Showing 581 - 590 of 638 annotations tagged with the keyword "Survival"
Dr. Pensack writes in the first chapter of his memoir: "Through a lifetime I have been in the process of dying, consistently surprised when reminded that life is appallingly brief, and briefer still for me. The prospect of an early death has amounted to little more than embarrassment and loneliness, even though the routine of living can be, and usually is, just one goddamn thing after another. A new heart was somehow supposed to be my bloody-red carpet of victory." (p. 7)
At age 4, Pensack's mother died of IHSS, Idiopathic Hypertrophic Subaortic Stenosis--now known as HCM, Hypertrophic Cardiomyopathy, a genetically inherited, progressive disease of heart muscle that results in early death. At age 15, Pensack receives the terrible news of his own fate--the disease afflicts both Pensack and his older brother--and thus launches a life of near death experiences, numerous hospitalizations, early experiences at the National Institutes of Health with early investigators of the disease, pursuit of his own medical training and eventual specialty training in psychiatry, marriage and children, and ultimately, the waiting and eventual transplantation of a younger man's heart into his chest at the University of Colorado Health Sciences Center when Pensack was 43.
Raising Lazarus tells of Pensack's journey through much of this, including his descent into madness, his fury and anger with medical colleagues, his poignant relationship with the heart surgeon who eventually performs the transplant, and the importance of his family in his refusal to die. While much of the book tells of the events leading to the transplant and post-operative period of Pensack's life, the reader learns of Pensack's early losses, including the death of his mother, and how these experiences shape the values of a gutsy and determined survivor, a man who continually returns to the struggle.
This book is about fifteen people with AIDS whose words and images record what is happening to their bodies and spirits as they confront the reality and contemplate the mystery of certain death. Nicholas and Bebe Nixon set out to describe honestly and compassionately what it is to have AIDS; what it does to families and friends; why it is the most devastating social and medical issue of our time.
The photographs are characteristic of Nixon’s "serial portraits"--stark and formal close-ups or shallow-focused medium shots of immobile subjects taken at intervals of weeks and months with an 8 x 10 view camera. They are accompanied by comments culled from subjects’ conversations and letters by Bebe Nixon, a science journalist.
In 1994, Lucille Clifton was diagnosed with and treated for breast cancer. This short (12 line) poem, part of the sequence, "From the Cadaver" in this collection, describes an aspect of that experience. The mastectomy scar is an integral part of the narrator’s body, a physical presence that the poet addresses as if it were a person: "we will learn / to live together." At the same time, the scar marks a cataclysmic event in the poet’s life; it is the "edge of before and after." Finally, the scar speaks. " . . . i will not fall off."
It is the year 2021. The last birth recorded on earth occurred in 1995 (Year Omega). In England, Xan Lyppiatt is Warden; he promises security, comfort, and pleasure to his people. Xan's cousin, Theo Faron, Ph.D., retired professor of history at Merton College, Oxford, becomes involved with 5 people who oppose Xan's worst policies: the Quietus ("voluntary" mass suicides of the elderly), the sending of all criminals to the Man Penal Colony where there is no one to control cruelty, the rules forbidding Brits from traveling abroad and allowing only Sojourners (slave/workers) to emigrate, the compulsory testing of sperm and routine examinations of healthy women, and state-run porn shops. Theo and the 5, one of whom is pregnant, flee to avoid capture by Xan's men.
To take care of Aunt Martha, a Mississippi family agrees to a cousin's moving in with her; cousin Howie then maneuvers the family into running a home for the elderly. Martha agrees because Lucas, a physician with whom she's had a long relationship, will come to live there. As more elders come and as they get sick, the methods (restraints, use of drugs, unclean conditions) of Howie and his hired staff become a threat to all.
Martha and Lucas are rendered powerless by their inability to make the family believe their side of the story; even Harper, the family's longtime African-American butler, cannot help. Because he fears that Howie will sedate both of them into oblivion, Lucas decides to burn the house down--after killing several of the "prisoners" first.
The Earth has been destroyed in a nuclear holocaust and a group of unconscious survivors have been taken by the alien Oankalis to the mother ship and placed in "sleeping" pods for some 250 years. One of the humans, Lilith Iyapo, is awakened and slowly trained by the Oankali not to be afraid of their horrifying (to humans) appearance. She comes to an uneasy truce and trust in the Oankali's explanation of where she is and her role: she has been chosen to awaken a select group (based on her reading of detailed personal resumes).
As she awakens them, one by one, she confronts their anger and confusion and, eventually, their resistance to the notion of gene trading proposed by the Oankali. Lilith becomes a mediator between the humans and the Oankalis, giving birth to a son interbred by her and an Oankali.
Ann Blake is a lonely, divorced, childless English teacher whose ninth grade class includes Karen, a girl who is dying of cancer ( probably lymphoma). As an adjunct to the medical treatment and prayer/faith healing that the child receives, Ann hopes that she might instill in Karen a purpose to live for, through her creative writing
The Infinite Dark refers to a story the students read during that school year, and the teacher ponders on what this phrase really means. She has assumed it means death, but, as Karen regains her health and moves on to another grade and forgets about Ann Blake, Ann realizes that for herself the infinite dark means being unconnected from others, being alone, not making an impact that is permanent--a sort of death in life. As the teacher tries to facilitate healing in the student she ironically realizes that she herself has known little about living her own life.
Mrs. Seaver writes about what it is like living in a nursing home. She writes cogently about the attitudes and behavior of staff, loneliness, lack of privacy, and her day to day experiences as a disabled 84 year old nursing home resident. The contrast between her former life and still-evident wit and intellect, and the way she is treated and diminished in her current environment is profound.
Fanny Gideon is having a tree house built just like the one she remembered from her childhood. The best times of her life were spent in that tree house and she hopes to recapture the clarity, joy, and freedom of her youth. The problem is that Fanny Gideon is 78 years old and has Alzheimer's disease.
She struggles on a daily basis with trying to fit into a life that she does not like, and with constraints that diminish her sense of herself. Her daughter is thinking about placing her in a nursing home. Mrs. Gideon almost burns down the house on a daily basis. The cleaning lady follows her around when her daughter is out of the house.
This story is about how an elderly woman and her now elderly childhood sweetheart attempt to recapture both their youth and their current lives against all odds. It is about preservation of the self despite memory loss, renewal of love in old age, and about rebellion.
Sidney Winawer is a New York physician specializing in gastrointestinal cancers. When his wife, Andrea, is diagnosed with stomach cancer, he is made to see his own work from a new perspective, that of the patient and her family. The experience gives him new insights into aspects of health care he had not considered before, such as the alienating effects of some hospital routines on patient and family, the patient's need to find hope from any source, regardless of its intellectual provenance, and, encouragingly, the life-enhancing effects on his family as they join Andrea in her determined struggle to prolong and enrich whatever time remains for her.
For the first time, Winawer explores alternative and complementary approaches to cancer treatment, including meditation, antioxidant therapies, hyperthermia, and other attempts to stimulate the immune system. At first resistant, he comes to recognize the need for the terminally ill and their families to have access to as many resources as possible, and eventually it becomes his "mission" to emphasize the need for practitioners of conventional medicine to learn as much as possible about integrative medicine.
An interesting subplot is the story of Dr. Casper Schmidt, Andrea's psychiatrist, whose remarkable knowledge of new treatments for terminal illness is explained when he dies of AIDS. As another physician led by personal experience of disease to explore beyond the boundaries of conventional therapies, Schmidt forms an illuminating counterpoint to Winawer himself.