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Someone

McDermott, Alice

Last Updated: Feb-13-2014
Annotated by:
McEntyre, Marilyn

Primary Category: Literature / Fiction

Genre: Novel

Summary:

Marie Commeford, daughter of Irish Catholic immigrants who grows up in Brooklyn, narrates her life story in episodes rich with reflection on the losses, failed fantasies, illnesses, and disappointments of a life at the edge of poverty, which is also rich with love and poetry and humor and the stuff of which wisdom is made.  The story unfolds as memory unfolds, in flashbacks and reconstructions shaped by a present vantage point from which it all assumes a certain mantle of grace.   From the opening story in which a neighbor girl slips on the steps to a basement apartment and is killed, to repeated glimpses of a blind veteran who umpires the neighborhood boys' street games, to the bereaved families Marie meets when she works for the local undertaker, to her gradual discovery of her brother's closeted homosexuality, and to her aging mother's death, the story keeps reminding us of how much of life is coming to terms with the "ills that flesh is heir to," and also how resilience grows in the midst of loss.  Because much of the story represents the vantage point of a child only partially protected from hard things, it invites us to reflect on how children absorb large and hard truths and learn to cope with them. 

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Immortal Bird: A Family Memoir

Weber, Doron

Last Updated: Feb-10-2014
Annotated by:
Schilling, Carol

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

Damon Weber's proud father, Doron, has written a searing memoir that enfolds a story of parental love and loss into a medical exposé. By the time Damon turned four, he had two open-heart surgeries to correct a congenital malformation that affected circulation to his lungs. His parents were led to believe that after the surgeries, their effervescent, sociable, academically and artistically talented son was set for life. However, as Damon turned 12, they became concerned about what his father calls "his unsprung height," his shortness of breath, and a strange protrusion in his abdomen (40). Returning to his attending physician, they were surprised that she withheld information from them about a condition known as PLE (protein-losing entropy), which can manifest months or years after the kind of surgery (Fontan) their son underwent. PLE enlarges the liver and allows proteins to leak from the intestines. Without adequate protein, Damon's body could not grow. His father worried that they might have passed the established window of opportunity to treat the complication.

The memoir, which reads like an extended eulogy to a beloved son, fuses scenes of family life with difficult medical decisions aimed at reversing the effects of PLE. However, none of the interventions succeed, leaving a heart transplant as Damon's last hope. As Weber recounts each decision leading to the transplant, he exposes flaws in the way hospital systems operate, in the way families are treated, and in the care provided by the medical team that lobbied to perform the transplant. Damon died after his transplant physician made herself scarce after misdiagnosing a post-operative complication, and an inattentive hospital staff ignored his parents' justifiable alerts to ominous symptoms. Scenes of the hospital staff waiting impatiently at the door to Damon's room to remove the machines sustaining and monitoring him, as his distraught parents say good-bye, are disturbing. When the Webers initiate a lawsuit, the transplant physician cannot locate Damon's medical records. The narrative fully absorbs Weber's sorrow and anger.

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Augustine

Winocour, Alice; Soko; Lindon, Vincent

Last Updated: Feb-07-2014
Annotated by:
Duffin, Jacalyn

Primary Category: Performing Arts / Film, TV, Video

Genre: Film

Summary:

Augustine, a fifteen-year old maid in a wealthy home, collapses with a seizure while she is serving an elegant dinner. When she recovers, she is unable to open one eye. She is transported to Salpetriere hospital in Paris under the care of the famous J. M. Charcot, neurologist and psychiatrist who is fascinated by the condition of hysteria. He uses hypnosis to suggest cures to his patients and to trigger attacks which he demonstrates to his colleagues. Augustine is particularly susceptible to fits under hypnosis and obliges her doctor with lewd, convulsive performances virtually on command.

