Showing 591 - 600 of 863 annotations tagged with the keyword "Patient Experience"

Annotated by:
Shafer, Audrey

Primary Category: Literature / Nonfiction

Genre: Autobiography

Summary:

Lance Armstrong, (currently) four time Tour de France cycling champion, is a survivor of metastatic testicular cancer. This book is largely the story of how his life changed from the moment of his diagnosis (October 2, 1996) onwards. He had been a world class cyclist prior to cancer, but his experience with cancer gave him profound insight not only into his life as a cyclist and competitor, but into life itself.

It is this latter insight which he recognizes as ultimately the most important aspect of his cancer experience. Armstrong notes: "Odd as it sounds, I would rather have the title of cancer survivor than winner of the Tour, because of what it has done for me as a human being, a man, a husband, a son, and a father." (p. 259)

Written in a conversational, straightforward tone, the book chronicles Armstrong's childhood in Texas as the son of a strong, loving, supportive, financially struggling, young mother; his beatings at the hands of a step-father; and his early excellence at endurance athletics. Armstrong became a brash powerhouse cyclist and began to enjoy the material rewards of winning while ignoring the onset of symptoms. At the time of diagnosis, the cancer had spread to his abdomen, lungs and brain.

He documents his search for optimal care, sperm banking, lack of health insurance, surgeries, chemotherapy, self-education and interactions with doctors and nurses. Through it all he acknowledges the tremendous support of his mother and friends, as well as sponsors who stuck with him with no assurance that he would survive, let alone race.

Before he was even through the first year, he decided to start a charitable organization, The Lance Armstrong Foundation, dedicated to cancer research and support of cancer survivors. Through this effort he met his future wife, Kristin Richard (Kik), and her love and support helped him through the dark days of emotional soul-searching post-treatment. The book also details her struggles with successful in vitro fertilization (They currently have a son and twin daughters).

Chapter Nine, The Tour, is an in depth look at the 1999 Tour de France which Armstrong won with the help of his US Postal Service teammates, expert coaching, and his will. This race is brutal, dangerous, and as Armstrong notes, both "a contest of purposeless suffering" and "the most gallant athletic endeavor in the world." (p. 215) He details the maneuvering in the peloton, the strategies, the stages and personalities.

The book concludes with reflections on the birth of his son, the anniversary of his cancer diagnosis, the love of his wife, and his need to ride.

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Aging in America

Kashi, Ed; Winokur, Julie

Last Updated: Aug-31-2002
Annotated by:
Bertman, Sandra

Primary Category: Visual Arts / Visual Arts

Genre: Multimedia

Summary:

This multimedia online documentary is an essay on the ecstasies and agonies of longevity, researched and composed by photojournalist, Ed Kashi and reporter, Julie Winokur. The site consists of written and audio commentaries and a number of short slide shows. The documentary is divided into six segments, each of which is a complete "essay" in itself: Introduction: Julie Winokur on aging; Part 1, Youth in age: The spirited side of longevity; Part 2, Sentenced to life: Growing old behind bars; Part 3, Helping hands: New solutions for elder care; Part 4, Vanishing heritage: Tribal elders face modern times; and Part 5, Surviving death: Losing a mate with dignity.

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Annotated by:
Dittrich, Lisa

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

This memoir is DeBaggio's first-person account of his early experience of Alzheimer's disease and its effect on his life and the life of his family. The book is a collection, in loosely narrative form, of the author's diagnosis of early-onset Alzheimer's; brief excerpts from his journal; excerpts from the medical literature on the disease; and memories from his past that he wants to commit to paper before he can no longer recall them. He documents his struggle simply to write the book, as it becomes more and more difficult to sustain thoughts or find the words to express what he wants to say.

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Standing by Thistles

MacLeod, Anne

Last Updated: Aug-28-2002
Annotated by:
McEntyre, Marilyn

Primary Category: Literature / Poetry

Genre: Collection (Poems)

Summary:

The poems in this collection, written by a dermatologist, are not specifically about medicine or medical issues. Threading through them, however, is a sensibility that sees both the natural world and human relationships in terms of the great cycle of awakenings, rising passions, complex relationships, change, aging, and death. Many, though few run more than a page, have a narrative thrust; they offer windows on ordinary life that tie the particulars of events and encounters to large, seasonal, mythic rhythms and stories.

History is present in many poems, in the character of Persephone, for instance, in lacings of Gaelic language, in allusions to old stones and fires and (in the final long poem) to the historical Macbeth, immortalized inaccurately. Natural objects--bird songs, dolphins, nettles, an old pear tree--feature largely as anchoring images of poems that move gracefully from memories to metaphors, linking life observed with interior life lived alertly by a poet who plumbs small experiences for cosmic connections.

