Showing 311 - 320 of 737 annotations tagged with the keyword "Illness and the Family"

The Glass Castle

Walls, Jeannette

Last Updated: Apr-14-2008
Annotated by:
Shafer, Audrey

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

The Glass Castle, a gripping memoir about growing up devastatingly poor in America, opens with this first line: "I was sitting in a taxi, wondering if I had overdressed for the evening, when I looked out the window and saw Mom rooting through a Dumpster." (p. 3) Jeanette Walls slinks down in the taxi's back seat and returns to her Park Avenue apartment. A few days later, she manages to contact her homeless mother and take her out for dinner, offering her help, yet again. But her mother refuses, and when asked what Jeannette is supposed to say about her parents, her mother replies "Just tell the truth...[t]hat's simple enough." (p.5) And with these words, Walls launches into the history of her upbringing, with all the deprivations, suffering, joys, shame, exasperations, tribulations and sorrows - the story of the Rex and Rose Mary Walls' family.

Rex Walls is an alcoholic and dreamer, his wife an artist and egoist; both are psychotically blind to the basic needs of their four children. Yet the parents do feed the children with love and intellectual stimulation, managing to keep the family unit intact while the children figure out how to survive. The reader first meets the child Jeannette at age three when she is on fire, cooking hot dogs on the stove in a trailer park, completely unsupervised. She requires multiple skin grafts but enjoys the regularity of hospital food, until six weeks later her father abducts her from the hospital in the first of a series of "skedaddles" that the reader learns is the way Rex Walls stays ahead of bill collectors and other authorities.

At each miserable turn, the reader wonders if things can get any worse. They do. The family winds up living in a rotting hut without plumbing in the coal mining town of Welch, West Virginia. Rex steals money from his children, Rose Mary buys herself art books instead of food for the family. The kids eat garbage they secretly remove from trash bins at school.

But finally, one by one, the kids do escape, although, like everyone, they carry the past within them. To varying degrees, each is scarred. Nonetheless, Jeannette works her way through Barnard in New York City and becomes a contributor to MSNBC. Ultimately the book is a tribute to the gutsy resilience of some remarkable individuals.

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Silvie's Life

Rogoff, Marianne

Last Updated: Apr-01-2008
Annotated by:
Aull, Felice

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

This book chronicles a tortured parenthood during the birth and brief life of a severely brain-damaged female infant, Silvie. Doctors predict that the child will live only a few days but instead she survives for seven months. The story is told in first person by the mother, beginning with her arduous labor during a home delivery in the presence of an experienced midwife and the family physician. The baby does not cry when she is born and turns blue even with oxygen that the doctor administers. An ambulance is summoned; "a bigger, better oxygen machine" restores the baby's color and she is brought to a hospital neonatal intensive care unit where she is artificially ventilated and fed.

In the hospital Silvie "fails" all the tests of normalcy. The doctors recommend removing artificial ventilation. "I feared, even more than I feared her death I think (and harder to admit), that they would remove the oxygen pump and the baby would live on and on and never be able to do anything at all" (14). Yet when the child does in fact breathe independently, "I took the fact that she could sustain her own breathing to mean that the baby wanted to live. It was all right to love her" (15). A few days later, however, the medical team concludes that there is nothing further they can do for the baby, that the parents should take the child home, where she will likely die within a couple of days. Upon being prodded, one physician suggests the parents give her an overdose of phenobarbital, which she is receiving for continual epileptic seizures.

At home, the parents feed Silvie by tube, medicate her, change her diapers, hold her, and learn from a friend how to swaddle her. The child never cries, does not focus her eyes on anything, rarely responds to sound or touch, and gains no weight. Whatever random responsiveness there seems to be gives the author a sense of motherhood: "I was able to survive because of my faith in these intermittent chance meetings, believing that Silvie did know when I was here and that I was holding her close in a way that meant love" (37). The parents brace themselves for Silvie's death. The husband's sister visits and councils them to actively put an end to Silvie's life, which they refuse to do. But they do not plan to take extra measures (CPR) if Silvie seems to be dying at home and when they articulate this to a social worker whom they consult to obtain respite care, it becomes clear that she would report them to Child Protective Services.

