Showing 501 - 510 of 681 annotations tagged with the keyword "Illness and the Family"
Summary:This multimedia online documentary is an essay on the ecstasies and agonies of longevity, researched and composed by photojournalist, Ed Kashi and reporter, Julie Winokur. The site consists of written and audio commentaries and a number of short slide shows. The documentary is divided into six segments, each of which is a complete "essay" in itself: Introduction: Julie Winokur on aging; Part 1, Youth in age: The spirited side of longevity; Part 2, Sentenced to life: Growing old behind bars; Part 3, Helping hands: New solutions for elder care; Part 4, Vanishing heritage: Tribal elders face modern times; and Part 5, Surviving death: Losing a mate with dignity.
This memoir is DeBaggio's first-person account of his early experience of Alzheimer's disease and its effect on his life and the life of his family. The book is a collection, in loosely narrative form, of the author's diagnosis of early-onset Alzheimer's; brief excerpts from his journal; excerpts from the medical literature on the disease; and memories from his past that he wants to commit to paper before he can no longer recall them. He documents his struggle simply to write the book, as it becomes more and more difficult to sustain thoughts or find the words to express what he wants to say.
Written by a medical historian who is also a physician, The Breast Cancer Wars narrates how breast cancer diagnostic methods and treatments have developed from the early twentieth century. More significantly, the book describes the debates and controversies that permeated this evolution and the ways in which not only clinicians and researchers, but, increasingly, women patients/activists shaped how we view, diagnose, and treat breast cancer today.
Individual chapters explore the influential (and ultimately contested) radical mastectomy procedure of William Halsted, the development of the "war" against breast cancer as a full-blown campaign developed and conducted within the public media and consciousness of the United States as well as within medical practice and research, the intertwined development of feminism and breast cancer activism, the "fall" of the radical mastectomy, and the continuing controversies surrounding mammography and genetic testing as modes of early detection and risk assessment. Lerner draws on a range of primary sources including texts from the archives of the American Cancer Society, the papers of doctors and patients, and advertisements from popular and professional magazines throughout the century.
In a mountainous village in Spain, a man in the prime of his life has labored fifteen years constructing a museum of miniatures that no one has yet seen. Just before completing his project, the artist Gregorio has an accident and both his hands are terribly crushed by a piece of marble. There is little hope that he will ever regain complete use of his hands.
Gregorio is treated by the town's elderly physician, Dr. Xavia. The doctor narrates the story and also dreams about the contents of the mysterious museum. One day Dr. Xavia finds that the door to the museum is unlocked and has been open all along for anyone wanting to enter it. The doctor discovers that the three story building housing the museum contains a complete and perfect recreation of the village that he finds both familiar and strange.
This collection continues the work of mourning that characterized Hall's collection, Without (see this database). Hall's wife, poet Jane Kenyon, died of leukemia in 1995, at age 47. Hall, considerably older than Kenyon, was married to her for more than 20 years; they wrote their poetry at home, in the farm house that he inherited from his family. The painted bed of the book's title is their marriage bed, as well as the sick bed where Hall nursed Kenyon, and the bed in which she died.
The book is divided into four sections. The first is a six-page poem, "Kill the Day," a detailed rendering of the huge absence so present in Hall's daily activities during the month and even years following his wife's death. The poem is rich with expressions of loss and the daily effort to continue living, and, as time passes, the need to remember a fading presence. "When she died, at first the outline of absence defined / a presence that disappeared." "There was nothing to do, and nothing required doing." " . . . her pheromones diminished. / The negative space of her body dwindled as she receded . . . ."
The second section, "Deathwork," is a series of short poems about the final period before Kenyon died--during which Hall and Kenyon both knew that she was dying--the period after her death, Hall's recollections of earlier times together, the painful process of disposing of Kenyon's belongings ("Throwing the Things Away"), of letting her garden go untended, of "letting go" ("Her Garden," "The Wish"). There are many striking lines: "You think that their / dying is the worst / thing that could happen. / Then they stay dead." ("Distressed Haiku") "Now I no longer . . . call her 'you' / in a poem" ("Ardor"), and, indeed, Hall in this book refers to his dead wife as "she," and "Jane," in contrast to the direct address he used in Without.
