Showing 111 - 120 of 154 annotations tagged with the keyword "AIDS"
This collection of over ninety photographs and their stories celebrates an "unsung army of great healers," caregivers of persons with AIDS. Herself infected with the HIV virus, mother and AIDS activist Mary Fisher chronicles painful, private, and precious moments of interaction between patients, families, lovers, friends, and "professionals," in home, hospital, clinic, and other settings (a women’s prison on Riker’s Island, a homeless shelter in Boston, a nursery in West Palm Beach). Interspersed with the photographs and commentary are excerpts from Fisher’s letters and addresses including her show-stopping televised speech at the 1992 Republican National Convention.
A man and woman, probably late middle-aged and married, check into a tropical holiday resort for their last annual vacation. One of them is dying. The man begins telling stories to the woman, as he has promised to, in the unspoken hope of postponing the ending that will separate them. The book consists of the twelve stories he tells, interspersed with her responses to the stories. Each story is in some way about the same two things: about being half of a couple--about love, partnership, and the prospect of loss--and about narrative--about communication, the construction of meaning, and about the way all stories (and lives), sooner or later, must end.
Like their teller, though, these stories do their best not to reach closure. An example is the second story, "Ad Infinitum," in which a woman receives some bad news by telephone--we deduce it concerns her husband's cancer diagnosis--and goes out to where he is working in the garden in order to tell him the news. She has to cross the space of the garden before giving him the information that will change everything for the worse, beginning the end of his life and their marriage.
It occurs to her that the space she must cross can be infinitely extended if, as Zeno's paradox has it, she can keep halving the distance that remains before she reaches her husband (and thus the end of their story). This would infinitely suspend time in their story. And yet, as she walks, she also knows she WILL reach him . . . until the narrator intervenes by breaking into her thoughts and beginning another story, effectively enacting Zeno's theory of the arrow that keeps re-beginning its flight towards the target. Just as stories stave off death in the frame narrative, they seem able to keep this man happily and innocently gardening, in suspended story-time at least, forever.
In the last story, the narrator returns to all the others, pulling together their interconnected patterns and allowing each a kind of closure that, while it reiterates the storyteller's resistance to endings, his act of "beguiling" himself, his wife, and perhaps death itself, "with narrative possibilities still unforeclosed" (224), also reminds us that stories need to end in order to mean.
Summary:Dominating the image, a vengeful Satan with arms outstretched stands upon Job's prone body dispensing boils from a vial with his left hand while shooting arrows at him with his right. Job's head is thrown back and his hands are lifted off the ground in a sign of agony. His weeping wife kneels at his feet. The background is minimal yet dramatic with its dark swirling clouds, bright setting sun, and Satan's huge blood red wings.
Summary:Premiering on November 11, 1985, An Early Frost was the first television film to deal with the subject of AIDS. It tells the story of Michael Pierson (Aidan Quinn), a young and successful Chicago attorney who is gay and who is stricken with AIDS. After being hospitalized, Michael goes home to break the news of both his devastating illness and his sexual orientation to his parents (Gena Rowlands and Ben Gazzara). They must not only come to terms with their son's impending death but also with their own prejudices concerning homosexuality and their own ignorance concerning this disease.
Summary:A man suffers from a disease that "came / from love, or some / such place" (AIDS?). He has come home to his father's house to die. He grows thin, his sores will not heal, family and friends grow distant. While in the kitchen family members discuss how much the illness affects them, the sick man himself is already in hell, "which is / the living room . . . . "
Ruth Picardie was a journalist working in London. Shortly after her marriage in 1994 to Matt Seaton, also a journalist, she found a breast lump. After testing, she was told it was benign. Two years later, and a year after giving birth to twins, the lump enlarged and this time she was diagnosed with advanced, inoperable breast cancer. She rapidly developed bone, liver, and brain metastases and died in September 1997, aged 33.