The husband quits his job as a residential counselor of emotionally disturbed teenagers to do part-time carpentry work -- he is too preoccupied to care about other people's problems. When a friend accidentally breaks the phenobarbital bottle, the parents together with the family physician decide to see how Silvie will get along without the drug. To their amazement, the baby appears slightly more alert and is able to suck from a bottle -- no more feeding tube required. But the husband reminds his wife, "The doctors warned us she might do this. This is the one and only thing she can ever learn. They said when this happened to other parents they started to believe that the baby was getting better" (59).

The parents live in limbo, attempt to live a "normal" life. When Silvie starts to lose weight at age 4 months, the doctor advises to resume tube feeding; they don't see the point, but when hospital physicians use the word, "murder," and threaten to "take over" Silvie's care, the parents relent. The baby lives but "it was the sameness of Silvie that drove you crazy . . . She slept and woke, but was awake that much different? She did not change, she did not change. Her sameness was a stone I wore, an emblem of failure, failed life" (96).

The final act for Silvie begins when the author's mother-in-law is dying of cancer in New York and a decision is made to leave the baby at home in California for several days in the care of a retired nurse. The nurse has been shown how to do the tube feeding, but while the parents are in New York she experiments with spoon feeding, then discontinues tube feeding for three days before the parents return. The parents see that Silvie has deteriorated in their absence and resume tube feeding. For the remaining couple of months the parents wait, investigate institutionalizing Silvie, and finally determine that "the way we loved Silvie meant we loved her enough to let her die" at home, with "a certain amount of fluid and nourishment for comfort, but a gradual withdrawal of excessive food. Replaced with a lot of touching and holding, stroking and whispering" (122). Silvie dies and the author is four months pregnant with the baby she and her husband have decided not to abort.

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Annotated by:
Davis, Cortney

Primary Category: Literature / Nonfiction

Genre: Memoir

Summary:

A woman is pregnant. She is a nurse married to a physician, Jeff, and they have a young son, Willie. The couple is pregnant with their second child. Long before her due date, the woman--author Susan LaScala--begins experiencing signs of premature labor. Because she is a nurse, because she is married to a doctor who takes call, she doesn't want to over-react or bother her obstetrician unnecessarily. But when vague aches turn into cramps, the author enters, as a patient, the world she had known, until then, only as a caregiver.

It is impossible, in a brief annotation, to describe fully the richness of this memoir. Because the author is a nurse, she brings to the story of the premature birth and survival of her daughter, Sarah, a wonderful double vision: LaScala tells this tale not only as a mother and a patient but also as a clinician able to explain, in simple language, the complex technologies used to sustain the life of her one pound nine ounce baby. The author's rendering of the bells and whistles of neonatal medicine, whether describing the process of intubating a preemie (p. 23) or ultrasounding a baby determined to survive (p. 182-3) are precise and haunting.

Equally compelling (and instructive for caregivers) are the author's candid revelations of how it feels to be a patient. She takes to "grading" the doctors and nurses--an "A" for the staff that lets her see her newborn girl (p. 3), and a "C" for a nurse with "No kind words. No warmth" (p.11). She describes her own bodily sensations in language both lovely and informing: the pushing and tugging she feels during her C-Section is a "quiet violence" (p.21); standing beside her daughter during the ventilator weaning process she feels "a witch's brew of fear and panic mixing and growing inside" (p. 225).

In an introduction, physician Barbara Wolk Stechenberg, describes the "gift" that the author has given by writing this memoir. The author has allowed Dr. Stechenberg, who was part of the team that saved Sarah, "a rare glimpse into two worlds" (p. xii). One was the world of intensive care nurses and how "they truly are the primary caregivers" (p. xii). The other world was that of physicians, who "may feel we are empathic and caring, but we really have no idea of the emotional roller coaster many of our parents are riding" (p. xii).