Section 3, "Daylilies," is a long (13 page) chronicle of life in the family farm house, reflecting back to Hall's childhood and moving forward to his adult ownership of the house. This poem evokes the life cycles of nature, the march of generations, the repetition of birth and death, the farm house in New Hampshire as a microcosm of the universe, and seems to mark the beginning, in Hall, of some renewed joy in life. In the final section, "Ardor," Hall writes of re-awakened sexuality.
This collection of poems chronicles moments of felt experience in the writer's life before and after her diagnosis of ovarian cancer. Starting with a memory of a carefree childhood lived in an era when streets were sanitized with DDT, and a poem entitled "The Body is the Repository of Memory," the poems move freely from close-ups of moments in the hospital or grieving at the waterside to wide-angle views of a life that has been and still is normal, worth living, pulsing, albeit a bit more irregularly, with creative energies.
Cumulatively the poems explore the paradox that illness (and a terminal prognosis) changes everything and also, but for the shadow it casts, changes very little. "Still," she writes in a final line, "my wild heart beats." The poems are interspersed with prose-poems that shift the focus toward the writer's reflections upon the project and circumstances of creating this "memory board"--a term borrowed from the Luba people of Africa, who bead boards that represent memories to pass on as visible legacies of lives they believe worthy of being remembered.
Summary:Premiering on November 11, 1985, An Early Frost was the first television film to deal with the subject of AIDS. It tells the story of Michael Pierson (Aidan Quinn), a young and successful Chicago attorney who is gay and who is stricken with AIDS. After being hospitalized, Michael goes home to break the news of both his devastating illness and his sexual orientation to his parents (Gena Rowlands and Ben Gazzara). They must not only come to terms with their son's impending death but also with their own prejudices concerning homosexuality and their own ignorance concerning this disease.
This film was inspired by the true story of mathematician John Forbes Nash, Jr., who was one of three Nobelists celebrated in 1994 for their work in game theory. The film is driven by the agonizing conflict between Nash’s mathematical brilliance and the paranoid schizophrenia which almost destroys both his career and his marriage to Alicia Larde (Jennifer Connelly). The film shows Nash (Russell Crowe) as obsessed and, in schizophrenic episodes, delusional and occasionally violent. He undergoes 1950s insulin shots and later is on and off pills that seem to take away his brilliance along with his schizophrenia.
Late in the film he is off medication and says, in effect, that he has decided not to be deluded by delusions. The film ends with a triumphant series of scenes around the Nobel Prize, including the tribute of his colleagues at Princeton’s Institute for Advanced Study and Nash’s emotional Nobel acceptance speech at Stockholm expressing his gratitude to his wife for standing by him.
Born breech and deprived of oxygen for two hours, Irish poet and writer Christopher Nolan was diagnosed with cerebral palsy and is unable to speak and virtually unable to move voluntarily. His book, subtitled "The Life Story of Christopher Nolan," is narrated as a third person account of the life of "Joseph Meehan." The memoir opens with Meehan's winning the British Spastics' Society Literary Award for his first book of poetry, Dam-Burst of Dreams (1988) and ends with his last day at Trinity College, having turned down the invitation to continue his studies there towards a degree.
In the mixture of linear, traditional life narrative and lyrical, neologistic description that falls in between, the memoir addresses Meehan's birth, early life, education, and growing acclaim as a poet and writer. It recounts how his family and teachers helped develop a combination of medication, tools (a "unicorn-stick" attached to his forehead), and assistance that allowed him to type.
It details, above all, how various family, friends, and health and education professionals advocated Meehan's special-school and mainstream education and made available to him such normative life experiences as riding a pony, boating, fishing, skipping school with his mates, and going on school trips without his parents--and such unusual life experiences as becoming an award-winning writer.
Willa Jo and her little sister have been sent to stay with their aunt after the sudden death of their baby sister. Their aunt found them and their mother living in general squalor in the days after the baby's death, the mother in a state of serious depression. Willa Jo, the eldest, tries to cooperate, though she misses her mother and finds her aunt overly controlling. Her little sister has responded to the baby's death by ceasing to speak, and Willa Jo has the added burden of trying to speak for her and shield her from the pressure others put on her to speak.
As the story opens, the two girls have climbed onto the roof one morning, and are staying there, much to the distress of the aunt and several neighbors. As she sits there surveying the landscape, Willa Jo reflects back on the weeks since the death, giving the reader in flashback a chronology that combines both tragic and comic moments of coping with trauma and change.