Showing 771 - 780 of 851 annotations tagged with the keyword "Caregivers"

Living at Home

Gordon, Mary

Last Updated: Jun-25-1998
Annotated by:
McEntyre, Marilyn

Primary Category: Literature / Fiction

Genre: Novella

Summary:

The narrator of this long, lyrical musing is a psychiatrist who works with autistic children. Though much of the narrative is a reflection on her mid-life relationship with a journalist lover who risks death to report on places in political turmoil, her observations about her patients provide a recurrent motif and reference point.

Several long passages detail the fascination and frustration involved in working with her young patients, what she has learned from them about limits, patience, and the semiotics of autism. She also reflects on how that learning has allowed her to understand "normal" people differently. One of the subtle but strong themes of the story is the question of what "normal" means.

A secondary focus is her close attachment to her two grown sons. This is developed through memories of particular scenes of their childhood that she identifies as bonding moments. Another focus is her relationship with her mother, now dwindling into mental incompetence and squalor in her old age. Thinking about these relationships, with lover, sons, mother and patients, is a way of taking stock of how the strands of her life have brought her to a place of qualified peace in mid-life.

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The Proving Grounds

Tregebov, Rhea

Last Updated: Jun-13-1998
Annotated by:
Coulehan, Jack

Primary Category: Literature / Poetry

Genre: Collection (Poems)

Summary:

Stonecrop: Poems January 1987 to May 1989, the first of two sections in Rhea Tregebov's collection, is a series of poems about loss and potential loss, especially concerning her son's life-threatening asthma. In "Vital Signs" she writes, "When we almost lost him, I almost lost myself."

Later, when her son's condition had stabilized, she writes in "Runt," "We can hope to break the cycle." More than two years later, the poet rejoices in her son's growth as he says "Bony" while "turning his head against the hard nest of my shoulders" ("Respite").

Other poems in this series are eloquent responses to other personal losses. As Rhea Tregebov writes in "Sleep," "it is the dust of stars I touch, the dust of cold brilliant stars / we somehow are." "Faith in the Weather," the book's second section, contains poems dealing with a variety of other topics. From a literature and medicine point of view, "How We Know the Animals" and "The Right Thing" are particularly noteworthy.

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Annotated by:
Duffin, Jacalyn

Primary Category: Performing Arts / Film, TV, Video

Genre: Film

Summary:

In 1877, Richard Maurice Bucke (1837-1902) (Colm Feore) becomes the superintendent of the asylum in London Ontario, where physical restraints are used. His lovely but tense wife (Wendel Meldrum) is grudgingly deferential to his professional needs. They are parents of a happy little girl. Bucke travels to a Philadelphia conference to read a paper on his liberal ideas about care of the mentally ill, but he senses the intolerance of the audience and storms out.

An odd "free thinker" in the audience--who turns out to be the great American poet Walt Whitman (Rip Torn)--admired the paper. Whitman invites the doctor to meet his mentally disturbed brother kept at home rather than in an asylum. Smitten with Whitman and his philosophy, Bucke brings him to Canada.

At first, his wife and the town are suspicious of the famous stranger, but they gradually change their minds. The asylum replaces its coercive methods of care with exercise, music, and talk. The film closes with a lively summer cricket match between the asylum (patients and workers) and the town.

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Dark Blonde

Waring, Belle

Last Updated: Apr-16-1998
Annotated by:
Kohn, Martin

Primary Category: Literature / Poetry

Genre: Collection (Poems)

Summary:

In language of the street and of the heart, Belle Waring has put together another wonderful (her second) collection of poems (see annotation of Refuge, her first collection). She writes of relationships starting and ending; her work experience as a nurse--the powerful "It Was My First Nursing Job," "From the Diary of a Clinic Nurse, Poland, 1945," and "Twenty-Four Week Preemie, Change of Shift"; and other miraculous everyday events of living with eyes wide open as exemplified in "The Brothers on the Trash Truck and my Near-Death Experience" and "Fever, Mood, and Crows."

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Range of Motion

Berg, Elizabeth

Last Updated: Apr-16-1998
Annotated by:
McEntyre, Marilyn

Primary Category: Literature / Fiction

Genre: Novel

Summary:

Lainey's husband, Jay, has been in a coma for weeks, now extending into months. She takes care of their daughters, visits him daily, finds what solace is possible with her resilient, tough-minded, and compassionate neighbor, Alice, and continues to believe he will wake up when the medical staff have largely given up hope.

As she sits with him, trying to adjust and foster her hopes, bringing familiar smells, textures, and sounds from home in the hope of triggering response, she imagines his state of mind. Interludes that work a little like prose poems suggest something of the liminal state he may inhabit. Lainey meets a fellow visitor at the nursing home whose wife dies after having been comatose for 6 months.

Lainey's life is kept from complete inward focus by Alice's efforts to keep her going out, and by Alice's own problems which include a straying husband who finally reveals that he's been struggling with homosexuality and has fallen in love with another man. Jay finally awakens and life returns to something like normal, but with an abiding awareness of the mystery of consciousness and memory, and a heightened sense of the preciousness of consciousness, choice, and the ordinariness of daily life.

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Annotated by:
Coulehan, Jack

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

In 1984 Handler was a moderately successful 23 year old New York City actor, when he developed acute myelogenous leukemia. Strongly supported by his girlfriend and family, Handler underwent induction and, later, consolidation chemotherapy at Sloan-Kettering Memorial Hospital, where he also began his long experience (the "comedy of terrors" or, perhaps more appropriately, the "tragedy of errors") of a harsh, hostile medical environment populated by arrogant physicians, condescending nurses, and a host of unhelpful minor characters.

