Showing 481 - 490 of 520 annotations tagged with the keyword "Disability"
Summary:A father whose child is born with a brain hernia tries to flee his responsibility for the child. In his shame, fear, and confusion he turns to alcohol and an old girlfriend and also agrees to give the child only sugar-water. The child wills to live, however, and finally the father, who has deserted others during his lifetime, realizes he cannot desert his son. He allows the surgeons to operate even though the child's future is uncertain.
Summary:A woman who works at a rehabilitation center for the blind reflects on the deaths of the people around her, clients as well as patients. She recounts the reaction of the staff to the death of a well-loved employee of the center whose name the narrator doesn't recognize. As she assists the blind clients at the funeral home, she suddenly realizes she did know the dead woman, but never had known her name. The narrator reflects on how a sight-impaired friend of hers, Vange, approaches life with supreme attentiveness, and never misses any details. The colleague's funeral reminds the narrator that living means being more like Vange.
Allison Shandling is a bright 14-year-old with an autistic twin brother, Adam. She has spent her life being the "good" child, accommodating to her brother's idiosyncratic behavior, learning to weather public curiosity, support her parents, and not cause them further anxiety.
When her parents decide to reconnect with a religious community, she finds that one of the school bullies is the rabbi's son, Harry. He teases her mercilessly about her brother, especially after his father, the rabbi, takes Adam under his wing and tutors him for his bar mitzvah. When Harry is paralyzed from the waist down in a sporting accident he retreats even further into bitterness, but Allison finds herself drawn to him nevertheless.
Against her own "better judgment," she pursues a friendship with Harry, learns that the source of much of his anger lies in the death of his mother and his father's distance, and that the two of them share a sense of being marginalized in families where other critical needs have overshadowed their own very ordinary needs. Eventually friendship blossoms into a first romance as well as inciting both to initiate new conversations with their parents.
Geek Love is the saga of a traveling carnival, the owners of which try to save it from financial failure by using ingested chemicals and toxins to create the birth of amazing freaks for the show. The outcome is a family that is both proud and vain about its specialness. The narrative unfolds the intricacies of greed and jealousy that tear the family asunder, resulting in the deaths of some members, the madness of others, and the escape of one.
It is Olympia, the hunchback albino dwarf, who lives on to tell the story of the Binewski clan. Central to the heyday of the carnival is Doc P, a physician of questionable credentials who performs bizarre operations in the traveling hospital that moves with the carnival. The story moves relentlessly toward a climax and denouement that is sufficiently unimaginable to be consistent with the cast of characters.
In a South American town during the early years of this century, a retired doctor long known as an eccentric flatly refuses treatment to victims of a riot. Years later, the doctor hangs himself. For the vengeful town, the issue becomes whether he will receive a proper burial or be allowed to rot in the house where he had lately secluded himself.
This issue becomes the focal point of recollections, from many points of view, of fragments of the doctor's bizarre history. An old military man, who was originally the doctor's sponsor and host, braves the town's anger and forces his family members to help him carry out the burial. As it turns out, no one remembers the outrage apart from a few town officials, and the burial takes place without incident.
A middle aged woman goes backpacking for the first time in 14 years after losing her leg in an automobile accident. As she recounts the excursion, with its difficulties and exhilaration, she reflects on the ways her life was changed by losing her leg, and the emotional journey she has taken since the accident. She concludes by thinking about how to find power despite her vulnerability, how to adjust and accommodate, but never compromise.
A woman, Rose, describes her childhood during the depression as she struggled with issues of her own identity and her jealousy toward her younger sister, Sophie, who suffers from cerebral palsy and seizures. Rose watches as Sophie is born, as her parents argue, as Sophie is held closely by their mother during her seizures, and as Sophie is given two birthday parties each year. She fantasizes about how life might be if her sister were dead, and imagines her sister hanging from a rack like the animals at the slaughterhouse. Finally, she discovers that Sophie actually needs her and loves her.
Summary:In this collection, sixteen writers (including the editor, in her introduction) recount the deaths of one or both of their parents. They explore a wide range of questions: about the relationship between parents and their children, about the inevitability of the loss of that relationship (if it is lost in death, for, as the editor asks, "is the death of a parent really the end of the relationship?" [p. 2]), and about the conflicts that arise between the necessary separation that comes with adulthood and the complex ongoing attachments which in these stories enrich, haunt, inform and in many ways determine the lives of the tellers.
This is the second of 13 short autobiographical pieces in the book, Naked. In it, Sedaris describes, in vivid and humorous detail, the obsessive compulsive behavior that plagued his life from grade school into college. From licking every light switch encountered, to counting each of "six hundred and thirty-seven steps" on the way home from school, "pausing every few feet to tongue a mailbox" and having to retrace his steps if he lost count, Sedaris was compelled to " . . . do these things because nothing was worse than the anguish of not doing them."
Each year, a teacher called on his mother to discuss the strange tics. His mother took his behavior and these visits in stride: "The kid's wound too tight, but he'll come out of it. So, what do you say, another scotch, Katherine?" "She suggested my teachers interpret my jerking head as a nod of agreement. 'That's what I do, and now I've got him washing the dishes for the next five years.'"
Life became more complicated when Sedaris entered college and had to contend with a roommate. There are amusing descriptions of the elaborate stratagems that he devised to conceal or explain the tics. Finally, "my nervous habits faded about the same time I took up with cigarettes . . . more socially acceptable than crying out in tiny voices."
This book is a series of essays about the illness experience. The author developed chronic fatigue syndrome (CFS) after a viral illness in 1988. Suddenly, this 41-year-old public policy analyst, who was also a successful writer and a competitive runner, was thrust into the world of severe disability. He developed subtle but extensive neurological deficits that affected his concentration and memory. For months he could hardly get out of bed. He discovered that not only was the cause of CFS unknown, many physicians did not even believe it was a "real" illness.
"Double Blind" tells the story of Skloot's participation in an ill-fated clinical trial of Ampligen, an experimental treatment for CFS. Other essays describe the author's experience with alternative medicine, including an intensive course of Ayurvedic "detoxification" ("Healing Powers") and a visit to Germany to encounter Mother Meera, an avatar of the Divine Mother ("Honeymooning With the Feminine Divine").
"Home Remedies" presents his comic experience with helpful calls and letters telling him how to get rid of the illness. Other essays deal with Skloot's learning to cope with chronic disability. A final section includes poems about the illness experience of several composers and artists (e.g. Carl Maria von Weber, George Gershwin, and Vincent van Gogh).