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The Memory Keeper's Daughter

Edwards, Kim

Last Updated: Mar-27-2008
Annotated by:
McEntyre, Marilyn

Primary Category: Literature / Fiction

Genre: Novel

Summary:

Because he can't reach the hospital in a winter snowstorm, Dr. David Henry ends up assisting his own wife in the birth of their twin children at his clinic with the help of his nurse, Caroline. The boy is fine; the girl has Down symdrome. While his wife is as yet unaware, he gives the girl baby to Caroline to take to an institution. Norah, his wife, remains unaware that she give birth to two children, yet is haunted by some sense of loss she can't name. Caroline, unable to leave the baby in an unappealing institutional setting, makes a snap decision to keep her. She leaves town, renewing communication later with the baby's father, and raises her as a single mother until she meets a man who is willing to marry her and love Phoebe as a daughter.

Only after Dr. Henry dies suddenly does his wife discover the existence of her daughter, through photographs sent to him over the years by Caroline, and then a visit from Caroline and Phoebe. Sadly, but with a will to choose life on strange and demanding terms, Norah and her son, Phoebe's brother, choose to enlarge their circle of family to include a loving relationship with Phoebe, clearly her own person, and the woman and man who have cared for her.

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The Age of Grief

Smiley, Jane

Last Updated: Mar-15-2008
Annotated by:
Duffin, Jacalyn

Primary Category: Literature / Fiction

Genre: Novella

Summary:

At dental school. Dave pursued Dana, the amazing and only woman in his class. Now married, they share a high quality private practice and raise their three little girls: Lizzie, Stephanie, and Leah. The ordinary chaos in the office and home of a professional couple is constant, though not insurmountable, and they enjoy the dental dramas of their patients, the childrens’ distinctive personalities, and the challenges of parenting. For example, two year-old Leah suddenly decides Dave is the centre of her universe, she shrieks when her previous favorite, Dana, comes near. The parents handle it together calmly without jealousy.

But Dave notices his beautiful, moody wife is drifting away; more precisely, he thinks she is having an affair. To keep this fear out of the realm of reality and confrontation, he scrupulously directs all talk toward work and kids, until his life is bent around avoiding any serious conversation with her at all. The children are anxious. He grieves for the losses of little things in their shared lives.

But when the family is felled by flu, all other problems recede. In rapid succession, children and parents collapse with fever, chills, and misery. Dave is up several nights with Leah, then he is sick himself just as Stephanie and Dana fall even more seriously ill. Drunk with fatigue and terrified that Stephanie might die, he takes her to hospital. They all recover, and the world seems harmonious. Dave begins to think he had imagined his wife’s distraction until he is jolted back to his worry when Dana vanishes.

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The Crazy Man

Porter, Pamela

Last Updated: Mar-15-2008
Annotated by:
Duffin, Jacalyn

Primary Category: Literature / Fiction

Genre: Novel for Young Adults

Summary:

Twelve year -old Emaline is riding with her father as he discs their fields, when she sees her beloved dog Prince running dangerously close to the blades. In trying to stop him, she falls off the tractor and her leg is sliced almost completely through. In anger, her father shoots Prince and leaves home. She is rushed to hospital where a series of operations and treatments save her limb, although it is permanently shortened and she walks with a limp.

The fields need seeding. In desperation Emmy’s mother appeals to the local “mental hospital,” and Angus, the crazy man, arrives to help. Emmy is warned to stay clear of him, and neighbours gawk, but she begins to notice his special qualities. He quietly sows the fields with blue flax and yellow mustard rather than the unsellable wheat. He helps fit her with a built up shoe, and he is steadfast though frightened when falsely accused of theft. Yet some neighbours, like Harry Record, cannot adapt to Angus and believe that the family is taking risks. Just as Angus is the object of ridicule, Emmy is mercilessly teased for her deformity by Record’s son, Joey.

One night in a snowstorm both Joey and Angus disappear. Angus has been driven out of town and dumped by Harry Record, but he finds Joey lost in the storm and brings him home. Record refuses to accept his guilt and pleads not guilty. As the book ends Angus is more accepted, but a trial is looming, in which Emmy and Joey will have to give evidence against his father.