After one such episode the paralysis moves from her eye to her hand. She says that she wishes to be cured, but life in the asylum is not terrible: she has a warm room and food; she no longer needs to work in a kitchen or serve demanding masters.  The doctor is clearly taken with her as a scientific subject. “Augustine est une patient magnifique,” he assures a colleague. He is personally intrigued by her too.

Finally, one day she announces that she is cured. When Charcot tries to hypnotize her for another demonstration, she does not succumb; however, a look passes between them. Taking pity on her doctor, she stages a seizure that satisfies the audience. Immediately after, she and the doctor have a single passionate encounter against a clinic wall, and then she runs away.

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The Last Eleven Days

Coe, Sue

Last Updated: Feb-03-2014
Annotated by:
Aull, Felice

Primary Category: Visual Arts / Painting/Drawing

Genre: Charcoal

Summary:

Artist Sue Coe's mother Ellen was 64 years old when she was diagnosed with terminal cancer. The artist and her sister went to Liverpool to be with their mother at home, since Ellen did not wish to spend her last days in hospice. Sue Coe documented her mother's last days by drawing her, producing the series, "The Last 11 Days: July 20th to July 31, 1995." In the first drawing, dated July 20 (first drawing, right side), Ellen was still at the hospice. The drawing concentrates on face and hand, which are also the main features of other drawings in the series. The hand is large and bony as it is brought to Ellen's mouth, which is partially covered by the hand. Ellen's eyes are wide open and express anxiety and fear.

In a drawing dated July 31 (last drawing, left), the last day of Ellen's life, the artist's face and hands loom large in the right foreground while in the left rear the mother lies in bed, a small thin figure, barely awake, mouth open, her large skeletal hands resting on the blanket. The artist's face is thoughtful, sad, resigned--her thoughts seem to be drifting.

Another drawing, dated July 29 shows the artist's sister cradling Ellen in her arms, supporting her head. The mother's eyes are closed and she appears peaceful, comfortable. Of this scene, Coe writes that her sister was "reading a Stephen King novel behind the pillow. That's the only way she could survive, reading a Stephen King novel that just made her mind go blank." (National Museum for Women in the Arts Magazine, Holiday, 2005, p.20)

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Arena

Moore, Frank

Last Updated: Jan-29-2014
Annotated by:
Aull, Felice

Primary Category: Visual Arts / Painting/Drawing

Genre: Oil on canvas

Summary:

This painting depicts what in some respects mimics an anatomy amphitheater, but the title, "Arena," tells us that what is going on here is more spectacle than instruction. Painted in 1992, early in the AIDS epidemic, when rapid decline and death from the disease was almost unavoidable, this complex artwork catalogs some of what was taking place in society at the time. A shaft of window light illuminates the center where a masked doctor is examining a Caucasian patient while a nurse, similarly masked, stands nearby. A large white plume of smoke or steam is emanating from the patient's head. The examination is being filmed and narrated.
 
In the lower right-hand corner a dark skinned patient attached to an IV is lying on a gurney. An attendant has his back toward the patient, whom he seems to be ignoring as he speaks with another white clad hospital worker. If one follows a diagonal from the ignored patient through to the central figures, toward the upper left, another patient, covered completely by a sheet and apparently dead, is being wheeled out of the arena. Adjacent to this scene are people seated cross-legged on the floor, listening to a speaker reading from a book while a Buddha floats above him. [According to art critic Klaus Kertess, the reader is poet John Giorno, "who instructed Moore in Buddhist practice" (Toxic Beauty, p. 11)]. In the lower left, a vendor wheels his cart, selling soda and sausages, adding to the carnival atmosphere. Just ahead of him an elderly woman holds a flattened out body in her arms.
 
To the upper right, police barricades and struggling policeman attempt to hold back a group of protesters carrying a sign saying "Who's in Charge?". In the upper center, two skeletons stand in front of a screen and hold banners bearing Latin inscriptions. An instructor is pointing to drawings on the screen - molecules and cell membranes. Other skeletons are positioned at the edges of the painting, also bearing banners, and in the lower center two skeletons stand in front of a fruit tree. One of these skeletons holds what seems to be a heart dripping blood. Several figures dressed in costume are posing or dancing. The curved rows of the arena are sparsely populated and include skeletons of various animals as well as two men who are injecting themselves in the arm. Robotic figures appear here and there in the painting.