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The Breast Cancer Wars

Lerner, Barron

Last Updated: Aug-28-2002
Annotated by:
Holmes, Martha Stoddard

Primary Category: Literature / Nonfiction

Genre: Treatise

Summary:

Written by a medical historian who is also a physician, The Breast Cancer Wars narrates how breast cancer diagnostic methods and treatments have developed from the early twentieth century. More significantly, the book describes the debates and controversies that permeated this evolution and the ways in which not only clinicians and researchers, but, increasingly, women patients/activists shaped how we view, diagnose, and treat breast cancer today.

Individual chapters explore the influential (and ultimately contested) radical mastectomy procedure of William Halsted, the development of the "war" against breast cancer as a full-blown campaign developed and conducted within the public media and consciousness of the United States as well as within medical practice and research, the intertwined development of feminism and breast cancer activism, the "fall" of the radical mastectomy, and the continuing controversies surrounding mammography and genetic testing as modes of early detection and risk assessment. Lerner draws on a range of primary sources including texts from the archives of the American Cancer Society, the papers of doctors and patients, and advertisements from popular and professional magazines throughout the century.

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Say Yes Quickly

O'Connor, Mary Bradish

Last Updated: Aug-07-2002
Annotated by:
McEntyre, Marilyn

Primary Category: Literature / Poetry

Genre: Collection (Poems)

Summary:

This collection of poems chronicles moments of felt experience in the writer's life before and after her diagnosis of ovarian cancer. Starting with a memory of a carefree childhood lived in an era when streets were sanitized with DDT, and a poem entitled "The Body is the Repository of Memory," the poems move freely from close-ups of moments in the hospital or grieving at the waterside to wide-angle views of a life that has been and still is normal, worth living, pulsing, albeit a bit more irregularly, with creative energies.

Cumulatively the poems explore the paradox that illness (and a terminal prognosis) changes everything and also, but for the shadow it casts, changes very little. "Still," she writes in a final line, "my wild heart beats." The poems are interspersed with prose-poems that shift the focus toward the writer's reflections upon the project and circumstances of creating this "memory board"--a term borrowed from the Luba people of Africa, who bead boards that represent memories to pass on as visible legacies of lives they believe worthy of being remembered.

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Routine Mammogram

Pastan, Linda

Last Updated: May-15-2002
Annotated by:
Wear, Delese

Primary Category: Literature / Poetry

Genre: Poem

Summary:

The poem depicts the vulnerability a woman may feel during this procedure, one that feels anything but routine. Even though the mammogram turns out predictably normal, the patient knows that she is changed. She has seen the fragile faults deep in her body, and she knows that no one, not even her doctor with his reassuring diagnosis, can "give innocence back."

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Notes from the Delivery Room

Pastan, Linda

Last Updated: May-15-2002
Annotated by:
Squier, Harriet

Primary Category: Literature / Poetry — Secondary Category: Literature / Poetry

Genre: Poem

Summary:

Notes from the Delivery Room is a short poem that presents a series of metaphors commonly used to describe childbirth. It is a crisis, like the woman in a comic book tied to the railroad tracks; hard labor with physician as foreman; a harvest, like pulling potatoes from the earth; a magical event, like pulling a rabbit from a hat.

Throughout the poem, the reader feels the tension between these images, and the reality of bright lights, restraints, pain, and medical staff as they impinge upon an intensely personal experience. Finally the speaker abandons her metaphorical language and becomes simply herself, greeting her barefoot child. She and her child are finally human beings unencumbered by symbolism, not representing anything but themselves.

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On the Couch

Herbert, Mary Kennan

Last Updated: May-10-2002
Annotated by:
Coulehan, Jack

Primary Category: Literature / Poetry

Genre: Poem

Summary:

I am feeling crabby / unlikely to reveal any hidden tidbits . . . Yet, the narrator gamely decides to continue psychotherapy, hoping to "crack open" the shell and discover the "succulent confessions" that lie within. She recalls her neighbor telling her about soft-shelled crabs and the adventurous day she ordered them for the first time at "a favorite hangout of my past." Sure enough, she ate the crabs, and "I was so pleased with myself / trying some exotic new dish" and not being afraid. [35 lines]

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The Heavenly Ladder

Coulehan, Jack

Last Updated: May-02-2002
Annotated by:
Aull, Felice

Primary Category: Literature / Poetry

Genre: Collection (Poems)

Summary:

The Heavenly Ladder is physician-poet Jack Coulehan's most recent chapbook, bringing together 48 poems, many of which have been published individually in various medical journals and literary magazines. The collection is divided into four sections.

Poems in the first section, "Medicine Stone," are written in the voice of patients or in the voice of the physician who treats them. The second section, "So Many Remedies," consists of five poems inspired by physician-author Chekhov. The poems of "The Illuminated Text" section reflect a wide-ranging interest in people who lived in distant times or in distant places. The final section, "Don't Be Afraid, Gringo," stays, for the most part, closer to home and includes a number of poems addressed to, or about, family members.

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