Showing 71 - 80 of 271 annotations tagged with the keyword "Chronic Illness/Chronic Disease"

Annotated by:
Clark, Stephanie Brown

Primary Category: Literature / Nonfiction

Genre: Criticism

Summary:

Co-authored by a Professor of English Literature and her physician husband, a Professor of Medicine, this is a readable interdisciplinary commentary on fourteen operas (19th and 20th century) in which particular diseases are represented, including mostly epidemic infectious diseases such as tuberculosis, syphilis, cholera, and AIDS. The analysis of each opera combines solid literary analysis of language and metaphors with fascinating historical information on the contemporaneous medical understandings of the diseases, and a sophisticated discussion of the social, sexual and cultural representations of these diseases.

The most persuasive chapters include "The Tubercular Heroine" in La Boheme, and La Traviata; "Syphilis, Suffering and Social Order" in Parsifal; "The Pox Revisited" in 20th century operas, Lulu and Rake’s Progress; the final chapter, "Life-and-Death Passion" compares theatrical representations of AIDS in Angels in America (see annotation) with cholera, TB, and syphilis.

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The Odds of Recovery

Friedrich, Su

Last Updated: Jun-01-2010
Annotated by:
Aull, Felice

Primary Category: Performing Arts / Film, TV, Video

Genre: Film

Summary:

This is an imaginative documentary film by director-producer Su Friedrich, of her experiences with health problems, physicians, the health-care system, and how these affected her relationship with her female partner over a period of more than two decades. The narrator-subject takes us through her numerous surgeries, hormonal (prolactin) imbalance, and her growing disenchantment with the traditional health-care system.

She films herself: getting dressed into the "humiliating" paper garb prior to being examined by her physician; in exchanges with her various physicians; reading from medical texts and self-help books as she tries to understand her condition(s); taking t'ai chi classes and preparing herbal potions; gardening and doing needle work. As the film ends, she is grappling with the prospect of menopause, but she feels that she has taken charge of her body and of her own care, that she tends herself as she tends her garden.

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Annotated by:
Davis, Cortney

Primary Category: Literature / Literature

Genre: Anthology (Mixed Genres)

Summary:

In 2008, editor and physician Paul Gross launched a new online publication, "Pulse--voices from the heart of medicine" (published by the Department of Family and Social Medicine, Albert Einstein College of Medicine and Montefiore Medical Center). This anthology contains every poem and first-person narrative published during Pulse's first year, arranged in five sections corresponding to publication date and not to theme: Spring, Summer, Autumn, Winter, and Spring.  Paul Gross, in his introduction, states "After more than a decade of practice as a family doctor, I came to appreciate that the science I'd learned in medical school, though powerful and useful, was also incomplete . . . . it contained much truth about illness and healing, but not the whole truth" (xvii).  Like many other caregivers, Gross discovered "that writing and sharing my healthcare stories with others was therapeutic" (xviii).  He looked to "Sun Magazine" as an example of how first person narratives, both prose and poems, could turn "hurts and triumphs into something potentially beautiful, funny or moving" (xviii). 

The poems and prose that arrive every Friday online to Pulse's thousands of subscribers (and the selections in this anthology) are carefully screened by the editors according to these guidelines: the stories have to be first-person, and they have to be true, recounting the writer's own experience.  Submissions are accepted from any person involved in healthcare.  The language used must be "clear, simple language.  No medical jargon. No arcane literary devices" (xx).  Gross and his editors decided that Pulse would not be a medical journal nor a literary magazine--its purpose fell outside the perimeters of both genres--and so Pulse, and this anthology, offers work that is, in a refreshing and honest way, different from the slick or more polished poetry and prose that might be found elsewhere.

In reading this anthology from cover to cover, and so from season to season, I found that the poems and prose seemed to fall into several categories: Personal musings, in which authors relate healthcare experiences that engender intimate and revealing narratives about their own lives--among the best of these are "Well Baby Check," p.3; "Finding Innisfree," p. 31; "First Patient," p. 39; "Losing Tyrek," p. 45; "Carmen's Story," p. 62; and "Chemo? No Thanks," p. 106.  Other pieces are commentaries on the other side of healthcare, the one that cries out for reform and affects both patients and caregivers.  Among the best of these are "Redesigning the Practice of Medicine," p. 9; "A Brush with the Beast," p. 22; "Rx," p. 60; "Halloween Horrors," p. 69; and "Brain Cutting," p. 136.

Other pieces are humorous ("Aunt Helen Sees a Ghost," p. 6) or political ("My War Story," p. 11), and many poems and prose pieces speak of patient encounters or about being a patient, some more anecdotal, relating a specific incident that affected the author ("Once," p. 41) and others multi-layered, some relating medical student or intern experiences ("Jeannie," p. 48; "A View from Nepal," p. 87; "Ripped from the Headlights," p. 90; "Snowscape," p. 97; "First Night Call," p. 100; and "Wounded Messenger," p. 114.)  The "category" I found most interesting and most unique are the selections I will call "confessions."  These writings--demonstrating openess and bravery on the part of the authors--tell of regrets, mistakes, sorrows, wrong calls and other mishaps that occur, daily, in the practice of healthcare.  In these, the most human face of caregiving is revealed.  Although most of the pieces in this anthology contain elements of "confession," the most specifically revealing include "Mothers and Meaning," p. 14; "Physician's Exasperation," p. 44; "Confidential," p. 53; "My Patient, My Friend," p. 73; and "Apologies," p. 104.

