Showing 51 - 60 of 330 annotations tagged with the keyword "Chronic Illness/Chronic Disease"
Summary:This is a dramatic and moving story about a concert pianist who, at 45 years of age, suddenly and inexplicably, has ALS, and also equally about his ex-wife Karina, who takes on his care throughout his slow, inevitable, and lethal decline. As many readers know, ALS (Amyotrophic Lateral Sclerosis). or “Lou Gherig’s disease,” hardens the motor nerves so that, progressively, there is no more control of muscles throughout the body. Not many readers know, however, the difficult path such patients and their families must pursue. This sensitive and detailed novel takes readers powerfully into the world of ALS, a disease for which there is today no cure.
Summary:Anyone walking through a theater district over the past several decades and even centuries ago would likely run into a mad king—Lear, Richard III, George III, Scar. As of 2015, there’s a new mad king to be found in theater districts—King Philippe of Spain in Farinelli and the King.
I was touched by the confidence with which you speak to me of your affairs; the cordiality of your offer to redress mine; the tender anxiety for my health—but I should tell you in the strictest confidence you understand…shh…here the body cares very little for the affairs of the mind. (Act 1, Scene 1)
Then…he began. A long note, held; I must think it was beyond a minute. A swooping, soaring sound and the notes were above the tree-tops, bird-like, unimaginable. When the aria finished just now I couldn’t help my tears; I was unable to move; I just stared at the stage, where he had been…I couldn’t believe what I had seen and heard…I felt something had profoundly changed within me. …and then, —I knew…That I must hope somehow to bring Farinelli to Spain with me. (Act 1, Scene 3)The Queen finds a way to bring Farinelli back to Spain, and Farinelli begins to sooth the mad King with his voice from the heavens. The King becomes calmer yet when he moves with the Queen and Farinelli to a house in the forest, where he cuts a hole in the trees so he can hear the “hidden notes” of the spheres above. The King tells Farinelli, “you must sing to me; in the long hours of dark, when my mind is screaming in the silence, then that is when I need you to sing to me.” (Act 2, Scene 5)
And they say it was Farinelli that helped to restore the health of the King of Spain—just by hearing this wonderful singing voice the King rose out of his depression and wanted to live again! It was the only thing the King could bear in the end. The sound of Farinelli’s voice. (Act 2, Scene 5)
Summary:Spy of the First Person is a short semi-autobiographical narrative about a man with a debilitating condition. He spends most of his time sitting in a wheelchair on his porch, goes for tests to the Arizona campus of the Mayo Clinic, and has a “handicapped sign hanging from the rearview mirror of his car” (p. 15). The man’s illness is unnamed, but we learn that his motor skills are grossly impaired: “His hands and arms don’t work much. He uses his legs, his knees, his thighs, to bring his arms and hands to his face in order to be able to eat his cheese and crackers” (ibid).
Summary:The book opens with Shep Knacker packing his bags for his long-dreamed of “Afterlife”—his word for retirement—in Pemba, an island off the coast of Tanzania. He plans to take his wife, Glynis, and his high school aged son, Zach. This plan is not unexpected because Shep and Glynis have made many “research” trips during their 26-year marriage to find the right place (though never to Pemba). But, there were always reasons not to act on their research. An intervention was needed. Glynis is not home while he is packing because she is at some “appointment.” When she gets home, Shep informs her of his plans for the three of them to leave for Pemba, and he further informs Glynis that he’s going whether she comes or not. In response, she informs him that she has cancer—a bad one (mesothelioma); he unpacks, so much for that.
Summary:Victoria Sweet describes her training in medical school, residency, and work in various clinics and hospitals. From all of these she forms her own sense of what medical care should include: “Slow Medicine” that uses, ironically, the best aspects of today’s “Fast” medicine.
Summary:This powerful—even disturbing—book examines the state of Louisiana, a home of the Tea Party, multiple polluting industries (oil, chemicals), environmental degradation, bad health for all, including children, and politics and economics that favor corporations not local business.
Summary:Taking Turns, Stories from HIV/AIDS Care Unit 371, is a graphic novel written and illustrated by nurse and artist, MK Czerwiec. In it, she details what it was like to be a nurse during the AIDs epidemic in Chicago in the 1990s. The book, however, is much more than a story about AIDS care during that time. Czerweic tackles patient/provider relationships, boundaries, hospital struggles, the role of art in medicine and healing, but most profoundly: death and dying.
Summary:Several threads tie together this ambitious, beautifully digressive reflection on eros and logos in the experience of illness and the conduct of medicine and health care, which takes into account what a complex striation of cultural legacies, social and political pressures, and beliefs go into both. Framing his reflections on the role of unknowing, altered states, inexplicable events, desire, hope, love, and mystery in illness and healing is a fragmented, poignant narrative of Morris’s own experience of watching his wife succumb to the ravages of early Alzheimer’s.
Summary:This engaging memoir describes Pearson's medical training at the University of Texas Medical Branch (UTMB) on Galveston Island from 2009 to 2016. During these years her personal values become clear, and she finds fault in her training, in medicine as practiced in Texas, and even in her own errors in treating patients.
Summary:The opening of the documentary Fixed: The Science/Fiction of Human Enhancement is meant to startle. A young woman (disabled performance artist Sue Austin) in a motorized wheelchair fitted with transparent plastic fins gracefully glides underwater around seascapes of coral and populations of tropical fish. The scene dislodges expectations about what wheelchairs can do and where they belong. It creates what for many are unlikely associations among disability, wonder, joy, freedom, and beauty. Watching Austin incites questions about what this languid and dreamy scene might have to do with human enhancement, which more predictably brings to mind dazzling mechanical, chemical, or genetic interventions that surpass the ordinariness of a wheelchair and extend human capacities. But this gentle scene opens the way for the film’s conversations about the ethics and meanings of human enhancement that emphasize perspectives by people with disabilities.