Showing 351 - 360 of 523 annotations tagged with the keyword "Disability"
This is a collection of 22 contemporary first-person accounts by survivors of a wide range of life’s woes--some medical, some social, and most of them at least partly emotional. The challenges the writers have faced are too numerous to represent individually in keywords, but they include incest, colonialism, disfigurement, adultery and divorce, obsessive-compulsive disorder, bone marrow transplant, and the death of family members.
All of the authors are writers, a handful of them well-known, and virtually all the works collected here have been published before. They are unified, to use the editor’s words, by the idea that "lifewriting is a passage through grief to knowledge" (she might have added "and to healing").
Fifteen selections--short stories, essays, and memoir--make up this collection. Two stories are notable: The Whistlers' Room and Atrium: October 2001 (see annotations). The title story is a translation and retelling of an obscure German tale published 75 years ago. Set in a military hospital in Germany during World War I, four soldiers share a common wound--throat injuries and laryngeal damage necessitating a tracheostomy for each man. This remarkable quartet of patients forges a fellowship of the maimed.
"Atrium: October 2001" describes the random meeting between a physician and a terminally ill teenager in the hospital atrium. The subject of death dominates their discussion. "Parable" chronicles an elderly doctor's efforts to comfort a dying man, and in the process, ease both their suffering.
Excerpts from Selzer's diary reveal much about the character of the author as well as the characters in his life. He also reminisces about growing up in Troy, New York. Approximately one-quarter of the book is devoted to Selzer's musings on works of art (sculpture and painting). Lighter fare includes a discussion of life behind the podium, a description of his home, and a new ending for A Tale of Two Cities by Charles Dickens.
"Spell Check for a Malformed Fetus" (p. 1) sets the stage for some of the important themes in this collection by poet-psychiatrist, Ronald Pies. First, the lack of honest language to express life’s "mistakes" and disappointments. Our attempt to disguise the pain by using easy, but inaccurate, words. And finally, an expression of hope, even if only in the world of imagination: "if only / in your first fission / some godly processor / had blessed / your blighted genes."
Some of these poems emerge from relationships with patients, notably "Consultation Request" (p. 35), "Three Patients" (pp. 37-39), "Prolapse of the Uterus" (p.76), and "Congestive Heart Failure" (p. 85). "Smoke, Lilac, Lemon" (p. 45) evokes a fascinating test apparently used by some clinicians to distinguish depression from Alzheimer’s disease on the basis of olfactory function. The four "Alzheimer Sonnets" (pp. 87-88) tackle the difficult task of expressing the experience of dementia from the patient’s point of view.
Many of the other poems deal with love, memory, loss, and pain in the context of family and intimate relationships. Among the best of these are: the title poem (p.3), "Sitting Shivah" (pp. 14-15), "Riding Down Dark" (p. 16), "Visitant" (pp. 41-43), and "Migrations" (pp. 64-69).
What will the members of an isolated community do to attract a doctor? What won't they do? Ste-Marie-la-Mauderne is a microscopic fishing village on the rocky north shore of Quebec, just where it meets Labrador.
The fishery is declining, people are leaving, and the welfare payments, doled out by the pretty postmistress, Eve (Lucie Laurier), are humiliating. Ste Marie wants to diversify. All it needs to attract a plastic-bottle factory is a bribe of $50,000 and a doctor. They get a lucky break when a Montreal cop, who hails from Ste-Marie-la-Mauderne, stops the speeding plastic surgeon, Dr. Christopher Lewis (David Boutin), on his way home from a cricket match.
Now, the village has one month to convince the worldly young man that he wants to stay forever. The mayor, Germain (Raymond Bouchard), and several friends set out to make Dr. Lewis feel as welcome as possible. They embark on a collective effort to teach the francophone fishers how to play cricket. They flood the clinic with bogus ailments, they take Lewis fishing, they charm him with five dollar bills left nightly by a garden gnome, they force themselves to listen to incomprehensible jazz, and they bug the doctor's telephone to ascertain his tastes and commitments, broadcasting the intimate details of his faltering relationship with sultry Brigitte back in Montreal.
Eventually, Dr Lewis splits up with Brigitte, because she has been "dishonest" and he chooses to stay in Ste Marie because they are "genuine." The crisis arises near the end, when the townspeople realize that in order to keep Dr. Lewis for any time at all, they must own up to the charade of deception and offer to let him go.
David tells the apparently fairly simple story of two young friends feeling their youth, their growing friendship, and their love for the mountainous outdoors of rural Canada. The narrator, unnamed until nearly the end of the poem, falls under the charismatic spell of David, the leader and more experienced climber of the two.
After introducing us to David, the narrator describes a particular climb they had been anticipating for months. During the ascent, the narrator slips. David saves him and then slips and falls himself, landing many feet below on a jagged rock that has broken both his fall and his back, leaving him paralyzed. David asks his friend to push him over the cliff citing paralysis as no way for someone like himself to live, i.e., in a wheelchair. The narrator acquiesces.