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Patient

Moore, Frank

Last Updated: Jan-29-2014
Annotated by:
Aull, Felice

Primary Category: Visual Arts / Painting/Drawing

Genre: Oil on canvas

Summary:

A hospital bed, pale blue sheets and pillows, white snowflakes. Where there might be an individual nestling his head into the pillow, there is instead a small pile of autumn leaves. In the center of one of the leaves, a small metal-like pentagon. Other leaves flutter on the bed and a small bird is perched on the bed railing above the pillow. There is blood issuing from a needle that is lying on the bed and is attached through tubing to an inverted bottle containing blood labeled "Irradiated" and "Moore, 1997." The juxtaposition of pastel colors and snowflakes with the leaking blood is striking.

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Far From The Tree

Solomon, Andrew

Last Updated: Dec-20-2013
Annotated by:
Henderson, Schuyler

Primary Category: Literature / Nonfiction

Genre: Treatise

Summary:

The author of this long, compassionate and often startling treatise on identity interviewed over three hundred families to elicit stories about raising exceptional children, stories that also come from these exceptional children ('exceptional' is the term chosen to describe the children in the author's material about the book).

'Far From The Tree' explores the challenges children face in being raised in families where one prominent feature in their identity is forged by something out of their parents' control and generally not part of the family's experience until then. These identities are not 'vertical' (passed down from generations of parents to their children), but 'horizontal', springing up between those who share in that identity at any one time. Solomon begins by wondering about his own relationship with his parents when he was a child discovering his sexuality and ends with his own role as a father, 'the terrifying joy of unbearable responsibility' (702); between the two poles of his own experience, he meets parents and children who have experienced deafness, dwarfism, autism, schizophrenia, severe physical disabilities and diverse gender identities, prodigies, children who were concieved by rape and children who became criminal.  

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Annotated by:
Duffin, Jacalyn

Primary Category: Performing Arts / Film, TV, Video

Genre: Film

Summary:

Young, beautiful Caroline Mathilde (Vikander) writes a letter to her children explaining why they have been separated. A few years earlier in 1766, she was sent from her native England to Denmark to become consort to King Christian VII (Følsgaard).

Her hopes are dashed when she discovers that her regal husband is deeply disturbed and little interested in her. They manage to conceive a baby boy – and all further relations between them discontinue.

Dr. Johann Struensee (Mikkelsen) is a progressive, German physician, interested in helping the poor. His friends wish to curry favour with the monarch and sway politics. They believe that Struensee might be good for the King and good for them. He is recruited to the royal entourage.

The plan works well. Struensee is able to calm the king, who grows fond of and dependent on his physician. Under his influence, the king asserts his own authority and begins making progressive laws – banning torture, improving sanitation, outlawing biased financial practices for artistocrats. These changes displease some of the very people who had brought Struensee to court.

Worse, the doctor understands Caroline Mathilde and her loneliness. He is instrumental in a partial reconciliation between the queen and the king, but inevitably he and she fall in love. Their affair is an open secret at court. When she bears a daughter, the King recognizes the child, but everyone knows that the infant is not his.

Eventually the affair is used to bring down both Struensee and the Queen. She is sent into exile without her children. He is lied to, and brutally decapitated in 1772. Three years later, she writes to her children and dies of fever.

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Under the Skin

Faber, Michel

Last Updated: Dec-04-2013
Annotated by:
Ratzan, Richard M.

