Summary:

It was valuable to me that the friend who recommended this book also suggested that I avoid any hint of its content (including the Library of Congress's classifications on the title page), advice I would pass on to anybody scanning this before reading the novel.  Set in England, in the 1990s, this is the story of Kathy H.  She is currently a carer, providing support for donors at various stages in the donation process, before eventually becoming a donor herself.  As she travels across England to the different sites where her donors are recuperating, she thinks back to her schooldays and her friends, Ruth and Tommy.

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Witty Ticcy Ray tells the story of Dr. Sacks’s treatment of a 24-year-old man with disabling Tourette’s syndrome. The first half of the essay is mainly medical-historical, with some technical language. When Sacks first tries treating Ray with a minute dose of Haldol, Ray finds that even that low dose too effective. It breaks up the rhythms that have determined his life since the age of 4, and he doesn’t like it. Later, a second trial using the same dose succeeds, Sacks believes, because Ray had by that time accommodated mentally to a change in self-image.

Still, over time Ray missed his old wildness and speed, and he and Sacks agree on a compromise: During the week, Ray takes Haldol and is the "sober citizen, the calm deliberator." On weekends, he is again "’witty ticcy Ray,’ frenetic, frivolous, inspired"--and a talented jazz drummer. This, according to Ray, offers Touretters an acceptable artificial version of normals’ balance between freedom and constraint.

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The story is told by a man living in "the drooling ward," part of a California mental institution. The narrator has been in the ward over 25 years; he helps feed and care for the others. He calls himself a "feeb"--feeble minded--but believes himself to be better than the droolers and certainly better than the stuck-up "epilecs" who though they seem normal throw such terrible fits. He feels as if he could get released from the hospital at any time, but he would rather stay. He tells of the two times he left the hospital. The first time, he was adopted by a couple that ran a ranch. He was forced to do many chores and the man beat him. He snuck off and returned to the home. The second time, he ran away with two "epilecs," but they were hungry and afraid of the dark so returned.

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This video brings together influential voices in disability rights and disability studies to document an emerging disability culture. A mix of performances, interviews, dramatic readings, and activist footage, Vital Signs features well-known disability rights advocates, poets and performance artists, and disability studies scholars.

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In this sonnet, the speaker meditates on the fact that he has become blind (Milton himself was blind when he wrote this). He expresses his frustration at being prevented by his disability from serving God as well as he desires to. He is answered by "Patience," who tells him that God has many who hurry to do his bidding, and does not really need man’s work. Rather, what is valued is the ability to bear God’s "mild yoke," to tolerate whatever God asks faithfully and without complaint. As the famous last line sums it up, "They also serve who only stand and wait."

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This is a long (110 lines) narrative poem about the poet’s wife’s cancer, "large, rare and so anomalous / in its behavior that at first they mis- / diagnosed it." At first the poet personifies the cancer, then he demonizes the chemotherapy. He describes Tumor Hell and Tumor Hell Clinic, which "is, it turns out, a teaching hospital. / Every century or so, the way / we’d measure it, a chief doc brings a pack / of students round." Back on earth, his wife’s cancer is gone.

"This must be hell for you," some of his friends said. He reflects on the meaning of Sartre’s hell (created in Sartre’s own image) and Dante’s hell (created in his city’s image), and he considers the tumor’s name. He concludes that his wife should "think of its name and never / say it, as if it were the name of God."

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Woolf wonders why illness "has not taken its place with love and battle and jealousy among the prime themes of literature." After all, illness is a consuming personal experience that brings about great "spiritual change." Why do we write only about the mind and ideas? Why not the body?

Woolf takes us through the experience of lying in bed ill; the world looks different, feels different, is different. "It is only the recumbent who know what, after all, Nature is at no pains to conceal--that she in the end will conquer." Toward the end of this short essay, Woolf discusses how illness changes our reading habits. We turn to poetry, instead of prose.

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The old sit "on the porch in rockers / Letting the faded light / Of afternoon carry them off." The narrator visualizes them mulling over the past as they rock back and forth. Although the old people cover "ground / They did not know was there," they learn nothing new in this. They receive no redemptive message, not even "a reason / To make it seem worthwhile." In fact, evening comes and soon it will be time for them to go to their solitary beds and fall into the "sheepless / Pastures of a long sleep."

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Aurelio Escovar is introduced as a poor dentist without a degree. He is busy polishing false teeth early one morning when the mayor arrives to see him. At first he refuses to see this would-be patient, until the mayor, who has been suffering severe toothache for five days and is desperate, threatens to shoot him. Eventually the dentist lets him in, examines him, and then removes the infected wisdom tooth, without anesthesia.

We realize that the dentist has deliberately made the mayor suffer all this time, and he gives the reason as he pulls out the tooth, saying "Now you’ll pay for our twenty dead men." When the mayor has recovered and wiped his tears, he leaves, telling the dentist to send the bill. When Escovar asks whether to send the bill "To you or the town?," the mayor replies, "It’s the same damn thing."

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In 1996, at the age of 31, David Biro is preparing for his specialty examinations in dermatology and is set to share a practice with his father. But he develops a visual disturbance. After repeated testing, he is found to have the rare blood disorder of paroxysmal nocturnal hemoglobinuria. The diagnosis was problematic, but the treatment choices are overwhelming. His youngest sister is a suitable donor, and he opts for a bone marrow transplant. He realizes that his decision was influenced not only by the diagnosis, but also by his personality and his reaction to the physicians.

Advance preparations are hectic and sometimes comic, especially his deposits at a local sperm bank. The pain of the transplant and the six weeks imprisonment in a small hospital room are told in graphic detail. The athletically inclined doctor suffers many complications: exquisitely painful ulcers of the scrotum, mouth, and esophagus; inflammation of the liver; unexplained fever; drug-induced delirium; weakness and weight loss.

His parents, sisters and friends leap into action to provide round-the-clock presence, but his independent wife, Daniella, resents the invasion. While David’s body is wracked with drugs and radiation, his family and his marriage are subjected to destructive forces too. Yet all--body, family, and marriage--emerge intact, though changed, by their experience.

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