This book consists of a selection of Picardie's e-mail correspondence during the last year of her life, the columns she wrote for the Observer newspaper (a series about dying she called "Before I say goodbye"), readers' letters responding to her column, and an introduction and epilogue by her husband. While not, then, strictly a memoir, this collection of texts constitutes an intimate view of a witty, angry young woman undergoing an intolerable illness.
The expected elements are there: diagnosis, chemotherapy, radiation, hope, the loss of hope. What is unexpected is the way these are presented, and the vividness with which we share the prospect of saying good bye to her children, her gradual detachment from her husband, and, as the brain metastases spread, the loss of coherence and the appalling silencing of her powerful voice.
The first poem in this chapbook ("Sonogram") contains two images of a small, mysterious life (the fetus imagined as a "white boat on whiter water" and as a "tiny orca") in the midst of the coldly technical medical world. This juxtaposition is characteristic of B. A. St. Andrews's poems in this small collection. In most of them, she uses disciplined and sparkling language to explore the interface between modern medicine with its impersonal machinery and the irreducible mystery of life.
Some of the images are simply breathtaking. For example, in "A Dying Art: Room 309," a terminally ill artist lies in bed, surrounded by "plastic bags that hang / like udders dripping pigment / into her." In a love poem called "The Body of Science," the poet confesses, "Each time your voluntary / muscles make contact / my involuntary ones / contract." And at the end of "Alzheimer's," she observes, "She stood at the big bay / window screaming but he never / heard what it was she never said."
The four poems entitled "Your Breast a Unicorn" consider the fate of breasts attacked "at consolation's center" by "one aberrant cell metastasized." These learned, wise, and witty poems are, in my opinion, among the very best of the breast cancer genre.
Crossing Over presents "extended, richly detailed, multiperspectival case narratives" of 20 dying patients served by the Hospice of Lancaster County in Pennsylvania and the Palliative Care Service of Royal Victoria Hospital in Montreal. These complex narratives (each written by a single author) reveal the patient’s story from many points of view, including those of family members and professional caregivers.
The authors explain how this project differs from recent books of clinical narratives by Timothy Quill (A Midwife Through the Dying Process, 1996), Ira Byock (Dying Well: The Prospect of Growth at the End of Life, 1997), and Michael Kearney (Mortally Wounded. Stories of Soul Pain, Death and Healing, 1996 [see entry in this database]). Barnard et al. point out that Quill, Byock, and Kearney are "passionate advocates for their own styles of care . . . Yet these very characteristics--advocacy and close personal involvement--limit their books in important respects." (p. 5) Basically, these authors select cases that illustrate the efficacy of their models and present the patients’ stories from their own point of view.
Crossing Over draws on a standard qualitative methodology that includes tape-recorded interviews of patients, families, and health care professionals; chart reviews; and participant observation. After the introduction, the narratives occupy 374 pages of text (almost 19 pages per patient). Part II of the book, entitled "Working with the Narratives," includes a short chapter on research methods and 29 pages of "Authors’ Comments and Questions for Discussion." The latter is designed to be used as a teaching guide.
The Exact Location of the Soul is a collection of 26 essays along with an introduction titled "The Making of a Doctor/Writer." Most of these essays are reprinted from Selzer's earlier books (especially Mortal Lessons and Letters to a Young Doctor). Six pieces are new and include a commentary on the problem of AIDS in Haiti ("A Mask on the Face of Death"), musings on organ donation ("Brain Death: A Hesitation"), a conversation between a mother and son ("Of Nazareth and New Haven"), and the suicide of a college student ("Phantom Vision").
Summary:This is a collection of poems by members of an AIDS workshop run for Gay Men’s Health Crisis in New York by poet Rachel Hadas. The poetry is framed by an introductory essay by Hadas, "The Lights Must Never Go Out," and a long concluding chapter that includes Hadas’s reflections on the poetry collection, her own experiences with illness, and many of her own poems.