Showing 331 - 340 of 519 annotations tagged with the keyword "Disability"
Paul Monette wrote about his partner's life and death with AIDS in both prose (Borrowed Time: An AIDS Memoir, see this database) and poetry. This poem, a lyric elegy to Roger Horwitz, concerns Roger's loss of sight despite treatments for cytomegalovirus infection. It is a love poem; Monette's devotion to Roger is unbounded. If Roger cannot see, then the poet wishes not to see--this is empathy to the fullest degree.
When, in the up and down course of the visual problems, Roger can suddenly, temporarily see, then Monette gleefully cries, "I toss my blinders and drink the world like water." The poem contains numerous references to sight, light, and eyes, such as "blacked out windows / like an air raid," "peer impish intent as a hawk," and "I'm shut tight Oedipus-old."
This constant stream of images and the unpunctuated, no-place-to- relax-and-catch-your-breath rhythm of the poem leads the reader through the suffering and uncertainties and into the final lines--the mourning for Roger. Grief is loneliness; it is the desperate ache of MISSING someone. Monette feels isolated from "the sighted fools"--he yearns for Roger, who, through it all and despite feeling like Job, could "hoot on the phone / and wrestle the dog so the summer was still / the summer."
A down-and-out attorney, who has become somewhat obsessed with the case of a severely impaired woman who had suffered brain damage during the course of a surgical procedure, presses forward to prove medical malpractice. In the course of developing the case he is opposed by the Bishop of the diocese which owns the hospital in question; one of the most powerful law firms in the city; and, acting as "spy" for the defense team, a beautiful woman lawyer.
Galvin, the protagonist, is encouraged to continue his pursuit of justice by an honest former partner and his own belief in the patient's childrens' right to a settlement. Galvin wins his case by proving that the medical records have been altered.
An artist, suffering from psoriasis, believes he is "loathsome to love" because of his scaly skin. "The name of the disease, spiritually speaking, is Humiliation." The narrator creates gorgeous pottery--flawless, smooth--the opposite of his rough, splotchy skin. His retailer, Himmelfahrer (he who travels through Heaven), calls him a genius. His girlfriend, Carlotta, loves him the way he is.
However, as the narrator goes through drug and light treatments under the care of a dermatologist, his skin begins to clear, but his pottery gets ugly and rough, Himmelfahrer expresses distress at the loss of quality, and the love relation with Carlotta cools. The artist declares himself beautiful, his girlfriend leaves, and Himmelfahrer won't buy any of his "gargoylish" pottery.
Journalist Jonathan Eig traces the life of Lou Gehrig, one of the finest first basemen that major league baseball has ever known. Gehrig played as a tremendously reliable and powerful hitter for 17 seasons with the New York Yankees, the only team for which he played, many of them with Babe Ruth; he starred in 7 World Series games, playing on 6 championship teams. Gehrig's consecutive game streak of 2130 games, part of the reason for his nickname Iron Horse, was only broken recently, in 1995, by Cal Ripken, Jr. of the Baltimore Orioles.
Born June 19, 1903, Gehrig was only 35 years old when he developed the symptoms of amyotrophic lateral sclerosis, a neurodegenerative disease of vicious and progressive muscle wasting. He died June 2, 1941, quietly, at home. A relatively unknown disease at the time, amyotrophic lateral sclerosis, or ALS, soon became known as "Lou Gehrig's disease."
Moller is a sociologist who takes us into the world of the urban poor; he focuses on half a dozen individuals, giving intimate and moving portraits of them. An opening character is called Cowboy (a pseudonym); he lives under a bridge with his dog Cowgirl and dies a slow death of lung cancer. In an Epilogue (pp. 163-184) Moller calls him "an urban Thoreau." This respect for the dying poor pervades the book.
Besides descriptions of the characters, there is much dialogue, including extended quotations, but also some 100 small photographs, usually close-ups, inserted into the text. One photo shows a man in his coffin. Clearly Moller gets close to his characters, and so does the reader.
Moller argues that the dominant society--to its shame--neither supplies adequate care for this sector of society nor even recognition that such people exist. He calls the dying poor "an invisible world." It's a disturbing world, with the pain and neglect, but also an inspiring one, because of the caregivers such as social workers and nurses and the heroism and dignity of the patients presented.
This is a collection of two dozen case studies, written for non-medical readers, of patients with right-brain disorders. The chapters are divided into four groups: "Losses," dealing with loss of memory, cognition, and proprioceptive sense; "Excesses," with tics and other cases of overabundance; "Transports," with seizures and various "dreamy states," and "The World of the Simple," concerning mental retardation. In every case, Sacks focuses on the interior or existential world of the patient as the foundation of diagnosis and treatment. Sacks argues that this approach is appropriate for the right hemisphere, which compared to the left is less dedicated to specific skills and more dedicated to a "neurology of identity."