Primary Category: Literature / Fiction

Genre: Novel

Summary:

Isserley is an alien whose assignment on earth is to abduct male (preferably muscular and burly) hitchikers for their processing, in a subterranean area under a barn in Scotland where she and her fellow aliens are based, as farmed animals that are castrated, made mute by tongue-amputation and fattened up in pens like calves for their veal. After a few months, they are eventually slaughtered and butchered for meat and then transported back to Isserley's native land, which is portrayed as a dark, arid, unpleasant place where meat is a rare and expensive delicacy.

Vaguely canine in her original form, Isserley has had to undergo mutilating surgery to pass as a human whose day job is to drive on the A9 of Scotland picking up unsuspecting men and then, after sometimes quite interesting conversations, paralyzing them by flicking a switch that activates twin jets that come up through the front passenger seat injecting an immediately acting curare-like drug. Isserley then transports them back to the farm.

In constant physical pain from the surgery and the unnatural upright posture, and always questioning herself, her role on earth, her feminity amongst the otherwise all male alien workforce, Isserley falls in love with the earth's natural world (there are not oceans or lakes on her world), especially Scotland's lochs, rain, cloud and snow. Sheep hold a special place in her heart.

Amlis Vess, the son of the owner of the company that is selling earthmeat at exorbitant prices back home, shows up for an unnannounced site visit and curiosity since he is ideologically opposed to this killing of animals - he has no idea how sentient and intelligent earthlings are and this fact is carefully kept secret from him during his brief visit, which is also marked by his marvelling at earth's natural beauties and what appears to be an emotional or sexual attraction to Isserley.

After some rough handling by one of the hitchhikers who attempts to rape her, her troubling interactions with Amlis Vess, news that the police have taken notice of a missing hitchhiker and are conducting an investigation, and her discovery that there may be a replacement for her in the offing - Isserley decides to strike out on her own. The end of the novel is, although not shocking, not expected.

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The Way of the Physician

Needleman, Jacob

Last Updated: Dec-02-2013
Annotated by:
Coulehan, Jack

Primary Category: Literature / Nonfiction

Genre: Treatise

Summary:

Jacob Needleman, a philosopher concerned with "applying philosophy to the questions of everyday life," taught medical ethics at San Francisco State University (SFSU). In this highly personal book he addresses what it means to be a "good doctor" and the role of physicians in contemporary society. The book is structured as a series of imaginary letters addressed to his childhood idol, the physician who treated him when he was 12 years old.

The aged Dr. Kaufman responds to these letters, although we see only the philosopher’s side of the correspondence. Toward the end of the book, Needleman makes a pilgrimage to Philadelphia to visit his ailing mentor. They talk for a while, then when the old man takes a nap, Needleman spends the rest of the day conversing with Dr. Kaufman’s daughter, a pediatrician who in some sense represents the "good" medicine of the future, just as her father represented the "good" medicine of the past.

In these letters the author addresses the deep questions of character and motivation in the form of a personal narrative. He recalls his experiences as a boy, his ambition to become a doctor, and several incidents from his life as an autopsy assistant and hospital orderly. For example, there is the bizarre story of the young man transporting an amputated leg by elevator; he accidentally drops the leg to the floor and the wrappings flip open, much to the astonishment of others on the elevator.

"People don’t trust science; people trust people." (p. 15) Similarly, Jacob Needleman writes, people don’t trust or distrust medicine as an institution; they trust or distrust doctors. "To be a good doctor, one must first of all be a good (person). And to be a good (person) one has to begin by discovering in oneself the desire for truth . . . truth is the only effective force." (p. 68)

To facilitate this quest for truth, Needleman describes in these letters a four-seminar sequence he teaches at SFSU: "To whom is the physician responsible?," "The art of living and the art of medicine," "Care," and "The financial disease of modern medicine." (pp. 71-72) Through these seminars the author hopes to re-awaken in prospective physicians the quest for truth, and the possibility of care, that he believes have been submerged by technology and infected by the financial disease. Dr. Kaufman’s daughter serves as a real-life example of the possibility of cultivating the contemporary version of the "good doctor."

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