Showing 531 - 540 of 683 annotations tagged with the keyword "Illness and the Family"
Crossing Over presents "extended, richly detailed, multiperspectival case narratives" of 20 dying patients served by the Hospice of Lancaster County in Pennsylvania and the Palliative Care Service of Royal Victoria Hospital in Montreal. These complex narratives (each written by a single author) reveal the patient’s story from many points of view, including those of family members and professional caregivers.
The authors explain how this project differs from recent books of clinical narratives by Timothy Quill (A Midwife Through the Dying Process, 1996), Ira Byock (Dying Well: The Prospect of Growth at the End of Life, 1997), and Michael Kearney (Mortally Wounded. Stories of Soul Pain, Death and Healing, 1996 [see entry in this database]). Barnard et al. point out that Quill, Byock, and Kearney are "passionate advocates for their own styles of care . . . Yet these very characteristics--advocacy and close personal involvement--limit their books in important respects." (p. 5) Basically, these authors select cases that illustrate the efficacy of their models and present the patients’ stories from their own point of view.
Crossing Over draws on a standard qualitative methodology that includes tape-recorded interviews of patients, families, and health care professionals; chart reviews; and participant observation. After the introduction, the narratives occupy 374 pages of text (almost 19 pages per patient). Part II of the book, entitled "Working with the Narratives," includes a short chapter on research methods and 29 pages of "Authors’ Comments and Questions for Discussion." The latter is designed to be used as a teaching guide.
In July 1998 the poet Maxine Kumin was thrown from her carriage when her horse bolted during a competition. The type of cervical (C1-C2) fracture that she sustained is fatal before reaching the hospital in 95% of cases, and if survived, usually results in quadriplegia. This book is a memoir written in the form of a journal that begins on the day of the accident. In fact, it was nearly a month after the accident that the poet's daughter brought writing materials to the rehab hospital, and Maxine began to dictate the journal, and the two of them filled in the temporal gaps.
The journal covers her experience in the acute care hospital, the rehab facility, and the following months of convalescence at home. It ends on April 23, 1999, when Maxine climbs a hill (unassisted) near her Vermont home, looks out over the early spring vista, and concludes, "I am letting myself believe I will heal."
The journal describes the poet's physical, emotional, and spiritual experiences as she struggles, first to survive, and then to live with the "halo vest" that for months she had to wear to stabilize her fractured neck bones, and finally to regain her function and equilibrium. Much of the story is about her family--husband, son, and daughters--who mobilize from various points around the world to support her. Comments about her doctors and the medical care she received constitute only a small, at times almost incidental, part of this narrative.
This varied collection of short stories and poems is unified not so much by theme as by their appropriateness to the intended listening audience--the bedridden or homebound elderly. In a brief but moving preface editor Carolyn Banks recalls her work in an adult day care center where she was expected to entertain those who were recovering from strokes or suffering from Alzheimer's disease.
Reading aloud provided sometimes startling moments of contact with patients who were incapable of sustained conversation. Banks realized that while there are many story collections for children and general adult audiences, no one had done a collection for a group with these specific needs.
The collection includes 52 stories--one a week for a year--that cover a range of life situations. Not all focus on age or illness, though some do. In several a grandparent plays a crucial role in a grandchild's life. Some are set in the 1930's, 40's and 50's--periods likely to trigger memories for those now in their 70's and 80's.
Several stories focus on situations of widowhood and other losses, and some on death: Banks insists that death "is not a taboo topic." Many of the stories are comic, since, she comments, laughter is "an important response to court." All are short enough to read in a half hour or less, and "not insultingly simple."
This monumental portrait of the 17th century knight, Sir Richard Saltonstall, and his family was commissioned for the Saltonstall family home. The wealth of the family is indicated by intricate tapestries, a woven rug, jewels, and the rich fabrics of clothing and curtains. Absent from the picture is any religious iconography.
Saltonstall stands left of center and draws back the rich red curtain on the deathbed of his first wife. With his ungloved right hand he holds the hand of his eldest child, a son. This son is still young enough to wear a dress, but his coloring and the dress style indicate a boy. He in turn holds the arm of his younger sister, so that a diagonal line is formed from the father's hat, down his arm and through the two children.
The pale dead mother lies all in white, her eyes open, and her upturned hand reaching towards her children. On the right side of the picture sits Saltonstall's second wife, and she holds her baby on her lap. She also is dressed in white and is separated from her husband by the first wife. In addition, the diagonal line between Saltonstall's left hand and his baby is interrupted by his dead wife. However, he does gaze in the direction of his second wife, although no one in the portrait looks directly at another person.
