailing capsized in a windstorm.
In the present we see Beth as cold, withdrawn from Conrad (Buck had been her favorite) and at times actively hostile to him and to her husband, too. Conrad, recently back home from three months in the hospital (including electro-convulsive shock therapy) after slitting his wrists, is between uneasy and agonized in his high-school and family world. Calvin remains emotionally open but is befuddled and often caught between his wife and his son, talking about things that don't matter.
Within that setting, the film tells the story of Conrad's attempts to deal with the guilt he feels after his brother's death. A series of psychotherapy sessions with Dr. Berger (Judd Hirsch) plays a crucial role. Seeing Dr. Berger also helps Cal understand some things, and when in a midnight confrontation he tells Beth of his sorrow that she has substantially changed for the worse, she proudly packs her bags and leaves. The film ends early the next morning, with Conrad and his father in an emotional embrace on the front steps of their home.
In 1996, George Delury was sentenced to four months in jail for assisting in the suicide of his wife, Myrna Lebov. In this book, Delury tells the story of his marriage, his wife's struggle with multiple sclerosis, her decision to end her life, his own role in helping her achieve this, and the subsequent legal and media ramifications that culminated in his indictment.
During the Battle of Smolensk in the Second Word War, a soldier named Zazetsky sustained a severe head wound, causing "massive damage to the left occipito-parietal region of his brain." This injury shattered his whole perceptual world. His memory, his visual fields, his bodily perception, even his knowledge of bodily functioning--all break into fragments, causing him to experience the world (and himself) as constantly shifting and unstable.
Zazetsky coped with this fragmentation by writing a journal of his thoughts and memories as they occurred, day after day, for 20 years. He then arranged and ordered these entries, in an attempt to reconstruct his lost "self." From over 3000 pages of this journal material, the neurologist A. R. Luria has constructed this extended case history from which emerges a remarkable portrait of Zazetsky as a determined and courageous human being. Zazetsky's first-person account is interspersed with comments and descriptions by Luria himself, explaining the relevant structure and function of the brain.
This novel tells the story of Jess Goldberg, a transgendered "butch" growing up in Buffalo, New York. Jess first learns to admit and negotiate her attraction to women and her butch identity. Immediately, she is faced with violence. The police raid the lesbian bars, arrest any woman wearing fewer than three articles of women’s clothing and routinely beat, strip, or rape them. Jess and her friends also face the violence of bashers who attack without cause on dark or well-lighted streets.
Nevertheless, Jess refuses to compromise. From a doctor, she gets a prescription for testosterone, goes to a gym and transforms herself into a bearded, muscular man. Having saved two thousand dollars, she has a mastectomy done. The doctor falsifies a biopsy, performs the surgery and makes her leave. By the end of the novel, Jess is secure in her identity and determines to fight to make the world safe for others like her.
Summary:This book is a collection of photographs of patients and their family members, caregivers, administrators, and others in an Oregon nursing home. Photographs are accompanied by commentaries by the subjects, who talk about their lives, their suffering, their work, their survival.
In this remarkable book of essays, Rafael Campo explores his coming-of-age as a gay Cuban-American physician. He presents us with a series of stories illuminating his childhood and college experience, skillfully interweaving them with narratives from his life as a young physician, especially his interactions with patients dying of AIDS. We follow the author from Amherst College, through Harvard Medical School, to his medical residency in San Francisco. At each step Campo is a close observer of human character and motivation--his own and others. At each step he asks, "Who am I? Who am I becoming?"
He discovers his identity as a gay man, an Hispanic man, a poet, and, finally, as a healer--not four identities, but one. He discovers, too, the healing power of connecting with patients, the "poetry of healing," something far different from the orthodox image of the physician-as-detached-or-distanced from his patients. Though Campo rejects the concept that physicians are agents for social change ("naive," he calls it), he brings sensitivity and poetry to bear on his continued search for "some way to give."