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Consumption

Patterson, Kevin

Last Updated: Mar-04-2008
Annotated by:
Miksanek, Tony

Primary Category: Literature / Fiction

Genre: Novel

Summary:

In the Arctic, winter goes on for ten months every year. The cold temperatures penetrate every aspect of human life. Existence is a struggle. In the Canadian community of Rankin Inlet, an Inuit woman finds personal tragedy as abundant as the snow. Victoria is diagnosed with tuberculosis (puvaluq) as a child and sent to a sanatorium far south of home. Following treatment with medication and a thoracoplasty, she returns to her town years later. Victoria's experience has changed her view of the world but she quickly discovers that in her absence, the people and locale have transformed too.

She marries an outsider, John Robertson, who is a British businessman. His success and local influence allow him to arrange for a foreign-owned diamond mine to open in the area, and with it, a new hospital for the territory. The couple have three children - a son, Pauloosie, along with two daughters, Justine and Marie.

Victoria seems a magnet for misfortune. At age 16, she has a miscarriage. A fourth child dies during a complicated delivery. Her marriage is increasingly strained beyond repair. Victoria's father suffers a stroke and becomes demented. Her mother dies of lung cancer. Husband John is murdered - someone slits his throat. Marie commits suicide. Pauloosie leaves home and sails to the South Pacific.

The Robertson family frequently interacts with the American primary care physician stationed in the isolated region. Dr. Keith Balthazar is a middle-aged atheist who has toiled in the Arctic for more than 20 years and abuses morphine. He keeps a journal of his experiences and meditations and commiserates with the local priest, Father Bernard.

Escape appears to be the best chance at happiness. For Victoria and most everyone else living in this harsh and beautiful land, survival - both physical and emotional - is hard. Personal choices are confusing. Nature doesn't seem to care one way or another.

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Beyond Harm

Olds, Sharon

Last Updated: Feb-21-2008
Annotated by:
Aull, Felice

Primary Category: Literature / Poetry

Genre: Poem

Summary:

The poem expresses the devastation that parental abusiveness inflicts and the rationalizations its recipients adopt for emotional survival. In a perverse way, childhood mistreatment by her father meant the narrator was being given his attention. His death has guaranteed that the loving relationship which she had with him at the end of his life is safe from harm. So precarious did she believe his love to be that she feared even now to offend him: "he could / re-skew my life."

 

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Annotated by:
Duffin, Jacalyn

Primary Category: Visual Arts / Painting/Drawing

Genre: Art with Commentary

Summary:

The basis for this autobiographical essay on the experience of having a malignancy are 92 illustrations, all the work of the author; they include 32 ink or woodcut sketches, 24 charcoal drawings, and many acrylic paintings (16 in full colour). Pope's images evoke the dependence, fear, loneliness, pain, and even the mutilation surrounding cancer illness and therapy.

He describes in plain language the course of his own illness, diagnosis, and treatment; he also relates the experiences of a few fellow patients. Most intriguing is his ready description of the stories behind his pictures: who posed, how he painted them, and what exactly he was trying to convey. When the book was published, Pope was in a hard-won remission from Hodgkin's Disease, but he died the following year of treatment-induced bone marrow failure.

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Annotated by:
Duffin, Jacalyn

Primary Category: Visual Arts / Visual Arts

Genre: Mixed

Summary:

The basis for this autobiographical essay on the experience of having a malignancy are 92 illustrations, all the work of the author; they include 32 ink or woodcut sketches, 24 charcoal drawings, and many acrylic paintings (16 in full colour). Pope's images evoke the dependence, fear, loneliness, pain, and even the mutilation surrounding cancer illness and therapy.

He describes in plain language the course of his own illness, diagnosis, and treatment; he also relates the experiences of a few fellow patients. Most intriguing is his ready description of the stories behind his pictures: who posed, how he painted them, and what exactly he was trying to convey. When the book was published, Pope was in a hard-won remission from Hodgkin's Disease, but he died the following year of treatment-induced bone marrow failure.

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