Living on the Margins is a literary anthology of breast cancer with a distinguished list of 18 contributors, all writers--poets, critics, academics, editors, essayists. Their writing, wide-ranging in genre, style, and tone, includes personal narratives, poetry, academic essays, and an interview.
Contributors include Maxine Kumin, Safiya Henderson-Holmes, Eve Kosofsky Sedgwick, Lucille Clifton, Alicia Suskin Ostriker, and Marilyn Hacker. The editor, Hilda Raz, argues that because there hasn't been much literature on breast cancer (there's been a "margin of missing literature," she claims) this collection was brought into being.
Water is a metaphor for the life cycle as the poet chronicles the role played by water in his life, in all our lives--"the sac of water we live in." The poet evokes the sound of water as he moves through life stages: swaying trees register the sound of the water from which we emerge at birth, "the sound of sighing" denotes the sound made as he washes his dying father’s feet, whispering rain "outlives us."
The poem is replete with images of water that conjure up family relationships over time. In the ocean of his childhood, his athletic brother cannot swim while his crippled sister swims like a "glimmering fish." Water is a visible symptom of the congestive heart failure suffered by his father--"swollen, heavy . . . bloated"-- whose "respirator mask makes him look like a diver."
As the poet tends to his father, testing the wash water "with my wrist" like a parent, there is a powerful recollection of the father’s earlier ordeal as a political prisoner. Finally, there is water that liberated the family, bringing them from Indonesia to America, juxtaposed against the water that is now drowning the father.
Summary:The poet-doctor-son takes his ninety-year-old mother for a walk through the park on a cold winter day. He cites the peacock as an emblem of life-spirit, but she responds by talking about dying, saying: "This winter I'm half dead, son." He wants to weep, but does not allow himself to, because he "inhabit[s] a white coat." He avoids the issue by speaking of "small, approximate things."
Motivated at first by an attachment to her strict and demanding ballet teacher, as well as frustration and disgust with her own body compared to other dancers', Francesca develops an obsession with weight loss and increasingly ritualized forms of self-discipline in eating and exercise that lead to severe anorexia nervosa. It takes her family several months to see and acknowledge what is happening in front of them, during which she has trained herself to eat less and less, to throw up after meals, and to push herself to the point of exhaustion.
She becomes secretive, isolates herself from friends, and puts up a wall between herself and her parents, who are unable fully to understand the degree to which her behavior has gone beyond her control, but are worried. A compassionate male therapist with clear boundaries and a non-judgmental approach finally succeeds in disengaging Francesca from the mutually destructive downward spiral of family conflict around her illness;
he helps her to envision and desire her own health and to take responsibility for recovery. The story is told in the third person, but from Francesca's point of view.
Katie is a promising figure skater whose divorced mother drives her relentlessly to perfect her skills, at almost any expense. What her mother and coach don't know, but her English teacher begins to figure out, is that when Katie gets to an emotional edge, she hides and cuts herself; the pain and blood help focus her mind. Not until she goes over that edge one day at school and begins slamming her locker door on her hand and then banging her head on the wall does she begin to get the professional help she needs.
After a couple of false starts, she finds a psychiatrist experienced in working with teens in trouble who enables her to tell truths she hasn't for years been able to admit to herself or speak of to anyone else. Her mother resists other adults' help and almost succeeds in getting her out of therapy, especially group therapy with girls her mother labels "delinquents." But Katie finally manages to make some choices against her mother's wishes--an immense step out of the depths of years of co-dependence.
As the story ends, she has come to realize the girls in the group are capable of being real friends--something she hasn't had for a long while--and she is capable of making choices toward her own healing, the first of which is to seek and accept real help and to distinguish it from pleasing adults who are using her to assuage their own pain.
The story begins as an MRI technician assures Baily that "Contrary to popular opinion, . . . this is not a torture device." The test was ordered because her arm suddenly went numb and she suddenly lost most of her vision during algebra class. With no idea what's wrong, Baily speculates about the possibility of a brain tumor, about how disease will change her life, about early death. She is uncomfortable with her mother's cheery reassurances, which consist mostly of simple theories like the possibility that Baily was reacting to missing lunch, but wants them, nonetheless.
Since the pediatric wing is full, she is put in a room with an old woman for observation overnight. The nurse runs her through a series of highly irrelevant questions about her physical health from drug use to dentures. Then her mother is required to leave for the night. In the morning they take her for an EKG before her mother can get there; Baily returns to her room in a state of morbid conviction that she's dying, which is finally overturned when the doctor comes in to explain to her that she had a classic case of severe migraine.