Four soldiers with a similar wound--laryngeal damage after being shot in the throat--share a room in a German military hospital during World War I. Each of them has a tracheostomy tube, and they can only speak by covering the opening of the tube with a finger. Because every breath or laugh generates the sound of a little whistle, these men are dubbed "whistlers" and their hospital room is named after them. The injured soldiers are Pointner, Kollin, Benjamin, and an 18-year-old English prisoner of war, Harry Flint. They undergo a series of painful surgeries (without anesthesia) to dilate the narrowed and scarred air passage.
The surgeon, Dr. Quint, is a compassionate man with incredible physical strength. He holds the "whistlers" in high regard. They in turn venerate the devoted surgeon. Pointner and Kollin die. Surgery on Benjamin and Harry is successful and their tracheostomy tubes are removed. They can now breathe normally and soon discover their new voices.
Just as the new plague that will eventually become known as AIDS begins to exact its toll on the gay community, William and Terry slide somewhat unintentionally into a committed relationship, complete with a dog. Terry has issues with the modest size of his penis; being "married" absolves him from performance anxiety.
Almost equally furtive, William has inherited polycystic kidney disease from his mother and is on dialysis, with the severe dietary restrictions and merciless thirst that it entails. William professes to Terry that size doesn't matter, but he indulges in elaborate fantasies about Peter Hunter, a well-endowed star of porn magazines; he becomes an obsessive collector of Hunter's work.
Terry and William are insulated by their singular bond from the havoc of AIDS, but William finds himself compelled to hunt the stigmata of that disease in photos of the exposed and hidden portions of Hunter's anatomy. When he realizes that motorbike riders are prone to becoming organ donors, he cultivates a fascination with their behavior and their machines, following them in his car and tracking statistics. Finally, a matched biker kidney is found for William, but the immunosuppressive drugs, which are given to help him tolerate the transplant, make him very ill. He is admitted with opportunistic pneumonia, ironically, to an AIDS ward.
More than once William says, "I went to sleep next to someone I knew and I woke side by side with a stranger," The book closes with a surreal dream-like sequence, as William takes leave of his lover. It could be continued life, readjusted by this brush with mortality toward a bold new freedom. On the other hand, it could be death itself, and the story suddenly becomes the memoir of a ghost.
Martin Nanther is a member of the British House of Lords, having inherited his title from his great-grandfather, Henry. Physician to Queen Victoria, Henry specialized in hemophilia, the disease that Her Majesty was known to have passed to her son, Leopold, and other descendants. While the House of Lords considers a Bill to abolish hereditary peerage and Martin's much younger, second wife is obsessed with becoming pregnant, he escapes into his slow research for a biography of Henry
His patient genealogical investigations uncover deaths in infancy of several young boys in his own family, and Martin soon realizes that hemophilia (rather than the family's legendary tuberculosis) is the cause. Was that irony merely a coincidence? Or was hemophilia in his own lineage the impetus for his grandfather's research and position in life? And why was the disease hushed? Was it possible that his grandfather deliberately sought a bride with the trait in order to investigate it in his own progeny?
Martin soon finds himself wondering if this well-respected, medical man actually committed murder, or was he merely waylaid by unexpected love? Without giving too much away, suffice it to say that the answers prove so surprising and so disturbing, that Martin decides to abandon the biography of his ancestor, even as he learns that his inherited peerage has been revoked and that his next child will soon be born.
The narrator of this story, a wounded American soldier, is recuperating from his injury in Milan, Italy. He receives treatments delivered by machines each afternoon at the hospital. His doctor seems overly optimistic. "You are a fortunate young man," he tells the narrator, promising the soldier that his injured knee and leg will recover well enough for him to play football again.
The physician's prognosis for another patient, an Italian major receiving treatment for a shriveled hand, is also dubious. The officer was once a renowned fencer and is now angry and bitter. His invalid condition and the recent death of his young wife from pneumonia have sapped his will. He professes no faith in the machines treating his hand injury and does not believe in bravery.
Injury fosters camaraderie and the narrator socializes with four other young men undergoing treatment at the hospital. The narrator admits his injury was not the result of heroic action but merely an accident. The medals he received were undeserved. Life may be a series of random events but some people have it worse than others. The only certainty in the lives of these characters is the fact that "the war was always there."
Summary:This story of one exceptionally accomplished family's discovery of their past and future relationships with Huntington's Disease (HD) is also the story of how the Wexler family changed the cultural narrative of HD for other families at risk for this genetically-transmitted and currently incurable disease. The HD diagnosis of Leonore Wexler (the author's mother) inspires Milton Wexler, a psychologist, to create a major foundation for HD research, which develops critical mass and influence as Leonore Wexler's condition deteriorates, and after her death. The book interweaves the story of the Wexlers' emotional and other negotiations with HD and the story of their efforts to create an HD community comprised of those with active symptoms of HD, family members, advocates, and researchers.