Summary:

Don Wanderhope grows up in a Dutch Calvinist family, but his father is a searcher, always questioning the tenets of his faith and the meaning of life. Don's life progresses through a series of traumas: his older brother dies of pneumonia; Don develops tuberculosis; his girlfriend at the sanitarium dies of tuberculosis; and, later, his wife commits suicide. Despite all this, however, there is one shining ray of hope and love in Don's life--his daughter Carol. By the time she turns 11, father and daughter are inseparable pals.

At this point Carol develops leukemia. At first they think it is strep throat and she responds to antibiotics: "She feels a lot better. Give her another day or two and you can take her home. But, anyhow, we've eliminated everything serious." (p. 165) But shortly thereafter, while father and daughter are on vacation in Bermuda, she becomes severely ill again, and soon the diagnosis of leukemia is confirmed.

This begins many weeks of progressive spiritual suffering for Wanderhope, as his daughter suffers terrible physical symptoms and medical interventions. He is reduced to bargaining with God, and to begging at the shrine of St. Jude: "Give us a year." Initially, his prayers seem to be answered as Carol responds to chemotherapy, but then she develops sepsis and dies, "borne from the dull watchers on a wave that broke and crashed beyond our sight." (p. 236)

After Carol's death, Wanderhope vents his anger at God and becomes overwhelmed with grief. However, months later, when going through Carol's things in preparation for selling the house, he discovers an audiotape that Carol had made during her illness, a message that she had left for her father: "I want you to know that everything is all right, Daddy. I mean you mustn't worry, really . . .

(You've given me) the courage to face whatever there is that's coming . . . " (p. 241) The tale ends with Wanderhope's final reflection: "Again the throb of compassion rather than the breath of consolation: the recognition of how long, how long is the mourner's bench upon which we sit, arms linked in undeluded friendship, all of us, brief links, ourselves, in the eternal pity." (p. 246)

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Summary:

In her poem, "Dehiscence," Amy Haddad speaks in the voice of a nurse tending a suffering patient. The patient has "come unstitched," and, seen through the nurse's eyes, the patient's wounds are devastating: fistulas "connect bowel, liver, pancreas"; the "stench is overwhelming," telling everyone, caregiver and patient alike, that medical science has failed, that no more can be done.

Moved by her patient's suffering and her own inability to help, the nurse does what she can. She washes the patient, changes the soiled sheets, removes the dirty dressings and replaces them with clean gauze and tape. "Done," she says. Stepping back, looking from a distance, she can no longer see the patient's wounds. She "is caught," as all caregivers have been at one time or another, in "the illusion" of the patient's "wholeness."

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Summary:

Jose is a patient who exhibits all the classical symptoms of autism. The caregivers in his institution treat him dismissively, as though he is stupid. Sacks notices, however, that, given a pencil, Jose draws not only with amazing accuracy, but with a quality of liveliness in his representations that betokens close, insightful, and even empathetic observation and awareness. As he encourages Jose to draw, he finds his drawings diagnostically helpful, and powerful evidence of an active interior life to which they provide a valuable link.

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Summary:

Mattie, recently divorced from Nick, the father of her two children, is coping with the aftermath of divorce, functioning as a single parent, feeling ambivalence toward Nick who still shows up and sometimes stays the night, and becoming aware of her own attraction to other men. Her mother, an aging social activist, lives nearby with her lover and companion who copes with the mother’s insistent personality and mood swings better than Mattie. Her brother, Al, also lives nearby and fills in some of the father functions for Mattie’s children.

In the background is the story of Mattie’s father, now dead, much loved by both Mattie and Al, who, as it turns out, fathered a child now living in the community by a young girl about Mattie’s age. The mother of the child lives in the squalor of near homelessness at the edge of town. This disclosure, Mattie’s blossoming friendship and eventual romance with the man who comes to repair her house, and Mattie’s mother’s descent into dementia are the three main threads of plot in this story of pain, forgiveness, and healing in family life.

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Summary:

This collection of over ninety photographs and their stories celebrates an "unsung army of great healers," caregivers of persons with AIDS. Herself infected with the HIV virus, mother and AIDS activist Mary Fisher chronicles painful, private, and precious moments of interaction between patients, families, lovers, friends, and "professionals," in home, hospital, clinic, and other settings (a women’s prison on Riker’s Island, a homeless shelter in Boston, a nursery in West Palm Beach). Interspersed with the photographs and commentary are excerpts from Fisher’s letters and addresses including her show-stopping televised speech at the 1992 Republican National Convention.