Editor's note: Coincidentally, a recent relevant paper on confessional writing by physicians expounds further on this topic:"Bless Me Reader for I Have Sinned: physicians and confessional writing" by Delese Wear and Therese Jones (Perspectives in Biology and Medicine, Vo. 53, No.2, Spring 2010, pp. 215-30).

 

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Summary:

Some 40 years after a ceasefire that ended the Cylon wars, the 12 human colonies across the galaxy have been lulled into a state of calm complacence.  This is abruptly interrupted by a Cylon attack that annihilates billions of humans, leaving only 50,000 survivors in a small fleet of ships, led by the one remaining ship from the Colonial Fleet, the Battlestar Galactica.  Fleeing the Cylons, they set out to find the legendary 13th Colony: Earth.

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The Unnamed

Ferris, Joshua

Last Updated: Mar-29-2010
Annotated by:
Henderson, Schuyler

Primary Category: Literature / Fiction

Genre: Novel

Summary:

Tim Farnsworth is a well-regarded lawyer at a fancy, cutthroat midtown law firm in New York City, with a devoted, if occasionally uncertain, wife and a rebellious teenage daughter.  Their comfortable marriage has survived her bout with cancer and his earlier bout with a strange condition: he will suddenly be compelled to walk, setting out on foot regardless of where he is or what he is doing, unable to stop himself until he eventually curls up asleep, whatever the weather and conditions around him.  He is about to lead the defence of a prominent businessman charged in the slaying of his wife when the condition abruptly returns.

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Annotated by:
Aull, Felice

Primary Category: Performing Arts / Film, TV, Video

Genre: Film

Summary:

The film opens on the Coeur d'Alene Indian Reservation -- called "the rez" by its inhabitants -- in 1998. Immediately there is a flashback to July 4, 1976 when the community was celebrating "white man's Independence Day" in drunken abandon. Accidentally Arnold Joseph (Gary Farmer) sets an uncontrollable fire to his neighbor's house, killing the couple who live there. But Joseph catches the baby, Thomas, when he is thrown out of a second story window from the burning house. The rescued Thomas (Evan Adams) is brought up by his grandmother and along side of Victor (Adam Beach), Arnold Joseph's son of about the same age. Joseph keeps on drinking but is in despair about the conflagration and its consequences.

12-year-old Victor watches sullenly while his parents drink until one night he smashes all their beer bottles. This action is a wake-up call for Victor's mother, Arlene (Tantoo Cardinal), who insists that she and Arnold both stop drinking. She chases Arnold out of the house; he leaves, never to return, while Victor watches, sobbing. These elements of the story occur in flashbacks while the 20-year-old Victor and Thomas travel by bus to retrieve whatever they can of Arnold Joseph, who has died outside of Phoenix. The remaining story unfolds in that forsaken spot where Joseph lived in a trailer and befriended Suzy Song, a young Indian woman originally from New York.

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Love in the Ruins

Percy, Walker

Last Updated: Mar-22-2010
Annotated by:
Wear, Delese

Primary Category: Literature / Fiction

Genre: Novel

Summary:

First published in 1971 and subtitled, The Adventures of a Bad Catholic at a Time Near the End of the World, the novel is a satire of the limits of technology, the medicalization of the human spirit, and the trivializing tendencies of 20th century medical science. Dr. Tom More is an "impaired" psychiatrist: an alcoholic, a womanizer, and a half-hearted clinician. He develops the lapsometer, a kind of stethoscope of the human spirit with which he plans to cure humankind’s spiritual illnesses. Living daily with the contempt of his colleagues, he tries to prove himself and runs into all kinds of mischief, allowing the author to spoof the ills of medicine as it is practiced today.

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Push

Sapphire

Last Updated: Mar-22-2010
Annotated by:
Wear, Delese

Primary Category: Literature / Fiction

Genre: Novel

Summary:

Narrated by Precious Jones, a 16-year-old African-American girl pregnant for the second time with her father's child, Push is a novel tracing her movement from anger, illiteracy, resignation, and self-contempt to some version of hope. The voice of Precious, raw and almost unintelligible at the beginning of the story, is changed when a courageous African-American teacher relentlessly inspires Precious, along with several other seemingly doomed teenagers, to learn to read, to discover what and how they feel, and to put it all down in a diary. The novel ends with everything uncertain and unfinished, but with a young woman changed by the appearance of self-respect.

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The Sweet Hereafter

Banks, Russell

Last Updated: Mar-22-2010
Annotated by:
Wear, Delese

Primary Category: Literature / Fiction

Genre: Novel

Summary:

This is a novel that begins with a fatal school bus accident in Sam Dent, a small town in upstate New York. The circumstances leading up to the accident appear in the first chapter, whose narrator is the bus driver Dolores Driscoll. The remaining chapters have three different narrators: Billy Ansel, who lost a son and daughter and now drinks himself into a less painful state; Mitchell Stephens, a lawyer from New York City who appears days after the accident, fueled by his belief that there is no such thing as an accident, himself the grieving father of a drug-addicted daughter; Nichole Burnell, a teenage survivor of the crash, now a parapalegic. Each presents a different view because of the unique history each brought to the tragedy.

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Annotated by:
Wear, Delese

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

Wasted is the story of a young woman, now in her early twenties, that recounts her fourteen years spent "in the hell of eating disorders," having been bulimic by the age of nine, anorexic at fifteen. The book is also a chronicle of her six hospitalizations, one institutionalization, relentless therapy, the back and forth between being "well" then "sick" then "well" then "sicker." The author dismisses most common notions of persons with eating disorders, instead revealing a complex set of causes, some familial, some cultural, some wedded to her own personality.

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