Handler carries us briskly through his first remission, the impact of his illness on his family and personal relationships, his experience with nonconventional healing (Simonton Cancer Center), his return to work on Broadway, his relapse, and the agony of a second round of induction chemotherapy at Sloan-Kettering.

Subsequently, he goes to Johns Hopkins Hospital to undergo the rigors of an autologous bone marrow transplant. At Hopkins he discovers to his surprise a medical setting far different from Sloan-Kettering: communicative, compassionate physicians and a patient-centered healing environment. Even the two hospitals' sperm banks reflect this radical difference in approach.

After surviving his transplant and a subsequent round of serious infections, Handler resumes his life. He realizes that most of the time nowadays he is not in touch with the sense of joy and gratitude for each moment that the illness taught him. Yet, these feelings exist below his consciousness; sometimes he steps through "a little doorway near the floor of my consciousness" and experiences his life in a simpler, more profound way.

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Winning

Brancato, Robin

Last Updated: Mar-26-1998
Annotated by:
McEntyre, Marilyn

Primary Category: Literature / Fiction

Genre: Novel for Young Adults

Summary:

When we first meet Gary Madden he's face down on a hospital bed rigged to be turned every two hours to prevent bedsores. His head is in a brace and he can move neither arms nor legs. He was carried off the football field the previous week with a spinal cord injury and doesn't yet know what his prospects are for recovery. Eventually he learns that he has some hope of recovering at least partial use of arms and upper body, but virtually no hope of walking again.

His parents, a faithful teacher, a bewildered girlfriend, and a few awkward but good-hearted teammates find their various ways to see him through months of adjustment, some of them more helpful than others. They all have something to learn in the course of caregiving: his mother has to struggle not to be overprotective; his girlfriend has to find new ways to interpret his moods and her own as they try to imagine what future their relationship could possibly have; his closest friends know little about the nuances of sickroom diplomacy, which makes sometimes for comedy, sometimes for unintended pain.

His English teacher who has recently lost her husband in a car accident, turns out to be a significant mentor in transition as she forces herself to reach beyond her own loss to help him in his. One form her help takes is to open his imagination to other ways of living, through literature and poetry, and to a metaphor for how to live that might work better than "winning."

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Annotated by:
Belling, Catherine

Primary Category: Literature / Poetry

Genre: Anthology (Poems)

Summary:

This is a collection of 111 poems, all about women who are old. As the editor says in her introduction, it is not a book about becoming old, but about being old, and the book bears the pointed reminder that an old woman is still a woman, as well as being old (vii). The poems are arranged in ten sections, from portraits of old women (usually grandmothers, here) as seen by the young, through explorations of their work and wisdom, their relationships and sexuality, the vivid and sometimes shocking realities of their bodies, their illnesses and weaknesses, institutionalization and nursing homes, and finally, their confrontations with death and the sense of loss in those they leave behind.

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A Question of Mercy

Rabe, David

Last Updated: Mar-26-1998
Annotated by:
Jones, Therese

Primary Category: Literature / Plays

Genre: Play

Summary:

This play dramatizes the story of Anthony, a character with AIDS, who implores a retired surgeon to end his suffering. Torn between his ethical beliefs and empathic response, Dr. Robert Chapman finally agrees to advise Anthony and his partner, Thomas, as to the method and means for committing suicide. Dr. Chapman's moral conflict is mirrored by Thomas's emotional one as he is caught between respecting a lover's wishes and fearing his premature death. The couple's friend, Susanah, reinforces Thomas's and Dr. Chapman's concern about criminal consequences. After a failed suicide attempt on his own, Anthony has a change of heart.

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The Road to Wellville

Boyle, T. Coraghessan

Last Updated: Mar-08-1998
Annotated by:
Duffin, Jacalyn

Primary Category: Literature / Fiction

Genre: Novel

Summary:

In the fall of 1907, Will and Eleanor Lightbody, a wealthy, neurotic couple from Peterskill, New York travel to Battle Creek, Michigan to immerse themselves in the routine of the famous sanitarium run by corn-flake inventor, Dr. John Harvey Kellogg. They meet Charlie Ossining who is seeking his fortune in the fickle market of Battle Creek's breakfast food industry. The Lightbodys have just lost their infant daughter and Eleanor is taking Will to the "san" for the cure. An inveterate meat-eater with a sexual appetite, Will was addicted, first to alcohol, and then, to opium, after his wife spiked his coffee with an off-the-shelf-remedy for drink.

At the sanitarium, they must occupy separate rooms, refrain from sex, and piously eat inflexible non-meat diets. Therapies include five daily enemas, exercises, "radiated" water, and an electrical "sinusoidal bath," which accidentally fries one of the residents. Kellogg is gravely disappointed in Will's inability to toe the "physiologic" line, but he is more deeply disturbed by his adopted son, George, whose chosen life on the street is a perpetual embarrassment.

Worried about his sexual prowess and deprived of his wife, Will becomes obsessed with his beautiful nurse and opts for the stimulation of an electrical belt; equally frustrated and bent on self-starvation, his wife turns to the quack "Dr Spitzvogel" who specializes in nudism and "manipulation of the womb." Brought to their senses by humiliation, Will and Eleanor go home.

Meanwhile, Charlie has joined with George Kellogg and borrowed from Will to keep his business afloat, but he realizes that he has been swindled. He only narrowly escapes jail, during a fiery commotion created by George who is then murdered by his adoptive father.

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