Sacks openly proposes these studies as a corrective to the field of neurology, which has tended to focus on the left hemisphere and therefore, he argues, has wound up treating patients solely in terms of specific deficits, often to their detriment. In "the higher reaches of neurology," and in psychology, Sacks argues, disease and identity must be studied together, and thus he recommends that neurologists "restore the human subject at the centre" of the case study. Sacks warmly recommends music, story-telling, and prayer as therapies that work by ignoring physiological defects and speaking to the patient's spirit or soul.
Margaret returns one afternoon from tennis to discover that Lewis, her husband, has committed suicide by taking an overdose of pain medication. Lewis had been bedridden from amyotrophic lateral sclerosis (ALS). They had thoroughly discussed his plan to kill himself before he was unable to do so, but Margaret is surprised when it happens because she expected Lewis to leave her a message. There is none.
As Margaret prepares for her husband’s cremation, she recalls the circumstances under which he left his teaching job--not because of the ALS, but because he used to teach human evolution in his high school biology class, without giving "equal weight" to creationism.
Because this upset many of his students’ parents and local clergy, the principal several times suggested that Lewis might at least give a nod to creationism. However, Lewis, an outspoken opponent of religion, was insulted by this proposal and quit his job.
The undertaker encourages Margaret to hold a wake--to comfort her and their many friends--but she insists that Lewis wanted no wake and no service. The next day the undertaker brings her Lewis’ ashes; she goes out into the country at night and disperses them.
Nina Spiers comes home to find that her husband, Lewis, has committed suicide. Lewis, a former high-school biology teacher, had ALS, and they had discussed this possibility, but Lewis has not included Nina in his final decision and its enactment. She searches in vain for a last message from Lewis, but can find nothing. We learn that Lewis left his teaching job over the community's pressure on him to incorporate the possibility of divine creation in his teaching of evolution; profoundly rationalist and scornful of religion, he refuses and resigns.
Lewis's body is taken to the local funeral home where, inadvertently, it is embalmed, which he would not have wanted. Ed Shore, the undertaker, arranges to have the body cremated immediately and brings Nina a note found in Lewis's pajamas. Instead of a message for her, it is a piece of badly-written satirical verse about the school and the argument between creationism and science. There is nothing for Nina.
Later Ed brings Nina the ashes. Ed and Nina have a history: once, on an evening when Lewis and Kitty, Ed's saint-loving Anglican wife, were engaged in a fierce argument, Ed had kissed Nina. Now, they talk of the preservation of the body and the existence of the soul. Nina then takes Lewis's ashes and scatters them at a crossroads outside of town. At first she feels shock at what she is doing, and then pain, but we infer too that as she sheds the comfortable self-effacement of her role as Lewis's wife, Nina is perhaps coming back to life herself.
Twelve-year-old Lily Star has lost her father and moved from a cabin in the woods on the river where she grew up fishing with her father, and where she knew the natural creatures as neighbors, to an apartment in the nearby city where she and her mother continue to run the family hardware store. While she still loves the river, she finds it hard to "forgive" it because it drowned her father in a boating accident. She also resents the fact that an important stretch of land along the river is being fenced off by the man to whom the cabin was sold--T.R.--a recluse in a wheelchair. Through a series of unpleasant encounters, Lily gets to know him and learns that he had been a pilot and was disabled in an accident.
The bond the two discover over time has to do with somewhat parallel paths of healing: he needs to "forgive" the sky as she does the river. She persuades him eventually to go boating with her. Even a fall in the water doesn't discourage him from taking on new life and hope by accepting Lily's invitations to get to know the river, the land, and the neighbors. Lily's hopes that he might remain and marry her mother are disappointed when he decides to return to work with planes, though he can no longer pilot them, but the friendship that strengthened them both in their struggles with grief and loss makes it a parting full of promise.
As Bertman says in her introduction, this book "is meant to refuel therapists, counselors, social workers, physicians, nurses, clergy and all others who are committed to providing support to those in grief." While the caregivers' focus is on those in grief, they also have to give some attention to their own bodies, minds and spirits. This collection of essays, poems and stories, illustrated with drawings and photographs, examines grief from several perspectives.
The opening section looks at professional roles in experiencing and understanding suffering and empathy. Section two provides several descriptions of how caregivers use the arts for themselves and for those they companion. Section three is devoted to lessons from old and new cultures. The final section explores basic needs of grieving people.