Showing 461 - 470 of 523 annotations tagged with the keyword "Disability"
Anne Finger, a writer and disabled activist whose childhood polio left her with a disability, tells the story of her pregnancy, her birth experience at home and in the hospital, and the serious health problems her newborn son experienced.
Dr. Pensack writes in the first chapter of his memoir: "Through a lifetime I have been in the process of dying, consistently surprised when reminded that life is appallingly brief, and briefer still for me. The prospect of an early death has amounted to little more than embarrassment and loneliness, even though the routine of living can be, and usually is, just one goddamn thing after another. A new heart was somehow supposed to be my bloody-red carpet of victory." (p. 7)
At age 4, Pensack's mother died of IHSS, Idiopathic Hypertrophic Subaortic Stenosis--now known as HCM, Hypertrophic Cardiomyopathy, a genetically inherited, progressive disease of heart muscle that results in early death. At age 15, Pensack receives the terrible news of his own fate--the disease afflicts both Pensack and his older brother--and thus launches a life of near death experiences, numerous hospitalizations, early experiences at the National Institutes of Health with early investigators of the disease, pursuit of his own medical training and eventual specialty training in psychiatry, marriage and children, and ultimately, the waiting and eventual transplantation of a younger man's heart into his chest at the University of Colorado Health Sciences Center when Pensack was 43.
Raising Lazarus tells of Pensack's journey through much of this, including his descent into madness, his fury and anger with medical colleagues, his poignant relationship with the heart surgeon who eventually performs the transplant, and the importance of his family in his refusal to die. While much of the book tells of the events leading to the transplant and post-operative period of Pensack's life, the reader learns of Pensack's early losses, including the death of his mother, and how these experiences shape the values of a gutsy and determined survivor, a man who continually returns to the struggle.
The narrator, a cultured, educated man who happens to require a wheelchair, describes the start of his relationship with Marcia, who is beautiful, refined, and equally well educated. The narrator tries to impress Marcia with his personality and intellect, and the sparks between them are obvious. But all the while he grows more frustrated and embarrassed at the lack of accessibility of toilet facilities during their date. He argues that his disability should not diminish his capacity to conduct a normal conversation and that getting access to toilet facilities should not necessitate a public discussion of his need to urinate.
Charlie Gordon is a young man with an IQ of 68 who has a job at a box factory and attends night classes in an effort to improve himself. A (very fictional) experimental brain operation becomes available that promises to triple intelligence (it has already done so for a mouse named Algernon), and Charlie excitedly decides that he wants to give it a try. The story consists solely of Charlie's diary entries from the time he hears about the operation through the operation and his dramatic increase, and subsequent decrease, of IQ.
Charlie's increased intelligence opens up to him the understanding of everyday things that had been beyond his grasp, and at his peak he soars to the level of genius, ironically identifying the flaw in the scientific work of the two scientists who developed the operation he has undergone, and thus destroying their careers as their shallow research destroys the life that had been his.
Among the everyday things Charlie understands for the first time is the fact that two of his male co-workers have regularly taken advantage of his retarded state to make fun of him, sometimes roughly. Charlie also becomes self-conscious more generally, which makes it impossible for him to stay in the place where he has been so degraded, even after his formerly misbehaving pals become sympathetic.
At the end of the story he has fallen back to his original level of intelligence--and may continue to decline, if we take the suggestion from the fate of his fellow subject, Algernon, who rises, falls, and then dies. Charlie has only a dim memory of having done something important. His self-esteem is strong, however, and he decides to leave his familiar world and find a place where people won't know about his embarrassment.
Izzy, a popular, active cheerleader, happily accepts a date with an attractive senior she doesn't know well, flattered to be noticed by him. At the party her date drinks too much, insists on driving her home anyway, and smashes the car into a tree. Marco suffers only surface wounds, but Izzy's leg is crushed and has to be amputated just below the knee.
During her weeks in the hospital Izzy finds that not only is her whole physical orientation to the world required to change--she suddenly sees every path in terms of obstacles--but her relationship to family and friends changes, too. Her three closest friends begin to avoid her, uncertain what to say or how to include her in their plans. In the meantime Rosamunde, a marginal classmate whose slightly unkempt appearance and quirky behavior makes her entertaining, but excludes her from the "in" crowd, moves into Izzy's world with curiosity, frankness, inventive amusements and a steady, if offbeat compassion.
In her impassive and demanding African American physical therapist Izzy discovers another unexpected source of comfort on terms she doesn't at first recognize as kind. As the story ends, Izzy is back at school, finding her way into a new, more challenging relationship to her body and her peers, and a friendship with Rosamunde unlike any she's known before.
It is the year 2021. The last birth recorded on earth occurred in 1995 (Year Omega). In England, Xan Lyppiatt is Warden; he promises security, comfort, and pleasure to his people. Xan's cousin, Theo Faron, Ph.D., retired professor of history at Merton College, Oxford, becomes involved with 5 people who oppose Xan's worst policies: the Quietus ("voluntary" mass suicides of the elderly), the sending of all criminals to the Man Penal Colony where there is no one to control cruelty, the rules forbidding Brits from traveling abroad and allowing only Sojourners (slave/workers) to emigrate, the compulsory testing of sperm and routine examinations of healthy women, and state-run porn shops. Theo and the 5, one of whom is pregnant, flee to avoid capture by Xan's men.
Summary:A mother reflects on her life in the country and on her son who has a seizure disorder. She is nervous about allowing him outside to play because it is hunting season, and because she is worried he may have another seizure and get hurt. She seeks to balance her need to protect her son from harm with his need to grow up as normally as possible.
Summary:The author describes her experience of growing up with hearing loss. In this excerpt, she describes herself as a six year old orphan who is being raised by two aunts. Young Frances tries to hide her hearing loss from her aunts because she is afraid they will recognize that she is inferior or useless and get rid of her. She invents an invisible friend who chooses to hear what he wants to and who doesn't feel ashamed of this disability.
Mrs. Seaver writes about what it is like living in a nursing home. She writes cogently about the attitudes and behavior of staff, loneliness, lack of privacy, and her day to day experiences as a disabled 84 year old nursing home resident. The contrast between her former life and still-evident wit and intellect, and the way she is treated and diminished in her current environment is profound.
Doctor Marigold, named for the man who delivered him, is a "cheap-jack" who hawks sundries from a traveling cart he inhabits with his wife and his daughter Sophy. The mother beats Sophy, but Marigold, feeling powerless, does nothing to stop her. When the child dies of a fever, her guilt-wracked mother commits suicide.
Doctor Marigold's lonely fortunes reverse when he adopts a deaf and mute girl whose mother is dead and whose stepfather, owner of a traveling circus, beats her. Marigold acquires the child for three pair of braces (suspenders), names her Sophy, invents his own system of sign language to teach her to read and converse with him, and finally sends her to a "deaf-and-dumb establishment" in London to complete her education.
When Sophy falls in love with another student, her father encourages her marriage, while feeling it as a terrible loss. Sophy writes him of her baby's birth and of her fear that the child will be deaf. The story culminates in Sophy's return and Doctor Marigold's realization that his granddaughter can hear.