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Summary:

May-Alice Culhane (Mary McDonnell) is a daytime soap opera star who is struck by a taxi in New York and wakes up in a hospital paralyzed from the waist down. Upset and bitter, and unable to continue acting, which she says is the only thing she was ever good at, she returns to her Louisiana bayou family home to begin the rest of her life in isolation.

An employment agency sends out a string of helpers. Some are better than others, but all are quickly defeated by May-Alice’s deep bitterness and negativity and her incipient alcoholism. Then comes Chantelle (Alfre Woodard), who needs the job so badly, as part of digging herself out from a cocaine addiction, that her determination makes her a match for May-Alice.

It is decidedly bumpy going, but Chantelle persists and May-Alice finally strops drinking and begins to make some progress in physical therapy. She takes up black-and-white photography, developing her own prints from her wheelchair, and she gratefully receives the gentlemanly attentions of her high school idol Rennie, played by David Strathairn. (The film takes its title from a practice that locals believe can make love-wishes come true.)

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Summary:

Told from the perspective of a thirteen-year-old girl, this story about a single mother with two daughters who moves, marries, and dies of breast cancer handles a variety of difficult issues with sensitivity and spunk. A list of those issues--absent father, new stepfather, a thousand-mile move to a new social environment, first menstruation, sibling rivalry, an uncle with incestuous impulses, family secrets, sexual experimentation, cancer, and death--might make it sound like a catalogue of the trials of contemporary suburban young adulthood, but in fact the point of view of Tilden, the main character, keeps the story grounded in very believable, sometimes amusing, often poignant, recognizable truth about what it is to come into awareness of the hard terms of adult life.

The mother's cancer is narrated largely in terms of Tilden's experience of it: secrecy, eventual disclosure, partial information, losses of intimacy, feelings of betrayal, confusion about caregivers' roles, and in the midst of it all, the ordinary preoccupations of early adolescence. The generous and understanding stepfather and neighbors with limited but ready sympathies lighten some of the novel's darker themes.

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Summary:

This historical novel for young adults details the horrors of the Philadelphia Yellow Fever epidemic in 1793 from the point of view of a fourteen-year-old, Mattie, who runs a coffeehouse with her widowed mother and grandfather. In the course of the story, her mother is taken ill, she herself falls ill on the way to the safety of the countryside, and her grandfather dies of heart failure after nursing her. Separated from her mother who is also removed from the city, Mattie finds herself scrabbling for survival in a mostly deserted town after the death of her grandfather, but relocates the free black woman, Eliza, who had worked for her family and who essentially becomes part of her family.

Eventually the mother returns, an invalid but alive, and Eliza and Mattie undertake to run the reopened coffeehouse together and care for Eliza's nephews and an orphaned child Mattie has rescued. Hope reappears with the first frost in the forms of a reopened farmers' market, the return of George Washington to the town, and the reappearance from enforced isolation of Nathaniel Benson, a young painter who gives Mattie a vision of a future life with friendship and love.

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Summary:

The author of this chapbook of poems is the chaplain of a large geriatric outpatient unit in Iowa City. Her In Strange Places is a series of 23 "poem portraits," each one of them a short narrative that speaks for one of the patients who is "not to be defined by illness and years and deserve(s) to be free of the condescending devaluing attitudes" that the elderly often encounter." (p. 3)

The poems are particularly eloquent in speaking of the progressive losses of aging. For example, there is "At Ninety: Embers of a World," which depicts two elderly persons as they "decompensate in sorrow." (pp. 8-9); and "Of Late I Have Taken to Falling," in which a patient describes her recent falls, but concludes, "I shall not / fall again." (p. 16-17).

Other portraits deal lovingly with an "impressively calm" dying matriarch ("CHF and the Matriarch, p. 6) and "The Good Storyteller" (pp. 18-19), who "wants her life / to begin again / to call her out / to play her part / once more with / cleaner closets / open doors." In "Funeral Plan" (p. 22), we meet an elderly woman carefully considering the magnificent array of flowers she plans to have at her funeral, "no hot house roses please," but great expanses of seasonal flowers: "ditch lilies / apple blossoms / naked ladies . . . " and so forth.

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Summary:

The narrator's father is in the hospital awaiting surgery that might be his last. She and her sister have been coming to the hospital regularly during his prolonged stay, and have become familiar with the cast of characters there, including an old man in a state of dementia who wanders the halls asking directions. The narrator reflects on her family, what can be spoken of and what can't, the different reactions they have to hospital regulations, crisis, impending loss.

She longs to tell her father she loves him, but is constrained by family reserve. As the family gathers at his bed before the surgery, she comes to realize some things will never be fully expressed, but must remain implicit. The unspoken is part of the loss she recognizes as she faces her father's death.

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